Finding the Person in Electronic Health Records. A Mixed-Methods Analysis of Person-Centered Content and Language

References

• 1177 Vårdguiden. (2020). 1177 Vårdguiden. Din journal [Swedish). https://www.1177.se/Vastra-Gotaland/sa-fungerar-varden/sa-skyddas-och-hanteras-dina-uppgifter/din-journal/
   Google Scholar
• Alharbi, T., Carlström, E., Ekman, I., Jarneborn, A., & Olsson, L. (2014). Experiences of person-centred care - patients’ perceptions: Qualitative study. BMC Nursing, 13, e28. https://doi.org/https://doi.org/10.1186/1472-6955-13-28
   PubMedGoogle Scholar
• Anspach, R. (1988). Notes on the sociology of medical discourse: The language of case presentation. Journal of Health and Social Behavior, 29(4), 357–375. https://doi.org/https://doi.org/10.2307/2136869
   PubMed Web of Science ®Google Scholar
• Arntfield, M., & Johnston, J. (2016). Healthcare writing: A practical guide to professional success. Broadview Press.
   Google Scholar
• Britten, N., Moore, L., Lydahl, D., Naldemirci, O., Elam, M., & Wolf, A. (2017). Elaboration of the Gothenburg model of person-centred care. Health Expectations, 20(3), 407–418. https://doi.org/https://doi.org/10.1111/hex.12468
   PubMed Web of Science ®Google Scholar
• Broderick, M., & Coffey, A. (2013). Person-centred care in nursing documentation. International Journal of Older People Nursing, 8(4), 309–318. https://doi.org/https://doi.org/10.1111/opn.12012
   PubMedGoogle Scholar
• Burr, V. (2015). Social constructionism (3rd ed.). Routledge.
   Google Scholar
• Creswell, J. W., & Plano Clark, V. L. (2010). Designing and conducting mixed methods research (2nd ed.). SAGE Publications, Inc.
   Google Scholar
• De Lusignan, S., Mold, F., Sheikh, A., Majeed, A., Wyatt, J., Quinn, T., Cavill, M., Gronlund, T. A., Franco, C., Chauhan, U., Kataria, N., Barker, F., Ellis, B., Koczan, P., Arvanitis, T. N., McCarthy, M., Jones, S., & Rafi, I. (2014). Patients’ online access to their electronic health records and linked online services: A systematic interpretative review. BMJ Open, 4, e006021. https://doi.org/https://doi.org/10.1136/bmjopen-2014-006021
   PubMed Web of Science ®Google Scholar
• Dellenborg, L., Wikström, E., & Andersson Erichsen, A. (2019). Factors that may promote the learning of person‑centred care: An ethnographic study of an implementation programme for healthcare professionals in a medical emergency ward in Sweden. Advances in Health Sciences Education, 24(2), 353–381. https://doi.org/https://doi.org/10.1007/s10459-018-09869-y
   PubMed Web of Science ®Google Scholar
• Durand, M., Carpenter, L., Dolan, H., Bravo, P., Mann, M., Bunn, F., & Elwyn, G. (2014). Do interventions designed to support shared decision-making reduce health inequalities? A systematic review and meta-analysis. PLoS ONE, 9(4), e94670. https://doi.org/https://doi.org/10.1371/journal.pone.0094670
   PubMed Web of Science ®Google Scholar
