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Articles

Investigating the Experience of Diabetes Stigma in Online Forums

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References

  • American Diabetes Association. (2018a). Diabetes symptoms. Retrieved from http://www.diabetes.org/diabetes-basics/symptoms/
  • American Diabetes Association (2018b). Statistics about diabetes. Retrieved from http://www.diabetes.org/diabetes-basics/statistics/
  • Bacon, L. (2010). Health at every size: The surprising truth about your weight. Dallas, TX: Benbella.
  • Berger, M., Wagner, T. H., & Baker, L. C. (2005). Internet use and stigmatized illness. Social Science & Medicine, 61, 1821–1827. doi:10.1016/j.socscimed.2005.03.025
  • Bird, S. T., & Bogart, L. M. (2001). Perceived race-based and socioeconomic status (SES)-based discrimination in interactions with health care providers. Ethnicity & Disease, 11, 554–563.
  • Brashers, D. E., Basinger, E. D., Rintamaki, L. S., Caughlin, J. P., & Para, M. (2017). Taking control: The efficacy and durability of a peer-led uncertainty management intervention for people recently diagnosed with HIV. Health Communication, 32, 11–21. doi:10.1080/10410236.2015.1089469
  • Brazeau, A., Nakhla, M., Wright, M., Henderson, M., Panagiotopoulos, C., Pacaud, D., & Dasgupta, K. (2018). Stigma and its association with glycemic control and hypoglycaemia in adolescents and young adults with type 2 diabetes: Cross-sectional study. Journal of Medical Internet Research, 20(4), e151. doi:10.2196/jmir.9432
  • Bresnahan, M. J., Silk, K., & Zhuang, J. (2013). You did this to yourself! Stigma and blame in lung cancer. Journal of Applied Social Psychology, 43, E132–E140. doi:10.1111/jasp.12030
  • Brown, B. (2006). Shame resilience theory: A grounded theory study on women and shame. Families in Society, 87, 43–52. doi:10.1606/1044-3894.3483
  • Browne, J. L., Ventura, A., Mosely, K., & Speight, J. (2013). ‘I call it the blame and shame disease:’ A qualitative study about perceptions of social stigma surrounding type 2 diabetes. BMJ Open, 3(e003384. doi:10.1136/bmjopen-2013-003384
  • Browne, J. L., Ventura, A. D., Mosely, K., & Speight, J. (2017). Measuring type 1 diabetes stigma: Development and validation of the type 1 Diabetes Stigma Assessment Scale (DSAS-1). Diabetic Medicine, 34, 1773–1782. doi:10.1111/dme.13507
  • Burgard, D. (2009). What is “health at every size”? In E. Rothblum & S. Solovay (Eds.), The fat studies reader (pp. 42–53). New York: New York University Press.
  • Callebaut, L., Molyneux, P., & Alexander, T. (2017). The relationship between self-blame for the onset of a chronic physical health condition and emotional distress: A systematic literature review. Clinical Psychology and Psychotherapy, 24, 965–986. doi:10.1002/cpp.2061
  • Centers for Disease Control and Prevention (2017). About diabetes. Retrieved from https://www.cdc.gov/diabetes/basics/diabetes.html
  • Chaffee, S. H. (1991). Communication concepts I: Explication. Newbury Park, CA: Sage.
  • Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. Thousand Oaks, CA: Sage.
  • Connolly, V., Unwin, N., Sherriff, P., Bilous, R., & Kelly, W. (2000). Diabetes prevalence and socioeconomic status: A population based study showing increased prevalence of type 2 diabetes mellitus in deprived areas. Journal of Epidemiology and Community Health, 54, 173–177. doi:10.1136/jech.54.3.173
  • Corbin, J., & Strauss, A. (2014). Basics of qualitative research: Techniques and procedures for developing grounded theory (4th ed.). Los Angeles, CA: Sage.
