Parental Resilience and the Quality of Life of Children with Developmental Disabilities in Indonesia

References

• Anaby, D., Hand, C., Bradley, L., DiRezze, B., Forhan, M., DiGiacomo, A., & Law, M. (2013). The effect of the environment on participation of children and youth with disabilities: A scoping review. Disability and Rehabilitation, 35(19), 1589–1598.
   PubMed Web of Science ®Google Scholar
• Anderson, D. (2009). Adolescent girls’ involvement in disability sport: Implications for identity development. Journal of Sport and Social Issues, 33(4), 427–449.
   Web of Science ®Google Scholar
• Bentler, P. M. (1990). Comparative fit indexes in structural models. Psychological Bulletin, 107(2), 238–246. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/2320703.
   PubMed Web of Science ®Google Scholar
• Bois, J. E., Sarrazin, P. G., Brustad, R. J., Trouilloud, D. O., & Cury, F. (2005). Elementary schoolchildren’s perceived competence and physical activity involvement: The influence of parents‘ role modelling behaviours and perceptions of their child’s competence. Psychology of Sport and Exercise, 6(4), 381–397.
   Web of Science ®Google Scholar
• Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215.
   Google Scholar
• Burgess, A. F., & Gutstein, S. E. (2007). Quality of life for people with Autism: Raising the standard for evaluating successful outcomes. Child and Adolescent Mental Health, 12(2), 80–86. Retrieved from: https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.1475-3588.2006.00432.x.
   PubMedGoogle Scholar
• Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2011). Quality of life: A key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research, 20(8), 1279–1294. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/21312064 https://link.springer.com/content/pdf/10.1007%2Fs11136-011-9861-3.pdf.
   PubMed Web of Science ®Google Scholar
• Chao, R., & Tseng, V. (2002). Parenting of Asians. In M. H. Bornstein (Ed.), Handbook of parenting: Social Conditions and applied parenting (Vol. 4, pp. 59–93). Mahwah, NJ, US: Lawrence Erlbaum Associates Publisher.
   Google Scholar
• Chiang, L. H., & Hadadian, A. (2007). Chinese and Chinese-American families of children with disabilities. International Journal of Special Education, 22(2), 19–23.
   Google Scholar
• Chow, S. M. K., Lo, S. K., & Cummins, R. A. (2005). Self-perceived quality of life of children and adolescents with physical disabilities in Hong Kong. Quality of Life Research, 14(2), 415–423. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/15892430.
   PubMed Web of Science ®Google Scholar
• Diono, A., Mujaddid, F. A. P., & Budijanto, D. (2014). Situasi Penyandang Disabilitas. Retrieved from http://www.pusdatin.kemkes.go.id/resources/download/pusdatin/buletin/buletin-disabilitas.pdf.
   Google Scholar
• Dunst, C. J. (2007). Early intervention for infants and toddlers with developmental disabilities. Handbook of Developmental Disabilities, 161–180.
   Google Scholar
• Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274–1284. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/20195734.
   PubMed Web of Science ®Google Scholar
• Felce, D., & Perry, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16(1), 51–74. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/7701092.
   PubMed Web of Science ®Google Scholar
• Frain, M. P., Berven, N. L., Tschopp, M. K., Lee, G. K., Tansey, T., & Chronister, J. (2007). Use of the resiliency model of family stress, adjustment and adaptation by rehabilitation counselors. Journal of Rehabilitation, 73(3), 18–25. Retrieved from <Go to ISI>://WOS:000250016600003
   Google Scholar
• Garcia-Dia, M. J., DiNapoli, J. M., Garcia-Ona, L., Jakubowski, R., & O’Flaherty, D. (2013). Concept analysis: Resilience. Archives of Psychiatric Nursing, 27(6), 264–270. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/24238005 https://www.sciencedirect.com/science/article/pii/S0883941713000927?via%3Dihub.
   PubMed Web of Science ®Google Scholar
• Greeff, A. P., & Van der Walt, K. J. (2010). Resilience in families with an autistic child. Education and Training in Autism and Developmental Disabilities, 45(3), 347–355.
   Google Scholar
• Gupta, V. B. (2007). Comparison of parenting stress in different developmental disabilities. Journal of Developmental and Physical Disabilities, 19(4), 417–425.
   Web of Science ®Google Scholar
• Harrison, C., & Sofronoff, K. (2002). ADHD and parental psychological distress: Role of demographics, child behavioral characteristics, and parental cognitions. Journal of the American Academy of Child & Adolescent Psychiatry, 41(6), 703–711. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/12049445.
   PubMed Web of Science ®Google Scholar
• Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107(2), 116–127. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/11853529.
   PubMedGoogle Scholar
• Heiman, T. (2002). Parents of children with disabilities: Resilience, coping, and future expectations. Journal of Developmental and Physical Disabilities, 14(2), 159–171.
   Web of Science ®Google Scholar
• Henly, J. R., Danziger, S. K., & Offer, S. (2005). The contribution of social support to the material well-being of low-income families. Journal of Marriage and Family, 67(1), 122–140. Retrieved from: https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.0022-2445.2005.00010.x.
