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Research Article

Making Sense of Gynecologic Cancer: A Relational Dialectics Approach

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References

  • Amati, R., & Hannawa, A. F. (2014). Relational dialectics theory: Disentangling physician-perceived tensions of end-of-life communication. Health Communication, 29(10), 962–973. https://doi.org/10.1080/10410236.2013.815533
  • Ambroggi, M., Biasini, C., Giovane, C. D., Fornari, F., & Cavanna, L. (2015). Distance as a barrier to cancer diagnosis and treatment: Review of the literature. The Oncologist, 20, 1378–1385. https://doi.org/10.1634/theoncologist
  • Arkansas Department of Health. (2017). Arkansas cancer facts & figures [ Fact sheet]. https://www.healthy.arkansas.gov/images/uploads/publications/ARCancerFacts217.pdf
  • Arkansas Department of Health. (2020a). Arkansas medically underserved areas (MUA). https://www.healthy.arkansas.gov/images/uploads/pdf/Medically_Underserved_Area_Map_2020.pdf
  • Arkansas Department of Health. (2020b). State health assessment 2020, Arkansas’ big health problems. https://www.healthy.arkansas.gov/programs-services/topics/state-health-assessment-book
  • Arkansas Medical News. (n.d.). New Fowler center for cancer care raises the bar for cancer treatment in Northeast Arkansas. https://arkansasmed.bondwaresite.com/new-fowler-center-for-cancer-care-raises-the-bar-for-cancer-treatment-in-northeast-arkansas-cms-79
  • Arora, T., Mullangi, S., & Lekkala, M. R. (2023). Ovarian cancer. StatPearls Publishing.
  • Åsbring, P., & Närvänen, A. L. (2004). Patient power and control: A study of women with uncertain illness trajectories. Qualitative Health Research, 14(2), 226–240. https://doi.org/10.1177/1049732303260682
  • Atkins, L. (2016). Half the battle: Social support among women with cancer. Qualitative Inquiry, 22(4), 253–262. https://doi.org/10.1177/1077800415574911
  • Bashiri, M., Kovvuru, S., & Greenfield, L. J. (2014, June 4). Neurology telemedicine interest in Arkansas [ Poster abstract]. UAMS College of Medicine Showcase of Medical Discoveries: A Focus on Telemedicine, Little Rock, AR, United States. https://research.uams.edu/wp-content/uploads/2022/07/Show-case-Telehealth_Program_2.pdf
  • Baxter, L. A. (2010). Voicing relationships: A dialogic perspective. Sage Publications.
  • Baxter, L. A., & Norwood, K. M. (2014). Relational dialectics theory: Navigating meaning from competing discourses. In D. O. Braithwaite & P. Schrodt (Eds.), Engaging theories in interpersonal communication (pp. 279–291). Sage Publications.
  • Baxter, L. A., Scharp, K. M., & Thomas, L. J. (2021). Relational dialectics theory. Journal of Family Theory & Review, 13(1), 7–20. https://doi.org/10.1111/jftr.12405
  • Beesley, V. L., Alemayehu, C., & Webb, P. M. (2018). A systematic literature review of the prevalence of and risk factors for supportive care needs among women with gynecological cancer and their caregivers. Supportive Care in Cancer, 26(3), 701–710. https://doi.org/10.1007/s00520-017-3971-6
  • Beisecker, A. E. (1990). Patient power in doctor-patient communication: What do we know? Health Communication, 2(2), 105–122. https://doi.org/10.1207/s15327027hc0202_4
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Braun, V., & Clarke, V. (2021). Thematic analysis: A practical guide. Sage Publications.
