Navigating multiple and complex systems of care and support with ageing family carers from multicultural backgrounds in Australia

References

• Balram, R. 2022. “Indo-Fijian Women as Subversive Bodies in Fiji’s Sporting Arena: An Arts-Based Study.” Doctoral diss., Western Sydney University.
   Google Scholar
• Balram, R., B. Pang, and J. Knijnik. 2022. “Understanding Indo-Fijian Girls’ Experiences in Sport, Physical Activity and Physical Education: An Intersectional Study.” Sport, Education and Society, 1–15. https://doi.org/10.1080/13573322.2022.2154335
   Google Scholar
• Berg, B. 2012. Qualitative Research Methodsfor the Social Sciences. Eighth Edition. Boston: Pearson.
   Google Scholar
• Brown, A., and P. A. Danaher. 2019. “CHE Principles: Facilitating Authentic and Dialogical Semi-Structured Interviews in Educational Research.” International Journal of Research & Method in Education 42 (1): 76–90. https://doi.org/10.1080/1743727X.2017.1379987.
   Web of Science ®Google Scholar
• Cuendet, S., I. Medhi, K. Bali, and E. Cutrell. 2013. “VideoKheti: Making Video Content Accessible to Low-Literate and Novice Users.” Conference on Human Factors in Computing Systems – Proceedings.
   Google Scholar
• Doh, D., K. Soldatic, L. L. Mogensen, R. Balram, and N. Georgeou. 2023. “The Double Bind.” Care Transition Experiences of Ageing Informal Carers and People with Disability in Minority Migrant Communities.
   Google Scholar
• Forrester-Jones, R. 2019. “Transitions into Old Age: Support for Family Carers of People with Intellectual and Developmental Disabilities (IDD).” Journal of Intellectual Disability Research 63 (7): 649. https://doi.org/10.1111/jir.12651.
   Google Scholar
• Gines, K. T. 2011. “Black Feminism and Intersectional Analysis: A Defense of Intersectionality.” Philosophy Today 55 (Supplement): 275–284. https://doi.org/10.5840/philtoday201155Supplement68.
   Google Scholar
• Hasman, J., and I. Křížková. 2023. “Spatial Incorporation of Multiple Immigrant Groups in Gateway Cities: Comparative Analysis of Sydney, Barcelona, and Prague.” International Migration Review 57 (1): 128–159. https://doi.org/10.1177/01979183221078017.
   Web of Science ®Google Scholar
• Heath, S. C., V. Charles, G. Crow, and R. Wiles. 2007. “Informed Consent, Gatekeepers and Go-Betweens: Negotiating Consent in Child and Youth- Orientated Institutions.” British Educational Research Journal 33 (3): 403–417. https://doi.org/10.1080/01411920701243651.
   Web of Science ®Google Scholar
• Heino, E., and A. Lillrank. 2022. “Experiences among Migrant Parents with a Disabled Child When Interacting with Professionals: Recognition as an Inclusionary and Exclusionary Mechanism in Finnish Public Health and Social Services.” Disability & Society 37 (7): 1197–1215. https://doi.org/10.1080/09687599.2020.1867507.
   Web of Science ®Google Scholar
• Hill Collins, P., and S. Bilge. 2016. Intersectionality. Cambridge: Polity.
   Google Scholar
• Khanlou, N., N. Haque, N. Mustafa, L. M. Vazquez, A. Mantini, and J. Weiss. 2017. “Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada.” International Journal of Mental Health and Addiction 15 (2): 239–259. https://doi.org/10.1007/s11469-017-9732-4.
   PubMed Web of Science ®Google Scholar
• Kim, I., and S. Dababnah. 2022. “Transition to Adulthood: Perspectives of Korean Immigrant Parents of Individuals with Intellectual and Developmental Disabilities.” Career Development and Transition for Exceptional Individuals 45 (3): 120–130. https://doi.org/10.1177/21651434211043440.
   Web of Science ®Google Scholar
• Mathias, K., M. Kermode, M. San Sebastian, B. Davar, and I. Goicolea. 2019. “An Asymmetric Burden: Experiences of Men and Women as Caregivers of People with Psycho-Social Disabilities in Rural North India.” Transcultural Psychiatry 56 (1): 76–102. https://doi.org/10.1177/1363461518792728.
   PubMed Web of Science ®Google Scholar
• McKenzie, J., and R. McConkey. 2016. “Caring for Adults with Intellectual Disability: The Perspectives of Family Carers in South Africa.” Journal of Applied Research in Intellectual Disabilities 29 (6): 531–541. https://doi.org/10.1111/jar.12209.
   PubMed Web of Science ®Google Scholar
• O’Byrne. 2007. “The Advantags and Disadvantages of Mixing Methods: Analysis of Combining Traditional and Autoethnographic Approaches.” Qualitative Health Research 17: 1381–1391.
   PubMed Web of Science ®Google Scholar
• Pang, Y., P. Dinora, and D. Yarbrough. 2020. “The Gap between Theory and Practice: Using Cultural Brokering to Serve Culturally Diverse Families of Children with Disabilities.” Disability & Society 35 (3): 366–388. https://doi.org/10.1080/09687599.2019.1647147.
   Web of Science ®Google Scholar
• Petriwskyj, A., B. Adkins, and J. Franz. 2017. “Parent, Carer, Person: Future Plans and the Identities of Parent Carers for People with Disabilities.” Disability & Society 32 (1): 93–109. https://doi.org/10.1080/09687599.2016.1269640.
