Sibling Issues in Disability: A Thematic Analysis of Sibling, Parent & Expert Perspectives

References

• Bischoff, L., & Tingstrom, D. (1991). Siblings of children with disabilities: Psychological and behavioural characteristics. Counselling Psychology Quarterly, 4(4), 311–321.
   Google Scholar
• Björkenstam, E., Burström, B., Brännström, L., Vinnerljung, B., Bjökenstam, C., & Pebley, A. R. (2015). Cumulative exposure to childhood stressors and subsequent psychological distress. An analysis of US panel data. Social Science & Medicine, 142, 109–117.
   PubMed Web of Science ®Google Scholar
• Byrne, D. G., Thomas, K. A., Burchell, J. L., Olive, L. S., & Mirabito, N. S. (2011). Stressor experience in primary school-aged children: Development of a scale to assess profiles of exposure and effects on psychological well-being. International Journal of Stress Management, 19(1), 88–111.
   Google Scholar
• Catherall, D. 2011. The impact of lower magnitude stressors on child and adolescent development: The family context. In. V. Ardino (Eds.), Post-traumatic syndromes in childhood and adolescence: A handbook of research and practice. 63–76. England: Wiley-Blackwell.
   Google Scholar
• Chan, G. W. L., & Goh, E. C. L. (2014). My parents told us that they will always treat my brother differently because he is autistic’ – Are siblings of autistic children the forgotten ones? Journal of Social Work Practice, 28(2), 155–171.
   Web of Science ®Google Scholar
• Chan, J., & Lai, K. (2016). Psychological adjustment of siblings of children with autism spectrum disorder in Hong Kong. East Asian Archives Of Psychiatry, 26(4), 141–147.
   PubMedGoogle Scholar
• Cicirelli, V. A. (1976). Siblings teaching siblings. In V. L. Allen (Ed.), Children as teachers (pp. 99–111). New York: Academic Press.
   Google Scholar
• Cleveland, D., & Miller, N. (1977). Attitudes and life commitment of older siblings of mentally retarded adults: An exploratory study. Mental Retardation, 3, 38–41.
   Google Scholar
• Corbin, J. M., & Strauss, J. M. (2007). Basics of qualitative research: Techniques and procedures for developing grounded theory (3rd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Cresswell, J., Plano Clark, V., Gutmann, M., & Hanson, W. (2003). Advance mixed methods Research designs. In A. Tashakkori & C. Teddlie (Ed.), Handbook of mixed methods in social & behavioral research (pp. 209–240). California: Sage Publications.
   Google Scholar
• Creswell, J. W. (2012). Educational research: Planning, conducting, and evaluating quantitative and qualitative research (4th ed.). Upper Saddle River, NJ: Merrill.
   Google Scholar
• Creswell, J., & Plano Clark, V. (2007). Designing and conducting mixed methods research. Thousand Oaks, CA: Sage.
   Google Scholar
• Creswell, J., & Plano Clark, V. (2011). Designing and conducting mixed methods research (2nd ed.). Los Angeles: Sage Publications.
   Google Scholar
• Crocker, A. (1981). The involvement of siblings of children with handicaps. In A. Milunsky (Ed.), Coping with crisis and handicap (pp. 219–223). New York: Plenum Press.
   Google Scholar
• Cuskelly, M. (1999). Adjustment of siblings of children with a disability: Methodological issues. International Journal for the Advancement of Counselling, 21(2), 111–124.
   Google Scholar
• Cuskelly, M., & Gunn, P. (2006). Sibling relationships of children with down syndrome: Perspectives of mothers, fathers and siblings. American Journal on Mental Retardation, 108(4), 234–244.
   Google Scholar
• Dervishaliaj, E., & Murati, E. (2014). Families of children with developmental disabilities: Perceptions and experiences of adolescent siblings of children with developmental disabilities. European Scientific Journal, ESJ, 10(2), 129–142.
   Google Scholar
• Donovan, A. M. (1988). Family stress and ways of coping with adolescents who have handicaps: Maternal perceptions. American Journal on Mental Retardation, 92(6), 502–509.
