Motivation for Health Information Seeking and Processing About Clinical Trial Enrollment

REFERENCES

• Ajzen , I. 1988 . “ Attitudes ” . In personality, and behavior , Milton Keynes, , UK : Open University Press .
   Google Scholar
• Albrecht , T. L. , Blanchard , C. , Ruckdeschel , J. C. , Coovert , M. and Strongbow , R. 1999 . Strategic physician communication and oncology clinical trials . Journal of Clinical Oncology , 17 : 3324 – 3332 .
   PubMed Web of Science ®Google Scholar
• Aspinwall , L. G. 1998 . Rethinking the role of positive affect in self-regulations . Motivation and Emotion , 22 : 1 – 32 .
   Web of Science ®Google Scholar
• Aspinwall , L. G. and Brunhart , S. M. 1996 . Distinguishing optimism from denial: Optimistic beliefs predict attention to health threats . Personality and Social Psychology Bulletin , 22 : 993 – 1003 .
   Web of Science ®Google Scholar
• Avis , N. E. , Smith , K. W. , Link , C. L. , Hortobagyi , G. N. and Rivera , E. 2006 . Factors associated with participation in breast cancer treatment clinical trials . Journal of Clinical Oncology , 24 : 1860 – 1867 .
   PubMed Web of Science ®Google Scholar
• Bandura , A. 1986 . Social foundations of thought and action , Englewood Cliffs, NJ : Prentice Hall .
   Google Scholar
• Battaglia , T. A. , Ash , A. , Prout , M. N. and Freund , K. M. 2006 . Cancer prevention trials and primary care physicians: Factors associated with recommending trial enrollment . Cancer Detection and Prevention , 30 : 34 – 37 .
   PubMedGoogle Scholar
• Beauchamp , T. L. and Childress , J. F. 1994 . “ The meaning and justification of informed consent ” . In Principles of biomedical ethics , 4th , Edited by: Beauchamp , T. L. and Childress , J. F. 142 – 153 . New York : Oxford .
   Google Scholar
• Bollen , K. A. 1989 . Structural equations with latent variables , New York : John Wiley .
   Google Scholar
• Brody , J. 2008 . Crisis of care on the front line of health . The New York Times , September 29 : F7
   Google Scholar
• 2001 . Cancer clinical trials: The in-depth program , Bethesda, MD : National Cancer Institute .
   Google Scholar
• Catania , C. , De Pas , T. , Goldhirsch , A. , Radice , D. , Adamoli , L. , Medici , M. and de Braud , F. 2008 . Participation in clinical trials as viewed by the patient: Understanding cultural and emotional aspects which influence choice . Oncology , 74 : 177 – 187 .
   PubMed Web of Science ®Google Scholar
• Carmines , E. G. and Zeller , R. A. 1979 . Reliability and validity assessment , Beverly Hills, CA : Sage .
   Google Scholar
• Chaiken , S. 1980 . Heuristic versus systematic information processing and the use of source versus message cues in persuasion . Journal of Personality and Social Psychology , 39 : 752 – 766 .
   Web of Science ®Google Scholar
• Chaiken , S. and Stangor , C. 1987 . Attitude and attitude change . Annual Review of Psychology , 38 : 575 – 630 .
   Web of Science ®Google Scholar
• Chaiken , S. , Liberman , A. and Eagly , A. H. 1989 . “ Heuristic and systematic information processing within and beyond the persuasion context ” . In Unintended thought , Edited by: Uleman , J. S. and Bargh , J. A. 212 – 252 . New York : Guilford Press .
   Google Scholar
• Charles , C. , Gafni , A. and Whelan , T. 1999 . Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model . Social Science & Medicine , 49 : 651 – 661 .
   PubMed Web of Science ®Google Scholar
• Chen , S. and Chaiken , S. 1999 . “ The heuristic-systematic model in its broader context ” . In Dual-process theories in social psychology , Edited by: Chaiken , S. and Trope , Y. 73 – 96 . New York : Guilford .