  • Dayal, H., Weaver, K., & Domene, J. F. (2015). From shame to shame resilience: Narratives of counselor trainees with eating issues. Qualitative Health Research, 25, 153–167. doi:10.1177/1049732314551988
  • DeAndrea, D. C. (2014). Testing the proclaimed affordances of online support groups in a nationally representative sample of adults seeking mental assistance. Journal of Health Communication, 20, 147–156. doi:10.1080/10810730.2014.914606
  • Donovan-Kicken, E., Tollison, A. C., & Goins, E. S. (2012). The nature of communication work during cancer: Advancing the theory of illness trajectories. Health Communication, 27, 641–652. doi:10.1080/10410236.2011.629405
  • Eysenbach, G., & Till, J. E. (2001). Ethical issues in qualitative research on internet communities. British Medical Journal, 323, 1103–1105. doi:10.1136/bmj.323.7321.1103
  • Feng, X., & Astell-Burt, T. (2017). Impact of a type 2 diabetes diagnosis on mental health, quality of life, and social contacts: A longitudinal study. BMJ Open Diabetes Research and Care, 5 (e000198). doi:10.1136/bmjdrc-2016-000198
  • Giota, K. G., & Kleftaras, G. (2014). The discriminant value of personality, motivation, and online relationship quality in predicting attraction to online social support on Facebook. International Journal of Human-computer Interaction, 30, 985–994. doi:10.1080/10447318.2014.925770
  • Gredig, D., & Bartelsen-Raemy, A. (2017). Diabetes-related stigma affects the quality of life of people living with diabetes mellitus in Switzerland: Implications for healthcare providers. Health and Social Care in the Community, 25, 1620–1633. doi:10.1111/hsc.12376
  • Harper, K., Osborn, C. Y., & Mayberry, L. M. (2018). Patient-perceived family stigma of type 2 diabetes and its consequences. Families, Systems, & Health, 36, 113–117. doi:10.1037/fsh0000316
  • Harris, M. I. (2001). Racial and ethnic differences in health care access and health outcomes for adults with type 2 diabetes. Diabetes Care, 24, 454–459. doi:10.2337/diacare.24.3.454
  • Hecht, M. L. (1993). 2002–a research odyssey: Toward the development of a communication theory of identity. Communication Monographs, 60, 76–82. doi:10.1080/03637759309376297
  • Hecht, M. L., Warren, J. R., Jung, E., & Krieger, J. L. (2005). The communication theory of identity: Development, theoretical perspective, and future directions. In W. B. Gudykunst (Ed.), Theorizing about intercultural communication (pp. 257–278). Thousand Oaks, CA: Sage.
  • High, A. C., & Solomon, D. H. (2011). Locating computer-mediated social support within online communication environments. In K. B. Wright & L. M. Webb (Eds.), Computer-mediated communication in personal relationships (pp. 119–136). New York, NY: Peter Lang.
  • Hoffner, C. A., & Cohen, E. L. (2018). Mental health-related outcomes of Robin Williams’ death: The role of parasocial relations and media exposure in stigma, help-seeking, and outreach. Health Communication, 33, 1573–1582. doi:10.1080/10410236.2017.1384348
  • Holmes-Truscott, E., Browne, J. L., Ventura, A. D., Pouwer, F., & Speight, J. (2018). Diabetes stigma is associated with negative treatment appraisals among adults with insulin-treated type 2 diabetes: Results from the second diabetes MILES – Australia (MILES-2) survey. Diabetic Medicine, 35, 658–662. doi:10.1111/dme.13598
  • Iannarino, N. T. (2018). “It’s my job now, I guess”: Biographical disruption and communication work in supporters of young adult cancer survivors. Communication Monographs, 85, 491–514. doi:10.1080/03637751.2018.1468916
  • Jung, E., & Hecht, M. L. (2004). Elaborating the communication theory of identity: Identity gaps and communication outcomes. Communication Quarterly, 52, 265–283. doi:10.1080/01463370409370197