   PubMedGoogle Scholar
• Egan, J., & Walsh, P. (2001). Sources of stress among adult siblings of Irish people with intellectual disability. The Irish Journal Of Psychology, 22(1), 28–38.
   Google Scholar
• Farber, B. (1959). Effects of a severely mentally retarded child on family integration. Monographs of the Society for Research in Child Development, 27(2, Serial No. 75), 1–112.
   Google Scholar
• Farber, B., & Rychman, D. B. (1965). Effects of severely mentally retarded children on family relationships. Mental Retardation Abstracts, 2, 1–17.
   Google Scholar
• Finzi-Dottan, R., & Cohen, O. (2010). Young adult sibling relations: The effects of perceived parental favoritism and narcissism. The Journal Of Psychology, 145(1), 1–22.
   Web of Science ®Google Scholar
• Furman, W., & Buhrmester, D. (1985). Children’s perceptions of the qualities of sibling relationships. Child Development, 56(2), 448–461.
   PubMed Web of Science ®Google Scholar
• Gallo, A. M., Breitmayer, B. J., Knafl, K. A., & Zoeller, L. H. (1991). Stigma in childhood chronic illness: A well sibling perspective. Pediatric Nursing, 17(1), 21–25.
   PubMedGoogle Scholar
• Gamble, W. C. (1983). The experiences and coping strategies of children with and without disabled siblings. Unpublished doctoral dissertation, The Pennsylvania State University.
   Google Scholar
• Gamble, W. C., & McHale, S. M. (1989). Coping with stress in sibling relationships: A comparison of children with disabled and non-disabled siblings. Journal of Applied Developmental Psychology, 10(3), 353–373.
   Google Scholar
• Gamble, W. C., & Woulbroun, J. E. (1993). Measurement considerations in the identification and assessment of stressors and coping strategies. In Z. Stoneman & P. Waldman-Berman (Eds.), The effects of mental retardation, disability, and illness on sibling relationships: Research issues and challenges (pp. 287–319). Baltimore: Paul H. Brookes.
   Google Scholar
• Gath, A. (1974). Sibling reactions to mental handicap: A comparison of the brothers and sisters of mongol children. Journal of Child Psychology and Psychiatry, 15(3), 187–198.
   PubMed Web of Science ®Google Scholar
• Gibbons, H., & Gibbons, C. (2016). Siblings with disabilities: A duoethnography on the intersections between a sibling relationship and disability. Disability & Society, 31(6), 820–837.
   Web of Science ®Google Scholar
• Grant, K. E., McMahon, S. D., Duffy, S. N., Taylor, J. J., & Compas, B. E. (2011). Stressors and mental health problems in childhood and adolescence. The Handbook of Stress Science: Biology, Psychology and Health, 359–372.
   Google Scholar
• Grossman, F. K. (1972). Brothers and sisters of retarded children. Syracuse, NY: Syracuse University Press.
   Google Scholar
• Hastings, R. P. (2002). Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual & Developmental Disability, 27(3), 149–160.
   Web of Science ®Google Scholar
• Hayden, N., Hastings, R., Totsika, V., & Langley, E. (2019). A population-based study of the behavioral and emotional adjustment of older siblings of children with and without intellectual disability. Journal Of Abnormal Child Psychology, 47(8), 1409–1419.
   PubMed Web of Science ®Google Scholar
• Hintermair, M. (2006). Parental resources, parental stress, and socioemotional development of heard and hard of hearing children. Journal of Deaf Studies and Deaf Education, 11(4), 493–513.
   PubMed Web of Science ®Google Scholar
• Howlin, P. (1988). Living with impairment: The effects on children having an autistic sibling. Child: Care, Health and Development, 14(6), 395–408.
   PubMed Web of Science ®Google Scholar
• Jensen, A. C., Whiteman, S. D., Fingerman, K. L., & Birditt, K. S. (2013). “Life still isn’t fair”: Parental differential treatment of young adult siblings. Journal of Marriage and Family, 75(2), 438–452.
   PubMed Web of Science ®Google Scholar
• Kovshoff, H., Cebula, K., Tsai, H., & Hastings, R. (2017). Siblings of children with autism: The siblings embedded systems framework. Current Developmental Disorders Reports, 4(2), 37–45.