   Web of Science ®Google Scholar
• Keshavarz, S., & Baharudin, R. (2009). Parenting style in a collectivist culture of Malaysia. European Journal of Social Sciences, 10(1), 66–73.
   Google Scholar
• King, G., Lawm, M., King, S., Rosenbaum, P., Kertoy, M. K., & Young, N. L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical and Occupational Therapy in Pediatrics, 23(1), 63–90. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/12703385 https://www.tandfonline.com/doi/pdf/10.1080/J006v23n01_05?needAccess=true.
   PubMedGoogle Scholar
• Kline, R. B., & Santor, D. A. (1999). Principles and practice of structural equation modelling. Canadian Psychology, 40(4), 381.
   Google Scholar
• Kusumastuti, P., Pradanasari, R., & Ratnawati, A. (2014). The problems of people with disability in Indonesia and what is being learned from the world report on disability. American Journal of Physical Medicine and Rehabilitation, 93(1Suppl 1), S63–67. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/24356085.
   Google Scholar
• Luong, J., Yoder, M. K., & Canham, D. (2009). Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles. The Journal of School Nursing, 25(3), 222–229. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/19364878.
   PubMed Web of Science ®Google Scholar
• Magnuson, K. A., & Duncan, G. J. (2002). Parents in poverty. Handbook of Parenting, 4, 95–121.
   Google Scholar
• Maulidia, F. N., Kinanthi, M. R., Permata, A. S., & Fitria, N. (2017). Family resilience pada keluarga yang memiliki anak dengan spektrum Autistik–ditinjau dari Perspektif Ibu [Family resilience in the family with Autistic Spectrum Disorder child - mother’s perspective]. Intuisi: Jurnal Psikologi Ilmiah, 9(1), 47–56.
   Google Scholar
• Migerode, F., Maes, B., Buysse, A., & Brondeel, R. (2012). Quality of life in adolescents with a disability and their parents: The mediating role of social support and resilience. Journal of Developmental and Physical Disabilities, 24(5), 487–503. Retrieved from <Go to ISI>://WOS:000308345700005: https://link.springer.com/content/pdf/10.1007%2Fs10882-012-9285-1.pdf.
   Web of Science ®Google Scholar
• Neely-Barnes, S. L., & Dia, D. A. (2008). Families of children with disabilities: A review of literature and recommendations for interventions. Journal of Early and Intensive Behavior Intervention, 5(3), 93–107.
   Google Scholar
• Odom, S. L., Horner, R. H., & Snell, M. E. (2007). Handbook of developmental disability. Retrieved from https://www.researchgate.net/profile/Rutger_Gaag/publication/225798847_Handbook_of_developmental_disabilities/links/55144a760cf283ee08351252/Handbook-of-developmental-disabilities.pdf
   Google Scholar
• Openshaw, K. P. (2011). The relationship between family functioning, family resilience, and quality of life among vocational rehabilitation clients [Doctoral dissertation]. Utah State University. Retrieved from https://digitalcommons.usu.edu/cgi/viewcontent.cgi?article=2084&context=etd
   Google Scholar
• Orbuch, T. L., Parry, C., Chesler, M., Fritz, J., & Repetto, P. (2005). Parent-child relationships and quality of life: Resilience among childhood cancer survivors. Family Relations, 54(2), 171–183. Retrieved from: https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.0197-6664.2005.00014.x.
   Google Scholar
• Orthner, D. K., Jones-Sanpei, H., & Williamson, S. (2004). The resilience and strengths of low-income families. Family Relations, 53(2), 159–167. Retrieved from: https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.0022-2445.2004.00006.x.
   Web of Science ®Google Scholar
• Petry, K., Maes, B., & Vlaskamp, C. (2009). Measuring the quality of life of people with profound multiple disabilities using the QOL-PMD: First results. Research in Developmental Disabilities, 30(6), 1394–1405. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/19595562.
   PubMed Web of Science ®Google Scholar
• Riany, Y. E., Meredith, P., & Cuskelly, M. (2017). Understanding the influence of traditional cultural values on Indonesian parenting. Marriage and Family Review, 53(2), 207–226. Retrieved from <Go to ISI>://WOS:000424607800001: https://www.tandfonline.com/doi/pdf/10.1080/01494929.2016.1157561?needAccess=true.
   Google Scholar
• Riany, Y. E., Cuskelly, M., & Meredith, P. (2016). Cultural beliefs about autism in Indonesia. International Journal of Disability, Development and Education, 63(6), 623–640.
   Web of Science ®Google Scholar
• Riany, Y. E., Cuskelly, M., & Meredith, P. (2017). Parenting style and parent–child relationship: A comparative study of Indonesian parents of children with and without Autism Spectrum Disorder (ASD). Journal of Child and Family Studies, 26(12), 3559–3571.
