References
- Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, and fragile X syndrome. American Journal of Mental Retardation, 109, 237–254. doi: 10.1352/0895-8017(2004)109<237:PWACIM>2.0.CO;2
- Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217–230. doi: 10.1046/j.1365-2788.2003.00484.x
- Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217–228. doi: 10.1016/j.rasd.2009.09.008
- Benson, P. R. (2014). Coping and psychological adjustment among mothers of children with ASD: An accelerated longitudinal study. Journal of Autism and Developmental Disorders, 44, 1793–1807. doi: 10.1007/s10803-014-2079-9
- Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood among parents of children with autism spectrum disorders: A longitudinal replication. Journal of Autism and Developmental Disorders, 39, 350–362. doi: 10.1007/s10803-008-0632-0
- Bowker, A., D’Angelo, N. M., Hicks, R., & Wells, K. (2011). Interventions for autism: Parental choices and perceptions of change. Journal of Autism and Developmental Disorders, 41, 1373–1382. doi: 10.1007/s10803-010-1164-y
- Carver, C. S. (1997). You want to measure coping but your protocol’s too long: Consider the brief COPE. International Journal of Behavioural Medicine, 4, 92–100. doi: 10.1207/s15327558ijbm0401_6
- Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291. doi: 10.1007/s10803-007-0512-z
- Deeken, J., Taylor, K., Mangan, P., Yabroff, R., & Ingham, J. (2003). Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain and Symptom Management, 26(4), 922–953. doi: 10.1016/S0885-3924(03)00327-0
- Estes, A., Munson, J., Dawson, G., Koehler, E., Xiao-Hua, Z., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13, 375–387. doi: 10.1177/1362361309105658
- Folkman, S., & Moskowitz, J. T. (2004). Coping: Pitfalls and promise. Annual Review of Psychology, 55, 745–774. doi: 10.1146/annurev.psych.55.090902.141456
- Given, C., Given, B., Stommel, M., Collins, C., King, S., & Franklin, S. (1992). The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Research in Nursing & Health, 15, 271–283. doi: 10.1002/nur.4770150406
- Gray, D. E. (1994). Coping with autism: Stresses and strategies. Sociology of Health and Illness, 16, 275–300. doi: 10.1111/1467-9566.ep11348729
- Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviors of children with Autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34, 4–25. doi: 10.3109/01460862.2011.555270
- Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Degli Espinosa, F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9, 377–391. doi: 10.1177/1362361305056078
- Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. doi: 10.1007/s10803-012-1604-y
- Huang, C.-Y., Yen, H.-C., Tseng, M.-H., Tung, L.-C., Chen, Y.-D., & Chen, K.-L. (2014). Impacts of autistic behaviors, emotional and behavioral problems on parenting stress in caregivers of children with Autism. Journal of Autism and Developmental Disorders, 44, 1383–1390. doi: 10.1007/s10803-013-2000-y
- Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 337–344. doi: 10.1016/j.rasd.2010.04.017
- Kanne, S. M., Mazurek, M. O., Sikora, D., Bellando, J., Branum-Martin, L., Handen, B., … Warren, Z. (2014). The Autism Impact Measure (AIM): Initial development of a new tool for treatment outcome measurement. Journal of Autism and Developmental Disorder, 44, 168–179. doi: 10.1007/s10803-013-1862-3
- Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15, 247–277. doi: 10.1007/s10567-012-0119-6
- Kayfitz, A. D., Gragg, M. N., & Orr, R. R. (2010). Positive experiences of mothers and fathers of children with autism. Journal of Applied Research in Intellectual Disabilities, 23, 337–343. doi: 10.1111/j.1468-3148.2009.00539.x
- Konstantareas, M. M., & Papageorgiou, V. (2006). Effects of temperament, symptom severity and level of functioning on maternal stress in Greek children and youth with ASD. Autism, 10, 593–607. doi: 10.1177/1362361306068511
- Lai, W., Goh, T. J., Oei, T. P. S., & Sung, M. (2015). Coping and well-being in parents of children with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45, 2582–2593. doi: 10.1007/s10803-015-2430-9
- Lai, W. W., & Oei, T. P. S. (2014). Coping in parents of children with autism spectrum disorders: A review. Review Journal of Autism and Developmental Disorders, 1, 207–224. doi: 10.1007/s40489-014-0021-x
- Lazarus, R. S. (1966). Psychological stress and the coping process. New York, NY: McGraw-Hill.
