A Content Analysis of HIV-Related Stigmatizing Language in the Scientific Literature, From 2010-2020: Findings and Recommendations for Editorial Policy

References

• Advisory Committee of the People with AIDS. (1983). The Denver principles. https://data.unaids.org/pub/externaldocument/2007/gipa1983denverprinciples_en.pdf
   Google Scholar
• Airhihenbuwa, C. O., & Obregon, R. (2000). A critical assessment of theories/models used in health communication for HIV/AIDS. Journal of Health Communication, 5(Suppl 1), 5–15. https://doi.org/10.1080/10810730050019528
   PubMed Web of Science ®Google Scholar
• Algarin, A. B., Sheehan, D. M., Varas Diaz, N., Fennie, K. P., Zhou, Z., Spencer, E. C., Cook, R. L., Morano, J. P., & Ibanez, G. E. (2020). Health care-specific enacted HIV-related stigma’s association with antiretroviral therapy adherence and viral suppression among people living with HIV in Florida. AIDS Patient Care and STDs, 34(7), 316–326. https://doi.org/10.1089/apc.2020.0031
   PubMed Web of Science ®Google Scholar
• AMA Manual of Style Committee. (2020). AMA manual of style: A guide for authors and editors (11th ed.). Oxford University Press. https://doi.org/10.1093/jama/9780190246556.001.0001
   Google Scholar
• American Psychological Association. (2020). Publication manual of the American Psychological Association (7th ed.). American Psychological Association (APA).
   Google Scholar
• Arnhart, C., Neale, M., Collins, C., Chesher, T., Coffey, S., Rogers, T. C., Ottwell, R., & Hartwell, M. (2022). The use of person-centered language in scientific research articles focused on autism. Journal of Developmental and Behavioral Pediatrics: JDBP, 43(2), 63–70. https://doi.org/10.1097/DBP.0000000000001038
   PubMed Web of Science ®Google Scholar
• Ashford, R. D., Brown, A. M., & Curtis, B. (2018). Substance use, recovery, and linguistics: The impact of word choice on explicit and implicit bias. Drug and Alcohol Dependence, 189, 131–138. https://doi.org/10.1016/j.drugalcdep.2018.05.005
   PubMed Web of Science ®Google Scholar
• Babalola, S., Van Lith, L. M., Mallalieu, E. C., Packman, Z. R., Myers, E., Ahanda, K. S., Harris, E., Gurman, T., & Figueroa, M.-E. (2017). A framework for health communication across the HIV treatment continuum. Journal of Acquired Immune Deficiency Syndromes (1999), 74(Suppl 1), S5–14. https://doi.org/10.1097/QAI.0000000000001206
   PubMedGoogle Scholar
• Bekalu, M. A., & Eggermont, S. (2015). Aligning HIV/AIDS communication with the oral tradition of Africans: A theory-based content analysis of songs’ potential in prevention efforts. Health Communication, 30(5), 441–450. https://doi.org/10.1080/10410236.2013.867004
   PubMed Web of Science ®Google Scholar
• Botha, M., Hanlon, J., & Williams, G. L. (2021). Does language matter? Identity-first versus person-first language use in autism research: A response to Vivanti. Journal of Autism and Developmental Disorders, 1–9. https://doi.org/10.1007/s10803-020-04858-w
   Web of Science ®Google Scholar
• Collier, R. (2012). Person-first language: Laudable cause, horrible prose. Canadian Medical Association Journal, 184(18), E939–940. https://doi.org/10.1503/cmaj.109-4338
   Web of Science ®Google Scholar
• Crocker, A. F., & Smith, S. N. (2019). Person-first language: Are we practicing what we preach? Journal of Multidisciplinary Healthcare, 12, 125–129. https://doi.org/10.2147/JMDH.S140067
   PubMed Web of Science ®Google Scholar
• Dancy-Scott, N., Dutcher, G. A., Keselman, A., Hochstein, C., Copty, C., Ben-Senia, D., Rajan, S., Asencio, M. G., & Choi, J. J. (2018). Trends in HIV terminology: Text mining and data visualization assessment of International AIDS Conference abstracts over 25 years. JMIR Public Health and Surveillance, 4(2), e8552. https://doi.org/10.2196/publichealth.8552
   Google Scholar
• de Souza, R. (2007). The construction of HIV/AIDS in Indian newspapers: A frame analysis. Health Communication, 21(3), 257–266. https://doi.org/10.1080/10410230701307733
   PubMed Web of Science ®Google Scholar
• Dickinson, J. K. (2018). The experience of diabetes-related language in diabetes care. Diabetes Spectrum: A Publication of the American Diabetes Association, 31(1), 58–64. https://doi.org/10.2337/ds16-0082
   PubMedGoogle Scholar
• Dilmitis, S., Edwards, O., Hull, B., Margolese, S., Mason, N., Namiba, A., Nyambe, M., Paxton, S., Petretti, S., Ross, G. V., Welbourn, A., & Zakowics, A. (2012). Language, identity and HIV: Why do we keep talking about the responsible and responsive use of language? Language matters. Journal of the International AIDS Society, 15(S2), 17990. https://doi.org/10.7448/IAS.15.4.17990
