Care does not just belong at home: inclusion in doctoral supervision for a student with traumatic brain injury

References

• Ainscow, Mel., Tony Booth, and Alan Dyson. 2006. Improving Schools, Developing Inclusion. London: Routledge.
   Google Scholar
• Apple, Michael W. 2013. Apple, Michael W., Can Education Change Society? New York: Routledge.
   Google Scholar
• Bailin, Aiyana. 2019. “Clearing up Some Misconceptions about Neurodiversity.” Scientific American.
   Google Scholar
• Bandura, Albert. 1997. Self-Efficacy: The Exercise of Control. New York: W.H. Freeman.
   Google Scholar
• Bandura, Albert. 2006. “Adolescent Development from an Agentic Perspective.” Self-Efficacy Beliefs of Adolescents 5: 1–43.
   Google Scholar
• Baltes, Paul B. 2019. “Life-Span Developmental Psychology: Observations on History and Theory Revisited.” In Developmental Psychology, 79–112. Routledge: Taylor and Francis.
   Google Scholar
• Borland, John, and Sue James. 1999. “The learning experience of students with disabilities in higher education. A case study of a UK university.” Disability & Society 14 (1): 85–101.
   Google Scholar
• Bottema-Beutel, Kristen, Steven K. Kapp, Jessica Nina Lester, Noah J. Sasson, and Brittany N. Hand. 2021. “Avoiding Ableist Language: Suggestions for Autism Researchers.” Autism in Adulthood 3 (1): 18–29. https://doi.org/10.1089/aut.2020.0014
   PubMedGoogle Scholar
• Bourdieu, Pierre. 1989. Language and Symbolic Power. Cambridge: Polity Press.
   Google Scholar
• Bourdieu, Pierre, and Terry Eagleton. 1992. “Doxa and Common Life.” New Left Review 191 (1): 111–121.
   Google Scholar
• Bronfenbrenner, Urie. 1994. “Ecological Models of Human Development.” International Encyclopaedia of Education 3 (2): 37–43.
   Google Scholar
• Brown, Nicole, and Jennifer Leigh. 2020. Ableism in Academia: Theorising Experiences of Disabilities and Chronic Illnesses in Higher Education. London: UCL Press. https://doi.org/10.14324/111.9781787354975
   Google Scholar
• Bublitz, Dennis, Vincent Wong, Annemarie Donachie, Patricia J. Brooks, and Kristen Gillespie-Lynch. 2015. "Applying Universal Design to Build Supports for College Students with Autism Spectrum Disorder." Roberta v. Nata (eds.) Progress in Education 36: 1–24.
   Google Scholar
• CAST. 2020. The UDL guidelines. http://udlguidelines.cast.org/
   Google Scholar
• Cameron, Harriet, and Tom Billington. 2017. “‘Just deal with it’: neoliberalism in dyslexic students’ talk about dyslexia and learning at university.” Studies in Higher Education 42 (8): 1358–1372.
   Google Scholar
• Clouder, Lynn, Mehmet Karakus, Alessia Cinotti, María Virginia Ferreyra, Genoveva Amador Fierros, and Patricia Rojo. 2020. “Neurodiversity in Higher Education: A Narrative Synthesis.” Higher Education 80 (4): 757–778. https://doi.org/10.1007/s10734-020-00513-6
   Web of Science ®Google Scholar
• Crow, Liz. 1996. “Including All of Our Lives: Renewing the Social Model of Disability.” In Encounters with strangers: Feminism and disability, edited by Morris, J. London: Women’s Press.
   Google Scholar
• Datta, Anindita, and Ragnhild Lund. 2018. “Mothering, Mentoring and Journeys towards Inspiring Spaces.” Emotion, Space and Society 26: 64–71. https://doi.org/10.1016/j.emospa.2017.08.004
   Web of Science ®Google Scholar
• Deci, Edward L., and Richard M. Ryan. 1985. Intrinsic Motivation and Self-Determination in Human Behavior. New York: Plenum.
