Disability by association for siblings of adolescents and adults with cognitive disabilities

References

• Scavarda 2020a. "’Come pinguini nel deserto’. Strategie di resistenza allo stigma di famiglie con figli autistici e con Trisomia 21", Rassegna Italiana di Sociologia 61 (3): 537–561.
   Google Scholar
• Cardano, M., Cioffi, M. Scavarda, A. 2020. Sofferenza psichica, follia, disabilità, in Cardano, M., Giarelli, G., Vicarelli, G. (eds) Sociologia della Salute e della Medicina, Bologna: Il Mulino 129–153.
   Google Scholar
• Scavarda 2020b. Pinguini nel deserto. Strategie di resistenza allo stigma da Autismo e Trisomia 21, Bologna: Il Mulino.
   Google Scholar
• Scavarda 2021. "Quale sociologia della disabilità? Per una proposta teorica post-convenzionale allo studio della disabilità". Quaderni di Teoria Sociale 2: 183-205.
   Google Scholar
• Scavarda, A., Cascio, M. A. 2022. "Embracing and rejecting the medicalization of autism in Italy". Social Science and Medicine, 294:114728.
   Google Scholar
• Genova, A., Scavarda, A., Swiatkiewicz-Mosny, M. (eds, 2023). Disability Welfare Policy in Europe: Cognitive Disability and the Impact of the Covid-19 Pandemic, Bingley: Emerald
   Google Scholar
• Ablon, J. 1990. “Ambiguity and Difference: Families with Dwarf Children.” Social Science & Medicine 30 (8): 879–887. doi:10.1016/0277-9536(90)90215-e.
   PubMed Web of Science ®Google Scholar
• Arnold, C. K., T. Heller, and J. Kramer. 2012. “Support Needs of Siblings of People with Developmental Disabilities.” Intellectual and Developmental Disabilities 50 (5): 373–382. doi:10.1352/1934-9556-50.5.373.
   PubMed Web of Science ®Google Scholar
• Azeez, C. C. 2002. “Siblings of People with Disabilities: A Developmental Analysis of the Effects, Impacts, and Patterns of Adaptation.” PhD, University of Massachusetts, Amherst.
   Google Scholar
• Baldwin, S., and J. Carlisle. 1994. Social Support for Disabled Children and Their Families: A Review of the Literature. Edinburgh: HMSO.
   Google Scholar
• Battaglia, A., A. Canevaro, M. Chiurchiu, A. Leone, M. M. Pierro, and A. M. Sorrentino. 2002. Figli per Sempre. La Cura Continua Del Disabile Mentale, Roma: Carocci Faber.
   Google Scholar
• Birenbaum, A. 1970. “On Managing a Courtesy Stigma.” Journal of Health and Social Behavior 11 (3): 196–206. doi:10.2307/2948301.
   Web of Science ®Google Scholar
• Burke, P. 2010. “Brothers and Sisters of Disabled Children: The Experience of Disability by Association.” British Journal of Social Work 40 (6): 1681–1699. doi:10.1093/bjsw/bcp088.
   Web of Science ®Google Scholar
• Coyle, C. E., J. Kramer, and J. E. Mutchler. 2014. “Aging Together: Sibling Carers of Adults with Intellectual and Developmental Disabilities.” Journal of Policy and Practice in Intellectual Disabilities 11 (4): 302–312. doi:10.1111/jppi.12094.
   Web of Science ®Google Scholar
• Dew, A., G. Llewellyn, and S. Balandin. 2004. “Post-Parental Care: A New Generation of Sibling-Carers.” Journal of Intellectual & Developmental Disability 29 (2): 176–179. doi:10.1080/13668250410001709520.
   Web of Science ®Google Scholar
• Foucault, M. 1979. “On Governmentality.” Ideology and Consciousness 6: 5–22.