   Google Scholar
• Dunn, D. S., & Andrews, E. E. (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. The American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636
   PubMed Web of Science ®Google Scholar
• Earnshaw, V. A., Eaton, L. A., Collier, Z. K., Watson, R. J., Maksut, J. L., Rucinski, K. B., Kelly, J. F., & Kalichman, S. C. (2020). HIV stigma, depressive symptoms, and substance use. AIDS Patient Care and STDs, 34(6), 275–280. https://doi.org/10.1089/apc.2020.0021
   PubMed Web of Science ®Google Scholar
• Earnshaw, V. A., Smith, L. R., Chaudoir, S. R., Amico, K. R., & Copenhaver, M. M. (2013). HIV stigma mechanisms and well-being among PLWH: A test of the HIV stigma framework. AIDS and Behavior, 17(5), 1785–1795. https://doi.org/10.1007/s10461-013-0437-9
   PubMed Web of Science ®Google Scholar
• Fauci, A. S., Redfield, R. R., Sigounas, G., Weahkee, M. D., & Giroir, B. P. (2019). Ending the HIV epidemic: A plan for the United States. JAMA, 321(9), 844–845. https://doi.org/10.1001/jama.2019.1343
   PubMed Web of Science ®Google Scholar
• Gernsbacher, M. A. (2017). Editorial perspective: The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, 58(7), 859–861. https://doi.org/10.1111/jcpp.12706
   PubMed Web of Science ®Google Scholar
• Geter, A., Herron, A. R., & Sutton, M. Y. (2018). HIV-related stigma by healthcare providers in the United States: A systematic review. AIDS Patient Care and STDs, 32(10), 418–424. https://doi.org/10.1089/apc.2018.0114
   PubMed Web of Science ®Google Scholar
• Goddu, A. P., O’Conor, K. J., Lanzkron, S., Saheed, M. O., Saha, S., Peek, M. E., Haywood, C., & Beach, M. C. (2018). Do words matter? Stigmatizing language and the transmission of bias in the medical record. Journal of General Internal Medicine, 33(5), 685–691. https://doi.org/10.1007/s11606-017-4289-2
   PubMed Web of Science ®Google Scholar
• Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Prentice-Hall.
   Google Scholar
• Hartwell, M., Lin, V., Hester, M., Sajjadi, N. B., Dunn, K., Morris, J., & Witkiewitz, K. (2022). Stigmatizing Terminology for Outcomes and Processes (STOP) in alcohol research: A meta-epidemiologic assessment of language used in clinical trial publications. Journal of Addiction Medicine, 16(5), 527–533. https://doi.org/10.1097/ADM.0000000000000960
   PubMed Web of Science ®Google Scholar
• Hartwell, M., Naberhaus, B., Arnhart, C., Ottwell, R., Dunn, K., Rogers, T. C., Vassar, M., & Beaman, J. (2020). The use of person-centered language in scientific research articles focusing on alcohol use disorder. Drug and Alcohol Dependence, 216, 108209. https://doi.org/10.1016/j.drugalcdep.2020.108209
   PubMed Web of Science ®Google Scholar
• Himmelstein, G., Bates, D., & Zhou, L. (2022). Examination of stigmatizing language in the electronic health record. The JAMA Network Open, 5(1), e2144967. https://doi.org/10.1001/jamanetworkopen.2021.44967
   PubMed Web of Science ®Google Scholar
• Katz, I. T., Ryu, A. E., Onuegbu, A. G., Psaros, C., Weiser, S. D., Bangsberg, D. R., & Tsai, A. C. (2013). Impact of HIV-related stigma on treatment adherence: Systematic review and meta-synthesis. Journal of the International AIDS Society, 16(3 Suppl 2), 18640. https://doi.org/10.7448/IAS.16.3.18640
   PubMed Web of Science ®Google Scholar
• Kay, E. S., Rice, W. S., Crockett, K. B., Atkins, G. C., Batey, D. S., & Turan, B. (2018). Experienced HIV-related stigma in healthcare and community settings: Mediated associations with psychosocial and health outcomes. Journal of Acquired Immune Deficiency Syndromes (1999), 77(3), 257. https://doi.org/10.1097/QAI.0000000000001590
   PubMed Web of Science ®Google Scholar
• Kelly, J. F., & Westerhoff, C. M. (2010). Does it matter how we refer to individuals with substance-related conditions? A randomized study of two commonly used terms. International Journal of Drug Policy, 21(3), 202–207. https://doi.org/10.1016/j.drugpo.2009.10.010
   PubMed Web of Science ®Google Scholar
• Khan, S. (2014). Manufacturing consent?: Media messages in the mobilization against HIV/AIDS in India and lessons for health communication. Health Communication, 29(3), 288–298. https://doi.org/10.1080/10410236.2012.753139
   PubMed Web of Science ®Google Scholar
• Khan, S. (2020). Examining HIV/AIDS-related stigma at play: Power, structure, and implications for HIV interventions. Health Communication, 35(12), 1509–1519. https://doi.org/10.1080/10410236.2019.1652386
   PubMed Web of Science ®Google Scholar