   PubMedGoogle Scholar
• Kowal, A. K., & Kramer, L. (1997). Children’s understanding of parental differential treatment. Child Development, 68(1), 113–126.
   Web of Science ®Google Scholar
• Krinsley, K. E., & Bry, B. H. (1992). Sequential analyses of adolescent, mother and father behaviors in distressed and non distressed families. Child & Family Behavior Therapy, 13(4), 45–62.
   Web of Science ®Google Scholar
• Maccoby, E. E., & Martin, J. A. (1983). Socialization in the context of the family: Parent-child interaction. In E. P. H. Mussen & E. M. Hetherington (Eds.), Handbook of child psychology: Vol. 4. Socialization, personality and social development (4ª ed., pp. 1–101). New York: Wiley.
   Google Scholar
• McCubbin, H. I., & Patterson, J. (1983). The family stress process: The double ABCX model of adjustment and adaptation. In H. I. McCubbin, M. B. Sussman, & J. M. Patterson (Eds.), Social stress and the family: Advances and developments in family stress theory and research. Marriage and family review (pp. 7–38). New York: Haworth.
   Google Scholar
• Meltzer, A., & Kramer, J. (2016). Siblinghood through disability studies perspectives: Diversifying discourse and knowledge about siblings with and without disabilities. Disability & Society, 31(1), 17–32.
   Web of Science ®Google Scholar
• Milevsky, A. (2014), Siblings of Children with disabilities. Retrieved 20 January 2021, from https://www.psychologytoday.com/us/blog/band-brothers-and-sisters/201406/siblings-children-disabilities
   Google Scholar
• Milevsky, A. (2016). Sibling issues in therapy (pp. 63). London: Palgrave Macmillan.
   Google Scholar
• Moustakas, C. (1994). Phenomenological research methods. Thousand Oaks, CA: Sage.
   Google Scholar
• Murphy, L., Murray, C., & Compas, B. (2017). Topical review: Integrating findings on direct observation of family communication in studies comparing pediatric chronic illness and typically developing samples. Journal Of Pediatric Psychology, 42(1), 85–94.
   PubMed Web of Science ®Google Scholar
• Neece, C., Blacher, J., & Baker, B. (2010). Impact on siblings of children with intellectual disability: The role of child behavior problems. American Journal On Intellectual And Developmental Disabilities, 115(4), 291–306.
   PubMedGoogle Scholar
• Neuman, W. (2011). Social research methods. Boston: Allyn & Bacon.
   Google Scholar
• Orm, S., Haukeland, Y., Vatne, T., Silverman, W., & Fjermestad, K. (2021). Prosocial behavior is a relative strength in siblings of children with physical disabilities or autism spectrum disorder. Journal Of Developmental And Physical Disabilities. doi:10.1007/s10882-021-09816-7
   Web of Science ®Google Scholar
• Perenc, L., & Pęczkowski, R. (2018). Cognitive and affective empathy among adolescent siblings of children with a physical disability. Disability And Health Journal, 11(1), 43–48.
   PubMed Web of Science ®Google Scholar
• Perenc, L., Radochoński, M., & Radochońska, A. (2015). Prosocial competencies among adolescent siblings of the physically disabled. Current Issues In Personality Psychology, 4, 195–202.
   Google Scholar
• Pervin, E. (2018). My brother, my self: An autoethnography of siblinghood and disability. Toronto, Ontario: York University.
   Google Scholar
• Pillemer, K., Suitor, J. J., Pardo, S., & Henderson, C., Jr. (2010). Mothers’ differentiation and depressive symptoms among adult children. Journal of Marriage and the Family, 72(2), 333–345.
   PubMed Web of Science ®Google Scholar
• Roper, S., Allred, D., Mandleco, B., Freeborn, D., & Dyches, T. (2014). Caregiver burden and sibling relationships in families raising children with disabilities and typically developing children. Families, Systems, & Health, 32(2), 241–246.
   PubMed Web of Science ®Google Scholar
• Rossman, G., & Rallis, S. F. (2012). Learning in the field: An introduction to qualitative research (3rd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Scholte, R. H., Engels, R. C. M. E., de Kemp, R. A. T., Harakeh, Z., & Overbeek, G. (2007). Differential parental treatment, sibling relationships and delinquency in adolescence. Journal of Youth and Adolescence, 36(5), 661–671.
