“It Should Have Been Happening To Me”: The Psychosocial Issues Older Caregiving Mothers Experience

REFERENCES

• American Cancer Society . ( 2009 ). Breast cancer facts and figures: 2009–2010 . Atlanta , GA : American Cancer Society .
   Google Scholar
• Atkinson , R. ( 1998 ). The life story interview . Thousand Oaks , CA : Sage Publications, Inc.
   Google Scholar
• Baider , L. , Cooper , C. , & Kaplan De-Nour , A. (Eds.) ( 2000 ). Cancer and the family . New York : Wiley .
   Google Scholar
• Carter , B. , & McGoldrick , M. ( 1999 ). The expanded family life cycle , (3rd ed.) . Boston : Allyn & Bacon .
   Google Scholar
• Collaborative Group on Hormonal Factors in Breast Cancer . ( 2001 ). Familial breast cancer: Collaborative reanalysis of individual data from 32 epidemiological studies including 58,209 women with breast cancer and 101,986 women without the disease . The Lancet , 358 , 1389 – 1399 .
   PubMed Web of Science ®Google Scholar
• Denzin , N. , & Lincoln , Y. ( 1994 ). Handbook of qualitative research . Thousand Oaks , CA : Sage .
   Google Scholar
• Dorval , M. , Guay , S. , Mondor , M. , Masse , B. , Falardeau , M. , et al. . ( 2005 ). Couples who get closer after breast cancer: Frequency and predictors in a prospective investigation . Journal of Clinical Oncology , 23 ( 15 ), 3588 – 3596 .
   PubMed Web of Science ®Google Scholar
• Ferrario , S. R. , Zotti , A. M. , Massari , G. , & Nuvolone , G. ( 2003 ). A comparative assessment of psychological and psychosocial characteristics of cancer patients and their caregivers . Psycho-Oncology , 12 , 1 – 7 .
   PubMed Web of Science ®Google Scholar
• Gilbar , O. , & Ben-Zur , H. ( 2002 ). Cancer and the family caregiver . Springfield , IL : Charles C. Thomas Pub .
   Google Scholar
• Gilbar , O. , & Rephaeli , R. ( 2000 ). The relationship between adult cancer patients' adjustment to the illness and that of their parents . Family, Systems, & Health , 18 , 5 – 17 .
   Google Scholar
• Given , B. A. , Given , C. , & Kozachik , S. ( 2001 ). Family support in advanced cancer . CA: A Cancer Journal for Clinicians , 51 , 212 – 231 .
   Web of Science ®Google Scholar
• Given , C. W. , Stommel , M. , Given , B. A. , Osuch , J. , Kurtz , M. E. , & Kurtz , J. C. ( 1993 ). The influence of cancer patient's symptoms and functional states on patient's depression and family caregiver's reaction and depression . Health Psychology , 12 , 277 – 285 .
   PubMed Web of Science ®Google Scholar
• Haley , W. E. , LaMonde , L. A. , Han , B. , Burton , A. M. , & Schonwetter , R. ( 2003 ). Predictors of depression and life satisfaction among spousal caregivers in hospice: Application of a stress process model . Journal of Palliative Medicine , 6 ( 2 ), 215 – 224 .
   PubMedGoogle Scholar
• Hodges , L. J. , Humphris , G. M. , & Macfarlane , G. ( 2005 ). A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers . Social Science & Medicine , 60 ( 1 ), 1 – 12 .
   PubMed Web of Science ®Google Scholar
• Kash , K. M. , Holland , J. C. , Halper , M. S. , & Miller , D. G. (1992). Psychosocial distress and surveillance behaviors of women with a family history of breast cancer. Journal of the National Cancer Institute , 84, 24–30.
   PubMed Web of Science ®Google Scholar
• Kelly , K. , Reinhard , S. C. , & Brooks-Danso , A. ( 2008 ). Executive summary: Professional partners supporting family caregivers . American Journal of Nursing , 108 ( 9 Suppl. ), 6 – 12 .
   PubMed Web of Science ®Google Scholar
• Kim , Y. , & Given , B. A. ( 2008 ). Quality of life of family caregivers of cancer survivors . Cancer , 112 ( 11, Suppl. ), 2556 – 2568 .
   PubMed Web of Science ®Google Scholar
• Kotkamp-Mothes , N. , Slawinsky , D. , Hindermann , S. , & Strauss , B. ( 2005 ). Coping and psychological well being in families of elderly cancer patients . Critical Reviews in Oncology/Hematology , 55 ( 3 ), 213 – 229 .
   PubMed Web of Science ®Google Scholar
• Lerman , C. , Daly , M. , Sands , C. , Balshem , A. , Lustbader , E. , et al. . ( 1993 ). Psychological stress interferes with mammography adherence among women at risk for breast cancer . Journal of the National Cancer Institute , 85 , 1074 – 1080 .
   PubMed Web of Science ®Google Scholar
• Matthews , B. A. , Baker , F. , & Spillers , R. L. ( 2003 ). Family caregivers and indicators of cancer-related distress . Psychology, Health, & Medicine , 8 , 45 – 56 .
   Google Scholar
• Merton , R. K. , Fiske , M. , & Kendall , P. ( 1990 ). The focused interview: A manual and procedures . New York : The Free Press .
   Google Scholar
• Metcalfe , K. A. , Finch , A. , Poll , A. , Horsman , D. , Kim-Sing , C. , et al. . ( 2009 ). Breast cancer risks in women with a family history of breast or ovarian cancer who have tested negative for a BRCA1 or BRCA2 mutation . British Journal of Cancer , 100 , 421 – 425 .
