193
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Being a disabled woman in a global pandemic: a focus group study in the United States along with policy recommendations

, &
Received 17 Jul 2022, Accepted 29 May 2023, Published online: 22 Jun 2023

References

  • Adichie, Chimamanda. 2009. “The Danger of a Single Story.” TED Radio Hour. National Public Radio. https://www.npr.org/2013/09/20/186303292/what-are-the-dangers-of-a-single-story.
  • Alliance for Disability in Health Care Education. 2019. Core Competencies on Disability for Health Care Education. Peapack, NJ: Alliance for Disability in Health Care Education. http://www.adhce.org/.
  • Andrews, E. E., K. B. Ayers, K. S. Brown, D. S. Dunn, and C. R. Pilarski. 2021. “Nobody is Expendable: Medical Rationing and Disability Justice during the COVID-19 Pandemic.” The American Psychologist 76 (3): 451–461. https://doi.org/10.1037/amp0000709
  • Ayataç, H. 2021. “Accessibility in Disaster-Resilient Cities.” Journal of Design for Resilience in Architecture and Planning 2 (3): 295–310. https://doi.org/10.47818/DRArch.2021.v2i3026
  • Boyle, C. A., M. H. Fox, S. M. Havercamp, and J. Zubler. 2020. “The Public Health Response to the COVID-19 Pandemic for People with Disabilities.” Disability and Health Journal 13 (3): 100943. https://doi.org/10.1016/j.dhjo.2020.100943
  • Brennan, C. S., S. Allen, R. Arnold, I. B. Cojocariu, D. C. Milovanovic, S. Gurbai, A. Hardy, et al. 2020. “Disability Rights during the Pandemic: A Global Report on Findings of the COVID-19 Disability Rights Monitor.” https://www.internationaldisabilityalliance.org/sites/default/files/disability_rights_during_the_pandemic_report_web_pdf_1.pdf.
  • Centers for Disease Control and Prevention. 2022. “Disability and Health Information for Women with Disabilities.” https://www.cdc.gov/ncbddd/disabilityandhealth/women.html.
  • Centers for Disease Control and Prevention. 2023. “Disability Impacts All of Us.” https://www.cdc.gov/ncbddd/disabilityandhealth/infographic-disability-impacts-all.html.
  • Chinn, J. J., I. K. Martin, N, and Redmond, N. 2021. “Health Equity among Black Women in the United States.” Journal of Women’s Health (2002) 30 (2): 212–219. https://doi.org/10.1089/jwh.2020.8868
  • Cobley, D. S. 2022. “Rising to the Challenge: Disability Organisations in the COVID-19 Pandemic.” Disability & Society 1–20. https://doi.org/10.1080/09687599.2022.2114884
  • Czeisler, M. É., A. Board, J. M. Thierry, C. A. Czeisler, S. M. Rajaratnam, M. E. Howard, and K. E. Clarke. 2021. “Mental Health and Substance Use among Adults with Disabilities during the COVID-19 Pandemic—United States, February–March 2021.” MMWR. Morbidity and Mortality Weekly Report 70 (34): 1142–1149. https://doi.org/10.15585/mmwr.mm7034a3
  • Department of Labor, United States. 2021. “Spotlight on Women with Disabilities.” https://www.dol.gov/sites/dolgov/files/ODEP/pdf/Spotlight-on-Women-with-Disabilities-March-2021.pdf.
  • Deroche, M. D., B. Herlihy, and M. L. Lyons. 2020. “Counselor Trainee Self‐Perceived Disability Competence: Implications for Training.” Counselor Education and Supervision 59 (3): 187–199. https://doi.org/10.1002/ceas.12183
  • Dobransky, K., and E. Hargittai. 2021. “Piercing the Pandemic Social Bubble: Disability and Social Media Use about COVID-19.” American Behavioral Scientist 65 (12): 1698–1720. https://doi.org/10.1177/00027642211003146
  • Doebrich, A., M. Quirici, and C. Lunsford. 2020. “COVID-19 and the Need for Disability Conscious Medical Education, Training, and Practice.” Journal of Pediatric Rehabilitation Medicine 13 (3): 393–404. https://doi.org/10.3233/PRM-200763
  • Dunn, J., S. K. Chambers, and M. K. Hyde. 2016. “Systematic Review of Motives for Episodic Volunteering.” VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations 27 (1): 425–464. https://doi.org/10.1007/s11266-015-9548-4
  • Ebuenyi, I. D., I. Gitonga, A. Tele, and E. V. Syurina. 2022. “Unemployment in Women with Psychosocial Disabilities during the COVID‐19 Pandemic: Lessons from Tana River County, Kenya.” Journal of International Development 34 (5): 1018–1027. https://doi.org/10.1002/jid.3638
  • Emir Öksüz, E., and,M. D. Brubaker. 2020. “Deconstructing Disability Training in Counseling: A Critical Examination and Call to the Profession.” Journal of Counselor Leadership and Advocacy 7 (2): 163–175. 10.1080/2326716X.2020.1820407.