  • Braun, V., & Clarke, V. (2022). Conceptual and design thinking for thematic analysis. Qualitative Psychology, 9(1), 3–26. https://doi.org/10.1037/qup0000196
  • Broom, D. (2001). Reading breast cancer: Reflections on a dangerous intersection. Health, 5(2), 249–268. https://doi.org/10.1177/136345930100500206
  • Bute, J. J., & Brann, M. (2020). Tensions and contradictions in interns’ communication about unexpected pregnancy loss. Health Communication, 35(5), 529–537. https://doi.org/10.1080/10410236.2019.1570429
  • Cartwright, L. (1998). Community and the public body in breast cancer media activism. Cultural Studies, 12(2), 117–138. https://doi.org/10.1080/095023898335500
  • Centers for Disease Control and Prevention. (2019). Gynecologic cancer incidence, United States – 2012-2016 [U.S. Cancer Statistics Data Brief No. 11]. U.S. Department of Health and Human Services. https://www.cdc.gov/cancer/uscs/about/data-briefs/no11-gynecologic-cancer-incidence-UnitedStates-2012-2016.htm#print
  • Cooper, D. B., & Dunton, C. J. (2023). Colposcopy. National Library of Medicine. https://www.ncbi.nlm.nih.gov/books/NBK564514/
  • Deshazer, M. K. (2013). Mammographies: The cultural discourses of breast cancernarratives. University of Michigan Press. https://doi.org/10.2307/j.ctv3znzfk
  • Dholakia, J., Kim, J., Liang, M. I., Arend, R. C., Bevis, K. S., Straughn, J. M., Jr., Leath, C. A., Huh, W. K., & Smith, H. J. (2021). Gynecologic oncology patients are ready for telemedicine in routine care: Results from a pre-COVID survey. Gynecologic Oncology Reports, 38, 100871. https://doi.org/10.1016/j.gore.2021.100871
  • Elias, K. M., Guo, J., & Bast, R. S. (2018). Early detection of ovarian cancer. Hematology/Oncology Clinics, 32(6), 903–914. https://doi.org/10.1016/j.hoc.2018.07.003
  • Epstein, R. M., & Street, R. L., Jr. (2007). Patient-Centered communication in cancer care: Promoting healing and reducing suffering (NIH Publication No. 07-6225). National Cancer Institute. https://cancercontrol.cancer.gov/sites/default/files/2020-06/pcc_monograph.pdf
  • Faulkner, S. L., & Hecht, M. L. (2011). The negotiation of closetable identities: A narrative analysis of LGBTQ Jewish identity. Journal of Social and Personal Relationships, 28(6), 829–847. https://doi.org/10.1177/0265407510391338
  • Ferrell, B. R., Smith, S. L., Juarez, G., & Melancon, C. (2003). Meaning of illness and spirituality in ovarian cancer survivors. Oncology Nursing Forum, 30(2), 249–257. https://doi.org/10.1188/03.onf.249-257
  • Fiscella, K., Humiston, S., Hendren, S., Winters, P., Jean-Pierre, P., Idris, A., & Ford, P. (2011). Eliminating disparities in cancer screening and follow-up of abnormal results: What will it take? Journal of Health Care for the Poor and Underserved, 22(1), 83–100. https://doi.org/10.1353/hpu.2011.0023
  • Giaquinto, A., Broaddus, R. R., Jemal, A., & Siegel, R. (2022). The changing landscape of gynecologic cancer mortality in the United States. Obstetrics & Gynecology, 139(3), 440–442. https://doi.org/10.1097/AOG.0000000000004676
  • Gilbert, E., Ussher, J. M., & Perz, J. (2011). Sexuality after gynecological cancer: A review of the material, intrapsychic, and discursive aspects of treatment onwomen’s sexual wellbeing. Maturitas, 70(1), 42–57. https://doi.org/10.1016/j.maturitas.2011.06.013
  • Goldsmith, D. J., & Domann-Scholz, K. (2013). The meanings of “open communication” among couples coping with a cardiac event. Journal of Communication, 63(2), 266–86. https://doi.org/10.1111/jcom.12021
  • Gonzalez, B. D., Manne, S. L., Stapleton, J., Myers-Virtue, S., Ozga, M., Kissane, D., Heckman, C., & Morgan, M. (2017). Quality of life trajectories after diagnosis of gynecologic cancer: A theoretically based approach. Supportive Care in Cancer, 25(2), 589–598. https://doi.org/10.1007/s00520-016-3443-4
  • Gordinier, M. E., & Hanchette, C. L. (2010). Geographic disparities in cancer survival and access to care: Ovarian cancer in Kentucky. International Journal of Applied Geospatial Research, 1(1), 67–79. https://doi.org/10.4018/jagr.2010071605
  • Gubar, S. (2012). Memoir of a debulked woman: Enduring ovarian cancer. W. W. Norton & Company.
