REFERENCES
- Adams , J. R. , Drake , R. E. , & Wolford , G. L. ( 2007 ). Shared decision-making preferences of people with severe mental illness . Psychiatric Services , 58 , 1219 – 1221 .
- American Academy of Pediatrics Committee on Hospital Care. ( 2003 ). Family-centred care and the pediatrician's role . Pediatrics , 112 , 691 – 696 .
- Angst , D. B. , & Deatrick , J. A. ( 1996 ). Involvement in health care decisions: Parents and children with chronic illness . Journal of Family Nursing , 2 , 174 – 194 .
- Benin , A. L. , Wisler-Scher , D. J. , Colson , E. , Shapiro , E. D. , & Holmboe , E. S. ( 2006 ). Qualitative analysis of mothers’ decision-making about vaccines for infants: The importance of trust . Pediatrics , 117 , 1532 – 1541 .
- Brinkman , W. B. , Sherman , S. N. , Zmitrovich , A. R. , Visscher , M. O. , Crosby , L. E. , Phelan , K. J. , …Donovan , E. F. (2009). Parental angst making and revisiting decisions about treatment of attention-deficit/hyperactivity disorder. Pediatrics , 124, 580–589.
- Bylund , C. L. , Brown , R. , Gueguen , J. A. , Diamond , C. , Bianculli , J. , & Kissane , D. W. ( 2010 ). The implementation and assessment of a comprehensive communication skills training curriculum for oncologists . Psycho-Oncology , 19 , 583 – 593 .
- Caiata-Zufferey , M. , Abraham , A. , Sommerhalder , K. , & Schulz , P. J. ( 2010 ). Online health information seeking in the context of the medical consultation in Switzerland . Qualitative Health Research , 20 , 1050 – 1061 .
- dosReis , S. , Zito , J. M. , Safer , D. J. , Soeken , K. L. , Mitchell , J. W. , & Ellwood , L. C. ( 2003 ). Parental perceptions and satisfaction with stimulant medication for attention-deficit/hyperactivity disorder . Journal of Developmental and Behavioural Pediatrics , 24 , 155 – 162 .
- Dunst , C. J. , & Trivette , C. M. ( 1996 ). Empowerment, effective helpgiving practices and family-centered care . Pediatric Nursing , 22 , 334 – 343 .
- Dunst , C. J. , & Trivette , C. M. ( 2009 ). Capacity-building family-systems intervention practices . Journal of Family Social Work , 12 , 119 – 143 .
- Dunst , C. J. , Trivette , C. M. , & Hamby , D. W. ( 2007 ). Meta-analysis of family-centred helpgiving practices research . Mental Retardation and Developmental Disabilities Research Reviews , 13 , 370 – 378 .
- Franck , L. S. , & Callery , P. ( 2004 ). Re-thinking family-centred care across the continuum of children's health care . Child: Care, Health & Development , 30 , 265 – 277 .
- Frantsve , L. M. E. , & Kerns , R. D. ( 2007 ). Patient-provider interactions in the management of chronic pain: Current findings within the context of shared medical decision making . Pain Medicine , 8 , 25 – 35 .
- Gagnon , E. M. , & Recklitis , C. J. ( 2003 ). Parents’ decision-making preferences in pediatric oncology: The relationship to health care involvement and complementary therapy use . Psycho-Oncology , 12 , 442 – 452 .
- Garfield , S. , Francis , S. A. , & Smith , F. J. ( 2004 ). Building concordant relationships with patients starting antidepressant medication . Patient Education and Counselling , 55 , 241 – 246 .
- Goldfarb , F. D. , Devine , K. , Yingling , J. T. , Hill , A. , Moss , J. , & Ogburn , E. S. ( 2010 ). Partnering with professionals: Family-centered care from the parent perspective . Journal of Family Social Work , 13 , 91 – 99 .
- Gore , G. , Johnson , R. J. , Caress , A. L. , Woodcock , A. , & Custovic , A. ( 2005 ). The information needs and preferred roles in treatment decision-making of parents caring for infants with atopic dermatitis: A qualitative study . Allergy , 60 , 938 – 943 .
- Hallstrom , I. , & Elander , G. ( 2004 ). Decision-making during hospitalization: Parents’ and children's involvement . Journal of Clinical Nursing , 13 , 367 – 375 .
- Hamann , J. , Mendel , R. T. , Fink , B. , Pfeiffer , H. , Cohen , R. , & Kissling , W. ( 2008 ). Patients’ and psychiatrists’ perceptions of clinical decisions during schizophrenia treatment . Journal of Nervous and Mental Disease , 196 , 329 – 332 .