   Google Scholar
• Clarke , A. , Shim , J. K. , Mamo , L. , Fosket , J. R. and Fishman , J. R. 2003 . Biomedicalization: Technoscientific transformations of health, illness, and U.S. biomedicine . American Sociological Review , 68 : 161 – 194 .
   Web of Science ®Google Scholar
• Cohen , L. , de Moor , C. and Amato , R. 2001 . The association between treatment-specific optimism and depressive symptomatology in patients enrolled in a phase I cancer clinical trial . Cancer , 91 : 1949 – 1955 .
   PubMed Web of Science ®Google Scholar
• Comis , R. L. , Miller , J. D. , Aldige , C. R. , Krebs , L. and Stoval , E. 2003 . Public attitudes toward participation in cancer clinical trials . Journal of Clinical Oncology , 21 : 830 – 835 .
   PubMed Web of Science ®Google Scholar
• Curbow , B. , Fogarty , L. A. , McDonnell , K. A. , Chill , J. and Scott , L. B. 2006 . The role of physician characteristics in clinical trial acceptance: Testing pathways of influence . Journal of Health Communication , 11 : 199 – 218 .
   PubMed Web of Science ®Google Scholar
• Dijksterhuis , A. , Bos , M. W. , Nordgren , L. F. and Van Baaren , R. B. 2006 . On making the right choice: The deliberation-without-attention effect . Science , 311 : 1005 – 1007 .
   PubMed Web of Science ®Google Scholar
• Eagly , A. and Chaiken , S. 1993 . The psychology of attitudes , Fort Worth, TX : Harcourt Brace and Jovanovich .
   Google Scholar
• Epstein , S. 2007 . Inclusion: The politics of difference in medical research , Chicago : University of Chicago Press .
   Google Scholar
• Fallowfield , L. J. , Jenkins , V. , Brennan , C. , Sawtell , M. , Moynihan , C. and Souhami , R. L. 1998 . Attitudes of patients to randomised clinical trials of cancer therapy . European Journal of Cancer , 34 : 1554 – 1559 .
   PubMed Web of Science ®Google Scholar
• Garrity , T. F. and Lawson , E. J. 1989 . Patient-physician communication as a determinant of medication misuse in older, minority women . Journal of Drug Issues , 19 : 245 – 259 .
   Web of Science ®Google Scholar
• Grant , C. H. , Cissna , K. N. and Rosenfeld , L. B. 2000 . Patients' perceptions of physicians communication and outcomes of the accrual to trial process . Health Communication , 12 : 23 – 39 .
   PubMed Web of Science ®Google Scholar
• Gregory , R. and Mendelsohn , R. 1993 . Perceived risk, dread, and benefits . Risk Analysis , 13 : 259 – 264 .
   Web of Science ®Google Scholar
• Griffin , R. J. , Yang , Z. , ter Huurne , E. , Boerner , F. , Ortiz , S. and Dunwoody , S. 2008 . After the flood: Anger, attribution, and the seeking of information . Science Communication , 29 : 285 – 315 .
   Web of Science ®Google Scholar
• Griffin , R. J. , Dunwoody , S. and Neuwirth , K. 1999 . Proposed model of the relationship of information seeking and processing to the development of preventive behaviors . Environmental Research , 80 : S230 – S245 .
   PubMed Web of Science ®Google Scholar
• Griffin , R. J. , Neuwirth , K. , Dunwoody , S. and Giese , J. 2004 . Information sufficiency and risk communication . Media Psychology , 6 : 23 – 61 .
   Web of Science ®Google Scholar
• Griffin , R. J. , Neuwirth , K. , Giese , J. and Dunwoody , S. 2002 . Linking the heuristic-systematic model and depth of processing . Communication Research , 29 : 705 – 732 .
   Web of Science ®Google Scholar
• Isen , A. M. 1999 . “ Positive affect ” . In Handbook of cognition and emotion , Edited by: Dalgleish , T. P. and Power , M. J. 521 – 538 . Chichester, , England : John Wiley & Sons .
   Google Scholar
• Jenkins , V. and Fallowfield , L. 2000 . Reasons for accepting or declining to participate in randomized clinical trials for cancer therapy . British Journal of Cancer , 82 : 1783 – 1788 .
