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Leukemia & Lymphoma Volume 60, 2019 - Issue 2
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Original Article: Research

Quality of life and symptom burden among myeloproliferative neoplasm patients: do symptoms impact quality of life?

Blake T. Langlaisa Section of Biostatistics, Mayo Clinic, Scottsdale, AZ, USA; View further author information
,
Holly Geyerb Department of Internal Medicine, Mayo Clinic, Phoenix, AZ, USA; View further author information
,
Robyn Scherberc Division of Hematology and Medical Oncology, Oregon Health and Science University, Portland, OR, USA; ;d Division of Hematology and Oncology, University of Texas Health San Antonio MD Anderson Mays Cancer Center, San Antonio, TX, USAView further author information
,
Ruben A. Mesad Division of Hematology and Oncology, University of Texas Health San Antonio MD Anderson Mays Cancer Center, San Antonio, TX, USAView further author information
&
Amylou C. Duecka Section of Biostatistics, Mayo Clinic, Scottsdale, AZ, USA; Correspondence[email protected]
View further author information
Pages 402-408 | Received 24 Jan 2018, Accepted 11 May 2018, Published online: 22 Jul 2018

References

  • Passamonti F, Mora B, Maffioli M. New molecular genetics in the diagnosis and treatment of myeloproliferative neoplasms. Curr Opin Hematol. 2016;23: 137–143.
  • Mesa RA, Niblack J, Wadleigh M, et al. The burden of fatigue and quality of life in myeloproliferative disorders (MPDs): an international Internet-based survey of 1179 MPD patients. Cancer. 2007;109:68–76.
  • Mesa RA, Schwager S, Radia D, et al. The Myelofibrosis Symptom Assessment Form (MFSAF): an evidence-based brief inventory to measure quality of life and symptomatic response to treatment in myelofibrosis. Leuk Res. 2009;33:1199–1203.
  • Scherber R, Dueck AC, Johansson P, et al. The Myeloproliferative Neoplasm Symptom Assessment Form (MPN-SAF): international prospective validation and reliability trial in 402 patients. Blood. 2011;118:401–408.
  • Emanuel RM, Dueck AC, Geyer HL, et al. Myeloproliferative neoplasm (MPN) symptom assessment form total symptom score: prospective international assessment of an abbreviated symptom burden scoring system among patients with MPNs. JCO. 2012;30:4098–4103.
  • Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1994;30:635–676.
  • Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA. 1995;273:59–65.
  • Tefferi A, Cervantes F, Mesa R, et al. Revised response criteria for myelofibrosis: International Working Group-Myeloproliferative Neoplasms Research and Treatment (IWG-MRT) and European LeukemiaNet (ELN) consensus report. Blood. 2013;122:1395–1398.

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