• Ekman, I., Swedberg, K., Taft, C., Lindseth, A., Norberg, A., Brink, E., Carlsson, J., Dahlin-Ivanoff, S., Johansson, I. L., Kjellgren, K., Lidén, E., Öhléna, J., Olssona, L.-E., Roséni, H., Rydmarkj, M., & Sunnerhagen, K. S. (2011). Person-centered care—Ready for prime time. European Journal of Cardiovascular Nursing, 10(4), 248–251. https://doi.org/https://doi.org/10.1016/j.ejcnurse.2011.06.008
   PubMed Web of Science ®Google Scholar
• Gerard, M., Fossa, A., Folcarelli, P., Walker, J., & Bell, S. (2017). What patients value about reading visit notes: A qualitative inquiry of patient experiences with their health information. Journal of Medical Internet Research, 19(7), e:237. https://doi.org/https://doi.org/10.2196/jmir.7212
   Google Scholar
• Håkansson Eklund, J., Holmström, I. K., Kumlin, T., Kaminsky, E., Skoglund, K., Höglander, J., Sundler, A. J., Condén, E., & Summer Meranius, M. (2019). “Same same or different?” A review of reviews of person-centered and patient-centered care. Patient Education and Counseling, 102(1), 3–11. https://doi.org/https://doi.org/10.1016/j.pec.2018.08.029
   PubMed Web of Science ®Google Scholar
• Hyde, A., Treacy, M. P., Scott, P. A., Butler, M., Drennan, J., Irving, K., Byrne, A., Macneela, P., & Hanrahan, M. (2005). Modes of rationality in nursing documentation: Biology, biography and the ‘voice of nursing’. Nursing Inquiry, 12(2), 66–77. https://doi.org/https://doi.org/10.1111/j.1440-1800.2005.00260.x
   PubMedGoogle Scholar
• Inera, A. (2018). Vårdhandoken [The handbook for healthcare]. Stockholm, Sweden. https://www.vardhandboken.se
   Google Scholar
• Jakobsson, S., Eliasson, B., Andersson, E., Johansson, G., Ringström, G., Simrén, M., & Jakobsson Ung, E. (2019). Person-centred inpatient care—a quasi-experimental study within an internal medicine context. Journal of Advanced Nursing, 75(8), 1678–1689. https://doi.org/https://doi.org/10.1111/jan.13953
   PubMed Web of Science ®Google Scholar
• Jakobsson, S., Olsson, D., Andersson, E., Hallén, T., Krabbé, D., Olofsson, A., Ragnarsson, O., Skoglund, T., Johannsson, G.,* & Jakobsson Ung, E.* (*shared last author). (2020). Extended support within a person-centered practice: A quasi- experimental study for persons with pituitary tumors after surgery. JMIR Research Protocols, 9(7), e17697. https://doi.org/https://doi.org/10.2196/17697
   PubMed Web of Science ®Google Scholar
• Jansson, I., Fors, A., Ekman, I., & Ulin, K. (2018). Documentation of person-centred health plans for patients with acute coronary syndrome. European Journal of Cardiovascular Nursing, 17(2), 114–122. https://doi.org/https://doi.org/10.1177/1474515117718415
   PubMed Web of Science ®Google Scholar
• Lemke, J. (1995). Textual politics: Discourse and social dynamics. Taylor & Francis Ltd.
   Google Scholar
• McCormack, B., & McCance, T. (2017). Person-centred nursing and health care: Theory and practice. Wiley.