   PubMed Web of Science ®Google Scholar
• Miles , M. B. , & Huberman , A. M. ( 1994 ). Qualitative data analysis: An expanded sourcebook , (2nd ed.) . Thousand Oaks , CA : Sage .
   Google Scholar
• Mitschke , D. B. ( 2008 ). Cancer in the family: Review of the psychosocial perspectives of patients and family members . Journal of Family Social Work , 11 ( 2 ), 166 – 184 .
   Google Scholar
• Mosher , C. E. , & Danoff-Burg , S. ( 2005 ). Psychosocial impact of parental cancer in adulthood: A conceptual and empirical review . Clinical Psychology Review , 25 ( 3 ), 365 – 382 .
   PubMed Web of Science ®Google Scholar
• Northouse , L. L. ( 2005 ). Helping families of patients with cancer . Oncology Nursing Forum , 32 ( 4 ), 743 – 750 .
   PubMed Web of Science ®Google Scholar
• Northouse , L. L. , Mood , D. , Templin , T. , Mellon , S. , & George , T. ( 2000 ). Couples' patterns of adjustment to colon cancer . Social Science and Medicine , 50 ( 2 ), 271 – 284 .
   PubMed Web of Science ®Google Scholar
• Northouse , L. , Templin , T. , & Mood , D. ( 2001 ). Couples' adjustment to breast disease during the first year following diagnosis . Journal of Behavioral Medicine , 24 ( 2 ), 115 – 136 .
   PubMed Web of Science ®Google Scholar
• Oktay , J. S. ( 2004 ). Breast cancer daughters: Overlooked issues . Psycho-Oncology , 13 , S46 .
   Google Scholar
• Patterson , J. M. , & Garwick , A. W. ( 1994 ). The impact of chronic illness on families: A family systems perspective . Annals of Behavioral Medicine , 16 ( 2 ), 131 – 142 .
   Google Scholar
• Pitceathly , C. , & Maguire , P. ( 2003 ). The psychological impact of cancer on patients' partners and other key relatives: A review . European Journal of Cancer , 39 , 1517 – 1524 .
   PubMed Web of Science ®Google Scholar
• Polkinghorne , D. E. ( 1989 ). Phenomenological research methods . In R. S. Valle & S. Halling (Eds.), Existential-phenomenological perspectives in psychology: Exploring the breadth of human experience (pp. 41 – 60 ). New York : Plenum .
   Google Scholar
• Ponto , J. A. , & Barton , D. (2008). Husbands' perspective of living with wives' ovarian cancer. Psycho-Oncology , 17(12), 1225–1231.
   PubMed Web of Science ®Google Scholar
• Raveis , V. H. ( 1999 ). Facilitating older spouses' adjustment to widowhood: A preventive intervention program . Social Work in Health Care , 29 ( 4 ), 13 – 32 .
   Web of Science ®Google Scholar
• Raveis , V. H. ( 2007 ). The challenges and issues confronting family caregivers to elderly cancer patients . In S. Carmel , C. A. Morse & F. M. Torres-Gil (Eds.), Lessons on aging from three nations, Volume II: The art of caring for older adults (pp. 85 – 97 ). New York : Baywood Publishing .
   Google Scholar
• Raveis , V. H. , Karus , D. G. , & Siegel , K. ( 1998 ). Correlates of depressive symptomatology among adult daughter caregivers to a parent with cancer . Cancer , 83 ( 8 ), 1652 – 1663 .
   PubMed Web of Science ®Google Scholar
• Raveis , V. H. , & Pretter , S. ( 2005a ). Challenges of living with breast cancer in the family: Special issues confronting adult daughter caregivers [Era of Hope 2005 meeting for the Department of Defense (DOD) Breast Cancer Research Program]. Retrieved August 9, 2005, from http://mrmcweb4.detrick.army.mil/bcrp/era/abstracts2005/0010215_abs.pdf
   Google Scholar
• Raveis , V. H. , & Pretter , S. ( 2005b ). Existential plight of adult daughters following their mother's breast cancer diagnosis . Psycho-Oncology , 14 , 49 – 60 .
   PubMed Web of Science ®Google Scholar
• Reinhard , S. C. , Brooks-Danso , A. , Kelly , K. , & Mason , D. J. ( 2008 ). Editorial: How are you doing? American Journal of Nursing , 108 ( 9 Suppl. ), 4 – 5 .
   PubMed Web of Science ®Google Scholar
• Richards , L. ( 1999 ). Data alive! The thinking behind NVivo . Qualitative Health Research , 9 ( 3 ), 412 – 428 .
   Web of Science ®Google Scholar
• Rolland , J. S. ( 2005 ). Cancer and the family: An integrative model . Cancer , 104 ( 11, Suppl. ), 2584 – 2595 .
   PubMed Web of Science ®Google Scholar
• Schumacher , K. L. , Stewart , B. J. , Archbold , P. G. , Dodd , M. J. , & Dibble , S. L. ( 2000 ). Family caregiving skill: Development of the concept . Research in Nursing and Health , 23 ( 3 ), 191 – 203 .
   PubMed Web of Science ®Google Scholar
• Toseland , R. W. , Blanchard , C. G. , & McCallion , P. ( 1995 ). A problem solving intervention for caregivers of cancer patients . Social Science and Medicine , 4 , 517 – 528 .
   Google Scholar
• Wellisch , D. K. , & Lindberg , N. M. ( 2004 ). Do the daughters and sisters of breast cancer patients have cancer-related trauma or post-traumatic stress disorder? Psychosomatics , 45 , 7 – 16 .
   PubMedGoogle Scholar