  • Guité-Verret, A., & Vachon, M. (2021). The incurable metastatic breast cancer experience through metaphors: The fight and the unveiling. International Journal of Qualitative Studies on Health and Well-Being, 16(1), 1971597. https://doi.org/10.1080/17482631.2021.1971597
  • Herndl, P. D. (2009). Reconstructing the posthuman feminist body twenty years after Audre Lorde’s Cancer Journals. In R. Warhol-Down & D. P. Herndl (Eds.), Feminisms redux: An anthology of literary theory and criticism (pp. 477–486). Rutgers University Press.
  • Hitt, W. C., & Low, G. (2014, June 4). Arkansas START: “System to access rural telecolposcopy” summarizing 3 years of success [ Poster abstract]. UAMS College of Medicine Showcase of Medical Discoveries: A Focus on Telemedicine, Little Rock, AR, United States. https://research.uams.edu/wp-content/uploads/2022/07/Showcase-Telehealth_Program_2.pdf
  • Hitt, W. C., Low, G., Bird, T. M., & Ott, R. (2013). Telemedical cervical cancer screening to bridge medicaid service care gap for rural women. Telemedicine and E-Health, 19(5), 403–408. https://doi.org/10.1089/tmj.2012.0148
  • Holmes, M. S. (2006). Pink ribbons and public private parts: On not imagining ovarian cancer. Literature and Medicine, 25(2), 475–501. https://doi.org/10.1353/lm.2007.0005
  • Holt, A., Jayroe, M., Fisher, C., Balamurugan, A., & Delongchamp, R. (2020). Cancer in Arkansas 2020. Arkansas Department of Health. https://www.healthy.arkansas.gov/images/uploads/publications/2020_Cancer_Report.pdf
  • Hoppenot, C., Hlubocky, F. J., Chor, J., Yamada, S. D., & Lee, N. K. (2022). Gaps in patient-physician communication at the time of malignant bowel obstruction from recurrent gynecologic cancer: A qualitative study. Supportive Care in Cancer, 30(1), 367–376. https://doi.org/10.1007/s00520-021-06441-0
  • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/104973230527668
  • Jiang, T., Stillson, C. H., Pollack, C. E., Crossette, L., Ross, M., Radhakrishnan, A., & Grande, D. (2017). How men with prostate cancer choose specialists: A qualitative study. The Journal of the American Board of Family Medicine, 30(2), 220–229. https://doi.org/10.3122/jabfm.2017.02.160163
  • Kraus, E. J., Nicosia, B., & Shalowitz, D. I. (2022). A qualitative study of patients’ attitudes towards telemedicine for gynecologic cancer care. Gynecologic Oncology, 165(1), 155–159. https://doi.org/10.1016/j.ygyno.2022.01.035
  • Krebs, E., & Schoenbauer, K. V. (2020). Hysterics and heresy: Using dialogism to explore the problematics of endometriosis diagnosis. Health Communication, 35(8), 1013–1022. https://doi.org/10.1080/10410236.2019.1606136
  • Loehberg, C. R., Meyer, J., Häberle, L., Hack, C. C., Jud, S., Hein, A., Wunderle, M., Emons, J., Gass, P., Fasching, P. A., Egloffstein, S., Krebs, J., Erim, Y., Beckmann, M. W., Lux, M. P., & Wasner, S. (2020). Analysis of motives and patient satisfaction in oncological second opinions provided by a certified university breast and gynecological cancer center. Archives of Gynecology and Obstetrics, 301(5), 1299–1306. https://doi.org/10.1007/s00404-020-05525-2
  • Long, B., Liu, F. W., & Bristow, R. E. (2013). Disparities in uterine cancer epidemiology, treatment, and survival among African Americans in the United States. Gynecologic Oncology, 130(3), 652–659. https://doi.org/10.1016/j.ygyno.2013.05.020
  • Lupton, D. (1997). Consumerism, reflexivity and the medical encounter. Social Science & Medicine, 45(3), 373–381. https://doi.org/10.1016/S0277-9536(96)00353-X
  • Martin, E. (2001). The women in the body: A cultural analysis of reproduction. Beacon Press.
