A Stress Buffering Perspective on the Progression of Alpha-1 Antitrypsin Deficiency

References

• Aiken, L. S., & West, S. G. (1991). Multiple regression: Testing and interpreting interactions. Thousand Oaks, CA: Sage.
   Google Scholar
• Andenaes, R., Moum, T., Kalfoss, M., & Wahl, A. (2006). Changes in health status, psychological distress, and quality of life in COPD patients after hospitalization. Quality of Life Research, 15, 249–257. doi:10.1007/s11136-005-0890-7
   PubMed Web of Science ®Google Scholar
• Beach, S. R. H., Sandeen, E. E., & O’Leary, K. D. (1990). Depression in marriage: A model for etiology and treatment. New York, NY: Guilford Press.
   Google Scholar
• Berger, B. E., Kapella, M. C., & Larson, J. L. (2011). The experience of stigma in chronic obstructive pulmonary disease. Western Journal of Nursing Research, 33, 916–932. doi:10.1177/0193945910384602
   PubMed Web of Science ®Google Scholar
• Bradbury, T. N., Fincham, F. D., & Beach, S. R. H. (2000). Research on the nature and determinants of marital satisfaction: A decade in review. Journal of Marriage and Family, 62, 964–980. doi:10.1111/j.1741-3737.2000.00964.x
   Web of Science ®Google Scholar
• Burleson, B. R., & Goldsmith, D. J. (1998). How the comforting process works: Alleviating emotional distress through conversationally induced reappraisals. In P. A. Andersen & L. K. Guerrero (Eds.), Handbook of communication and emotion (pp. 245–280). San Diego, CA: Academic Press.
   Google Scholar
• Clayton, E. W. (2015). Why the Americans with disabilities act matters for genetics. The Journal of the American Medical Association, 313, 2225–2226. doi:10.1001/jama.2015.3419
   Web of Science ®Google Scholar
• Cohen, S. (2004). Social relationships and health. American Psychologist, 59, 676–684. doi:10.1037/0003-066X.59.8.676
   PubMed Web of Science ®Google Scholar
• Cohen, S., Kamarch, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24, 386–396. doi:10.2307/2136404
   Web of Science ®Google Scholar
• Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98, 310–357. doi:10.1037/0033-2909.98.2.310
   PubMed Web of Science ®Google Scholar
• Dehle, C., Larsen, D., & Landers, J. F. (2001). Social support in marriage. The American Journal of Family Therapy, 29, 307–324. doi:10.1080/01926180126500
   Web of Science ®Google Scholar
• Diener, E. D., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71–75. doi:10.1207/s15327752jpa4901_13
   PubMed Web of Science ®Google Scholar
• Gardner, K. A., & Cutrona, C. E. (2004). Social support communication in families. In A. L. Vangelisti (Ed.), Handbook of family communication (pp. 495–512). Mahwah, NJ: Lawrence Erlbaum.
   Google Scholar
• Graham, J. E., Christian, L. M., & Keicolt-Glaser, J. (2007). Close relationships and immunity. In R. Ader (Ed.), Psychoneuroimmunology (pp. 781–798). Burlington, MA: Elsevier Academic Press.
