174
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Representations of mothers having children with disability in Hindi cinema: a feminist thematic analysis

&
Received 08 Mar 2023, Accepted 18 Nov 2023, Published online: 28 Nov 2023

References

  • Addlakha, Renu. 2008. “Disability, Gender and Society.” Indian Journal of Gender Studies 15 (2): 191–207. https://doi.org/10.1177/097152150801500201
  • Adhikari, Anju. 2015. “Disability, Sexuality and Indian Cinema.” International Journal of Scientific Research IV (IX): 355–356. https://doi.org/10.36106/ijsr
  • Al-Eithan, Muwafak H., Asirvatham Alwin Robert, and Aman H. Al-Saeed. 2010. “Mood Problems of Mothers with Disabled Children in Saudi Arabia. A Preliminary Prospective Study.” PubMed 31 (10): 1161–1165. https://pubmed.ncbi.nlm.nih.gov/20953535.
  • Amponsah-Bediako, Kofi. 2013. “Relevance of Disability Models from the Perspective of a Developing Country: An Analysis.” Developing Country Studies 3 (11): 121–132.
  • Aneja, Anu, and Shubhangi Vaidya. 2016. Embodying Motherhood: Perspectives from Contemporary India. New Delhi : SAGE Publications India,
  • Barbosa, Maria Angélica Marcheti, Massae Noda Chaud, and Maria Magda Ferreira Gomes. 2008. “Experiences of Mothers of Disabled Children: A Phenomenological Study.” Acta Paulista de Enfermagem 21 (1): 46–52. https://doi.org/10.1590/S0103-21002008000100007
  • Barrett, Patrick, Beatrice Hale, and Mary Butler. 2014. Family Care and Social Capital: Transitions in Informal Care. New York: Springer EBooks. https://doi.org/10.1007/978-94-007-6872-
  • Berube, Micheal. 1997. “On the Cultural Representation of People with Disabilities.” Chronicle of Higher Education 4, 3–4.
  • Bhatnagar, G. 2020. “‘Poor Accessibility Standards, Lack of Govt Interest Mars Progress’: Disability Rights Activists.” The Wire. https://thewire.in/rights/disability-rights-activists-poor-accessibility-standards-lack-of-govt-interest.
  • Botha, Shawni, and Clare Harvey. 2022. “Disabling Discourses: Contemporary Cinematic Representations of Acquired Physical Disability.” Disability & Society: 1–23. https://doi.org/10.1080/09687599.2022.2060801
  • Boushey, Heather. 2011. “The Role of the Government in Work-Family Conflict.” The Future of Children 21 (2): 163–190. https://doi.org/10.1353/foc.2011.0012
  • Braun, Virginia, and Victoria Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Broberg, Malin. 2011. “Expectations of and Reactions to Disability and Normality Experienced by Parents of Children with Intellectual Disability in Sweden.” Child: Care, Health and Development 37 (3): 410–417. https://doi.org/10.1111/j.1365-2214.2010.01198.x
  • Butcher, Philipa R., T. Wind, and Anke Bouma. 2008. “Parenting Stress in Mothers and Fathers of a Child with a Hemiparesis: Sources of Stress, Intervening Factors and Long-Term Expressions of Stress.” Child: Care, Health and Development 34 (4): 530–541. https://doi.org/10.1111/j.1365-2214.2008.00842.x
  • Cannella, Gaile, and Lincoln Yvonna. 2015. “Deploying Qualitative Methods for Critical Social Purposes.” Critical Qualitative Inquiry: Foundations and Futures 53 (72): 243–264.
  • Cantero-Garlito, Pablo A., Pedro Moruno Miralles, and Juan Antonio Flores Martos. 2020. “Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region.” International Journal of Environmental Research and Public Health 17 (8): 2920. https://doi.org/10.3390/ijerph17082920
  • Chouhan, Subhash Chandra, P. P. Singh, and Sunil Kumar. 2016. “Assessment of Stress and Anxiety in Parents of Children with Intellectual Disability.” Indian Journal of Health and Wellbeing 7 (5): 500–504. http://www.i-scholar.in/index.php/ijhw/article/view/120359.