  • Epstein, S., K. Ayers, and B. K. Swenor. 2021. “COVID-19 Vaccine Prioritization for People with Disabilities.” The Lancet Public Health 6 (6): e361. https://doi.org/10.1016/S2468-2667(21)00093-1
  • Epstein, S., J. Campanile, C. Cerilli, P. Gajwani, V. Varadaraj, and B. K. Swenor. 2021. “New Obstacles and Widening Gaps: A Qualitative Study of the Effects of the COVID-19 Pandemic on U.S. Adults with Disabilities.” Disability and Health Journal 14 (3): 101103. https://doi.org/10.1016/j.dhjo.2021.101103
  • Fisher, M. H., C. Sung, R. R. Kammes, C. Okyere, and J. Park. 2022. “Social Support as a Mediator of Stress and Life Satisfaction for People with Intellectual or Developmental Disabilities during the COVID‐19 Pandemic.” Journal of Applied Research in Intellectual Disabilities : JARID 35 (1): 243–251. https://doi.org/10.1111/jar.12943
  • Frawley, P. 2020. “Lived Experience of People with Disabilities: Shaping Policy and Practice.” Australian Institute of Family Studies. Accessed 5 July 2022. https://aifs.gov.au/cfca/2020/10/13/lived-experience-people-disabilities-shaping-policy-and-practice.
  • Friedman, C. 2022. “A Report on the Increased Payment Rates for HCBS for People with Intellectual and Developmental Disabilities during the COVID-19 Pandemic.” Journal of Developmental and Physical Disabilities 1–20. https://doi.org/10.1007/s10882-022-09886-1
  • Government Accountability Office (U.S. GAO). 2022. “Women in the Workforce: The Gender Pay Gap Is Greater for Certain Racial and Ethnic Groups and Varies by Education Level.” https://www.gao.gov/products/gao-23-106041.
  • Holm, M. E., P. Sainio, S. Parikka, and S. Koskinen. 2022. “The Effects of the COVID-19 Pandemic on the Psychosocial Well-Being of People with Disabilities.” Disability and Health Journal 15 (2): 101224. https://doi.org/10.1016/j.hdjo.2021.101224
  • IIezzoni, L. I., S. R. Rao, J. Ressalam, D. Bolcic-Jankovic, N. D. Agaronnik, K. Donelan, T. Lagu, and E. G. Campbell. 2021. “Physicians’ Perceptions of People with Disability and Their Health Care.” Health Affairs (Project Hope) 40 (2): 297–306. https://doi.org/10.1377/hlthaff.2020.01452. 33523739
  • Iezzoni, L. I., and L. M. Long-Bellil. 2012. “Training Physicians about Caring for Persons with Disabilities: ‘Nothing about Us without Us!.” Disability and Health Journal 5 (3): 136–139. https://doi.org/10.1016/j.dhjo.2012.03.003
  • Jalali, M., S. Shahabi, K. B. Lankarani, M. Kamali, and P. Mojgani. 2020. “COVID-19 and Disabled People: Perspectives from Iran.” Disability & Society 35 (5): 844–847. https://doi.org/10.1080/09687599.2020.1754165
  • Jashinsky, T. L., C. L. King, N. M. Kwiat, B. L. Henry, and A. Lockett‐Glover. 2021. “Disability and COVID‐19: Impact on Workers, Intersectionality with Race, and Inclusion Strategies.” The Career Development Quarterly 69 (4): 313–325. https://doi.org/10.1002/cdq.12276
  • Jesus, T. S., M. D. Landry, and K. Jacobs. 2020. “A ‘New Normal’ following COVID-19 and the Economic Crisis: Using Systems Thinking to Identify Challenges and Opportunities in Disability, Telework, and Rehabilitation.” Work (Reading, Mass.) 67 (1): 37–46. https://doi.org/10.3233/WOR-203250
  • Kaehne, A., and C. O’Connell. 2010. “Focus Groups with People with Learning Disabilities.” Journal of Intellectual Disabilities : JOID 14 (2): 133–145. https://doi.org/10.1177/1744629510381939
  • Kamalakannan, S., S. Bhattacharjya, Y. Bogdanova, C. Papadimitriou, J. C. Arango-Lasprilla, J. Bentley, T. S. Jesus, and Refugee Empowerment Task Force, International Networking Group of the American Congress of Rehabilitation Medicine. 2021. “Health Risks and Consequences of a COVID-19 Infection for People with Disabilities: Scoping Review and Descriptive Thematic Analysis.” International Journal of Environmental Research and Public Health 18 (8): 4348. https://doi.org/10.3390/ijerph18084348