- Hill , S. A. , & Laugharne , R. ( 2006 ). Decision making and information seeking preferences among psychiatric patients . Journal of Mental Health , 15 , 75 – 84 .
- Hutchfield , K. ( 1999 ). Family-centred care: A concept analysis . Journal of Advanced Nursing , 29 , 1178 – 1187 .
- Institute for Patient-, & Family-Centered Care. ( 2012 ). Frequently asked questions . Retrieved from http://www.ipfcc.org/faq.html
- Jackson , C. , Cheater , F. M. , & Reid , I. ( 2008 ). A systematic review of decision support needs of parents making child health decisions . Health Expectations , 11 , 232 – 251 .
- Mistler , L. A. , & Drake , R. E. ( 2008 ). Shared decision making in antipsychotic management . Journal of Psychiatric Practice , 14 , 333 – 344 .
- Patton , M. Q. ( 2002 ). Qualitative research and evaluation methods () , 3rd ed. . Thousand Oaks , CA : Sage .
- Pollock , K. , Grime , J. , Baker , E. , & Mantala , K. ( 2004 ). Meeting the information needs of psychiatric inpatients: Staff and patient perspectives . Journal of Mental Health , 13 , 389 – 401 .
- Pope , C. , Ziebland , S. , & Mays , N. ( 2000 ). Qualitative research in health care: Analysing qualitative data . British Medical Journal , 320 , 114 – 116 .
- Pyke-Grimm , K. A. , Degner , L. , Small , A. , & Mueller , B. ( 1999 ). Preferences for participation in treatment decision making and information needs of parents of children with cancer: A pilot study . Journal of Pediatric Oncology Nursing , 16 , 13 – 24 .
- Pyke-Grimm , K. A. , Stewart , J. L. , Kelly , K. P. , & Degner , L. F. ( 2006 ). Parents of children with cancer: Factors influencing their treatment decision making roles . Journal of Pediatric Nursing , 21 , 350 – 361 .
- Ritchie , J. , & Spencer , L. ( 1994 ). Qualitative data analysis for applied policy research . In A. Bryman & R. Burgess (Eds.), Analyzing qualitative data (pp. 173 – 194 ). New York , NY : Routledge .
- Ruccione , K. , Kramer , R. F. , Moore , I. K. , & Perin , G. ( 1991 ). Informed consent for treatment of childhood cancer: Factors affecting parents’ decision making . Journal of Pediatric Oncology Nursing , 8 , 112 – 121 .
- Schauer , C. , Everett , A. , & del Vecchio , P. ( 2007 ). Promoting the value and practice of shared decision-making in mental health care . Psychiatric Rehabilitation Journal , 31 , 54 – 61 .
- Seidel , J. V. ( 1998 ). Qualitative data analysis . Retrieved from www.qualisresearch.com (originally published as Qualitative Data Analysis, in The Ethnograph v5.0: A Users Guide, Appendix E, 1998, Colorado Springs, CO: Qualis Research.)
- Sharman , M. , Meert , K. L. , & Sarnaik , A. P. ( 2005 ). What influences parents’ decisions to limit or withdraw life support? Pediatric Critical Care Medicine , 6 , 513 – 518 .
- Shelton , T. L. , Jeppson , E. S. , & Johnson , B. H. ( 1987 ). Family-centered care for children with special health care needs () , 2nd ed. . Bethesda , MD : Association for the Care of Children's Health .
- Simon , D. , Loh , A. , Wills , C. E. , & Hárter , M. ( 2006 ). Depressed patients’ perceptions of depression treatment decision-making . Health Expectations , 10 , 62 – 74 .
- Substance Abuse, & Mental Health Services Administration. ( 2010 ). Shared decision-making in mental health care: Practice, research, and future directions (HHS Publication No. SMA-09–4371). Rockville, MD: Center for Mental Health Services.
- Swerissen , H. ( 1999 ). A qualitative analysis of parental decision making for childhood immunisation . Australian and New Zealand Journal of Public Health , 23 , 543 – 545 .
- Taylor , M. , Donoghue , T. , & Houghton , S. ( 2006 ). To medicate or not to medicate? The decision-making process of western Australian parents following their child's diagnosis with an attention deficit hyperactivity disorder . International Journal of Disability, Development and Education , 53 , 111 – 128 .
- Thon , A. , & Ullrich , G. ( 2009 ). Information needs in parents of children with a rheumatic disease . Child: Care, Health, and Development , 35 , 41 – 49 .