  • Dardas, Latefa Ali, and Muayyad Ahmad. 2014. “Predictors of Quality of Life for Fathers and Mothers of Children with Autistic Disorder.” Research in Developmental Disabilities 35 (6): 1326–1333. https://doi.org/10.1016/j.ridd.2014.03.009
  • Das, Avishikta, Brishnendra Mishra, Poonam Bhardwaj, and Swarnim Rai. 2022. “Indian Parents’ Role in Special Needs Children’s Rehabilitation.” Journal for ReAttach Therapy and Developmental Diversities 5 (1s): 43–46.
  • Dastidar, Sayantan Ghosh, and Caroline Elliott. 2019. “The Indian Film Industry in a Changing International Market.” Journal of Cultural Economics 44 (1): 97–116. https://doi.org/10.1007/s10824-019-09351-6
  • Durà-Vilà, Glòria, Simon Dein, and Matthew Hodes. 2010. “Children with Intellectual Disability: A Gain Not a Loss: Parental Beliefs and Family Life.” Clinical Child Psychology and Psychiatry 15 (2): 171–184. https://doi.org/10.1177/1359104509341009
  • Esdaile, Susan A. 2009. “Valuing Difference: Caregiving by Mothers of Children with Disabilities.” Occupational Therapy International 16 (2): 122–133. https://doi.org/10.1002/oti.274
  • French, Sally, and John Swain. 2004. Whose Tragedy?: towards a Personal Non-Tragedy View of Disability. London, UK: Sage,
  • French, Sally, and John Swain. 2011. Working with Disabled People in Policy and Practice: A Social Model. http://nrl.northumbria.ac.uk/4008/.
  • Gawande, Vikas, and Geeta Kashyap. 2017. “Discovering Impaired Superheroes in Hindi Covies: A Study of Characterization of Disabled in Movies and Its Impact on Their Social Life.” Journal of Content, Community and Communication 5: 52–59.
  • George, Ajesh, Margaret H. Vickers, Lesley M. Wilkes, and Belinda Barton. 2008. “Working and Caring for a Child with Chronic Illness: Challenges in Maintaining Employment.” Employee Responsibilities and Rights Journal 20 (3): 165–176. https://doi.org/10.1007/s10672-008-9065-3
  • Ghai, Anita. 2001. “Marginalisation and Disability: Experiences from the Third World.” Disability and the Life Course: Global Perspectives . edited by Mark Priestley, 26-37. Cambridge: Cambridge University Press.
  • Ghai, Anita. 2019. Rethinking Disability in India. https://doi.org/10.4324/9781315734064
  • Goudie, Anthony, Marie-Rachelle Narcisse, David Hall, and Dennis Z. Kuo. 2014. “Financial and Psychological Stressors Associated with Caring for Children with Disability.” Families, Systems & Health: The Journal of Collaborative Family Healthcare 32 (3): 280–290. https://doi.org/10.1037/fsh0000027
  • Gray, David E. 2002. “Everybody Just Freezes. Everybody is Just Embarrassed’: Felt and Enacted Stigma among Parents of Children with High Functioning Autism.” Sociology of Health & Illness 24 (6): 734–749. https://doi.org/10.1111/1467-9566.00316
  • Green, Sara Eleanor. 2007. “We’re Tired, Not Sad’: Benefits and Burdens of Mothering a Child with a Disability.” Social Science & Medicine (1982) 64 (1): 150–163. https://doi.org/10.1016/j.socscimed.2006.08.025
  • Greer, Felicity A., Ian Grey, and Brian McClean. 2006. “Coping and Positive Perceptions in Irish Mothers of Children with Intellectual Disabilities.” Journal of Intellectual Disabilities: JOID 10 (3): 231–248. https://doi.org/10.1177/1744629506064017
  • Gupta, Vidya. 2011. “How Hindus Cope with Disability.” Journal of Religion, Disability & Health 15 (1): 72–78. https://doi.org/10.1080/15228967.2011.540897
  • Gupta, Shivani, Luc De Witte, and Agnes Meershoek. 2020. “Dimensions of Invisibility: Insights into the Daily Realities of Persons with Disabilities Living in Rural Communities in India.” Disability & Society 36 (8): 1285–1307. https://doi.org/10.1080/09687599.2020.1788509
  • Guttmacher Institute 2020. “Investing in the Sexual and Reproductive Health of Women in India.” Guttmacher Institute, August 24, https://www.guttmacher.org/fact-sheet/adding-it-up-investing-in-sexual-reproductive-health-india.