   Google Scholar
• Giallo, R., and S. Gavidia‐Payne. 2006. “Child, Parent and Family Factors as Predictors of Adjustment for Siblings of Children with a Disability.” Journal of Intellectual Disability Research : JIDR 50 (Pt 12): 937–948. doi:10.1111/j.1365-2788.2006.00928.x.
   PubMedGoogle Scholar
• Goffman, E. 1963. Stigma, Notes on the Management of the Spoiled Identity, Englewood Cliffs, NJ: Prentice Hall.
   Google Scholar
• Goodley, D. 2016. Disability Studies: An Interdisciplinary Introduction. London: Sage.
   Google Scholar
• Goodley, D., and K. Runswick-Cole. 2016. “Becoming Dishuman: Thinking about the Human through Dis/Ability.” Discourse: Studies in the Cultural Politics of Education 37 (1): 1–15. doi:10.1080/01596306.2014.930021.
   Web of Science ®Google Scholar
• Griffiths, D. L., and D. G. Unger. 1994. “Views about Planning for the Future among Parents and Siblings of Adults with Mental Retardation.” Family Relations 43 (2): 221–227. doi:10.2307/585326.
   Web of Science ®Google Scholar
• Guse, T., and C. Harvey. 2010. “Growing up with a Sibling with Dwarfism: Perceptions of Adult Non‐Dwarf Siblings.” Disability & Society 25 (3): 387–401. doi:10.1080/09687591003701322.
   Web of Science ®Google Scholar
• Hernandez-Saca, D. I., and M. A. Cannon. 2016. “Disability as Psycho-Emotional Disablism: A Theoretical and Philosophical Review of Education Theory and Practice.” In Encyclopedia of Educational Philosophy and Theory, edited by Peters, M. A. Singapore, Springer Science and Business Media.
   Google Scholar
• Hodapp, R. M., L. M. Glidden, and A. P. Kaiser. 2005. “Siblings of Persons with Disabilities: Towards a Research Agenda.” Mental Retardation 43: 334–338.
   PubMedGoogle Scholar
• King, N., and J. M. Brooks. 2016. Template Analysis for Business and Management Students. London: Sage.
   Google Scholar
• Kramer, J., and C. Coyle. 2013. “Changing Profiles in Family Caregiving: Sibling Caregivers of Adults Aging with Intellectual or Developmental Disabilities.” Paper presented at the 2013 Roundtable on Aging and Intellectual Disability, 19 September, Simmons College, Boston MA.
   Google Scholar
• McGraw, L. A., and A. J. Walker. 2007. “Meanings of Sisterhood and Developmental Disability: Narratives from White Nondisabled Sisters.” Journal of Family Issues 28 (4): 474–500. doi:10.1177/0192513X06297312.
   Web of Science ®Google Scholar
• Medeghini, R., and E. Valtellina. 2006. Quale Disabilità?: Culture, Modelli e Processi di Inclusione, Milano: Franco Angeli.
   Google Scholar
• Medeghini, R., S. D’Alessio, A. Marra, G. Vadalà, and E. Valtellina. 2013. Disability Studies. Emancipazione, Inclusione Scolastica e Sociale, Cittadinanza. Trento: Erickson.
   Google Scholar
• Goodley, D., S. D’Alessio, B. Ferri, F. Monceri, T. Titchkosky, G. Vadalà, … R. Medeghini. 2018. “Disability Studies e Inclusione.” Per Una Lettura Critica Delle Politiche e Pratiche Educative. Erickson, Trento.
   Google Scholar
• Meltzer, A., and J. Kramer. 2016. “Siblinghood through Disability Studies Perspectives: Diversifying Discourse and Knowledge about Siblings with and without Disabilities.” Disability & Society 31 (1): 17–32. doi:10.1080/09687599.2015.1127212.
   Web of Science ®Google Scholar
• Parker, R., and P. Aggleton. 2007. “HIV-and AIDS-Related Stigma and Discrimination: A Conceptual Framework and Implications for Action.” In Culture, Society and Sexuality, edited by Parker, R., & Aggleton, P., 459–474. London, Routledge.