   Google Scholar
• Department of Further and Higher Education, Research, Innovation and Science. 2022. New third-level access support for autistic students and students with an intellectual disability announced by Minister Harris. https://www.gov.ie/en/press-release/9b8cc-new-third-level-access-support-for-autistic-students-and-students-with-an-intellectual-disability-announced-by-minister-harris/
   Google Scholar
• Diversity for social impact. 2022. Diversity for Social Impact: Types of Neurodiversity and Neurodivergence. https://diversity.social/neurodiversity-neurodivergence/
   Google Scholar
• Dolmage, Jay T. 2017. Academic Ableism: Disability and Higher Education. USA: University of Michigan Press.
   Google Scholar
• Eisenberg, Nancy, and Natalie D. Eggum. 2009. “Empathic Responding: Sympathy and Personal Distress.” The Social Neuroscience of Empathy 6: 71–830.
   Google Scholar
• Elliot, D. L., V. Baumfield, K. Reid, and K. A. Makara. 2016. “Hidden Treasure: Successful International Doctoral Students Who Found and Harnessed the Hidden Curriculum.” Oxford Review of Education 42 (6): 733–748. https://doi.org/10.1080/03054985.2016.1229664
   Web of Science ®Google Scholar
• Furedi, Frank. 2010. “Introduction to the Marketisation of Higher Education and the Student as Consumer.” In The Marketisation of Higher Education and the Student as Consumer, 15–22. London: Routledge.
   Google Scholar
• Gallacher, Kathleen. 1997. “Supervision, mentoring and coaching.” Reforming personnel in early intervention: 191–214.
   Google Scholar
• Giddens, Anthony. 1984. The Constitution of Society: Outline of the Theory of Structuration. USA: University of California Press.
   Google Scholar
• Goffman, Erving. 1963. Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice-Hall.
   Google Scholar
• Goodall, Craig. 2020. “Inclusion is a Feeling, Not a Place: A Qualitative Study Exploring Autistic Young People’s Conceptualisations of Inclusion.” International Journal of Inclusive Education 24 (12): 1285–1310. https://doi.org/10.1080/13603116.2018.1523475
   Web of Science ®Google Scholar
• Goodley, Dan. 2005. “Empowerment, Self-Advocacy and Resilience.” Journal of Intellectual Disabilities: JOID 9 (4): 333–343. https://doi.org/10.1177/1744629505059267
   PubMedGoogle Scholar
• Goodley, Dan, and Katherine Runswick-Cole. 2011. “The Violence of Disablism.” Sociology of Health & Illness 33 (4): 602–617. https://doi.org/10.1111/j.1467-9566.2010.01302.x
   PubMed Web of Science ®Google Scholar
• Government of Ireland. 1997. Universities Act. Dublin, Stationery Office.
   Google Scholar
• Government of Ireland. 2000. Equal Status Act. Dublin, Stationery Office.
   Google Scholar
• Graham, Linda J., and Roger Slee. 2008. “An Illusory Interiority: Interrogating the Discourse/s of Inclusion.” Educational Philosophy and Theory 40 (2): 277–293. https://doi.org/10.1111/j.1469-5812.2007.00331.x
   Google Scholar
• Halse, Christine, and Peter Bansel. 2012. “The Learning Alliance: Ethics in Doctoral Supervision.” Oxford Review of Education 38 (4): 377–392. https://doi.org/10.1080/03054985.2012.706219
   Web of Science ®Google Scholar
• Hardy, Ian, and Stuart Woodcock. 2015. “Inclusive Education Policies: Discourses of Difference, Diversity and Deficit.” International Journal of Inclusive Education 19 (2): 141–164. https://doi.org/10.1080/13603116.2014.908965
   Web of Science ®Google Scholar
• Held, Virginia. 2006. The Ethics of Care: Personal, Political, and Global. New York: Oxford University Press on Demand.
