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Original Articles

Parent-reported Participation in Children with Moderate-to-severe Developmental Disabilities: Preliminary Analysis of Associated Factors using the ICF Framework

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References

  • Alpern, G. D. (2007). Developmental profile 3 (DP-3). Torrance, CA: Western Psychological Services.
  • Anaby, D., Law, M., Coster, W., Bedell, G., Khetani, M., Avery, L., … Teplicky, R. (2014). The mediating role of the environment in explaining participation of children and youth with and without disabilities across home, school, and community. Archives of Physical Medicine and Rehabilitation, 95, 908–917. doi:10.1016/j.apmr.2014.01.005
  • Bedell, G. M., Khetani, M. A., Cousins, M. A., Coster, W. J., & Law, M. C. (2011). Parent perspectives to inform development of measures of children’s participation and environment. Archives of Physical Medicine and Rehabilitation, 92, 765–773. doi:10.1016/j.apmr.2010.12.029
  • Bult, M. K., Verschuren, O., Lindeman, E., Jongmans, M. J., Westers, P., Claassen, A., … Ketelaar, M. (2013). Predicting leisure participation of school-aged children with cerebral palsy: Longitudinal evidence of child, family and environmental factors. Child: Care, Health and Development, 39, 374–380. doi:10.1111/j.1365-2214.2012.01391.x
  • Case-Smith, J. (2013). Systematic review of interventions to promote social-emotional development in young children with or at risk for disability. American Journal of Occupational Therapy, 67, 395–404. doi:10.5014/ajot.2013.004713
  • Chien, C. W., Rodger, S., & Copley, J. (2015). Development and psychometric evaluation of a new measure for children’s participation in hand-use life situations. Archives of Physical Medicine and Rehabilitation, 96, 1045–1055. doi:10.1016/j.apmr.2014.11.013
  • Chien, C. W., Rodger, S., Copley, J., Branjerdporn, G., & Taggart, C. (2016). Sensory processing and its relationship with children’s daily life participation. Physical & Occupational Therapy In Pediatrics, 36, 73–87. doi:10.3109/01942638.2015.1040573
  • Chien, C. W., Rodger, S., Copley, J., & McLaren, C. (2014). Measures of participation outcomes related to hand use for 2- to 12-year-old children with disabilities: A systematic review. Child: Care, Health and Development, 40, 458–471. doi:10.1111/cch.12037
  • Coleman, P. K., & Karraker, K. (1998). Self-efficacy and parenting quality: Findings and future applications. Developmental Review, 18, 47–85. doi:10.1006/drev.1997.0448
  • Efron, B., & Tibshirani, R. (1986). Bootstrap methods for standard errors, confidence intervals, and other measures of statistical accuracy. Statistical Science, 1, 54–75. doi:10.1214/ss/1177013817
  • Fisher, M., & Meyer, L. H. (2002). Development and social competence after two years for students enrolled in inclusive and self-contained educational programs. Research and Practice for Persons with Severe Disabilities, 27, 165–174. doi:10.2511/rpsd.27.3.165
  • Fong, S. S., Lee, V. Y., Chan, N. N., Chan, R. S., Chak, W. K., & Pang, M. Y. (2011). Motor ability and weight status are determinants of out-of-school activity participation for children with developmental coordination disorder. Research in Developmental Disabilities, 32, 2614–2623. doi:10.1016/j.ridd.2011.06.013
  • Foreman, P., Arthur-Kelly, M., Pascoe, S., & King, B. S. (2004). Evaluating the educational experiences of students with profound and multiple disabilities in inclusive and segregated classroom settings: An Australian perspective. Research and Practice for Persons with Severe Disabilities, 29, 183–193. doi:10.2511/rpsd.29.3.183
  • Gee Kee, E., Chien, C. W., Rodger, S., & Copley, J. (2014). Examining the association between children’s hand skill performance and participation in everyday life. Journal of Occupational Therapy, Schools, and Early Intervention, 7, 246–259. doi:10.1080/19411243.2014.979598
  • Gilmore, L., & Cuskelly, M. (2009). Factor structure of the parenting sense of competence scale using a normative sample. Child: Care, Health and Development, 35, 48–55. doi:10.1111/j.1365-2214.2008.00867.x
  • Graham, F., Rodger, S., & Ziviani, J. (2013). Effectiveness of occupational performance coaching in improving children’s and mothers’ performance and mothers’ self-competence. American Journal of Occupational Therapy, 67, 10–18. doi:10.5014/ajot.2013.004648