   PubMed Web of Science ®Google Scholar
• Jöreskog , K. G. and Sörbom , D. 1996a . PRELIS 2: User's reference guide , Chicago : Scientific Software International .
   Google Scholar
• Jöreskog , K. G. and Sörbom , D. 1996b . LISREL 8: Structural equation modeling with the SIMPLIS command language , Chicago : Scientific Software International .
   Google Scholar
• Kahlor , L. 2007 . An augmented risk information seeking model: The case of global warming . Media Psychology , 10 : 414 – 435 .
   Web of Science ®Google Scholar
• Kahlor , L. , Dunwoody , S. , Griffin , R. J. and Neuwirth , K. 2006 . Selecting and processing information about impersonal risk . Science Communication , 28 : 163 – 194 .
   Web of Science ®Google Scholar
• Kahlor , L. , Dunwoody , S. , Griffin , R. J. , Neuwirth , K. and Giese , J. 2003 . Studying heuristic-systematic processing of risk communication . Risk Analysis , 23 : 355 – 368 .
   PubMed Web of Science ®Google Scholar
• Kline , R. B. 2005 . Principles and practice of structural equation modeling , 2nd , New York : Guilford Press .
   Google Scholar
• Krupat , E. and Irish , J. T. 2007 . “ Cancer patients as active participants in their care ” . In Handbook of communication and cancer care , Edited by: 'Hair , H. D. O , Kreps , G. L. and Sparks , L. 325 – 342 . Cresskill, NJ : Hampton Press .
   Google Scholar
• Lazarus , R. S. and Folkman , S. 1984 . Stress, appraisal, and coping , New York : Springer Publishing Company, Inc .
   Google Scholar
• Lerman , C. , Daly , M. , Walsh , W. P. , Resch , N. , Seay , J. , Barsevick , A. and Martin , G. 1993 . Communication between patients with breast cancer and health care providers: Determinants and implications . Cancer , 72 : 2612 – 2620 .
   PubMed Web of Science ®Google Scholar
• Leydon , G. M. , Boulton , M. , Moynihan , C. , Jones , A. , Mossman , J. and Boudioni , M. 2008 . Cancer patients' information needs and information seeking behaviour: In depth interview study . British Medical Journal , 320 : 909 – 913 .
   Google Scholar
• Madsen , S. M. , Holm , S. and Riis , P. 2007 . Participating in a cancer clinical trial? The balancing of options in the loneliness of autonomy: A grounded theory interview study . Acta Oncologica , 46 : 49 – 59 .
   PubMed Web of Science ®Google Scholar
• Madsen , S. M. , Mirza , M. R. , Holm , S. , Hilsted , K. L. , Kampmann , K. and Riis , P. 2002 . Attitudes towards clinical research amongst participants and nonparticipants . Journal of Internal Medicine , 251 : 156 – 168 .
   PubMed Web of Science ®Google Scholar
• McComas , K. A. , Yang , Z. J. , Gay , G. K. , Leonard , J. P. , Dannenberg , A. J. and Dillon , H. Talking to doctors about clinical trials . Paper presented at the 58th Annual Convention of the International Communication Association, Montreal . Quebec, Canada.
   Google Scholar
• Mills , E. J. , Seely , D. , Rachlis , B. , Griffith , L. , Wu , P. and Wilson , K., Ellis, P. 2006 . Barriers to participation in clinical trials of cancer: A meta-analysis and systematic review of patient-reported factors . Lancet Oncology , 7 : 141 – 148 .
   PubMed Web of Science ®Google Scholar
• National Institutes of Health, National Cancer Institute, Working Group on Enhancing Recruitment to Early Phase Cancer Clinical Trials . 2004 . Enhancing recruitment to early phase cancer clinical trials: Literature review , Bethesda, MD : Author .
   Google Scholar
• Nowotny , M. L. 1991 . Every tomorrow, a vision of hope . Journal of Psychosocial Oncology , 9 : 117 – 126 .