   Google Scholar
• Gritz, E. R., Wellisch, D. K., Siau, J., & Wang, H. J. (1990). Long-term effects of testicular cancer on marital relationships. Psychosomatics, 31, 301–312. doi:10.1016/S0033-3182(90)72168-8
   PubMed Web of Science ®Google Scholar
• Holm, K. E., Borson, S., Sandhaus, R. A., Ford, D. W., Strange, C., Bowler, R. P., … Wamboldt, F. S. (2013). Differences in adjustment between individuals with alpha-1 antitrypsin deficiency (AATD)-associated COPD and Non-AATD COPD. COPD: Journal of Chronic Obstructive Pulmonary Disease, 10, 226–234. doi:10.3109/15412555.2012.719049
   Web of Science ®Google Scholar
• Hu, L. T., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6, 1–55. doi:10.1080/10705519909540118
   Web of Science ®Google Scholar
• Jones, S. M., & Wirtz, J. (2006). How does the comforting process work? An empirical test of an appraisal-based model of comforting. Human Communication Research, 32, 217–243. doi:10.1111/j.1468-2958.2006.00274.x
   Web of Science ®Google Scholar
• Kiecolt-Glaser, J. K., Loving, T. J., Stowell, J. R., Malarkey, W. B., Lemeshow, S., Dickinson, S. L., & Glaser, R. (2005). Hostile marital interactions, proinflammatory cytokine production, and wound healing. Archives of General Psychiatry, 62, 1377–1384. doi:10.1001/archpsyc.62.12.1377
   PubMed Web of Science ®Google Scholar
• Kiecolt-Glaser, J. K., Malarkey, W. B., Chee, M., Newton, T., Cacioppo, J. T., Mao, H. Y., & Glaser, R. (1993). Negative behavior during marital conflict is associated with immunological down-regulation. Psychosomatic Medicine, 55, 395–409. doi:10.1097/00006842-199309000-00001
   PubMed Web of Science ®Google Scholar
• Klitzman, R. (2009). The impacts of social contexts in testing for Alpha-1 antitrypsin deficiency: The roles of physicians and others. Genetic Testing and Molecular Biomarkers, 13, 269–276. doi:10.1089/gtmb.2008.0106
   PubMed Web of Science ®Google Scholar
• Klitzman, R. (2010). Views of discrimination among individuals confronting genetic disease. Journal of Genetic Counseling, 19, 68–83. doi:10.1007/s10897-009-9262-8
   PubMed Web of Science ®Google Scholar
• Klitzman, R. L., & Sweeney, M. M. (2011). “In sickness and in health”? Disclosures of genetic risks in dating. Journal of Genetic Counseling, 20, 98–112. doi:10.1007/s10897-010-9331-z
   PubMed Web of Science ®Google Scholar
• Komproe, I. H., Rijken, M., Ros, W. J. G., Winnubst, J. A. M., & Hart, H. (1997). Available support and perceived support: Different support under stressful circumstances. Journal of Social and Personal Relationships, 14, 59–77. doi:10.1177/0265407597141003
   Web of Science ®Google Scholar
• Kroenke, C. H., Kubzansky, L. D., Schernhammer, E. S., Holmes, M. D., & Kawachi, I. (2006). Social networks, social support, and survival after breast cancer diagnosis. Journal of Clinical Oncology, 24, 1105–1111. doi:10.1200/JCO.2005.04.2846
   PubMed Web of Science ®Google Scholar
• Lakey, B., Cooper, C., Cronin, A., & Whitaker, T. (2014). Symbolic providers help people regulate affect relationally: Implications for perceived support. Personal Relationships, 21, 404–419. doi:10.1111/pere.12038
   Web of Science ®Google Scholar
• Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York, NY: Springer.
   Google Scholar
• Link, B. G., Cullen, F. T., Struening, E., Shrout, P. E., & Dohrenwend, B. P. (1989). A modified labeling theory approach to mental disorders: An empirical assessment. American Sociological Review, 54, 400–423. doi:10.2307/2095613
   Web of Science ®Google Scholar
• Osoba, D. (1994). Lessons learned from measuring health-related quality of life in oncology. Journal of Clinical Oncology, 12, 608–616. doi:10.1200/JCO.1994.12.3.608
   PubMed Web of Science ®Google Scholar
• Robles, T. F., Slatcher, R. B., Trombello, J. M., & McGinn, M. M. (2014). Marital quality and health: A meta-analytic review. Psychological Bulletin, 140, 140–187. doi:10.1037/a0031859
   PubMed Web of Science ®Google Scholar
• Rogers, K. R. (1987). Nature of spousal supportive behaviors that influence heart transplant patient compliance. Journal of Heart Transplant, 6, 90–95.