   Google Scholar
• McCormack, B., & McCance, T. V. (2006). Development of a framework for person-centred nursing. Journal of Advanced Nursing, 56(5), 472–479. https://doi.org/https://doi.org/10.1111/j.1365-2648.2006.04042.x
   PubMed Web of Science ®Google Scholar
• Mishra, V. K., Hoyt, R. E., Wolver, S. E., Yoshihashi, A., & Banas, C. (2019). Qualitative and quantitative analysis of patients’ perceptions of the patient portal experience with OpenNotes. Applied Clinical Informatics, 10(1), 010–018. https://doi.org/https://doi.org/10.1055/s-0038-1676588
   Google Scholar
• Murphy, J., Choi, J., & Cadeiras, M. (2016). The role of clinical records in narrative medicine: A discourse of message. The Permanente Journal, 20(2), 103–108. https://doi.org/https://doi.org/10.7812/TPP/15-101
   PubMedGoogle Scholar
• Nørgaard, J. (2013). E-record—access to all Danish public health records. Studies in Health Technology and Informatics, 192, e:1121. https://doi.org/https://doi.org/10.3233/978-1-61499-289-9-1121
   Google Scholar
• Olsson, L. E., Jakobsson Ung, E., Swedberg, K., & Ekman, I. (2013). Efficacy of person-centred care as an intervention in controlled trials - a systematic review. Journal of Clinical Nursing, 22(3–4), 456–465. https://doi.org/https://doi.org/10.1111/jocn.1203910.1111/jocn.12039
   PubMed Web of Science ®Google Scholar
• Onwuegbuzie, A., & Collins, K. (2007). A typology of mixed methods sampling designs in social science research. The Qualitative Report, 12(2), 281–316. http://www.nova.edu/ssss/QR/QR12-2/onwuegbuzie2.pdf
   Google Scholar
• Paré, A. (2017). Texts and power: Toward a critical theory of language. In L. Davies & P. Leonard (Eds.), Social work in a corporate Era. Practices of power and resistance (pp. 76–90). Routledge.
   Google Scholar
• Pearce, C., & Bainbridge, M. (2014). A personally controlled electronic health record for Australia. Journal of the American Medical Informatics Association, 21(4), 707–713. https://doi.org/https://doi.org/10.1136/amiajnl-2013-002068
   PubMed Web of Science ®Google Scholar
• Prior, L. (2003). Using documents in social research. SAGE Publications Ltd.
   Google Scholar
• QSR International Pty Ltd. (2018). NVivo (Version 12). SAGE Publications Ltd. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home
   Google Scholar
• Schreier, M. (2012). Qualitative content analysis in practice. SAGE Publications Ltd.
   Google Scholar
• Swales, J. (1990). Genre analysis: English in academic and research settings. Cambridge, UK: Cambridge University Press.
   Google Scholar
• Swales, J. (2016). Reflections on the concept of discourse community. La Revue du Groupe d’Étude et de Recherche en Anglais de Spécialité (ASp), 69, 7–19. https://doi.org/https://doi.org/10.4000/asp.4774
   Google Scholar
• Walsh, L., Hemsley, B., Allan, M., Adams, N., Balandin, S., Georgiou, A., Higgins, I., McCarthy, S., & Hill, S. (2017). The e-health literacy demands of Australia’s my health record: A heuristic evaluation of usability. Perspectives in Health Information Management, 14(Fall), 1f. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5653954/?report=reader
   Google Scholar
• Wiljer, D., Urowitz, S., Apatu, E., DeLenardo, C., Eysenbach, G., Harth, T., Pai, H., & Leonard, K. J., & Canadian Committee for Patient Accessible Health Records. (2008). Patient accessible electronic health records: Exploring recommendations for successful implementation strategies. Journal of Medical Internet Research, 10(4), e:34. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2629367/
   PubMed Web of Science ®Google Scholar
• Wolf, A., Moore, L., Lydahl, D., Naldemirci, O., Elam, M., & Britten, N. (2017). The realities of partnership in person-centred care: A qualitative interview study with patients and professionals. BMJ Open, 7(7), e016491. https://doi.org/https://doi.org/10.1136/bmjopen-2017-016491
   PubMed Web of Science ®Google Scholar
• Zanaboni, P., Kummervold, P., Sørensen, T., & Johansen, M. (2020). Patient use and experience with online access to electronic health records in Norway: Results from an online survey. Journal of Medical Internet Research, 22(2), e16144. https://doi.org/https://doi.org/10.2196/16144
   PubMed Web of Science ®Google Scholar
• Zizzo, N., Bell, E., Lafointaine, A.-L., & Racine, E. (2017). Examining chronic care patient preferences for involvement in health‐care decision making: The case of Parkinson’s disease patients in a patient‐centred clinic. Health Expectations, 20(4), 655–664. https://doi.org/https://doi.org/10.1111/hex.12497
   PubMed Web of Science ®Google Scholar