- Lecavlier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183. doi: 10.1111/j.1365-2788.2005.00732.x
- Ludlow, A., Skelly, C., & Rohleder, P. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17, 702–711. doi: 10.1177/1359105311422955
- Montes, G., & Cianca, M. (2014). Family burden of raising a child with ASD. In V. B. Patel, V. R. Preedy, & C. R. Martin (Eds.), Comprehensive guide to Autism (pp. 167–184). New York: Springer.
- Nordahl-Hansen, A., Fletcher-Watson, S., McConachie, h., & Kalle, A. (2016). Relations between specific and global outcome measures in a social-communication intervention for children with autism spectrum disorder. Research in Autism Spectrum Disorders, 29-30, 19–29. doi: 10.1016/j.rasd.2016.05.005
- Obeid, R., & Daou, N. (2015). The effects of coping style, social support, and behavioral problems on the well-being of mothers of children with autism spectrum disorders in Lebanon. Research in Autism Spectrum Disorders, 10, 59–70. doi: 10.1016/j.rasd.2014.11.003
- Phetrasuwan, S., & Miles, M. S. (2009). Parenting stress in mothers of children with autism spectrum disorders. Journal for Specialists in Pediatric Nursing, 14, 157–165. doi: 10.1111/j.1744-6155.2009.00188.x
- Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51, 109–124. doi: 10.1111/j.1365-2788.2006.00829.x
- Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behaviour Modification, 33, 437–451. doi: 10.1177/0145445509336427
- Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44, 1609–1620. doi: 10.1007/s10803-013-2028-z
- Ruiz-Robledillo, N., & Moya-Albiol, L. (2015). Effects of a cognitive-behavioral intervention program on the health of caregivers of people with autism spectrum disorder. Psychosocial Intervention, 24, 33–39. doi: 10.1016/j.psi.2015.01.001
- Sawyer, M. G., Bittman, M., Greca, A. M. L., Crettenden, A. D., Harchak, T. F., & Martin, J. (2010). Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders, 40, 620–628. doi: 10.1007/s10803-009-0912-3
- Schieve, L. A., Boulet, S. L., Kogan, M. D., Yeargin-Allsopp, M., Boyle, C. A., Visser, S. N., et al. (2011). Parenting aggravation and autism spectrum disorders: 2007 national survey of children’s health. Disability and Health Journal, 4, 143–152. doi: 10.1016/j.dhjo.2010.09.002
- Seymour, M., Wood, C., Giallo, R., & Jellett, R. (2013). Fatigue, stress and coping. Developmental Disorders, 43, 1549–1554. doi: 10.1007/s10803-012-1701-y
- Shepherd, D., Landon, J., & Goedeke, S. (2017). Symptom severity, caregiver stress, and intervention helpfulness assessed using ratings from parents caring for a child with autism. Autism. doi: 10.1177/1362361316688869
- van Steijn, D. J., Oerlemans, A. M., van Aken, M. A. G., Buitelaar, J. K., & Rommelse, N. N. J. (2014). The reciprocal relationship of ASD, ADHD, depressive symptoms and stress in parents of children with ASD and/or ADHD. Journal of Autism and Developmental Disorders, 44, 1064–1076. doi: 10.1007/s10803-013-1958-9
- Stuart, M., & McGrew, J. H. (2009). Caregiver burden after receiving a diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 3, 86–97. doi: 10.1016/j.rasd.2008.04.006
- Tarakeshwar, N., & Pargament, K. I. (2001). “Religious coping in families of children with Autism”. Focus on Autism and Other Developmental Disabilities, 16, 247–260. doi: 10.1177/108835760101600408
- Theule, J., Wiener, J., Tannock, R., & Jenkins, J. M. (2010). Parenting stress in families of children with ADHD: A meta-analysis. Journal of Emotional and Behavioral Disorders, 21, 3–17. doi: 10.1177/1063426610387433
- Vitaliano, P. P., Young, H. M., & Russo, J. (1991). Burden: A review of measures used among caregivers of individuals with dementia. The Gerontologist, 31, 67–75. doi: 10.1093/geront/31.1.67
- Volkmar, F. R., & Pauls, D. (2003). Autism. The Lancet, 362, 1133–1141. doi: 10.1016/S0140-6736(03)14471-6