  • McCallum, M., Lefebvre, M., Jolicoeur, L., Maheu, C., & Lebel, S. (2012). Sexual health and gynecological cancer: Conceptualizing patient needs and overcoming barriers to seeking and accessing services. Journal of Psychosomatic Obstetrics & Gynecology, 33(3), 135–142. https://doi.org/10.3109/0167482X.2012.709291
  • Morse, J. M. (1995). The significance of saturation [Editorial]. Qualitative Health Research, 5(2), 147–148. https://doi.org/10.1177/104973239500500201
  • Morse, J. M. (2015a). Critical analysis of strategies for determining rigor in qualitative inquiry. Qualitative Health Research, 25(9), 1212–1222. https://doi.org/10.1177/1049732315588501
  • Morse, J. M. (2015b). “Data were saturated … ” [Editorial]. Qualitative Health Research, 25(5), 587–588. https://doi.org/10.1177/1049732315576699
  • Mujumdar, V., Butler, T. R., & Shalowitz, D. I. (2021). A qualitative study on the impact of long-distance travel for gynecologic cancer care. Gynecologic Oncology Reports, 38, 100868. https://doi.org/10.1016/j.gore.2021.100868
  • Nelson, J. (2017). Using conceptual depth criteria: Addressing the challenge of reaching saturation in qualitative research. Qualitative Research, 17(5), 554–570. https://doi.org/10.1177/1468794116679873
  • New York Institute of Technology. (n.d.). Delta Care-a-van. https://www.nyit.edu/arkansas/delta_care_a_van
  • O’Conner, S. N., Tao, J., & Su, L. J. (2018). Comparison of compliance with cervical cancer screening among women aged 18 and above in Arkansas and the United States. Journal of Health Disparities Research and Practice, 11(4), 149–161. https://digitalscholarship.unlv.edu/jhdrp/vol11/iss4/9
  • Palmer, N. R., Kent, E. E., Forsythe, L. P., Arora, N. K., Rowland, J. H., Aziz, N. M., Blanch-Hartigan, D., Oakley-Girvan, I., Hamilton, A. S., & Weaver, K. E. (2014). Racial and ethnic disparities in patient-provider communication, quality-of-careratings, and patient activation among long-term cancer survivors. Journal of Clinical Oncology, 32(36), 4087. https://doi.org/10.1200/JCO.2014.55.5060
  • Parton, C. M., Ussher, J. M., & Perz, P. (2015). Women’s construction of embodiment and the abject sexual body after cancer. Qualitative Health Research, 26(4), 490–503. https://doi.org/10.1177/1049732315570130
  • Powell, M. A., Filiaci, V. L., Hensley, M. L., Huang, H. Q., Moore, K. N., Tewari, K. S., Copeland, L. J., Secord, A. A., Mutch, D. G., Santin, A., Warshal, D. P., Spirtos, N. M., DiSilvestro, P. A., Loffe, O. B., & Miller, D. S. (2022). Randomized phase III trial of paclitaxel and carboplatin versus paclitaxel and ifosfamide in patients wit carcinosarcoma of the uterus or ovary: An NRG oncology trial. Journal of Clinical Oncology, 40(9), 968–977. https://doi.org/10.1200/jco.21.02050
  • Ramirez-Aguilar, D. (2022). Cervical cancer in Arkansas. Arkansas Department of Health. https://www.healthy.arkansas.gov/images/uploads/publications/Cervical_Cancer_Presentation_2022.pdf
  • Reb, A. M., & Cope, D. G. (2019). Quality of life and supportive care needs of gynecologic cancer survivors. Western Journal of Nursing Research, 41(10), 1385–1406. https://doi.org/10.1177/0193945919846901
  • Ricci, S., Tergas, A. I., Roche, K. L., Fairbairn, M. G., Levinson, K. L., Dowdy, S. C., Bristow, R. E., Lopez, M., Slaughter, K., Moore, K., & Fader, A. N. (2017). Geographic disparities in the distribution of the US gynecologic oncology workforce: A Society of gynecologic oncology study. Gynecologic Oncology Reports, 22, 100–104. https://doi.org/10.1016/j.gore.2017.11.006