  • Haworth, Edward J. N., Kirti Man Tumbahangphe, Anthony Costello, Dharma S. Manandhar, Dhruba Adhikari, Bharat Budhathoki, Deepti Shrestha, Sagar Khadka, and Michelle Heys. 2017. “Prenatal and Perinatal Risk Factors for Disability in a Rural Nepali Birth Cohort.” BMJ Global Health 2 (3): e000312. https://doi.org/10.1136/bmjgh-2017-000312
  • Hayes, Michael, and Rhonda S. Black. 2003. “Troubling Signs: Disability, Hollywood Movies and the Construction of a Discourse of Pity.” Disability Studies Quarterly 23 (2):114–132. https://doi.org/10.18061/dsq.v23i2.419
  • Helgeson, Vicki S., Dorothy Becker, Oscar Escobar, and Linda Siminerio. 2012. “Families with Children with Diabetes: Implications of Parent Stress for Parent and Child Health.” Journal of Pediatric Psychology 37 (4): 467–478. https://doi.org/10.1093/jpepsy/jsr110
  • Holcomb, Jeanne, and Kenzie Latham-Mintus. 2022. “Disney and Disability: Media Representations of Disability in Disney and Pixar Animated Films.” Disability Studies Quarterly 42 (1). https://doi.org/10.18061/dsq.v42i1.7054
  • Jayaraman, Gayatri. 2013. “Krrish 3: The Super Villain Breaks Through.” India Today, November 25, 2013. https://www.indiatoday.in/movies/bollywood/story/the-super-villain-breaks-through-218649-2013-11-24.
  • John, Aesha, and Lucy Bailey. 2017. “Multiple Selves: Gujarati Women’s Narratives of Mothering a Child with an Intellectual Disability.” Narrative Inquiry 27 (2): 357–377. https://doi.org/10.1075/ni.27.2.08joh
  • Karmakar, Indrani. 2022. “Motherhood beyond Biology: Two Indian Women Writers’ Fictions of Non-Biological Motherhood.” The Journal of Commonwealth Literature 57 (1): 169–185. https://doi.org/10.1177/0021989419838018
  • Kirby, Philip. 2019. “Gift from the Gods? Dyslexia, Popular Culture and the Ethics of Representation.” Disability & Society 34 (9-10): 1573–1594. https://doi.org/10.1080/09687599.2019.1584091
  • Landman, Maeve. 2006. “Getting Quality in Qualitative Research: A Short Introduction to Feminist Methodology and Methods.” Proceedings of the Nutrition Society 65 (04): 429–433. https://doi.org/10.1079/PNS2006518
  • Lawless, Brandi, and Yea-Wen Chen. 2018. “Developing a Method of Critical Thematic Analysis for Qualitative Communication Inquiry.” Howard Journal of Communications 30 (1): 92–106. https://doi.org/10.1080/10646175.2018.1439423
  • Lee, Jiwon. 2013. “Maternal Stress, Well-Being, and Impaired Sleep in Mothers of Children with Developmental Disabilities: A Literature Review.” Research in Developmental Disabilities 34 (11): 4255–4273. https://doi.org/10.1016/j.ridd.2013.09.008
  • Levine, Kathryn. 2009. “Against All Odds: Resilience in Single Mothers of Children with Disabilities.” Social Work in Health Care 48 (4): 402–419. https://doi.org/10.1080/00981380802605781
  • Longmore, Paul K. 2003. Why I Burned My Book and Other Essays on Disability. http://ci.nii.ac.jp/ncid/BA66723909.