   Google Scholar
• Hodgins, Margaret, and Patricia Mannix-McNamara. 2021. “The Neoliberal University in Ireland: Institutional Bullying by Another Name?” Societies 11 (2): 52. https://doi.org/10.3390/soc11020052
   Web of Science ®Google Scholar
• Kendall, Philip C. 1985. “Toward a Cognitive-Behavioral Model of Child Psychopathology and a Critique of Related Interventions.” Journal of Abnormal Child Psychology 13 (3): 357–372. https://doi.org/10.1007/BF00912722
   PubMed Web of Science ®Google Scholar
• Kenny, Neil, Selina McCoy, and Georgiana Mihut. 2020. “Special Education Reforms in Ireland: Changing Systems, Changing Schools.” International Journal of Inclusive Education 1–20. https://doi.org/10.1080/13603116.2020.1821447
   Web of Science ®Google Scholar
• Kittay, Eva Feder. 2015. “A theory of justice as fair terms of social life given our inevitable dependency and our inextricable interdependency.” Care ethics and political theory: 51–71.
   Google Scholar
• Kushnir, Iryna. 2020. “The Voice of Inclusion in the Midst of Neoliberalist Noise in the Bologna Process.” European Educational Research Journal 19 (6): 485–505. https://doi.org/10.1177/1474904120941694
   Web of Science ®Google Scholar
• Jeffers, Gerry. 2010. “The Role of School Leadership in the Implementation of the Transition Year Programme in Ireland.” School Leadership & Management 30 (5): 469–486. https://doi.org/10.1080/13632434.2010.513179
   Google Scholar
• Jorge, Ricardo E., Robert G. Robinson, David Moser, Amane Tateno, Benedicto Crespo Facorro, and Stephan Arndt. 2004. “Major Depression following Traumatic Brain Injury.” Archives of General Psychiatry 61 (1): 42–50. https://doi.org/10.1001/archpsyc.61.1.42
   PubMed Web of Science ®Google Scholar
• Linden, M. A., and I. R. Crothers. 2006. “Violent, Caring, Unpredictable: Public Views on Survivors of Brain Injury.” Archives of Clinical Neuropsychology: The Official Journal of the National Academy of Neuropsychologists 21 (8): 763–770. https://doi.org/10.1016/j.acn.2006.08.010
   PubMed Web of Science ®Google Scholar
• Linden, M. A., and A. M. Boylan. 2010. “‘To be accepted as normal’: Public understanding and misconceptions concerning survivors of brain injury.” Brain Injury 24 (4): 642–650.
   Google Scholar
• Lipsky, Dorothy K., and Alan Gartner. 1996. “Equity Requires Inclusion: The Future for All Students with Disabilities.” In Disability and the dilemmas of education and justice, edited by Carol Christensen. &. Fazal Rizvi,145–155, Philadelphia: Open University Press.
   Google Scholar
• Lynch, Kathleen. 2010. “Carelessness: A Hidden Doxa of Higher Education.” Arts and Humanities in Higher Education 9 (1): 54–67. https://doi.org/10.1177/1474022209350104
   Google Scholar
• Mannix-McNamara, Patricia. 2010. “Exploring the Nature of Teaching and Learning: An Explicit Examination of the Contribution of Educative Relationships to Effective Higher Education Pedagogy and the Role of Self- Study in the Development of Teacher Professional Identity.” Doctoral diss., University of Limerick.
   Google Scholar
• Maas, Andrew I. R., David K. Menon, P. David Adelson, Nada Andelic, Michael J. Bell, Antonio Belli, Peter Bragge, et al. 2017. “Traumatic Brain Injury: Integrated Approaches to Improve Prevention, Clinical Care, and Research.” The Lancet. Neurology 16 (12): 987–1048. https://doi.org/10.1016/S1474-4422(17)30371-X
   PubMed Web of Science ®Google Scholar
• Mercille, Julien, and Enda Murphy. 2017. “The Neoliberalization of Irish Higher Education under Austerity.” Critical Sociology 43 (3): 371–387. https://doi.org/10.1177/0896920515607074
   Web of Science ®Google Scholar
• Milton, Damian E. M. 2012. “On the Ontological Status of Autism: The ‘Double Empathy Problem.” Disability & Society 27 (6): 883–887. https://doi.org/10.1080/09687599.2012.710008
   Web of Science ®Google Scholar
• Mladenov, Teodor. 2015. “Neoliberalism, Postsocialism, Disability.” Disability & Society 30 (3): 445–459. https://doi.org/10.1080/09687599.2015.1021758
   Web of Science ®Google Scholar
• Nadesan, Majia. 2005. Constructing Autism: Unravelling the ‘Truth’ and Understanding the Social. London/New York: Routledge. https://doi.org/10.4324/9780203299500
   Google Scholar
• Noddings, Nel. 1984. Caring, a Feminine Approach to Ethics & Moral Education. Berkeley, CA: University of California Press.