  • Koca-Atabey, M. 2021. “Disability and Old Age: The COVID-19 Pandemic in Turkey.” Disability & Society 36 (5): 834–839. https://doi.org/10.1080/09687599.2021.1907550
  • Kroll, T.,R. Barbour, andJ. Harris. 2007. “Using Focus Groups in Disability Research.” Qualitative Health Research 17 (5): 690–698. https://doi.org/10.1177/1049732307301488. 17478650
  • Lagu, T., C. Haywood, K. Reimold, C. DeJong, R. Walker Sterling, and L. I. Iezzoni. 2022. “I Am Not the Doctor for You’: Physicians’ Attitudes about Caring for People with Disabilities.” Health Affairs (Project Hope) 41 (10): 1387–1395. https://doi.org/10.1377/hlthaff.2022.00475
  • Lancet Public Health. 2021. “Disability – A Neglected Issue in Public Health.” Lancet Public Health 6 (6): e346. https://doi.org/10.1016/S2468-2667(21)00109-2
  • Lebrasseur, Audrey, Noémie Fortin-Bédard, Josiane Lettre, Eve-Line Bussières, Krista Best, Normand Boucher, Mathieu Hotton, et al. 2021. “Impact of COVID-19 on People with Physical Disabilities: A Rapid Review.” Disability and Health Journal 14 (1): 101014. https://doi.org/10.1016/j.dhjo.2020.101014
  • Lee, S., and S. Kim. 2020. “A Country Report: Impact of COVID-19 and Inequity of Health on South Korea’s Disabled Community during a Pandemic.” Disability & Society 35 (9): 1514–1519. https://doi.org/10.1080/09687599.2020.1809352
  • Liamputtong, P. 2011. Focus Group Methodology: Principle and Practice. London: SAGE.
  • Lund, E. M., A. J. Forber-Pratt, C. Wilson, and L. R. Mona. 2020. “The COVID-19 Pandemic, Stress, and Trauma in the Disability Community: A Call to Action.” Rehabilitation Psychology 65 (4): 313–322. https://doi.org/10.1037/rep0000368
  • Martin, P., S. de Saille, K. Liddiard & W. Pearce (Eds.). 2022. Being Human during COVID-19. Bristol: Bristol University Press.
  • McKenzie-Mohr, S., and M. N. Lafrance. 2017. “Narrative Resistance in Social Work Research and Practice: Counter-Storying in the Pursuit of Social Justice.” Qualitative Social Work 16 (2): 189–205. https://doi.org/10.1177/1473325016657866
  • Milani, S. A., M. A. Raji, L. Chen, and Y. F. Kuo. 2021. “Trends in the Use of Benzodiazepines, Z-Hypnotics, and Serotonergic Drugs among US Women and Men before and during the COVID-19 Pandemic.” JAMA Network Open 4 (10): e2131012–e2131012. https://doi.org/10.1001/jamanetworkopen.2021.31012
  • Mitra, M., and M. A. Turk. 2021. “Mental Health Impacts of COVID-19 on People with Disabilities: A Call to Action.” Disability and Health Journal 14 (3): 101147–101147. https://doi.org/10.1016/j.dhjo.2021.101147
  • Mladenov, T., and C. S. Brennan. 2021. “The Global COVID-19 Disability Rights Monitor: Implementation, Findings, Disability Studies Response.” Disability & Society 36 (8): 1356–1361. https://doi.org/10.1080/09687599.2021.1920371
  • Musick, M. A., and J. Wilson. 2003. “Volunteering and Depression: The Role of Psychological and Social Resources in Different Age Groups.” Social.” Social Science & Medicine (1982) 56 (2): 259–269. https://doi.org/10.1016/s0277-9536(02)00025-4
  • Ocean, M. 2021. “Telework during COVID-19: Exposing Ableism in U.S. Higher Education.” Disability & Society 36 (9): 1543–1548. https://doi.org/10.1080/09687599.2021.1919505
  • Okoro, C. A., T. W. Strine, L. McKnight-Eily, J. Verlenden, and N. D. Hollis. 2021. “Indicators of Poor Mental Health and Stressors during the COVID-19 Pandemic, by Disability Status: A Cross-Sectional Analysis.” Disability and Health Journal 14 (4): 101110. https://doi.org/10.1016/j.dhjo.2021.101110