  • Rural Profile of Arkansas - 2013. (2013). University of Arkansas system division of agriculture. https://www.uaex.uada.edu/business-communities/economicdevelopment/Rural%20Profile%20of%20Arkansas%202013%20Pub.pdf
  • Rutledge, W., Gibson, R., Siegel, E., Duke, K., Jones, R., Rucinski, D., Nuun, G., Torrence, W. A., Lewellen-Williams, C., Stewart, C., Blann, K., Belleton, L., Fincher, L., Klimberg, V. S., Greene, P., Thomas, B., Erwin, D., & Tillman, H. (2006). Arkansas special populations access network perception versus reality—Cancer screening in primary care clinics. Cancer, 107(S8), 2052–2060. https://doi.org/10.1002/cncr.22147
  • Rutledge, T. L., Kano, M., Guest, D., Sussman, A., & Kinney, A. Y. (2017). Optimizing endometrial cancer follow-up and survivorship care for rural and other underserved women: Patient and provider perspectives. Gynecologic Oncology, 145(2), 334–339. https://doi.org/10.1016/j.ygyno.2017.03.009
  • Saywell, C., Beattie, L., & Henderson, L. (2000). Sexualized illness: The newsworthy body in media representations of breast cancer. In L. K. Potts (Ed.), Ideologies of breast cancer: Feminist perspectives (pp. 37–62). St. Martin’s Press Inc.
  • Schultz, E. J. (2009). (Un)body double: A rhapsody on hairless identity. Literature and Medicine, 28(2), 371–393. https://doi.org/10.1353/lm.2009.a402254
  • Schultz, E. J. (2014). Valid/Invalid: Women’s cancer narratives and the phenomenology of bodily alteration. Tulsa Studies in Women’s Literature, 32/33(2/1), 71–87. https://doi.org/10.1353/tsw.2013.a550198
  • Sekse, R. J. T., Gjengedal, E., & Råheim, M. (2013). Living in a changed body after a gynecologic cancer. Health Care for Women International, 34(1), 14–33. https://doi.org/10.1080/07399332.2011.645965
  • Sekse, R. J. T., Raaheim, M., Blaaka, G., & Gjengedal, E. (2010). Life beyond cancer: Women’s experiences 5 years after treatment for gynecological cancer. Scandinavian Journal of Caring Sciences, 24(4), 799–807. https://doi.org/10.1111/j.1471-6712.2010.00778.x
  • Shalowitz, D. I., Vinograd, A. M., & Giuntoli, R. L. (2015). Geographic access to gynecologic cancer care in the United States. Gynecologic Oncology, 138(1), 115–120. https://doi.org/10.1016/j.ygyno.2015.04.025
  • Staneva, A. A., Gibson, A. F., Webb, P. M., & Beesley, V. L. (2018). The imperative for a triumph-over-tragedy story in women’s accounts of undergoing chemotherapy for ovarian cancer. Qualitative Health Research, 28(11), 1759–1768. https://doi.org/10.1177/1049732318778261
  • Stead, M. L., Fallowfield, L., Brown, J. M., & Selby, P. (2001). Communication about sexual problems and sexual concerns in ovarian cancer: Qualitative study. British Medical Journal, 323(7317), 836–837. https://doi.org/10.1136/bmj.323.7317.836
  • Stewart, D. E., Wong, F., Duff, S., Melancon, C. H., & Cheung, A. M. (2001). “What doesn’t kill you makes you stronger”: An ovarian cancer survivor survey. Gynecologic Oncology, 83(3), 537–542. https://doi.org/10.1006/gyno.2001.6437
  • Stratton, S. L., Spencer, H. J., Greenfield, W. W., Low, G., Hitt, W. C., Quick, C. M., Jeffus, S. K., Blackmon, V., & Nakagawa, M. (2015). A novel use of a state wide telecolposcopy network for recruitment of participants in a phase I clinical trial of a human papillomavirus therapeutic vaccine. Clinical Trials, 12(3), 199–204. https://doi.org/10.1177/1740774514566333