   Web of Science ®Google Scholar
• Seligman, M. (1979). Strategies for helping parents of exceptional children. New York: Free Press.
   Google Scholar
• Shebloski, B., Conger, K., & Widaman, K. (2005). Reciprocal links among differential parenting, perceived partiality, and self-worth: A three-wave longitudinal study. Journal of Family Psychology, 19(4), 633–642.
   PubMed Web of Science ®Google Scholar
• Smith, J. (2016). Eight things siblings of children with special needs struggle with. The Washington Post. Retrieved from https://www.washingtonpost.com/news/parenting/wp/2016/12/20/8-things-siblings-of-children-with-special-needs-struggle-with/
   Google Scholar
• Sokolowski, R. (2000). Introduction to phenomenology. Washington DC: Cambridge University Press.
   Google Scholar
• Stoneman, Z. (2005). Siblings of children with disabilities: Research themes. Mental Retardation, 43(5), 339–350.
   PubMedGoogle Scholar
• Stoneman, Z., & Brody, G. (1993). Sibling relations in the family context. In Z. Stoneman & P. Berman (Eds.), The effects of mental retardation, disability, and illness on sibling relationships: Research issues and challenges (pp. 3–30). Baltimore: Paul H. Brookes Publishing.
   Google Scholar
• Suitor, J. J., Sechrist, J., & Pillemer, K. (2007). Within-family differences in mothers’ support to adult children in Black and White families. Research on Aging, 29(5), 410–435.
   Web of Science ®Google Scholar
• Suitor, J. J., Sechrist, J., Plikuhn, M., Pardo, S. T., Gilligan, M., & Pillemer, K. (2009). The role of perceived maternal favoritism in sibling relations in midlife. Journal of Marriage and Family, 71(4), 1026–1038.
   PubMed Web of Science ®Google Scholar
• Tejerina-Allen, M., Wagner, B., & Cohen, P. (1994). A comparison of across-family and within-family parenting predictors of adolescent psychopathology and suicidal ideation. In E. M. Hetherington, D. Reiss, & R. Plomin (Eds.), Separate social worlds of siblings: The impact of nonshared environment on development (pp. 143–158). Hillsdale, NJ: Erlbaum.
   Google Scholar
• Thietart, R. (2007). Doing management research - a comprehensive guide. Los Angeles: SAGE Publications Ltd.
   Google Scholar
• Tie, Y. C. 3., Birks, M., & Francis, K. (2019). Grounded theory research: A design framework for novice researchers. SAGE Open Medicine, 7, 205031211882292.
   Web of Science ®Google Scholar
• Tomeny, T., Ellis, B., Rankin, J., & Barry, T. (2017). Sibling relationship quality and psychosocial outcomes among adult siblings of individuals with autism spectrum disorder and individuals with intellectual disability without autism. Research In Developmental Disabilities, 62, 104–114.
   PubMed Web of Science ®Google Scholar
• Vella Gera, J., Martin, G., & Camilleri Zahra, A. (2020). An insight into the lives of young siblings of disabled children in Malta. Disability & Society, 36(1), 58–80.
   Web of Science ®Google Scholar
• Vermaes, I., van Susante, A., & van Bakel, H. (2012). Psychological functioning of siblings in families of children with chronic health conditions: A meta-analysis. Journal Of Pediatric Psychology, 37(2), 166–184.
   PubMed Web of Science ®Google Scholar
• Weisner, X., Gallimore, R., Bacon, M. K., Barry, H., Bell, C., Novaes, S. C., & Williams, T. R. (1977). My brother’s keeper: Child and sibling caretaking. Current Anthropology, 18(2), 169–170.
   Web of Science ®Google Scholar
• Wikler, L. (1986). Chronic stresses of families of mentally retarded children. Family Relations, 30(2), 281–288.
   Google Scholar
• Wofford, J., & Carlson, R. (2017). A literature review and case study on the strengths and struggles of typically developing siblings of persons with disabilities. The Family Journal, 25(4), 398–406.
   Web of Science ®Google Scholar