Gendered Cultural Identities: The Influences of Family and Privacy Boundaries, Subjective Norms, and Stigma Beliefs on Family Health History Communication

References

• Airhihenbuwa, C. O. (2007). Healing our differences: The crisis of global health and the politics of identity. Lanham, MD: Rowman & Littlefield.
   Google Scholar
• Ajzen, I. (1991). The theory of planned behavior. Organizational Behavior & Human Decision Processes, 50, 179–211. doi:10.1016/0749-5978(91)90020-T
   Web of Science ®Google Scholar
• Ashida, S., Hadley, D. W., Goergen, A. F., Skapinsky, K., Devlin, H., & Koehly, L. M. (2011). The importance of older family members in providing social resources and promoting cancer screening in families with a hereditary cancer syndrome. The Gerontologist, 51, 833–842. doi:10.1093/geront/gnr049
   PubMed Web of Science ®Google Scholar
• Ashida, S., Wilkinson, A., & Koehly, L. (2010). Motivation for health screening: Evaluation of social influence within Mexican American families. American Journal of Preventive Medicine, 38, 396–402. doi:10.1016/j.amepre.2009.12.028
   PubMed Web of Science ®Google Scholar
• Bennett, R. L. (1999). The practical guide to the genetic family history. New York, NY: Wiley-Liss.
   Google Scholar
• Boss, P., & Greenberg, J. (1984). Family boundary ambiguity: A new variable in family stress theory. Family Process, 23, 535–546. doi:10.1111/famp.1984.23.issue-4
   PubMed Web of Science ®Google Scholar
• Carroll, J. S., Olson, C. D., & Buckmiller, N. (2007). Family boundary ambiguity: A 30‐year review of theory, research, and measurement. Family Relations, 56, 210–230. doi:10.1111/j.1741-3729.2007.00453.x
   Web of Science ®Google Scholar
• Chan, Y. K. (2000). Privacy in the family: Its hierarchical and asymmetric nature. Journal of Comparative Family Studies, 31, 1–17.
   Web of Science ®Google Scholar
• Chang, K. S. (1997). The neo-Confucian right and family politics in South Korea: The nuclear family as an ideological construct. Economy & Society, 26, 22–40. doi:10.1080/03085149700000002
   Web of Science ®Google Scholar
• Chang, K.-S. (2014). Individualization without individualism: Compressed modernity and obfuscated family crisis in East Asia. In E. Ochiai & L. A. Hosoya (Eds.), Transformation of the intimate and the public in Asian modernity (pp. 37–62). Leiden, Boston: Brill.
   Google Scholar
• Cho, H. (1985). Social change and familism in Korea. Korean Cultural Anthropology, 17, 79–96.
   Google Scholar
• Cho, H. (1998). Male dominance and mother power: The two sides of Confucian patriarchy in Korea. In W. H. Slote & G. A. De Vos (Eds.), Confucianism and the family (pp. 187–207). Albany, NY: SUNY Press.
   Google Scholar
• Craddock, A. E. (1994). Relationships between marital satisfaction and privacy preferences. Journal of Comparative Family Studies, 25, 371–382.
   Web of Science ®Google Scholar
• Daly, M. B., Montgomery, S., Bingler, R., & Ruth, K. (2016). Communicating genetic test results within the family: Is it lost in translation? A survey of relatives in the randomized six-step study. Familial Cancer, 15, 697–706. doi:10.1007/s10689-016-9889-1
   PubMed Web of Science ®Google Scholar
• Finlay, E., Stopfer, J. E., Burlingame, E., Evans, K. G., Nathanson, K. L., Weber, B. L., … Domchek, S. M. (2008). Factors determining dissemination of results and uptake of genetic testing in families with known BRCA1/2 mutations. Genetic Testing, 12, 81–91. doi:10.1089/gte.2007.0037
   PubMedGoogle Scholar
• Gaff, C. L., Galvin, K. M., & Bylund, C. L. (2010). Facilitating family communication about genetics in practice. In C. L. Gaff & C. L. Bylund (Eds.), Family communication about genetics: Theory and practice (pp. 243–272). Oxford, UK: Oxford University Press.
   Google Scholar
• Galvin, K. M., & Young, M.-A. (2010). Family system theory. In C. L. Gaff & C. L. Bylund (Eds.), Family communication about genetics: Theory and practice (pp. 102–119). Oxford, UK: Oxford University Press.
   Google Scholar
• Gao, G. (1997). Self and OTHER: A Chinese perspective on interpersonal relationships. In W. B. Gudykunst, S. Ting-Toomey, & T. Nishida (Eds.), Communication in personal relationships across cultures (pp. 81–101). Thousand Oaks, CA: Sage.
   Google Scholar
• Giddens, A. (1984). The constitution of society: Outline of the theory of structuration. Cambridge, UK: Polity Press.