  • Ma, Joyce L. C., Timothy K. Y. Wong, Y. K. Lau, and Lauren L. Y. Lai. 2011. “Parenting Stress and Perceived Family Functioning of Chinese Parents in Hong Kong: Implications for Social Work Practice.” Asian Social Work and Policy Review 5 (3): 160–180. https://doi.org/10.1111/j.1753-1411.2011.00056.x
  • Manor-Binyamini, Iris. 2016. “Positive Aspects of Coping among Mothers of Adolescent Children with Developmental Disability in the Druze Community in Israel.” Journal of Intellectual and Developmental Disability 41 (2): 97–106. https://doi.org/10.3109/13668250.2015.1129665
  • Meppelder, Marieke, Marja Hodes, Sabina Kef, and Carlo Schuengel. 2015. “Parenting Stress and Child Behaviour Problems among Parents with Intellectual Disabilities: The Buffering Role of Resources.” Journal of Intellectual Disability Research: JIDR 59 (7): 664–677. https://doi.org/10.1111/jir.12170
  • Miranda, Ana., Álvaro Mira, Carmen Berenguer, Belén Roselló Miranda, and Inmaculada Baixauli. 2019. “Parenting Stress in Mothers of Children with Autism without Intellectual Disability. Mediation of Behavioral Problems and Coping Strategies.” Frontiers in Psychology 10 (March): 464. https://doi.org/10.3389/fpsyg.2019.00464
  • Mitchell, David, and Sharon L. Snyder. 2001. Narrative Prosthesis: Disability and the Dependencies of Discourse. http://ci.nii.ac.jp/ncid/BA52714874.
  • Mitra, Aparna. 2015. “Son Preference in India: Implications for Gender Development.” Journal of Economic Issues 48 (4): 1021–1037. https://doi.org/10.2753/jei0021-3624480408
  • Micheal Oliver. 1990. “Disability Definitions: The Politics of Meaning.” In The Politics of Disablement, edited by Micheal Oliver, 1–11. UK: Macmillan Education.
  • Olson, Lindsay, Bosi Chen, Cynthia Ibarra, Tiffany Wang, Lisa E. Mash, Annika C. Linke, Mikaela Kinnear, and Inna Fishman. 2021. “Externalizing Behaviors Are Associated with Increased Parenting Stress in Caregivers of Young Children with Autism.” Journal of Autism and Developmental Disorders 52 (3): 975–986. https://doi.org/10.1007/s10803-021-04995-w
  • Olsson, M. B., and C. P. Hwang. 2008. “Socioeconomic and Psychological Variables as Risk and Protective Factors for Parental Well-Being in Families of Children with Intellectual Disabilities.” Journal of Intellectual Disability Research: JIDR 52 (12): 1102–1113. https://doi.org/10.1111/j.1365-2788.2008.01081.x
  • Owen, William F. 1984. “Interpretive Themes in Relational Communication.” Quarterly Journal of Speech 70 (3): 274–287. https://doi.org/10.1080/00335638409383697
  • Phetrasuwan, Supapak, and Margaret Shandor Miles. 2009. “Parenting Stress in Mothers of Children with Autism Spectrum Disorders.” Journal for Specialists in Pediatric Nursing: JSPN 14 (3): 157–165. https://doi.org/10.1111/j.1744-6155.2009.00188.x
  • Pillay, Divia, Sonya Girdler, Marie A. Collins, and Helen Leonard. 2012. “It’s Not What You Were Expecting, but It’s Still a Beautiful Journey’: The Experience of Mothers of Children with down Syndrome.” Disability and Rehabilitation 34 (18): 1501–1510. https://doi.org/10.3109/09638288.2011.650313
  • Rao, Shridevi. 2018. “Disability, Family Epistemologies and Resistance to Shame within the Indian Context.” Disability in South Asia: Knowledge and Experience edited by Anita Ghai, 313–329. India : Sage Publishing.
  • Raphael, Jean L., Y. Zhang, H. Liu, and Angelo Peter Giardino. 2010. “Parenting Stress in US Families: Implications for Paediatric Healthcare Utilization.” Child: Care, Health and Development 36 (2): 216–224. https://doi.org/10.1111/j.1365-2214.2009.01052.x
  • Rappaport, Julian. 1987. “Terms of Empowerment/Exemplars of Prevention: Toward a Theory for Community Psychology.” American Journal of Community Psychology 15 (2): 121–148. https://doi.org/10.1007/bf00919275
  • Sarwar, Farhan, Siti Aisyah Panatik, Hafiz Tahir Jameel, Wan Mohd Azam Wan Mohd Yunus, and Siti Norlina Muhamad. 2022. “Psychological Capital, Social Support and Wellbeing in Mothers of Children with Autism Spectrum Disorder.” SAGE Open 12 (3): 215824402211217. https://doi.org/10.1177/21582440221121773
  • Scott, Ellen. 2010. “I Feel as If I Am the One Who is Disabled” the Emotional Impact of Changed Employment Trajectories of Mothers Caring for Children with Disabilities.” Gender & Society 24 (5): 672–696. https://doi.org/10.1177/0891243210382531
  • Shafi, Aabid. 2019. “In Photos: Why Wheelchair Users in Delhi Find It Difficult to Use Buses, Even Low-Floor Ones.” Scroll.In, January 14, 2019. https://scroll.in/roving/894005/in-photos-why-wheelchair-users-in-delhi-find-it-difficult-to-use-buses-even-low-floor-ones.
