Ethnographic analysis of communication and the deaf community’s rights in the clinical context

References

• Alexander, A., Ladd, P., & Powell, S. (2012). Deafness might damage your health. The Lancet, 379(9820), 979–981. doi: 10.1016/S0140-6736(11)61670-X
   PubMed Web of Science ®Google Scholar
• Allport, G. W. (1977). La naturaleza del prejuicio. Buenos Aires: EUDEBA.
   Google Scholar
• Anderson, R. M. (1995). Revising the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behavior, 36, 1–10. doi: 10.2307/2137284
   PubMed Web of Science ®Google Scholar
• Anderson, R. M. (2008). National health surveys and the behavioral model of health services use. Medical Care, 46(7), 647–653. doi: 10.1097/MLR.0b013e31817a835d
   PubMed Web of Science ®Google Scholar
• Anderson, R. M., McCutcheon, A., Aday, L. A., Chiu, G. Y., & Bell, R. (1983). Exploring dimensions of access to medical care. Health Services Research, 18(1), 49–74.
   PubMed Web of Science ®Google Scholar
• Berry, J. A., & Stewart, A. J. (2006). Communicating with the deaf during the health examination visit. The Journal for Nurse Practitioners, 2(8), 509–515. doi: 10.1016/j.nurpra.2006.06.013
   Google Scholar
• Blackford, J., Street, A., & Parsons, C. (1997). Breaking down language barriers in clinical practice. Contemporary Nurse: A Journal for the Australian Nursing Profession, 6(1), 15–21. doi: 10.5172/conu.1997.6.1.15
   PubMedGoogle Scholar
• Brown, J. B., Boles, M., Mullooly, J. P., & Levinson, W. (1999). Effect of clinician communication skills training on patient satisfaction: A randomized, controlled trial. Annual of Internal Medicine, 131(11), 822–829. doi: 10.7326/0003-4819-131-11-199912070-00004
   PubMed Web of Science ®Google Scholar
• Burkhardt, M. A., & Nathaniel, N. (2014). Ethics and issues in contemporary nursing. Stamford: Cengage Learning.
   Google Scholar
• Chapman, R., Smith, T., & Martin, C. A. (2014). Qualitative exploration of the perceived barriers and enablers to Aboriginal and Torres Strait Islander people accessing healthcare through one Victorian emergency department. Contemporary Nurse: A Journal for the Australian Nursing Profession, 48(1), 48–58. doi:10.5172/conu.2014.4480 doi: 10.1080/10376178.2014.11081926
   PubMed Web of Science ®Google Scholar
• Chaveiro, N., & Barbosa, M. A. (2005). Assistência ao surdo na área de saúde como fator de inclusão social. Revista da Escola de Enfermagem da USP, 39(4), 417–422. doi: 10.1590/S0080-62342005000400007
   PubMedGoogle Scholar
• Chilton, E. E. (1996). Ensuring effective communication: The duty of health care providers to supply sign language interpreters for deaf patients. Hastings LJ, 47, 871–910.
   Web of Science ®Google Scholar
• Cole, P., & Cantero, O. (2015). Stigmatisation des Sourds dans les soins de santé, l’exemple de la santé mentale. Psychiatrie de Liaison, 461(6), 398–400.
   Google Scholar
• Davenport, S. (1977). Improving communication with the deaf patient. Journal of Family Practice, 4(6), 1065–1068.
   PubMed Web of Science ®Google Scholar
• Dickson, M., & Magowan, R. (2014). Meeting Deaf patients’ communication needs. Nursing Times, 110(49), 12–15.