   Google Scholar
• Noddings, Nel. 2002. Starting at Home; Caring and Social Policy. Berkeley: University of California Press.
   Google Scholar
• Noddings, Nel. 2013. Caring: A Relational Approach to Ethics and Moral Education. USA: Univ of California Press.
   Google Scholar
• Nussbaum, Martha C. 2001. Upheavals of Thought: The Intelligence of Emotions. London: Cambridge University Press.
   Google Scholar
• Oberhauser, Ann M., and Martina Angela Caretta. 2019. “Mentoring Early Career Women Geographers in the Neoliberal Academy: Dialogue, Reflexivity, and Ethics of Care.” Geografiska Annaler: Series B, Human Geography 101 (1): 56–67. https://doi.org/10.1080/04353684.2018.1556566
   Web of Science ®Google Scholar
• Oppong, Seth. 2014. “Between Bandura and Giddens: Structuration Theory in Social Psychological Research?” Psychological Thought 7 (2): 111–123. https://doi.org/10.23668/psycharchives.1949
   Google Scholar
• Oppong, Seth. 2019. “Overcoming Obstacles to a Truly Global Psychological Theory, Research, and Praxis in Africa.” Journal of Psychology in Africa 29 (4): 292–300. https://doi.org/10.1080/14330237.2019.1647497
   Web of Science ®Google Scholar
• Palmer, Parker J. 2003. “Teaching with Heart and Soul: Reflections on Spirituality in Teacher.” Education." Journal of Teacher Education 54 (5): 376–385. https://doi.org/10.1177/0022487103257359
   Web of Science ®Google Scholar
• Pellicano, Elizabeth, Adam Dinsmore, and Tony Charman. 2014. “What Should Autism Research Focus upon? Community Views and Priorities from the United Kingdom.” Autism: The International Journal of Research and Practice 18 (7): 756–770. https://doi.org/10.1177/1362361314529627
   PubMed Web of Science ®Google Scholar
• Ponsford, Jennie L., J. H. Olver, and C. Curran. 1995. “A Profile of Outcome: 2 Years after Traumatic Brain Injury.” Brain Injury 9 (1): 1–10. https://doi.org/10.3109/02699059509004565
   PubMed Web of Science ®Google Scholar
• Schaffer, Talia. 2019. “Care Communities: Ethics, Fictions, Temporalities.” South Atlantic Quarterly 118 (3): 521–542. https://doi.org/10.1215/00382876-7616139
   Web of Science ®Google Scholar
• Schuck, Rachel K., Daina M. Tagavi, Kaitlynn M. P. Baiden, Patrick Dwyer, Zachary J. Williams, Anthony Osuna, Emily F. Ferguson, et al. 2021. “Neurodiversity and Autism Intervention: Reconciling Perspectives through a Naturalistic Developmental Behavioral Intervention Framework.” Journal of Autism and Developmental Disorders 52 (10): 4625–4645. https://doi.org/10.1007/s10803-021-05316-x
   PubMed Web of Science ®Google Scholar
• Scorgie, Kate. 2010. “Fostering Empathy and Understanding: A Longitudinal Case Study Pedagogy.” In Teacher Education for Inclusion, 110–118. New York: Routledge.
   Google Scholar
• Shevlin, Michael, Mairin Kenny, and Eileen McNeela. 2004. “Participation in higher education for students with disabilities: an Irish perspective.” Disability & Society 19 (1): 15–30.