• Lawhorn, C., Stirratt, M. J., & Rausch, D. M. (2022). Turning the tide in HIV through health communication research. Journal of the International AIDS Society, 25(6), e25955. https://doi.org/10.1002/jia2.25955
   PubMed Web of Science ®Google Scholar
• Lynn, V. A. (2017). Language and HIV communication. HIV/AIDS (Auckland, N.Z.), 9, 183–185. https://doi.org/10.2147/HIV.S148193
   Google Scholar
• Mahajan, A. P., Sayles, J. N., Patel, V. A., Remien, R. H., Ortiz, D., Szekeres, G., & Coates, T. J. (2008). Stigma in the HIV/AIDS epidemic: A review of the literature and recommendations for the way forward. AIDS (London, England), 22(Suppl 2), S67–79. https://doi.org/10.1097/01.aids.0000327438.13291.62
   PubMed Web of Science ®Google Scholar
• McAllister, M. P. (1992). AIDS, medicalization, and the news media. In T. Edgar, M. A. Fitzpatrick, & V. S. Freimuth (Eds.), AIDS: A communication perspective (pp. 195–202). Routledge.
   Google Scholar
• McGinty, E. E., & Barry, C. L. (2020). Stigma reduction to combat the addiction crisis—developing an evidence base. The New England Journal of Medicine, 382(14), 1291–1292. https://doi.org/10.1056/NEJMp2000227
   PubMed Web of Science ®Google Scholar
• McPherson, K. A., Reddy, A. K., Sajjadi, N. B., Deboy, K., Gajjar, S., Lad, M., & Hartwell, M. (2023). Person-centred language and HIV research: A cross-sectional examination of stigmatising terminology in medical literature. Sexually Transmitted Infections, 99(2), 110–115. https://doi.org/10.1136/sextrans-2021-055391
   PubMed Web of Science ®Google Scholar
• Meisenbach, R. J. (2010). Stigma management communication: A theory and agenda for applied research on how individuals manage moments of stigmatized identity. Journal of Applied Communication Research, 38(3), 268–292. https://doi.org/10.1080/00909882.2010.490841
   Web of Science ®Google Scholar
• Murray, M. (2021). Contributor: The importance of people-first language in the HIV community. The American Journal of Managed Care. https://www.ajmc.com/view/contributor-the-importance-of-people-first-language-in-the-hiv-community
   Google Scholar
• Myrick, R. (1996). AIDS, communication, and empowerment: Gay male identity and the politics of public health messages. Routledge.
   Google Scholar
• National Institute of Allergy and Infectious Diseases. (2020). NIAID HIV language guide. NIAID Office of Communications & Government Relations. https://www.niaid.nih.gov/sites/default/files/NIAID%20HIV%20Language%20Guide%20071520%20revised_%20updated.pdf
   Google Scholar
• Nyblade, L., Mingkwan, P., & Stockton, M. A. (2021). Stigma reduction: An essential ingredient to ending AIDS by 2030. The Lancet HIV, 8(2), e106–113. https://doi.org/10.1016/S2352-3018(20)30309-X
   PubMed Web of Science ®Google Scholar
• Park, J., Saha, S., Chee, B., Taylor, J., & Beach, M. C. (2021). Physician use of stigmatizing language in patient medical records. The JAMA Network Open, 4(7), e2117052. https://doi.org/10.1001/jamanetworkopen.2021.17052
   PubMed Web of Science ®Google Scholar
• Peinado, S., Treiman, K., Uhrig, J. D., Taylor, J. C., & Stryker, J. E. (2020). Effectively communicating about HIV and other health disparities: Findings from a literature review and future directions. Frontiers in Communication, 5. https://doi.org/10.3389/fcomm.2020.539174
   PubMedGoogle Scholar
• Rao, D., Elshafei, A., Nguyen, M., Hatzenbuehler, M. L., Frey, S., & Go, V. F. (2019). A systematic review of multi-level stigma interventions: State of the science and future directions. BMC Medicine, 17(1), 41. https://doi.org/10.1186/s12916-018-1244-y
   PubMed Web of Science ®Google Scholar
• Rochon, D., Ross, M. W., Looney, C., Nepal, V. P., Price, A. J., & Giordano, T. P. (2011). Communication strategies to improve HIV treatment adherence. Health Communication, 26(5), 461–467. https://doi.org/10.1080/10410236.2011.554168
   PubMed Web of Science ®Google Scholar
• Rueda, S., Mitra, S., Chen, S., Gogolishvili, D., Globerman, J., Chambers, L., Wilson, M., Logie, C. H., Shi, Q., Morassaei, S., & Rourke, S. B. (2016). Examining the associations between HIV-related stigma and health outcomes in people living with HIV/AIDS: A series of meta-analyses. BMJ Open, 6(7), e011453. https://doi.org/10.1136/bmjopen-2016-011453
   PubMed Web of Science ®Google Scholar
• Sastry, S., & Dutta, M. J. (2011). Postcolonial constructions of HIV/AIDS: Meaning, culture, and structure. Health Communication, 26(5), 437–449. https://doi.org/10.1080/10410236.2011.554166
   PubMed Web of Science ®Google Scholar
• Skinner, B. F. (1974). About behaviorism. Alfred A. Knopf.