  • Hammal, D., Jarvis, S. N., & Colver, A. F. (2004). Participation of children with cerebral palsy is influenced by where they live. Developmental Medicine and Child Neurology, 46, 292–298. doi:10.1111/j.1469-8749.2004.tb00488.x
  • Harding, J., Harding, K., Jamieson, P., Mullally, M., Politi, C., Wong-Sing, E., … Petrenchik, T. M. (2009). Children with disabilities’ perceptions of activity participation and environments: A pilot study. Canadian Journal of Occupational Therapy, 76, 133–144. doi:10.1177/000841740907600302
  • Hoogsteen, L., & Woodgate, R. L. (2010). Can I play? A concept analysis of participation in children with disabilities. Physical & Occupational Therapy in Pediatrics, 30, 325–339. doi:10.3109/01942638.2010.481661
  • Johnston, C., & Mash, E. J. (1989). A measure of parenting satisfaction and efficacy. Journal of Clinical Child Psychology, 18, 167–175. doi:10.1207/s15374424jccp1802_8
  • Kang, L. J., Palisano, R. J., King, G. A., & Chiarello, L. A. (2014). A multidimensional model of optimal participation of children with physical disabilities. Disability and Rehabilitation, 36, 1735–1741. doi:10.3109/09638288.2013.863392
  • King, G., Law, M., Hurley, P., Petrenchik, T., & Schwellnus, H. (2010). A developmental comparison of the out‐of‐school recreation and leisure activity participation of boys and girls with and without physical disabilities. International Journal of Disability, Development and Education, 57, 77–107. doi:10.1080/10349120903537988
  • King, G., Law, M., Kertoy, M., & Petrenchik, T. (2006). Predictors of the leisure and recreation participation of children with physical disabilities: A structural equation modeling analysis. Children’s Health Care, 35, 209–234.10.1207/s15326888chc3503_2
  • King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., & Young, N. L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical & Occupational Therapy In Pediatrics, 23, 63–90. doi:10.1080/J006v23n01_05
  • Kopp, C. B., Baker, B. L., & Brown, K. W. (1992). Social skills and their correlates: Preschoolers with developmental delays. American Journal of Mental Retardation, 96, 357–366.
  • Law, M., Finkelman, S., Hurley, P., Rosenbaum, P., King, S., King, G., … Hanna, S. (2004). Participation of children with physical disabilities: Relationship with diagnosis, physical function, and demographic variables. Scandinavian Journal of Occupational Therapy, 11, 156–162. doi:10.1080/11038120410020755
  • Leung, G. P., Chan, C. C., Chung, R. C., & Pang, M. Y. (2011). Determinants of activity and participation in preschoolers with developmental delay. Research in Developmental Disabilities, 32, 289–296. doi:10.1016/j.ridd.2010.10.005
  • Longo, E., Badia, M., & Orgaz, B. M. (2013). Patterns and predictors of participation in leisure activities outside of school in children and adolescents with cerebral palsy. Research in Developmental Disabilities, 34, 266–275. doi:10.1016/j.ridd.2012.08.017
  • Lovejoy, M. C., Verda, M. R., & Hays, C. E. (1997). Convergent and discriminant validity of measures of parenting efficacy and control. Journal of Clinical Child Psychology, 26, 366–376. doi:10.1207/s15374424jccp2604_5
  • Majnemer, A. (2011). Importance of motivation to children’s participation: A motivation to change. Physical & Occupational Therapy In Pediatrics, 31, 1–3. doi:10.3109/01942638.2011.541747
  • Majnemer, A., Shevell, M., Law, M., Birnbaum, R., Chilingaryan, G., Rosenbaum, P., … Poulin, C. (2008). Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Developmental Medicine and Child Neurology, 50, 751–758. doi:10.1111/j.1469-8749.2008.03068.x
  • Mc Manus, V., Corcoran, P., & Perry, I. J. (2008). Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland. BMC Pediatrics, 8, 50. doi:10.1186/1471-2431-8-50
  • McConachie, H., Colver, A. F., Forsyth, R. J., Jarvis, S. N., & Parkinson, K. N. (2006). Participation of disabled children: How should it be characterised and measured? Disability and Rehabilitation, 28, 1157–1164. doi:10.1080/09638280500534507
  • Montigny, F., & Lacharite, C. (2005). Perceived parental efficacy: Concept analysis. Journal of Advanced Nursing, 49, 387–396. doi:10.1111/j.1365-2648.2004.03302.x
  • Pajares, F. (2006). Self-efficacy during childhood and adolescence: Implications for teachers and parents. In F. Pajares & T. Urdan (Eds.), Self-efficacy beliefs of adolescent (pp. 339–367). Greenwich, CT: Information Age Publishing Inc.