   Web of Science ®Google Scholar
• PLAID Project. 2017. Good Practice Guidelines for Virtual Demonstration. https://plaidh2020.hutton.ac.uk/sites/www.plaidh2020.eu/files/PLAID_WP4_ HUT_DV_Good%20Practice%20guidelines%20for%20Virtual%20Demonstr ations%2027 _2_19%20(00 3).pdf
   Google Scholar
• Rahman, S. 2016. “The Advantages and Disadvantages of Using Qualitative and Quantitative Approach: A Literature Review’es and Methods in Language ‘Testing and Assessment" Research.” Journal of Education and Learning 6 (1): 102–112. https://doi.org/10.5539/jel.v6n1p102.
   Google Scholar
• Reilly, R. 2013. “Found Poems, Member Checking and Crisis of Representation.” Qualitative Report 18 (30), 1–18.
   Google Scholar
• Renz, S. M., J. M. Carrington, and T. A. Badger. 2018. “Two Strategies for Qualitative Content Analysis: An Intramethod Approach to Triangulation.” Qualitative Health Research 28 (5): 824–831. https://doi.org/10.1177/1049732317753586.
   PubMed Web of Science ®Google Scholar
• Robine, J. M. 2021. Ageing Populations: We Are Living Longer Lives, but Are we Healthier. United Nations, Department of Economics and Social Affairs, Population Division.
   Google Scholar
• Rodrigues, R., and S. Ilinca. 2021. “How Does She Do It All? Effects of Education on Reconciliation of Employment and Informal Caregiving among Austrian Women.” Social Policy & Administration 55 (7): 1162–1180. https://doi.org/10.1111/spol.12706.
   Web of Science ®Google Scholar
• Schepens, H. R., J. Van Puyenbroeck, and B. Maes. 2019. “How to Improve the Quality of Life of Elderly People with Intellectual Disability: A Systematic Literature Review of Support Strategies.” Journal of Applied Research in Intellectual Disabilities: JARID 32 (3): 483–521. https://doi.org/10.1111/jar.12559.
   PubMed Web of Science ®Google Scholar
• Sepulveda Carmona, M. 2013. “Report of the Special Rapporteur on Extreme Poverty and Human Rights: Unpaid Care Work and Women’s Human Rights.” Available at SSRN 2437791.
   Google Scholar
• Soldatić, K., D. Doh, R. Balram, L. Mogensen, and N. Georgeou. 2024. “The Double Bind: Ageing and the Transition of Care for People with Disability and Their Carers from Minority Migrant Communities.” In The Routledge International Handbook of Disability and Global Health (pp. 686–696). Routledge.
   Google Scholar
• Soldatic, K., L. Magee, P. James, S. Partoredjo, and J. Mann. 2020. “Disability and Migration in Urban Australia: The Case of Liverpool.” Australian Journal of Social Issues 55 (4): 456–473. https://doi.org/10.1002/ajs4.93.
   Web of Science ®Google Scholar
• Stace, H. 2013. “Disability Care as Women’s Work.” Women’s Studies Journal 27 (1), 13–24.
   Google Scholar
• Stevens, C. S. 2010. “Disability, Caregiving and Interpellation: Migrant and Non- Migrant Families of Children with Disabilities in Urban Australia. Disability.” & Society 25 (7): 783–796.
   Web of Science ®Google Scholar
• Strauss, A., and J. Corbin. 1990. Basics of Qualitative Research: Grounded Theory Procedures and Techniques. London: Sage.
   Google Scholar
• Tse, M. M., R. Y. Kwan, and J. L. Lau. 2018. “Ageing in Individuals with Intellectual Disability: Issues and Concerns in Hong Kong.” Hong Kong Medical Journal 24 (1): 68–72. https://doi.org/10.12809/hkmj166302.
   PubMed Web of Science ®Google Scholar
• Walker, R., I. Belperio, S. Gordon, C. Hutchinson, and F. Rillotta. 2020. “Caring for a Family Member with Intellectual Disability into Old Age: Applying the Sociocultural Stress and Coping Model to Italian and Greek Migrants in Australia.” Journal of Applied Research in Intellectual Disabilities: JARID 33 (5): 887–897. https://doi.org/10.1111/jar.12710.
   PubMed Web of Science ®Google Scholar
• Walker, R., and C. Hutchinson. 2018. “Planning for the Future among Older Parents of Adult Offspring with Intellectual Disability Living at Home and in the Community: A Systematic Review of Qualitative Studies.” Journal of Intellectual & Developmental Disability 43 (4): 453–462. https://doi.org/10.3109/13668250.2017.1310823.
   Web of Science ®Google Scholar
• Williams, C. 2007. “Research Methods.” Journal of Business & Economics Research (JBER) 5 (3): 65–72.
   Google Scholar
• Wilson, V. 2014. Research Methods: Triangulation.
   Google Scholar
• Woodgate, R. L., M. Zurba, and P. Tennent. 2017. “Worth a Thousand Words? Advantages, Challenges and Opportunities in Working with Photovoice as a Qualitative Research Method with Youth and Their Families.” Qualitative Social Research 18 (1): 1–22. https://doi.org/10.17169/fqs-18.1.2659
   Google Scholar