1,535
Views
0
CrossRef citations to date
0
Altmetric
Research Article

“So It’s Like a Painful Period?” Living with Endometriosis: My Journey

ORCID Icon

References

  • Anderl, C., de Wit, A. E., Giltay, E. J., Oldehinkel, A. J., & Chen, F. S. (2022). Association between adolescent oral contraceptive use and future major depressive disorder: A prospective cohort study. The Journal of Child Psychology and Psychiatry, 63(3), 333–341. https://doi.org/10.1111/jcpp.13476
  • Baird, D. T., & Glasier, A. F. (1993). Hormonal contraception. The New England Journal of Medicine, 328(21), 1543–1549. https://doi.org/10.1056/nejm199305273282108
  • Bitzer, J. (2017). Hormonal contraception and depression: Another pill scandal? The European Journal of Contraception & Reproductive Health Care, 22(1), 1–2. https://doi.org/10.1080/13625187.2016.1269163
  • Brønnick, M. K., Økland, I., Graugaard, C., & Brønnick, K. K. (2020). The effects of hormonal contraceptives on the brain: A systematic review of neuroimaging studies. Frontiers in Psychology, 11, 1–18. https://doi.org/10.3389/fpsyg.2020.556577
  • Bullo, S. (2020). “I feel like I’m being stabbed by a thousand tiny men”: The challenges of communicating endometriosis pain. Health, 24(5), 476–492. https://doi.org/10.1177/1363459318817943
  • Cooper, G. B., Patel, P., & Mahdy, H. (2022). Oral contraceptive pills. National Library of Medicine. Stat Pearls [Internet]. https://europepmc.org/article/NBK/nbk430882
  • Cox, H., Henderson, L., Andersen, N., Cagliarini, G., & Ski, C. (2003). Focus group study of endometriosis: Struggle, loss and the medical merry-go-round. International Journal of Nursing Practice, 9(1), 2–9. https://doi.org/10.1046/j.1440-172X.2003.00396.x
  • DeMaria, A. L., Rivera, S., Ramos-Ortiz, J., Meier, S., Wakefield, A. L., Basile, K., Evans, J. M., Zaininger, H. M., & Clayton, A. (2019). ‘It’s just a very personal thing’: Contraceptive influences and decision making among women living in Italy. The European Journal of Contraception & Reproductive Health Care, 24(3), 198–205. https://doi.org/10.1080/13625187.2019.1615616
  • Denny, E. (2009). I never know from one day to another how I will feel: Pain and uncertainty in women with endometriosis. Qualitative Health Research, 19(7), 985–995. https://doi.org/10.1177/1049732309338725
  • Endometriosis UK. (n.d.). APPG release new report on endometriosis. https://www.endometriosis-uk.org/appg-release-new-report-endometriosis
  • Fournier, V. (2002). Fleshing out gender: Crafting gender identity on women’sbodies. Body & Society, 8(2), 55–77. https://doi.org/10.1177/1357034X02008002004
  • Ghai, V., Jan, H., Shakir, F., Haines, P., & Kent, A. (2020). Diagnostic delay for superficial and deep endometriosis in the United Kingdom. Journal of Obstetrics and Gynaecology, 40(1), 83–89. https://doi.org/10.1080/01443615.2019.1603217
  • Grundström, H., Alehagen, S., Kjølhede, P., & Berterö, C. (2018). The double-edged experience of healthcare encounters among women with endometriosis: A qualitative study. Journal of Clinical Nursing, 27(1–2), 205–211. https://doi.org/10.1111/jocn.13872
  • Guo, S.-W. (2009). Recurrence of endometriosis and its control. Human Reproduction Update, 15(4), 441–461. https://doi.org/10.1093/humupd/dmp007
  • Hoffman, D. E., & Tarzian, A. J. (2001). The girl who cried pain: A bias against women in the treatment of pain. Journal of Law, Medicine and Ethics, 29(1), 13–27. https://doi.org/10.1111/j.1748-720X.2001.tb00037.x
  • Krebs, E., & Schoenbauer, K. V. (2020). Hysterics and heresy: Using dialogism to explore the problematics of endometriosis diagnosis. Health Communication, 35(8), 1013–1022. https://doi.org/10.1080/10410236.2019.1606136
  • Krsmanovic, A., & Dean, M. (2022). How women suffering from endometriosis disclose about their disorder at work. Health Communication, 37(8), 992–1003. https://doi.org/10.1080/10410236.2021.1880053
  • Kulkarni, J. (2007). Depression as a side effect of the contraceptive pill. Expert Opinion on Drug Safety, 6(4), 371–374. https://doi.org/10.1517/14740338.6.4.371