  • Shelke, Lata, and Sheetal Barde. 2019. “Lived Experiences of Mothers of Children with Intellectual Disabilities: A Phenomenological Study.” Indian Journal of Public Health Research & Development 10 (11): 2330–2333. https://doi.org/10.5958/0976-5506.2019.03952.4
  • Singh, Vanessa, and Anita Ghai. 2009. “Notions of Self: Lived Realities of Children with Disabilities.” Disability & Society 24 (2): 129–145. https://doi.org/10.1080/09687590802652363
  • Skok, Anita, David Harvey, and Dinah Reddihough. 2006. “Perceived Stress, Perceived Social Support, and Well-Being among Mothers of School-Aged Children with Cerebral Palsy.” Journal of Intellectual & Developmental Disability 31 (1): 53–57. https://doi.org/10.1080/13668250600561929
  • The Indian Express. 2016. “In Fact: Why Calling India’s Disabled ‘Divyang’ Won’t Enable Them.” June 1, 2016.
  • Trute, Barry. 2003. “Grandparents of Children with Developmental Disabilities: Intergenerational Support and Family Well-Being.” Families in Society: The Journal of Contemporary Social Services 84 (1): 119–126. https://doi.org/10.1606/1044-3894.87
  • Tufford, Lea, and Peter Newman. 2010. “Bracketing in Qualitative Social Work.” Qualitative Social Work 11 (1): 80–96. https://doi.org/10.1177/1473325010368316
  • Vaidya, Shubhangi. 2016. Autism and the Family in Urban India: Looking Back, Looking Forward. India: Springer.
  • Valentine, James W. 2001. “Disabled Discourse: Hearing Accounts of Deafness Constructed through Japanese Television and Film.” Disability & Society 16 (5): 707–727. https://doi.org/10.1080/09687590120070088
  • Vanamali, Krishna Veera. 2022. “India’s Fertility Rate Dips below Replacement Level: What Does It Mean?” Business Standard News. Business-Standard, May 18, https://www.business-standard.com/podcast/current-affairs/india-s-fertility-rate-dips-below-replacement-level-what-does-it-mean-122051800062_1.html.
  • Venkatesan, S., Sanjeev Kumar Gupta, and G. Y. Yashodharakumar. 2015. “Viewer Reminiscences on Portrayals about Persons with Disability in Indian Cinema.” Journal of Communication 6 (1): 104–112. https://doi.org/10.1080/0976691X.2015.11884852
  • Wilde, Alison. 2018. “Troubling Images? The Re-Presentation of Disabled Womanhood: Britain’s Missing Top Model.” Journal of Popular Television, The 6 (1): 41–58. https://doi.org/10.1386/jptv.6.1.41_1
  • Woodgate, Roberta L., Marie Edwards, Jacquie Ripat, Barbara L. Borton, and Gina Rempel. 2015. “Intense Parenting: A Qualitative Study Detailing the Experiences of Parenting Children with Complex Care Needs.” BMC Pediatrics 15 (1): 1–15. https://doi.org/10.1186/s12887-015-0514-5
  • Young, Stephen J., Jane Shakespeare-Finch, and Patricia L. Obst. 2019. “Raising a Child with a Disability: A One-Year Qualitative Investigation of Parent Distress and Personal Growth.” Disability & Society 35 (4): 629–653. https://doi.org/10.1080/09687599.2019.1649637
  • Zhang, Lingling, and Beth Haller. 2013. “Consuming Image: How Mass Media Impact the Identity of People with Disabilities.” Communication Quarterly 61 (3): 319–334. https://doi.org/10.1080/01463373.2013.776988
  • Zhao, Meiju, Wangqian Fu, and Jun Ai. 2021. “The Mediating Role of Social Support in the Relationship between Parenting Stress and Resilience among Chinese Parents of Children with Disability.” Journal of Autism and Developmental Disorders 51 (10): 3412–3422. https://doi.org/10.1007/s10803-020-04806-8

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.