   Google Scholar
• Smith, R. A. (2007). Language of the lost: An explication of stigma communication. Communication Theory, 17(4), 462–485. https://doi.org/10.1111/j.1468-2885.2007.00307.x
   Web of Science ®Google Scholar
• Smith, R. A., Zhu, X., & Quesnell, M. N. (2016). Stigma and health/risk communication. In J. Nussbaum (Ed.), Oxford research encyclopedia of communication: Health and risk message design and processing (pp. 1–33). New York, NY: Oxford University Press.
   Google Scholar
• Stangl, A. L., Earnshaw, V. A., Logie, C. H., van Brakel, W., Simbayi, L. C., Barré, I., & Dovidio, J. F. (2019). The health stigma and discrimination framework: A global, crosscutting framework to inform research, intervention development, and policy on health-related stigmas. BMC Medicine, 17(1), 31. https://doi.org/10.1186/s12916-019-1271-3
   PubMed Web of Science ®Google Scholar
• Tulloch, J., & Lupton, D. (1997). Television, AIDS and risk: A cultural studies approach to health communication. Allen & Unwin.
   Google Scholar
• Turan, B., Budhwani, H., Fazeli, P. L., Browning, W. R., Raper, J. L., Mugavero, M. J., & Turan, J. M. (2017). How does stigma affect people living with HIV? The mediating roles of internalized and anticipated HIV stigma in the effects of perceived community stigma on health and psychosocial outcomes. AIDS and Behavior, 21(1), 283–291. https://doi.org/10.1007/s10461-016-1451-5
   PubMed Web of Science ®Google Scholar
• Turan, B., Rogers, A. J., Rice, W. S., Atkins, G. C., Cohen, M. H., Wilson, T. E., Adimora, A. A., Merenstein, D., Adedimeji, A., Wentz, E. L., Ofotokun, I., Metsch, L., Tien, P. C., Johnson, M. O., Turan, J. M., & Weiser, S. D. (2017). Association between perceived discrimination in healthcare settings and HIV medication adherence: Mediating psychosocial mechanisms. AIDS and Behavior, 21(12), 3431–3439. https://doi.org/10.1007/s10461-017-1957-5
   PubMed Web of Science ®Google Scholar
• UNAIDS. (2015). UNAIDS terminology guidelines—2015. UNAIDS.org. https://www.unaids.org/en/resources/documents/2015/2015_terminology_guidelines
   Google Scholar
• UNAIDS. (2022). Global HIV & AIDS statistics. https://www.unaids.org/en/resources/fact-sheet
   Google Scholar
• Vaughan, C. E. (2009). People-first language: An unholy crusade. Braille Monitor, 52(3). https://nfb.org/images/nfb/publications/bm/bm09/bm0903/bm090309.htm
   Google Scholar
• Veritas Health Innovation. (2021). Covidence systematic review software. www.covidence.org
   Google Scholar
• The Well Project. (2022). Why language matters: Facing HIV stigma in our own words. The Well Project. https://www.thewellproject.org/hiv-information/why-language-matters-facing-hiv-stigma-our-own-words
   Google Scholar
• White, K. (2021). Publication output by country, region, or economy and scientific field. National Science Foundation. https://ncses.nsf.gov/pubs/nsb20214/publication-output-by-country-region-or-economy-and-scientific-field
   Google Scholar
• Zhu, X., & Smith, R. A. (2022). Stigma, communication, and health. In T. L. Thompson & N. G. Harrington (Eds.), The Routledge handbook of health communication (3rd ed., pp. 77–90). Routledge.
   Google Scholar