Publication Cover
Progress in Palliative Care
Science and the Art of Caring
Volume 31, 2023 - Issue 1
435
Views
0
CrossRef citations to date
0
Altmetric
Articles

Compassionate community connectors: a distinct form of end-of-life volunteering

ORCID Icon, ORCID Icon & ORCID Icon

References

  • Vanderstichelen S, Houttekier D, Cohen J, van Wesemael Y, Deliens L, Chambaere K. Palliative care volunteerism across the healthcare system: a survey study. Palliat Med 2018;32(7):1233–45.
  • Scott R, Howlett S. The changing face of volunteering in hospice and palliative care: an international perspective.. Oxford: Oxford University Press; 2018. p. 1–228.
  • Söderhamn U, Flateland S, Fensli M, Skaar R. To be a trained and supported volunteer in palliative care - a phenomenological study. BMC Palliat Care 2017;16(1):1–9.
  • Woitha K, Hasselaar J, van Beek K, Radbruch L, Jaspers B, Engels Y, et al. Volunteers in palliative care - A comparison of seven European countries: a descriptive study. Pain Pract 2015;15(6):572–9.
  • Bloomer MJ, Walshe C. ‘It’s not what they were expecting’: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer. Palliative Med 2020;34:589–604.
  • Claxton-Oldfield S, Gibbon L, Schmidt-Chamberlain K. When to say “yes” and when to say “no”: boundary issues for hospice palliative care volunteers. Am J Hosp Palliat Med 2011;28(6):429–34.
  • Pesut B, Robinson CA, Bottorff JL. Among neighbors: an ethnographic account of responsibilities in rural palliative care. Palliat Support Care 2014;12(2):127–38.
  • Abel J, Bowra J, Walter T, Howarth G. Compassionate community networks: supporting home dying. BMJ Support Palliat Care 2011;1(2):129–33.
  • Rosenberg JP, Horsfall D, Leonard R, Noonan K. Informal caring networks for people at end of life: building social capital in Australian communities. Health Sociol Rev 2015;24(1):29–37.
  • Kellehear A. Compassionate cities: compassionate cities: public health and end of life care. London: Routledge; 2005.
  • Pesut B, Duggleby W, Warner G, Fassbender K, Antifeau E, Hooper B, et al. Volunteer navigation partnerships: piloting a compassionate community approach to early palliative care. BMC Palliat Care 2018;17(2):1–11.
  • Aoun SM, Abel J, Rumbold B, Cross K, Moore J, Skeers P, et al. The compassionate communities connectors model for end-of-life care: a community and health service partnership in Western Australia. Palliat Care Social Pract 2020;14:1–9.
  • Noonan K, Horsfall D, Leonard R, Rosenberg J. Developing death literacy. Progress Palliat Care 2016;24(1):31–5.
  • Sallnow L, Bunnin A, Richardson H. Community development and hospices: a national UK perspective community and hospices. In: K Wegleitner, K Heimerl, A Kellehear, (eds.) Compassionate communities: case studies from Britain and Europe. London: Routledge; 2015. p. 1–14.
  • Mckee M, Kelley ML, Guirguis-Younger M, Maclean M, Nadin S. It takes a whole community: the contribution of rural hospice volunteers to whole-person palliative care. J Palliat Care 2010;26(2):103–11.
  • Sallnow L. Collective social capital: a study of new public health and end-of-life care [Unpublished thesis]; 2017. Available from: https://www.researchgate.net/publication/328149510.
  • Paleri A, Numpeli M. The evolution of palliative care programmes in north Kerala. Indian J Palliat Care 2005;11(1):15–8.
  • Burbeck R, Candy B, Low J, Rees R. Understanding the role of the volunteer in specialist palliative care: a systematic review and thematic synthesis of qualitative studies. BMC Palliat Care 2014;13(3):1–12.
  • Dodd S, Hill M, Ockenden N, Algorta GP, Payne S, Preston N, et al. ‘Being with’ or ‘doing for’? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA). Support Care Cancer 2018;26(9):3163–72.
  • van Bochove M, Tonkens E, Verplanke L, Roggeveen S. Reconstructing the professional domain: boundary work of professionals and volunteers in the context of social service reform. Curr Sociol 2018;66(3):392–411.
  • Lee J, Lee JE. A palliative care program for volunteers in a community setting: A Mixed-methods pilot study. Am J Hosp Palliat Med 2020;37(6):455–64.
  • Sallnow L, Richardson H. Volunteering and community. In: R Scott, S Howlett (eds.) The changing face of volunteering in hospice and palliative care. Oxford: Oxford University Press; 2018.
  • Abel J, Walter T, Carey LB, Rosenberg J, Noonan K, Horsfall D, et al. Circles of care: should community development redefine the practice of palliative care? BMJ Support Palliat Care 2013;3(4):383–388.
  • Wegleitner K, Schuchter P, Prieth S. ‘Ingredients’ of a supportive web of caring relationships at the end of life: findings from a community research project in Austria. Sociol Health Illn 2020;42(5):987–1000.
  • Cronin P. Compassionate communities in Shropshire, West Midlands, England. In: K Wegleitner, K Heimerl, A Kellehear (eds.) Compassionate communities: case studies from Britain and Europe. London: Routledge; 2015. p. 30–45.
  • Sallnow L, Paul S. Understanding community engagement in end-of-life care: developing conceptual clarity. Crit Public Health 2015;25:231–8.
  • Wojno AE. Voluntary vulnerabilities: relationships and risk in a volunteer-based organization [Internet]; 2011 [cited 2022 Mar 16]. Available from: http://rave.ohiolink.edu/etdc/view?acc_num = ohiou1311965999.
  • Holt-Lunstad J, Smith TB, Layton JB. Social relationships and mortality risk: a meta-analytic review. PLos Med 2010;7:e1000316 .
  • Abel J, Kellehear A, Mills J, Patel M. Access to palliative care reimagined. Future Healthcare J 2021;8(3):e699–702.
  • Health Connections Mendip. Health Connections Mendip [Internet]. Website. [cited 2021 Dec 1]. Available from: https://healthconnectionsmendip.org.
  • McLoughlin K, Rhatigan J, McGilloway S, Kellehear A, Lucey M, Twomey F, et al. INSPIRE (INvestigating social and PractIcal suppoRts at the End of life): pilot randomised trial of a community social and practical support intervention for adults with life-limiting illness. BMC Palliat Care 2015;14(1):1–10.
  • Duggleby W, Pesut B, Cottrell L, Friesen L, Sullivan K, Warner G. Development, implementation, and evaluation of a curriculum to prepare volunteer navigators to support older persons living with serious illness. Am J Hosp Palliat Med 2018;35(5):780–7.
  • Johansson S, Leonard R, Noonan K. Caring and the generation of social capital: Two models for a positive relationship. Int J Soc Welfare 2012;21(1):44–52.
  • Abel J, Townsend D. Developing community support networks at the end of life in weston-super-mare, UK. In: K Wegleitner, K Heimerl, A Kellehear (eds.) Compassionate communities: case studies from Britain and Europe. London: Routledge; 2016. p. 15–29.
  • Compassionate Communities North West. Reach out scheme [Internet]; 2020 [cited 2021 Dec 1]. Available from: https://compassionatecommunitiesnw.com/reach-out-scheme/.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.