   Google Scholar
• Ginsburg, G. S., & Willard, H. F. (2009). Genomic and personalized medicine: Foundations and applications. Translational Research, 154, 277–287. doi:10.1016/j.trsl.2009.09.005
   PubMed Web of Science ®Google Scholar
• Goffman, E. (1963). Stigma: Notes on a spoiled identity. New York, NY: Prentice-Hall.
   Google Scholar
• Gregory, M., Middleton, A., & Atkinson, P. (2010). Timescapes. In C. L. Gaff & C. L. Bylund (Eds.), Family communication about genetics: Theory and practice (pp. 87–101). Oxford, UK: Oxford University Press.
   Google Scholar
• Hayes, A. F., & Matthes, J. (2009). Computational procedures for probing interactions in OLS and logistic regression: SPSS and SAS implementations. Behavior Research Methods, 41, 924–936. doi:10.3758/BRM.41.3.924
   PubMed Web of Science ®Google Scholar
• Heller, P. L. (1970). Familism scale: A measure of family solidarity. Journal of Marriage & the Family, 32, 73–80. doi:10.2307/349974
   Web of Science ®Google Scholar
• Herek, G. M., & Capitanio, J. P. (1999). AIDS stigma and sexual prejudice. American Behavioral Scientist, 42, 1130–1147. doi:10.1177/0002764299042007006
   Web of Science ®Google Scholar
• Hinton, A., Downey, J., Lisovicz, N., Mayfield-Johnson, S., & White-Johnson, F. (2005). The community health advisor program and the deep south network for cancer control: Health promotion programs for volunteer community health advisors. Family & Community Health, 28, 20–27. doi:10.1097/00003727-200501000-00005
   PubMed Web of Science ®Google Scholar
• Hofstede Center. (n.d.). Country comparison. Retrieved from https://geert-hofstede.com/countries.html
   Google Scholar
• Hoyert, D. L., & Xu, J. (2012). Deaths: Preliminary data for 2011. National Vital Statics Reports, 61, 1–65.
   PubMedGoogle Scholar
• Jamieson, L. (1999). Intimacy transformed? A critical look at the “pure relationship.” Sociology, 33, 477–493.
   Google Scholar
• Kelly, J. A., Amirkhanian, Y. A., Kabakchieva, E., Vassileva, S., Vassilev, B., Mcauliffe, T. L., … Dimitrov, B. (2006). Prevention of HIV and sexually transmitted diseases in high risk social networks of young Roma (Gypsy) men in Bulgaria: Randomized controlled trial. British Medicine Journal, 333, 1098–1101. doi:10.1136/bmj.38992.478299.55
   PubMed Web of Science ®Google Scholar
• Koehly, L. M., Peters, J. A., Kenen, R., Hoskins, L. M., Ersig, A. L., Kuhn, N. R., … Greene, M. H. (2009). Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: Implications for family health communication interventions. American Journal of Public Health, 99, 2203–2209. doi:10.2105/AJPH.2008.154096
   PubMed Web of Science ®Google Scholar
• Kreuter, M. W., Green, M. C., Cappella, J. N., Slater, M. D., Wise, M. E., Storey, D., … Hinyard, L. J. (2007). Narrative communication in cancer prevention and control: A framework to guide research and application. Annals of Behavioral Medicine, 33, 221–235. doi:10.1007/BF02879904
   PubMed Web of Science ®Google Scholar
• Lafrenière, D., Bouchard, K., Godard, B., Simard, J., & Dorval, M. (2013). Family communication following BRCA1/2 genetic testing: A close look at the process. Journal of Genetic Counseling, 22, 323–335. doi:10.1007/s10897-012-9559-x
   PubMed Web of Science ®Google Scholar
• Link, B. G., Cullen, F. T., Struening, E., Shrout, P. E., & Dohrenwend, B. P. (1989). A modified labeling theory approach to mental disorders: An empirical assessment. American Sociological Review, 54, 400–423.
   Web of Science ®Google Scholar
• Martin, L. G. (1990). Changing intergenerational family relations in East Asia. The Annals of the American Academy of Political & Social Science, 510, 102–114. doi:10.1177/0002716290510001008
   Web of Science ®Google Scholar
• McGivern, B., Everett, J., Yager, G. G., Baumiller, R. C., Hafertepen, A., & Saal, H. M. (2004). Family communication about positive BRCA1 and BRCA2 genetic test results. Genetics in Medicine, 6, 503–509. doi:10.1097/01.GIM.0000144014.91237.A1
   PubMed Web of Science ®Google Scholar
• Migration Policy Institute. (2015, January 28). Chinese immigrants in the United States. Retrieved from http://www.migrationpolicy.org/article/chinese-immigrants-united-states
   Google Scholar
• Migration Policy Institute. (2016, January 6) Asian immigrants in the United States. Retrieved from http://www.migrationpolicy.org/article/asian-immigrants-united-states
   Google Scholar
• Migration Policy Institute. (2017, February 8). Korean immigrants in the United States. Retrieved from http://www.migrationpolicy.org/article/korean-immigrants-united-states
   Google Scholar
• Minuchin, S. (1974). Families and family therapy. Cambridge, MA: Harvard University Press.