   Google Scholar
• Pilowsky, P., N. Yirmiya, O. Doppelt, V. Gross-Tsur, and R. S. Shalev. 2004. “Social and Emotional Adjustment of Siblings of Children with Autism.” Journal of Child Psychology and Psychiatry, and Allied Disciplines 45 (4): 855–865. doi:10.1111/j.1469-7610.2004.00277.x.
   PubMed Web of Science ®Google Scholar
• Powell, T. H., P. A. Gallagher, and C. A. Rhodes. 2006. Brothers and Sisters – a Special Part of Exceptional Families. Baltimore, MD: Paul H. Brookes.
   Google Scholar
• Reeve, D. 2013. “Psycho-Emotional Disablism: The Missing Link?.” In Routledge Handbook of Disability Studies, edited by Watson, N., Roulstone, A., and Thomas, C., First Edition, 92–106. London: Routledge.
   Google Scholar
• Reeve, D. 2014. “Psycho-Emotional Disablism.”, In Disability Studies. A Student’s Guide, edited by Cameron C. London: Sage.
   Google Scholar
• Scambler, G., and A. Hopkins. 1986. “Being Epileptic: Coming to Terms with Stigma.” Sociology of Health and Illness 8 (1): 26–43. doi:10.1111/1467-9566.ep11346455.
   Web of Science ®Google Scholar
• Scambler, G. 2018. “Heaping Blame upon Shame: ‘Weaponising Stigma’ for Neoliberal Times.” The Sociological Review 66 (4): 766–782. doi:10.1177/0038026118778177.
   Web of Science ®Google Scholar
• Schneider, J. W., and P. Conrad. 1980. “In the Closet with Illness: Epilepsy, Stigma Potential and Information Control.” Social Problems 28 (1): 32–44. doi:10.2307/800379.
   Web of Science ®Google Scholar
• Seligman, M., and R. B. Darling. 2007. Ordinary Families, Special Children. New York: Guilford.
   Google Scholar
• Shakespeare, T., and N. Watson. 2001. “The Social Model of Disability: An Outdated Ideology.” Research in Social Science and Disability 2 (1): 9–28.
   Google Scholar
• Skotko, B. G., and S. P. Levine. 2006. “What the Other Children Are Thinking: Brothers and Sisters of Persons with down Syndrome.” American Journal of Medical Genetics Part C: Seminars in Medical Genetics 142C (3): 180–186. doi:10.1002/ajmg.c.30101.
   PubMed Web of Science ®Google Scholar
• Stainton, T., and H. Besser. 1998. « “The Positive Impact of Children with an Intellectual Disability on the Family.” Journal of Intellectual & Developmental Disability 23 (1): 57–70. doi:10.1080/13668259800033581.
   Web of Science ®Google Scholar
• Stalker, K., and C. Connors. 2004. “Children’s Perceptions of Their Disabled Siblings: ‘She’s Different but It’s Normal for us.” Children & Society 18 (3): 218–230. doi:10.1002/chi.794.
   Google Scholar
• Stoneman, Z. 2005. “Siblings of Children with Disabilities: Research Themes.” Mental Retardation 43 (5): 339–350. doi:10.1352/0047-6765(2005)43[339:SOCWDR.[PMC]2.0.CO;2]
   PubMedGoogle Scholar
• Thomas, C. 1999. Female Forms: Experiencing and Understanding Disability. London: McGraw-Hill Education.
   Google Scholar
• Titchkosky, T., and D. Goodley. 2018. “La Necessità Dell’immaginazione. Le Poltiiche in Materia di Disabilità ai Tempi Del TrumpBrexit.” in (AA.V.V.) Disability Studies e Inclusione. Per Una Lettura Critica Delle Politiche e Pratiche Educative, Trento: Erickson.
   Google Scholar