  • Leibson, C. L., Good, A. E., Hass, S. L., Ransom, J., Yawn, B. P., O’Fallon, W. M., & Melton, L. J. (2004). Incidence and characterization of diagnosed endometriosis in a geographically defined population. Fertility and Sterility, 82(2), 314–321. https://doi.org/10.1016/j.fertnstert.2004.01.037
  • Markovic, M., Manderson, L., & Warren, N. (2008). Endurance and contest: Women’s narratives of endometriosis. An Interdisciplinary Journal for the Social Study of Health, Illness & Medicine, 12(3), 349–367. https://doi.org/10.1177/1363459308090053
  • Meyer, V. F. (2001). The medicalization of menopause: Critique and consequences. International Journal of Health Services, 31(4), 769–792. https://doi.org/10.2190/M77D-YV2Y-D5NU-FXNW
  • Mu, E., & Kulkarni, J. (2022). Hormonal contraception and mood disorders. Australian Prescriber, 45(3), 75–79. https://doi.org/10.18773/austprescr.2022.025
  • Norinho, P., Martins, M. M., & Ferreira, H. (2020). A systematic review on the effects of endometriosis on sexuality and couple’s relationship. Facts, Views & Vision in Obgyn, 12(3), 197–205. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7580264/
  • Odette, M. A., Peterkin, A. L., Salem, M. K., & Tebb, K. P. (2023). The effect of depression and anxiety on nonbarrier contraception in adolescents and young adults: A scoping review. Translational Issues in Psychological Science. Advance online publication. https://doi.org/10.1037/tps0000356
  • Parazzini, F., Cipriani, S., Bravi, F., Pelucchi, C., Chiaffarino, F., Ricci, E., & Viganò, P. (2013). A meta analysis on alcohol consumption and risk of endometriosis. American Journal of Obstetrics and Gynecology, 209(2), 106.e1–106.e10. https://doi.org/10.1016/j.ajog.2013.05.039
  • Petersen, N., Kearley, N. W., Ghahremani, D. G., Pochon, J.-B., Fry, M. E., Rapkin, A. J., & London, E. D. (2021). Effects of oral contraceptive pills on mood and magnetic resonance imaging measures of prefrontal cortical thickness. Molecular Psychiatry, 26(3), 917–926. https://doi.org/10.1038/s41380-020-00990-2
  • Rea, T., Giampaolino, P., Simeone, S., Pucciarelli, G., Alvaro, R., & Guillari, A. (2020). Living with endometriosis: A phenomenological study. International Journal of Qualitative Studies on Health and Well-Being, 15(1), 1–9. https://doi.org/10.1080/17482631.2020.1822621
  • Rush, G., & Misajon, R. A. (2018). Examining subjective wellbeing and health-related quality of life in women with endometriosis. Health Care for Women International, 39(3), 303–321. https://doi.org/10.1080/07399332.2017.1397671
  • Stidham Hall, K., Steinberg, J. R., Cwiak, C. A., Allen, R. H., & Marcus, S. M. (2015). Contraception and mental health: A commentary on the evidence and principles for practice. American Journal of Obstetrics and Gynecology, 212(6), 740–746. https://doi.org/10.1016/j.ajog.2014.12.010
  • Strzempko Butt, F., & Chesla, C. (2007). Relational patterns of couples living with chronic pelvic pain from endometriosis. Qualitative Health Research, 17(5), 571–585. https://doi.org/10.1177/1049732307299907
  • Ussher, J. M. (2010). Are we medicalizing women’s misery? A critical review of women’s higher rates of reported depression. Feminism & Psychology, 20(1), 9–35. https://doi.org/10.1177/0959353509350213
  • Viganò, P., Parazzini, F., Somigliana, E., & Vercellini, P. (2004). Endometriosis: Epidemiology and aetiological factors. Best Practice & Research Clinical Obstetrics & Gynaecology, 18(2), 177–200. https://doi.org/10.1016/j.bpobgyn.2004.01.007
  • Winfield, A. S. (2022). Body, blood, and brilliance: A black woman’s battle for loud healing and strength. Health Communication, 37(1), 127–130. https://doi.org/10.1080/10410236.2020.1826656
  • Wong, C. L., Farquhar, C., Roberts, H., & Proctor, M. (2009). Oral contraceptive pill for primary dysmenorrhoea. Cochrane Database of Systematic Reviews, 2(1), 1–80. https://doi.org/10.1002/14651858.CD002120.pub2
  • World Health Organisation. (2023, March 24). Endometriosis. Retrieved May 2, 2023, from https://www.who.int/news-room/fact-sheets/detail/endometriosis
  • Wright, K. O. (2019). “You have endometriosis”: Making menstruation-related pain legitimate in a biomedical world. Health Communication, 34(8), 912–915. https://doi.org/10.1080/10410236.2018.1440504