  • Kato, A., Fujimaki, Y., Fujimori, Y., Izumida, Y., Suzuki, R., Ueki, K., & Hashimoto, H. (2016). A qualitative study on the impact of internalized stigma on type 2 diabetes self-management. Patient Education and Counseling, 99, 1233–1239. doi:10.1016/j.pec.2016.02.002
  • Kato, A., Takada, M., & Hashimoto, H. (2014). Reliability and validity of the Japanese version of the self-stigma scale in patients with type 2 diabetes. Health and Quality of Life Outcomes, 12, 179. doi:10.1186/s12955-014-0179-z
  • Kraut, R., Olson, J., Banaji, M., Bruckman, A., Cohen, J., & Couper, M. (2004). Psychological research online: Report of Board of Scientific Affairs’ Advisory Group on the conduct of research on the internet. American Psychologist, 59(2), 105–117. doi:10.1037/0003-066X.59.2.105
  • Lakey, B., Ross, L. T., Butler, C., & Bentley, K. (1996). Making social support judgments: The role of similarity and conscientiousness. Journal of Social and Clinical Psychology, 15, 283–304. doi:10.1521/jscp.1996.15.3.283
  • Liu, N. F., Brown, A. S., Folias, A. E., Younge, M. F., Guzman, S. J., Close, K. L., & Wood, R. (2017). Stigma in people with type 1 or type 2 diabetes. Clinical Diabetes, 35, 27–34. doi:10.2337/cd16-0020
  • Love, B., & Donovan, E. E. (2014). Online friends, offline loved ones, and full-time media: Young adult “mass personal” use of communication resources for informational and emotional support. Journal of Cancer Education, 29, 241–246. doi:10.1007/s13187-013-0579-5
  • Love, B., Thompson, C. M., Crook, B., & Donovan-Kicken, E. (2013). Work and “mass personal” communication as means of navigating nutrition and exercise concerns in an online cancer community. Journal of Medical Internet Research, 15(5), e102. doi:10.2196/jmir.2594
  • May, M., & Fletcher, M. (2012). Eat what you love, love what you eat, with diabetes: A mindful eating program for thriving with prediabetes or diabetes. Oakland, CA: New Harbinger.
  • Mayo Clinic (2018). Diabetes. Retrieved from https://www.mayoclinic.org/diseases-conditions/diabetes/symptoms-causes/syc-20371444
  • McNaughton, D. (2013). ‘Diabesity’ down under: Overweight and obesity as cultural signifiers for type 2 diabetes mellitus. Critical Public Health, 23, 274–288. doi:10.1080/09581596.2013.766671
  • Meece, J. (2006). Dispelling myths and removing barriers about insulin in type 2 diabetes. Diabetes Educator, 32(Supp1), 9S–18S. doi:10.1177/0145721705285638
  • Mikal, J. P., Rice, R. E., Abeyta, A., & DeVilbiss, J. (2013). Transition, stress and computer-mediated social support. Computers in Human Behavior, 29, A40–A53. doi:10.1016/j.chb.2012.12.012
  • Mo, P. K. H., & Coulson, N. S. (2008). Exploring the communication of social support within virtual communities: A content analysis of messages posted to an online HIV/AIDS support group. Cyberpsychology & Behavior, 11, 371–374. doi:10.1089/cpb.2007.0118
  • Newton-John, T. R. O., Ventura, A. D., Mosely, K., Browne, J. L., & Speight, J. (2017). ‘Are you sure you’re going to have another one of those?’: A qualitative analysis of the social control and social support models in type 2 diabetes. Journal of Health Psychology, 22, 1819–1829. doi:10.1177/1359105316642005
  • Peyrot, M., Rubin, R. R., & Khunti, K. (2010). Addressing barriers to initiation of insulin in patients with type 2 diabetes. Primary Care Diabetes, 4(Supp1), S11–S18. doi:10.1016/S1751-9918(10)60004-6
  • Potter, L., Wallston, K., Trief, P., Ulbrecht, J., Juth, V., & Smyth, J. (2015). Attributing discrimination to weight: Associations with well-being, self-care, and disease status in patients with type 2 diabetes mellitus. Journal of Behavioral Medicine, 38, 863–875. doi:10.1007/s10865-015-9655-0