   Google Scholar
• Morr Serewicz, M. C., & Canary, D. J. (2008). Assessments of disclosure from the in-laws: Links among disclosure topics, family privacy orientations, and relational quality. Journal of Social & Personal Relationships, 25, 333–357.
   Google Scholar
• Munro, M., & Madigan, R. (1993). Privacy in the private sphere. Housing Studies, 8, 29–45. doi:10.1080/02673039308720748
   Google Scholar
• National Bureau of statistics of China. (2011). China statistical yearbook 2011. Pekin, China: China Statistics Press.
   Google Scholar
• Nichols, M. P., & Schwartz, R. C. (1995). Family therapy: Concepts and methods. Needham Heights, MA: Allyn & Bacon.
   Google Scholar
• Parrott, R., & Hong, S. J. (2014). Personalized medicine. In T. L. Thompson (Ed.), Encyclopedia of health communication (pp. 1051–5054). Thousand Oaks, CA: Sage.
   Google Scholar
• Parrott, R., Hong, S. J., & Greenberg, M. (2015). Family history unawareness of blood clot risk: Links to misdiagnoses and illness uncertainties in personal and expert realms. Journal of Health Communication, 20, 35–42. doi:10.1080/10810730.2014.901443
   PubMed Web of Science ®Google Scholar
• Petronio, S. (2002). Boundaries of privacy: Dialectics of disclosure. Albany, NY: SUNY Press.
   Google Scholar
• Petronio, S. (2007). Translational endeavors and the practices of communication privacy management. Journal of Applied Communication Research, 35, 218–222. doi:10.1080/00909880701422443
   Web of Science ®Google Scholar
• Petronio, S. (2010). Communication privacy management theory: What do we know about family privacy regulation? Journal of Family Theory & Review, 2, 175–196. doi:10.1111/j.1756-2589.2010.00052.x
   Google Scholar
• Petronio, S., & Gaff, C. L. (2010). Managing privacy ownership and disclosure. In C. L. Gaff & C. L. Bylund (Eds.), Family communication about genetics: Theory and practice (pp. 121–135). Oxford, UK: Oxford University Press.
   Google Scholar
• Pitre, N. Y., & Kushner, K. E. (2015). Theoretical triangulation as an extension of feminist intersectionality in qualitative family research. Journal of Family Theory & Review, 7, 284–298. doi:10.1111/jftr.12084
   Web of Science ®Google Scholar
• Serovich, J. M., & Greene, K. (1993). Perceptions of family boundaries: The case of disclosure of HIV testing information. Family Relations, 42, 193–197. doi:10.2307/585454
   Web of Science ®Google Scholar
• Smith, R. A. (2007). Language of the lost: An explication of stigma communication. Communication Theory, 17, 462–485. doi:10.1111/comt.2007.17.issue-4
   Web of Science ®Google Scholar
• Solomon, Y., Warin, J., Charlie, L., & Langford, W. (2002). Intimate talk between parents and their teenage children: Democratic openness or covert control? Sociology, 36, 965–983. doi:10.1177/003803850203600409
   Google Scholar
• Statistics Korea. (2012). Causes of death 2012. Daejeon, South Korea: Statistics Korea.
   Google Scholar
• Triandis, H. (1988). Collectivism v. individualism: A reconceptualization of a basic concept in cross-cultural social psychology. In G. Verma & C. Bagley (Eds.), Cross-cultural studies of personality, attitudes & cognition (pp. 60–95). London, UK: Macmillan.
   Google Scholar
• Tsui, M. (1989). Changes in Chinese urban family structure. Journal of Marriage & the Family, 51, 737–747. doi:10.2307/352172
   Web of Science ®Google Scholar
• Von Bertalanffy, L. (1969). General system theory: Foundations, development, applications. New York, NY: George Braziller Publishers.
   Google Scholar
• White, J. M., & Klein, D. M. (2002). Family theories (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Yamasaki, J., & Hovick, S. R. (2015). “That was grown folks’ business”: Narrative reflection and response in older adults’ family health history communication. Health Communication, 30, 221–230. doi:10.1080/10410236.2013.837569
   PubMed Web of Science ®Google Scholar
• Yang, L. H., Kleinman, A., Link, B. G., Phelan, J. C., Lee, S., & Good, B. (2007). Culture and stigma: Adding moral experience to stigma theory. Social Science & Medicine, 64, 1524–1535. doi:10.1016/j.socscimed.2006.11.013
   PubMed Web of Science ®Google Scholar
• Yoediono, Z., & Snyderman, R. (2008). Proposal for a new health record to support personalized, predictive, preventative, and participatory medicine. Personalized Medicine, 5, 47–54. doi:10.2217/17410541.5.1.47
   PubMed Web of Science ®Google Scholar
• Yum, J. O. (1988). The impact of Confucianism on interpersonal relationships and communication patterns in East Asia. Communication Monographs, 55, 374–388. doi:10.1080/03637758809376178
   Web of Science ®Google Scholar