  • Pincock, K., N. Jones, K. Baniodeh, A. Iyasu, F. Workneh, and W. Yadete. 2022. “COVID-19 and Social Policy in Contexts of Existing Inequality: Experiences of Youth with Disabilities in Ethiopia and Jordan.” Disability & Society 1–23. https://doi.org/10.1080/09687599.2022.2087488
  • Qi, F., and L. Hu. 2020. “Including People with Disability in the COVID-19 Outbreak Emergency Preparedness and Response in China.” Disability & Society 35 (5): 848–853. https://doi.org/10.1080/09687599.2020.1752622
  • Rivas, M., and N. R. Hill. 2018. “Counselor Trainees’ Experiences Counseling Disability: A Phenomenological Study.” Counselor Education and Supervision 57 (2): 116–131. https://doi.org/10.1002/ceas.12097
  • Russell, A., and E. Frachtenberg. 2021. “Worlds apart: Technology, Remote Work, and Equity.” Computer. 54 (7): 46–56. https://doi.org/10.1109/MC.2021.3074121
  • Shakespeare, T., N. Watson, R. Brunner, J. Cullingworth, S. Hameed, N. Scherer, C. Pearson, and V. Reichenberger. 2022. “Disabled People in Britain and the Impact of the COVID‐19 Pandemic.” Social Policy & Administration 56 (1): 103–117. https://doi.org/10.1111/spol.12758
  • Smeltz, L. R., and S. L. Carpenter. 2022. “Reflecting on Health Inequities in a Global Pandemic: The Need for Disability-Conscious Public Health Strategies.” American Journal of Public Health 112 (4): 592–594. https://doi.org/10.2105/AJPH.2021.306666
  • Solomon, M. Z., M. K. Wynia, and L. O. Gostin. 2020. “COVID-19 Crisis Triage—Optimizing Health Outcomes and Disability Rights.” The New England Journal of Medicine 383 (5): e27. https://doi.org/10.1056/NEJMp2008300
  • Terry, G., N. Hayfield, V. Clarke, and V. Braun. 2017. “Thematic Analysis.” In The SAGE Handbook of Qualitative Research in Psychology (pp. 17–36). London: SAGE. https://doi.org/10.4135/9781526405555.n2
  • Terry, G. 2021. “Doing Thematic Analysis.” In J. T. E. Richardson, D. Westwood, & J. A. M. (Eds.), Analyzing Qualitative Data in Psychology (pp. 104–118). London: SAGE.
  • Teshale, S., W. Fox-Grage, and K. Purington. 2021. “Paying Family Caregivers through Medicaid Consumer-Directed Programs: State Opportunities and Innovations.” The National Academy for State Health Policy. https://nashp.org/paying-family-caregivers-through-medicaid-consumer-directed-programs-state-opportunities-and-innovations/.
  • Tierney, S., and K. Mahtani. 2020. “Volunteering during the COVID-19 Pandemic: What are the Potential Benefits to People’s Well-Being.” CEBM Research (Oxford University Centre for Evidence-Based Medicine). https://www.cebm.net/covid-19/volunteering-during-the-covid-19-pandemic-what-are-the-potential-benefits-to-peoples-well-being/.
  • Trevisan, F. 2021. “Making Focus Groups Accessible and Inclusive for People with Communication Disabilities: A Research Note.” Qualitative Research 21 (4): 619–627. https://doi.org/10.1177/1468794120941846
  • United Nations Population Fund & Women Enabled International. 2021. “The Impact of COVID-19 on Women and Girls with Disabilities.” United Nations Population Fund. https://www.unfpa.org/featured-publication/impact-covid-19-women-and-girls-disabilities
  • United Nations Women. 2020. “Meeting Basic Needs for Women and Girls with Disabilities during COVID-19.” Country Support Brief 2. https://www.unwomen.org/sites/default/files/Headquarters/Attachments/Sections/Library/Publications/2020/Policy-brief-Meeting-basic-needs-of-women-and-girls-with-disabilities-during-COVID-19-en.pdf.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.