   Google Scholar
• Ortony , A. and Clore , G. L. Disentangling the affective lexicon . Paper presented at the Third Annual Conference of the Cognitive Science Society . Berkeley, CA.
   Google Scholar
• Parker-Pope , T. 2008 . You're sick. Now what? Knowledge is power . The New York Times , September 29 : F1
   Google Scholar
• Petersen , S. , Heesacker , M. and Marsh , R. D. 2001 . Medical decision making among cancer patients . Journal of Counseling Psychology , 48 : 239 – 244 .
   Web of Science ®Google Scholar
• Petty , R. E. and Cacioppo , J. T. 1986 . Communication and persuasion: Central and peripheral routes to attitude change , New York : Springer-Verlag .
   Google Scholar
• Robinson , J. P. , Shaver , P. R. and Wrightsman , L. S. 1991 . Measures of personality and social psychological attitudes , Vol. 1 , San Diego : Academic Press .
   Google Scholar
• Sardell , A. N. and Trierweiler , S. J. 1993 . Disclosing the cancer diagnosis: Procedures that influence patient hopefulness . Cancer , 72 : 3355 – 3365 .
   PubMed Web of Science ®Google Scholar
• Schemer , C. , Matthes , J. and Wirth , W. 2008 . Toward improving the validity and reliability of media information processing measures in surveys . Communication Methods and Measures , 2 : 193 – 225 .
   Google Scholar
• Sharp , L. , Cotton , S. C. , Alexander , L. , Williams , E. , Gray , N. M. and Reid , J. M. 2006 . Reasons for participation and non-participation in a randomized controlled trial: Postal questionnaire surveys of women eligible for TOMBOLA (Trial of Management of Borderline and Other Low-grade Abnormal smears) . Clinical Trials , 3 : 431 – 442 .
   PubMed Web of Science ®Google Scholar
• Slovic , P. 1992 . “ Perception of risk: Reflections on the psychometric paradigm ” . In Social theories of risk , Edited by: Krimsky , S. and Golding , D. 117 – 152 . Westport, CT : Praeger .
   Google Scholar
• Slovic , P. , Peters , E. , Finucane , M. L. and MacGregor , D. G. 2005 . Affect, risk, and decision making . Health Psychology , 24 : S35 – S40 .
   PubMed Web of Science ®Google Scholar
• Taylor , S. E. , Kemeny , M. E. , Reed , G. M. , Bower , J. E. and Gruenewald , T. L. 2000 . Psychological resources, positive illusions, and health . American Psychologist , 55 : 99 – 109 .
   PubMed Web of Science ®Google Scholar
• Thorne , S. , Hislop , T. G. , Armstrong , E. A. and Oglov , V. 2008 . Cancer care communication: The power to harm and the power to heal . Patient Education and Counseling , 71 : 34 – 40 .
   PubMed Web of Science ®Google Scholar
• Trauth , J. M. , Musa , D. , Siminoff , L. , Jewell , I. K. and Ricci , E. 2000 . Public attitudes regarding willingness to participate in medical research studies . Journal of Health & Social Policy , 12 : 23 – 43 .
   PubMedGoogle Scholar
• Trope , Y. and Neter , E. 1994 . Reconciling competing motives in self-evaluation: The role of self-control in feedback seeking . Journal of Personality and Social Psychology , 66 : 646 – 657 .
   PubMed Web of Science ®Google Scholar
• Trumbo , C. W. 2002 . Information processing and risk perception: An adaptation of the heuristic-systematic model . Journal of Communication , 52 : 367 – 382 .
   Web of Science ®Google Scholar
• Umutyan , A. , Chiechi , C. , Beckett , L. A. , Paterniti , D. A. , Turrell , C. , Gandara , D. R. and Lara , P. N. Jr. 2008 . Overcoming barriers to cancer clinical trial accrual: Impact of a mass media campaign . Cancer , 112 : 212 – 219 .
   PubMed Web of Science ®Google Scholar
• Weinstein , N. D. 1989 . Optimistic biases about personal risks . Science , 246 : 1232 – 1233 .
   PubMed Web of Science ®Google Scholar