  • Palisano, R. J., Chiarello, L. A., Orlin, M., Oeffinger, D., Polansky, M., Maggs, J., … Gorton, G. (2011). Determinants of intensity of participation in leisure and recreational activities by children with cerebral palsy. Developmental Medicine and Child Neurology, 53, 142–149. doi:10.1111/j.1469-8749.2010.03819.x
  • Pallant, J. F. (2007). SPSS survival manual: A step-by-step guide to data analysis with SPSS (3rd ed.). Crows Nest: Allen & Unwin.
  • Queensland Government. (2006). Minister’s policy: Criteria to decide a person is a ‘Person with a Disability’ for the purpose of enrolment in state special schools. Retrieved from http://education.qld.gov.au/schools/disability/ministers-policy.html
  • Rosenberg, L. (2015). The associations between executive functions’ capacities, performance process skills, and dimensions of participation in activities of daily life among children of elementary school age. Applied Neuropsychology: Child, 4, 148–156. doi:10.1080/21622965.2013.821652
  • Rosenberg, L., Jarus, T., & Bart, O. (2010). Development and initial validation of the Children Participation Questionnaire (CPQ). Disability and Rehabilitation, 32, 1633–1644. doi:10.3109/09638281003611086
  • Rosenberg, L., Jarus, T., Bart, O., & Ratzon, N. Z. (2011). Can personal and environmental factors explain dimensions of child participation? Child: Care, Health and Development, 37, 266–275. doi:10.1111/j.1365-2214.2010.01132.x
  • Rosenberg, L., Ratzon, N. Z., Jarus, T., & Bart, O. (2010). Development and initial validation of the Environmental Restriction Questionnaire (ERQ). Research in Developmental Disabilities, 31, 1323–1331. doi:10.1016/j.ridd.2010.07.009
  • Rosenberg, L., Ratzon, N. Z., Jarus, T., & Bart, O. (2012). Perceived environmental restrictions for the participation of children with mild developmental disabilities. Child: Care, Health and Development, 38, 836–843. doi:10.1111/j.1365-2214.2011.01303.x
  • Shaw, D. S., Keenan, K., & Vondra, J. I. (1994). Developmental precursors of externalizing behavior: Ages 1 to 3. Developmental Psychology, 30, 355–364. doi:10.1037/0012-1649.30.3.355
  • Soref, B., Ratzon, N. Z., Rosenberg, L., Leitner, Y., Jarus, T., & Bart, O. (2012). Personal and environmental pathways to participation in young children with and without mild motor disabilities. Child: Care, Health and Development, 38, 561–571. doi:10.1111/j.1365-2214.2011.01295.x
  • Ullenhag, A., Krumlinde-Sundholm, L., Granlund, M., & Almqvist, L. (2014). Differences in patterns of participation in leisure activities in Swedish children with and without disabilities. Disability and Rehabilitation, 36, 464–471. doi:10.3109/09638288.2013.798360
  • World Health Organization (2001). International classification of functioning, disability, and health. Geneva: Author.

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