  • Temkin, S. M., Rimel, B. J., Bruegl, A. S., Gunderson, C. C., Beavis, A. L., & Doll, K. M. (2018). A contemporary framework of health equity applied to gynecologic cancer care: A society of gynecologic oncology evidenced-based review. Gynecologic Oncology, 149(1), 70–77. https://doi.org/10.1016/j.ygyno.2017.11.013
  • Towner, M., Kim, J. J., Simon, M. A., Matei, D., & Roque, D. (2022). Disparities in gynecologic cancer incidence, treatment, and survival: A narrative review of outcomes among black and white women in the United States. International Journal of Gynecologic Cancer, 32(7), 931–938. https://doi.org/10.1136/ijgc-2022-003476
  • Tracey, E., Hacker, N. F., Young, J., & Armstrong, B. K. (2014). Effects of access to and treatment in specialist facilities on survival from epithelial ovarian cancer in Australian women: A data linkage study. International Journal of Gynecologic Cancer, 24(7), 1232–40. https://doi.org/10.1097/IGC.0000000000000213
  • Tracy, S. J. (2010). Qualitative quality: Eight “Big-Tent” criteria for excellent qualitative research. Qualitative Inquiry, 16(10), 837–51. https://doi.org/10.1177/1077800410383121
  • Ussher, J. M. (2006). Managing the monstrous feminine: Regulating the reproductive body. Routledge.
  • Venetis, M. K., Greene, K., Checton, M. G., & Magsamen-Conrad, K. (2015). Decision making in cancer-related topic avoidance. Journal of Health Communication, 20(3), 306–313. https://doi.org/10.1080/10810730.2014.965364
  • Wang, J. H. Y., Adams, I. F., Pasick, R. J., Gomez, S. L., Allen, L., Ma, G. X., Lee, M. X., & Huang, E. (2013). Perceptions, expectations, and attitudes about communication with physicians among Chinese American and non-Hispanic white women with early-stage breast cancer. Supportive Care Cancer, 21(12), 3315–3325. https://doi.org/10.1007/s00520-013-1902-8
  • Wilkinson, S. (2001). Breast cancer: Feminism, representations and resistance – a commentary on Dorothy Broom’s ‘reading breast cancer. Health, 5(2), 269–277. https://www.jstor.org/stable/26646289
  • Wills, M. J., Whitman, M. V., & English, T. M. (2017). Travel distance to cancer treatment facilities in the deep south. Journal of Healthcare Management, 62(1), 30–43. https://doi.org/10.1097/00115514-201701000-00007
  • Wolf, B. M. (2015). Do families cope communally with breast cancer, or is it just talk? Qualitative Health Research, 25(3), 320–335. https://doi.org/10.1177/1049732314549605
  • Wolfe, B. H., & Scharp, K. M. (2023). A (in) curable disease? Making meaning of addiction from the perspective of people in recovery from opioid use disorder. Health Communication, 38(13), 2936–2944. https://doi.org/10.1080/10410236.2022.2128157
  • Yang, D. X., Soulos, P. R., Davis, B., Gross, C. P., & James, B. Y. (2018). Impact of widespread cervical cancer screening: Number of cancers prevented and changes in race-specific incidence. American Journal of Clinical Oncology, 41(3), 289–294. https://doi.org/10.1097/COC.0000000000000264
  • Yu, L., Sabatino, S. A., & White, M. C. (2019). Rural–urban and racial/ethnic disparities in invasive cervical cancer incidence in the United States, 2010–2014. Preventing Chronic Disease, 16, 180447. https://doi.org/10.5888/pcd16.180447

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