   Google Scholar
• Sikes, Pat., Hazel Lawson, and Maureen Parker. 2007. “Voices on: Teachers and Teaching Assistants Talk about Inclusion.” International Journal of Inclusive Education 11 (3): 355–370. https://doi.org/10.1080/13603110701238819
   Google Scholar
• Shakespeare, Tom. 1996. “Disability, identity, and difference.” In Exploring the divide, edited by Colin Barnes and Geoff Mercer, 94–113. Leeds: The Disability Press.
   Google Scholar
• Shevlin, Michael, and Joanne Banks. 2021. “Inclusion at a Crossroads: Dismantling Ireland’s System of Special Education.” Education Sciences 11 (4): 161. https://doi.org/10.3390/educsci11040161
   Web of Science ®Google Scholar
• Simmie, Geraldine Mooney. 2014. “The Neo-Liberal Turn in Understanding Teachers’ and School Leaders’ Work Practices in Curriculum Innovation and Change: A Critical Discourse Analysis of a Newly Proposed Reform Policy in Lower Secondary Education in the Republic of Ireland.” Citizenship, Social and Economics Education 13 (3): 185–198. https://doi.org/10.2304/csee.2014.13.3.185
   Google Scholar
• Shiels, Teresa, Neil Kenny, Roy Shiels, and Patricia Mannix-McNamara. 2021. “Incivility in Higher Education: Challenges of Inclusion for Neurodiverse Students with Traumatic Brain Injury in Ireland.” Societies 11 (2): 60. https://doi.org/10.3390/soc11020060
   Web of Science ®Google Scholar
• Shiels, Teresa. 2022. “Navigating Trauma: Auto-Ethnographic account of the Lived Experience of Traumatic Brain Injury (TBI) and Access to Higher Education in Ireland.” Unpublished, Doctoral diss., University of Limerick
   Google Scholar
• Singer, Judy. 1998. “Odd People in: The Birth of Community Amongst People on the Autistic Spectrum: A Personal Exploration of a New Social Movement Based on Neurological Diversity”. Honours Diss., University of Technology, Sydney.
   Google Scholar
• Slote, Michael. 2007. The Ethics of Care and Empathy. New York: Routledge, Taylor and Francis Group.
   Google Scholar
• Smyth, Fiona., and Shevlin, Michael. (Eds.). 2013. A Special Edition of the Trinity Education Papers Series, Arising from a One-Day Conference in the School of Education. Dublin: Trinity College Dublin.
   Google Scholar
• Tronto, Joan. 1993. Moral Boundaries: A Political Argument for an Ethic of Care. London: Routledge.
   Google Scholar
• Vickery, Chad D., Samuel T. Gontkovsky, and Jerome S. Caroselli. 2005. “Self-Concept and Quality of Life following Acquired Brain Injury: A Pilot Investigation.” Brain Injury 19 (9): 657–665. https://doi.org/10.1080/02699050400005218
   PubMed Web of Science ®Google Scholar
• Vygotsky, Lev Simkhovich. 1994. “The Problem of the Environment.” In Van der Veer, R. and Valsiner. J. (Eds.) The Vygotsky Reader, 338–354. Oxford: Blackwell.
   Google Scholar
• Wertsch, James, V. 1985. Vygotsky and the Social Formation of Mind. Cambridge, MA: Harvard University Press.
   Google Scholar
• Wolbring, Gregor. 2008. “The Politics of Ableism.” Development 51 (2): 252–258. https://doi.org/10.1057/dev.2008.17
   Google Scholar
• Young, I. M. 1997. “Asymmetrical Reciprocity: On Moral Respect, Wonder, and Enlarged Thought.” Constellations 3 (3): 340–363. https://doi.org/10.1111/j.1467-8675.1997.tb00064.x
   Google Scholar
• Walker, N. 2023. Neurodiversity: Some basic terms and definitions. https://neuroqueer.com/neurodiversity-terms-and-definitions/
   Google Scholar