   Web of Science ®Google Scholar
• Santoso, T. B., Ito, Y., Ohshima, N., Hidaka, M., & Bontje, P. (2015). Resilience in daily occupations of Indonesian mothers of children with Autism Spectrum Disorder. American Journal of Occupational Therapy, 69(5), 6905185020p6905185021–6905185028. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/26356659http://ajot.aota.org/article.aspx?articleid=2436690.
   Web of Science ®Google Scholar
• Sasson, S. (2000). Beneficence versus respect for autonomy: An ethical dilemma in social work practice. Journal of Gerontological Social Work, 33(1), 5–16. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/14628757 https://www.tandfonline.com/doi/pdf/10.1300/J083v33n04_02?needAccess=true.
   PubMed Web of Science ®Google Scholar
• Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, Suppl 119(Supplement 1), S114–121. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/17272578.
   PubMedGoogle Scholar
• Schippers, A. (2010). Quality of life in disability studies. Medische Antropologie, 22(2), 277.
   Google Scholar
• Sidjaja, F. F., Newcombe, P. A., & Sofronoff, K. (2017). The diagnosis of autism spectrum disorder in urban Indonesia: A brief report. International Journal of Disability, Development and Education, 64(1), 33–44. Retrieved from <Go to ISI>://WOS:000392844200003: https://www.tandfonline.com/doi/pdf/10.1080/1034912X.2016.1162768?needAccess=true.
   Web of Science ®Google Scholar
• Singer, G. H. S., Ethridge, B. L., & Aldana, S. I. (2007). Primary and secondary effects of parenting and stress management interventions for parents of children with developmental disabilities: A meta-analysis. Mental Retardation and Developmental Disabilities Research Reviews, 13(4), 357–369. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/17979202.
   PubMedGoogle Scholar
• Siperstein, G. N., Glick, G. C., & Parker, R. C. (2009). Social inclusion of children with intellectual disabilities in a recreational setting. Intellectual and Developmental Disabilities, 47(2), 97–107. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/19368488 https://aaiddjournals.org/doi/pdf/10.1352/1934-9556-47.2.97.
   PubMed Web of Science ®Google Scholar
• Smith, L. E., Greenberg, J. S., & Seltzer, M. M. (2012). Social support and well-being at mid-life among mothers of adolescents and adults with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders, 42(9), 1818–1826. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/22160348 https://link.springer.com/content/pdf/10.1007%2Fs10803-011-1420-9.pdf.
   PubMed Web of Science ®Google Scholar
• Sorkhabi, N. (2005). Applicability of Baumrind’s parent typology to collective cultures: Analysis of cultural explanations of parent socialization effects. International Journal of Behavioral Development, 29(6), 552–563. Retrieved from <Go to ISI>://WOS:000233474900010: https://www.tandfonline.com/doi/pdf/10.1080/01650250500172640?needAccess=true.
   Web of Science ®Google Scholar
• Steiger, J. H. (1990). Structural model evaluation and modification: An interval estimation approach. Multivariate Behavioral Research, 25(2), 173–180. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/26794479 https://www.tandfonline.com/doi/pdf/10.1207/s15327906mbr2502_4?needAccess=true.
   PubMed Web of Science ®Google Scholar
• Suzuki, K., Kobayashi, T., Moriyama, K., Kaga, M., Hiratani, M., Watanabe, K., … Yamashita. (2015). Development and evaluation of a Parenting Resilience Elements Questionnaire (PREQ) measuring resiliency in rearing children with developmental disorders. PLoS One, 10(12), p e0143946. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/26633810.
   Web of Science ®Google Scholar
• Suzuki, K., Kobayashi, T., Moriyama, K., Kaga, M., & Inagaki, M. (2013). A framework for resilience research in parents of children with developmental disorders. Asian Journal of Human Services, 5(0), 104–111. Retrieved from https://www.jstage.jst.go.jp/article/ajhs/5/0/5_104/_pdf.
   Google Scholar
• Townsend-White, C., Pham, A. N. T., & Vassos, M. V. (2012). Review: A systematic review of quality of life measures for people with intellectual disabilities and challenging behaviours. Journal of Intellectual Disability Research, 56(3), 270–284. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/21679329.
   PubMed Web of Science ®Google Scholar
• Ungar, M. (2006). Resilience across cultures. British Journal of Social Work, 38(2), 218–235.
   Web of Science ®Google Scholar
• Ungar, M. (2011). Community resilience for youth and families: Facilitative physical and social capital in contexts of adversity. Children and Youth Services Review, 33(9), 1742–1748. Retrieved from <Go to ISI>://WOS:000294147600031: https://www.sciencedirect.com/science/article/pii/S0190740911001496?via%3Dihub.
   Web of Science ®Google Scholar
• Wong, S. Y., Wong, T. K., Martinson, I., Lai, A. C., Chen, W. J., & He, Y. S. (2016). Needs of Chinese parents of children with developmental disability. Journal of Learning Disabilities, 8(2), 141–158.
   Google Scholar
• Yeh, C. J., Arora, A. K., & Wu, K. A. (2006). A new theoretical model of collectivistic coping Handbook of multicultural perspectives on stress and coping (pp. 55–72). Boston, MA: Springer.
   Google Scholar