   PubMedGoogle Scholar
• Ethnologue: Languages of the world. (2017a, June 10). American sign language. Retrieved from https://www.ethnologue.com/language/ase
   Google Scholar
• Ethnologue: Languages of the world. (2017b, June 10). Australian sign language. Retrieved from https://www.ethnologue.com/language/asf
   Google Scholar
• Ethnologue: Languages of the world. (2017c, June 10). Catalan sign language. Retrieved from https://www.ethnologue.com/language/csc
   Google Scholar
• Ethnologue: Languages of the world. (2017d, June 10). Sing languages. Retrieved from https://www.ethnologue.com/subgroups/sign-language
   Google Scholar
• Ethnologue: Languages of the world. (2017e, June 10). Spanish sign language. Retrieved from https://www.ethnologue.com/language/ssp
   Google Scholar
• Fellinger, J., Holzinger, D., & Pollard, R. (2012). Mental health of deaf people. The Lancet, 379(9820), 1037–1044. doi: 10.1016/S0140-6736(11)61143-4
   PubMed Web of Science ®Google Scholar
• Geertz, C. (2010). Local knowledge: Further essays in interpretive anthropology. London: HarperCollins.
   Google Scholar
• Guba, G., & Lincoln, S. (1990). Fourth generation evaluation. London: Sage.
   Google Scholar
• Haricharan, H. J., Heap, M., Coomans, F., & London, L. (2013). Can we talk about the right to healthcare without language? A critique of key international human rights law, drawing on the experiences of a Deaf woman in Cape Town, South Africa. Disability & Society, 28(1), 54–66. doi: 10.1080/09687599.2012.699277
   Web of Science ®Google Scholar
• Harmer, L. M. (1999). Health care delivery and deaf people: Practice, problems, and recommendations for change. Journal of Deaf Studies and Deaf Education, 4(2), 73–110. doi: 10.1093/deafed/4.2.73
   PubMedGoogle Scholar
• Haualand, H., & Allen, C. (2009). Deaf poeple and human rights. Helsinky: World Federation of Deaf and Deaf Swedish National Association of the Deaf.
   Google Scholar
• Iezzoni, L. I., O’Day, B. L., Killeen, M., & Harker, H. (2004). Communicating about health care: Observations from persons who are deaf or hard of hearing. Annals of Internal Medicine, 140(5), 356–362. doi: 10.7326/0003-4819-140-5-200403020-00011
   PubMed Web of Science ®Google Scholar
• Israel, J., Cunningham, M., Thumann, H., & Arnos, K. S. (1992). Genetic counseling for deaf adults: Communication/language and cultural considerations. Journal of Genetic Counseling, 1(2), 135–153. doi: 10.1007/BF00962915
   PubMedGoogle Scholar
• Johnston, T. (2004). W(h)ither the Deaf community? Population, genetics, and the future of Australian Sign Language. American Annals of the Deaf, 148(5), 358–377. doi: 10.1353/aad.2004.0004
   PubMed Web of Science ®Google Scholar
• Johnstone, M. J. (2009). Bioethics. A nursing perspective. Chatswood: Elsevier.
   Google Scholar
• Jones, E. G., Renger, R., & Firestone, R. (2005). Deaf community analysis for health education priorities. Public Health Nursing, 22(1), 27–35. doi: 10.1111/j.0737-1209.2005.22105.x
   PubMed Web of Science ®Google Scholar
• Kuenburg, A., Fellinger, P., & Fellinger, J. (2016). Health care access among deaf people. Journal of Deaf Studies and Deaf Education, 157(5), 428–438. doi: 10.1093/deafed/env042
   Google Scholar
• Margellos-Anast, H., Estarziau, M., & Kaufman, G. (2006). Cardiovascular disease knowledge among culturally Deaf patients in Chicago. Preventive Medicine, 42(3), 235–239. doi: 10.1016/j.ypmed.2005.12.012
   PubMed Web of Science ®Google Scholar
• Meador, H. E., & Zazove, P. (2005). Health care interactions with deaf culture. The Journal of the American Board of Family Medicine, 18(3), 218–222. doi: 10.3122/jabfm.18.3.218
   Google Scholar
• Muñoz-Baell, I. M., & Ruiz, M. T. (2000). Empowering the deaf. Let the deaf be deaf. Journal of Epidemiology and Community Health, 54(1), 40–44. doi: 10.1136/jech.54.1.40
   PubMed Web of Science ®Google Scholar
• Napier, J., & Kidd, M. R. (2013). English literacy as a barrier to health care information for deaf people who use Auslan. Australian Family Physician, 42(12), 896–899.