   PubMedGoogle Scholar
• Schiaffino, K. M., & Revenson, T. A. (1995). Relative contributions of spousal support and illness appraisals to depressed mood in arthritis patients. Arthritis Care Research, 8, 80–87. doi:10.1002/art.1790080205
   PubMed Web of Science ®Google Scholar
• Shin, D. C., & Johnson, D. M. (1978). Avowed happiness as an overall assessment of the quality of life. Social Indicators Research, 5, 474–492. doi:10.1007/BF00352944
   Web of Science ®Google Scholar
• Smith, R. A., Sillars, A., Chesnut, R. P., & Zhu, X. (2018). Investigating married adults’ communal coping with genetic health risk and perceived discrimination. Communication Monographs, 85, 181–292. doi:10.1080/03637751.2017.1404618
   PubMed Web of Science ®Google Scholar
• Spanier, G. B. (1976). Measuring dyadic adjustment: New scales for assessing the quality of marriage and similar dyads. Journal of Marriage and Family, 38, 15–28. doi:10.2307/350547
   Web of Science ®Google Scholar
• Stoller, J., & Aboussouan, L. (2012). A review of α1-antitrypsin deficiency. American Journal of Respiratory and Critical Care Medicine, 185, 246–259. doi:10.1164/rccm.201108-1428CI
   PubMed Web of Science ®Google Scholar
• Thoits, P. A. (2011). Mechanisms linking social ties and support to physical and mental health. Journal of Health and Social Behavior, 52, 145–161. doi:10.1177/0022146510395592
   PubMed Web of Science ®Google Scholar
• Tian, X., & Solomon, D. H. (2018). Grief and post-traumatic growth following miscarriage: The role of meaning reconstruction and partner supportive communication. Death Studies 1–11. Advance Online Publication. doi:10.1080/07481187.2018.1539051.
   PubMed Web of Science ®Google Scholar
• Uchino, B. N. (2009). Understanding the links between social support and physical health: A life-span perspective with emphasis on the separability of perceived and received support. Perspectives on Psychological Science, 4, 236–255. doi:10.1111/j.1745-6924.2009.01122.x
   Web of Science ®Google Scholar
• Umberson, D., & Montez, J. K. (2010). Social relationships and health: A flashpoint for health policy. Journal of Health and Social Behavior, 51, 54–66. doi:10.1177/0022146510383501
   PubMed Web of Science ®Google Scholar
• Wheaton, A. G., Cunningham, T. J., Ford, E. S., & Croft, J. B. (2015). Employment and activity limitations among adults with chronic obstructive pulmonary disease - United States, 2013. Morbidity and Mortality Weekly Report (MMWR), 64, 289–295.
   PubMed Web of Science ®Google Scholar
• Whisman, M. A., & Baucom, D. H. (2012). Intimate relationships and psychopathology. Clinical Child and Family Psychology Review, 15, 4–13. doi:10.1007/s10567-011-0107-2
   PubMed Web of Science ®Google Scholar
• Wills, T. A., & Shinar, O. (2000). Measuring perceived and received social support. In S. Cohen, L. G. Underwood, & B. H. Gottlieb (Eds.), Social support measurement and intervention (pp. 86–135). New York, NY: Oxford University Press.
   Google Scholar
• Xu, Y., & Burleson, B. R. (2001). Effects of sex, culture, and support type on perceptions of spousal social support: An assessment of the “support gap” hypothesis in early marriage. Human Communication Research, 27, 535–566. doi:10.1111/j.1468-2958.2001.tb00792.x
   Web of Science ®Google Scholar
• Zhu, X., Smith, R. A., & Parrott, R. L. (2017). Living with a rare health condition: The influence of a support community and public stigma on communication, stress, and available support. Journal of Applied Communication Research, 45, 179–198. doi:10.1080/00909882.2017.1288292
   PubMed Web of Science ®Google Scholar
• Zuo, L., Pannell, B. K., Zhou, T., & Chuang, C. C. (2016). Historical role of alpha-1-antitrypsin deficiency in respiratory and hepatic complications. Gene, 589, 118–122. doi:10.1016/j.gene.2016.01.004
   PubMed Web of Science ®Google Scholar