  • Rains, S. A., & Wright, K. B. (2016). Social support and computer-mediated communication: A state-of-the-art review and agenda for future research. Annals of the International Communication Association, 40, 175–211. doi:10.1080/23808985.2015.11735260
  • Rennie, D. L., Phillips, J. R., & Quartaro, G. K. (1988). Grounded theory: A promising approach to conceptualization in psychology. Canadian Psychology, 29, 139–150. doi:10.1037/h0079765
  • Robbins, J. M., Vaccarino, V., Zhang, H., & Kasl, S. V. (2001). Socioeconomic status and type 2 diabetes in African American and non-Hispanic white women and men: Evidence from the Third National Health and Nutrition Examination Survey. American Journal of Public Health, 91, 76–83. doi:10.2105/AJPH.91.1.76
  • Schabert, J., Browne, J. L., Mosely, K., & Speight, J. (2013). Social stigma in diabetes: A framework to understand a growing problem for an increasing epidemic. Patient, 6, 1–10. doi:10.1007/s40271-012-0001-0
  • Schotanus-Dijkstra, M., Havinga, P., van Ballegooijen, W., Delfosse, L., Mokkenstorm, J., & Boon, B. (2014). What do the bereaved by suicide communicate in online support groups? Crisis, 35, 27–35. doi:10.1027/0227-5910/a000225
  • Setoyama, Y., Yamazaki, Y., & Nakayama, K. (2011). Comparing support to breast cancer patients from online communities and face-to-face support groups. Patient Education and Counseling, 85, 95–100. doi:10.1016/j.pec.2010.11.008
  • Smith, R., Rossetto, K., & Peterson, B. L. (2008). A meta-analysis of disclosure of one’s HIV-positive status, stigma and social support. AIDS Care, 20, 1266–1275. doi:10.1080/09540120801926977
  • Smith, R. A. (2007). Language of the lost: An explication of stigma communication. Communication Theory, 17, 462–485. doi:10.1111/j.1468-2885.2007.00307.x
  • Suitor, J. J., & Pillemer, K. (2000). When experience counts most: Effects of experiential similarity on men’s and women’s receipt of support during bereavement. Social Networks, 22, 299–312. doi:10.1016/S0378-8733(00)00028-9
  • Teixeira, M. E., & Budd, G. M. (2010). Obesity stigma: A newly recognized barrier to comprehensive and effective type 2 diabetes management. Journal of the American Academy of Nurse Practitioners, 22, 527–533. doi:10.1111/j.1745-7599.2010.00551.x
  • Tsenkova, V., Carr, D., Schoeller, D. A., & Ryff, C. D. (2011). Perceived weight discrimination amplifies the link between central adiposity and nondiabetic glycemic control (HbA1c). Annals of Behavioral Medicine, 41, 243–251. doi:10.1007/s12160-010-9238-9
  • Tylka, T. L., Annunziato, R. A., Burgard, D., Daníelsdóttir, S., Shuman, E., Davis, C., & Calogero, R. M. (2014). The weight-inclusive versus weight-normative approach to health: Evaluating the evidence for prioritizing well-being over weight loss. Journal of Obesity, (2014, 1–18. doi:10.1155/2014/983495
  • Vogel, D. L., Bitman, R. L., Hammer, J. H., & Wade, N. G. (2013). Is stigma internalized? The longitudinal impact of public stigma on self-stigma. Journal of Counseling Psychology, 60, 311–316. doi:10.1037/a0031889
  • Willig, A. L., Richardson, B. S., Agne, A., & Cherrington, A. (2014). Intuitive eating practices among African-American women living with type 2 diabetes: A qualitative study. Journal of the Academy of Nutrition and Dietetics, 114, 889–896. doi:10.1016/j.jand.2014.02.004
  • Wright, K. B., Rains, S., & Banas, J. (2010). Weak-tie support network preference and perceived life stress among participants in health-related, computer-mediated support groups. Journal of Computer-Mediated Communication, 15, 606–624. doi:10.1111/j.1083-6101.2009.01505.x
  • Wright, K. B., & Rains, S. A. (2013). Weak-tie support network preference, health-related stigma, and health outcomes in computer-mediated support groups. Journal of Applied Communication Research, 41, 309–324. doi:10.1080/00909882.2013.792435

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