   PubMed Web of Science ®Google Scholar
• Penchansky, R., & Thomas, J. W. (1981). The concept of access. Definition and relationship to consumer satisfaction. Medical Care, 19(2), 127–140. doi: 10.1097/00005650-198102000-00001
   PubMed Web of Science ®Google Scholar
• Pollard, R. Q., & Barnett, S. (2009). Health-related vocabulary knowledge among deaf adults. Rehabilitation Psychology, 54(2), 182–185. doi: 10.1037/a0015771
   PubMed Web of Science ®Google Scholar
• Pollard, R. Q., Dean, R. K., O’Hearn, A., & Haynes, S. L. (2009). Adapting health education material for deaf audiences. Rehabilitation Psychology, 54(2), 232–238. doi: 10.1037/a0015772
   PubMed Web of Science ®Google Scholar
• Rodríguez, D. (2005). Estudi sobre la identitat cultural a la Comunitat Sorda. Revista d’Etnologia de Catalunya, 1(27), 154–157.
   Google Scholar
• Rodríguez, D. (2013). El silencio como metáfora. Una aproximación a la Comunidad Sorda y a su sentimiento identitario. Perifèria. Revista d'investigació i formació en Antropologia, 18(1), 23–50.
   Google Scholar
• Sánchez-Pedreño, A. (2014). La comunicación interlingüística y la interpretación en el Hospital Clínico Universitario Virgen de la Arrixaca (HCUVA). Investigación para la acción. Panace, 15(40), 301–314.
   Google Scholar
• Scheier, D. B. (2009). Barriers to health care for people with hearing loss: A review of the literature. Journal of the New York State Nurses Association, 40(1), 4–10.
   PubMedGoogle Scholar
• Sheppard, K. (2014). Deaf adults and health care: Giving voice to their stories. Journal of the American Association of Nurse Practitioners, 26(9), 504–510. doi: 10.1002/2327-6924.12087
   PubMed Web of Science ®Google Scholar
• Steinberg, A. G., Barnett, S., Meador, H. E., Wiggins, E. A., & Zazove, P. (2005). Health care system accessibility. Journal of General Internal Medicine, 2(3), 260–266. doi: 10.1111/j.1525-1497.2006.00340.x
   Google Scholar
• Steinberg, A. G., Wiggins, E. A., Barmada, C. H., & Shullivan, V. J. (2002). Deaf women: Experiences and perceptions of healthcare system access. Journal of Women’s Health, 11(8), 729–741. doi: 10.1089/15409990260363689
   PubMed Web of Science ®Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal of Quality in Health Care, 19(6), 349–357. doi: 10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Ubido, J., Huntington, J., & Warburton, D. (2002). Inequalities in access to healthcare faced by women who are deaf. Health & Social Care in the Community, 10(4), 247–253. doi: 10.1046/j.1365-2524.2002.00365.x
   PubMed Web of Science ®Google Scholar
• U.S. Department of Health and Human Services. (2017, June 10). The Belmont report (1979): Ethical principles and guidelines for the protection of human subjects of research. Retrieved from http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html
   Google Scholar
• WHO. (2017, June 20). Fact sheets. Deafness and hearing loss. Retrieved from http://www.who.int/mediacentre/factsheets/fs300/en/
   Google Scholar
• World Federation of Deaf. (2017, June 10). Sign language. Retrieved from https://wfdeaf.org/human-rights/crpd/sign-language/
   Google Scholar
• World Medical Association. (2013). Declaration of Helsinki: Ethical principles for medical research involving human subjects. JAMA, 310(20), 2191–2194. doi: 10.1001/jama.2013.281053
   PubMed Web of Science ®Google Scholar