The use of self-management strategies for stroke rehabilitation: a scoping review

References

• Feigin VL, Stark BA, Johnson CO, et al. Global, regional, and national burden of stroke and its risk factors, 1990–2019: a systematic analysis for the global burden of disease study 2019. Lancet Neurol. 2021;20(10):795–820.doi:10.1016/S1474-4422(21)00252-0.
   PubMed Web of Science ®Google Scholar
• Parke HL, Epiphaniou E, Pearce G, et al. Self-management support interventions for stroke survivors: a systematic meta-review. PLoS One. 2015;10(7):e0131448.doi:10.1371/journal.pone.0131448.
   PubMed Web of Science ®Google Scholar
• Mitchell AB, Cole JW, McArdle PF, et al. Obesity increases risk of ischemic stroke in young adults. Stroke. 2015;46(6):1690–1692.doi:10.1161/STROKEAHA.115.008940.
   PubMed Web of Science ®Google Scholar
• Alloubani A, Saleh A, Abdelhafiz I. Hypertension and diabetes mellitus as a predictive risk factors for stroke. Diabetes Metab Syndr Clin Res Rev. 2018;12(4):577–584. doi:10.1016/j.dsx.2018.03.009.
   PubMed Web of Science ®Google Scholar
• Saunders DH, Greig CA, Mead GE. Physical activity and exercise after stroke: review of multiple meaningful benefits. Stroke. 2014;45(12):3742–3747. doi:10.1161/STROKEAHA.114.004311.
   PubMed Web of Science ®Google Scholar
• Nadarajah M, Goh H-T. Post-stroke fatigue: a review on prevalence, correlates, measurement, and management. Top Stroke Rehabil. 2015;22(3):208–220. doi:10.1179/1074935714Z.0000000015.
   PubMed Web of Science ®Google Scholar
• Clarke DJ, Forster A. Improving post-stroke recovery: the role of the multidisciplinary health care team. J Multidiscip Healthc. 2015;8:433–442. doi:10.2147/JMDH.S68764.
   PubMed Web of Science ®Google Scholar
• Dickey L, Kagan A, Lindsay MP, Fang J, Rowland A, Black S. Incidence and profile of inpatient stroke-induced aphasia in Ontario, Canada. Arch Phys Med Rehabil. 2010;91(2):196–202. doi:10.1016/j.apmr.2009.09.020.
   PubMed Web of Science ®Google Scholar
• Teasell RW, McRae MP, Wiebe S. Poststroke seizures in stroke rehabilitation patients. J Stroke Cerebrovasc Dis. 1999;8(2):84–87. doi:10.1016/S1052-3057(99)80059-7.
   PubMedGoogle Scholar
• Mitchell AJ, Sheth B, Gill J, et al. Prevalence and predictors of post-stroke mood disorders: a meta-analysis and meta-regression of depression, anxiety and adjustment disorder. Gen Hosp Psychiatry. 2017;47:48–60. doi:10.1016/j.genhosppsych.2017.04.001.
   PubMed Web of Science ®Google Scholar
• Hainline B, Devinsky O, Reding M. Behavioral problems in stroke rehabilitation patients: a prospective pilot study. J Stroke Cerebrovasc Dis. 1992;2(3):131–135. doi:10.1016/S1052-3057(10)80221-6.
   PubMedGoogle Scholar
• Liu Z, Zhou X, Zhang W, Zhou L. Factors associated with quality of life early after ischemic stroke: the role of resilience. Top Stroke Rehabil. 2019;26(5):335–341. doi:10.1080/10749357.2019.1600285.
   PubMed Web of Science ®Google Scholar
• Guidetti S, Andersson K, Andersson M, Tham K, Von KL. Client-centred self-care intervention after stroke: a feasibility study. Scand J Occup Ther. 2010;17(4):276–285. doi:10.3109/11038120903281169.
   PubMed Web of Science ®Google Scholar
• White JH, Alston MK, Marquez JL, et al. Community-dwelling stroke survivors: function is not the whole story with quality of life. Arch Phys Med Rehabil. 2007;88(9):1140–1146.doi:10.1016/j.apmr.2007.06.003.
   PubMed Web of Science ®Google Scholar
• Sadler E, Wolfe CDA, Jones F, McKevitt C. Exploring stroke survivors’ and physiotherapists’ views of self-management after stroke: a qualitative study in the UK. BMJ Open. 2017;7(3):e011631. doi:10.1136/bmjopen-2016-011631.
   PubMed Web of Science ®Google Scholar
• Satink T, Cup EHC, De Swart BJM, Der Sanden MWG N-V. How is self-management perceived by community living people after a stroke? A focus group study. Disabil Rehabil. 2015;37(3):223–230. doi:10.3109/09638288.2014.918187.
   PubMed Web of Science ®Google Scholar
• Boger EJ, Demain SH, Latter SM. Stroke self-management: a focus group study to identify the factors influencing self-management following stroke. Int J Nurs Stud. 2015;52(1):175–187. doi:10.1016/j.ijnurstu.2014.05.006.
   PubMed Web of Science ®Google Scholar
• Vincent C, Deaudelin I, Robichaud L, et al. Rehabilitation needs for older adults with stroke living at home: perceptions of four populations. BMC Geriatr. 2007;7(1):1–17.doi:10.1186/1471-2318-7-20.
   PubMedGoogle Scholar
• Lynch EA, Luker JA, Cadilhac DA, Hillier SL. Rehabilitation assessments for patients with stroke in Australian hospitals do not always reflect the patients’ rehabilitation requirements. Arch Phys Med Rehabil. 2015;96(5):782–789. doi:10.1016/j.apmr.2014.12.009.
   PubMed Web of Science ®Google Scholar
• Lawrence M, Junior FTC, Matozinho HHS, Govan L, Booth J, Beecher J. Yoga for stroke rehabilitation. Cochrane Database Syst Rev. 2017 12; 2017(12). 10.1002/14651858.CD011483.pub2
   Google Scholar
• Walker MF, Sunnerhagen KS, Fisher RJ. Evidence-based community stroke rehabilitation. Stroke. 2013;44(1):293–297. doi:10.1161/STROKEAHA.111.639914.
   PubMed Web of Science ®Google Scholar
• Hebert D, Lindsay MP, McIntyre A, et al. Canadian stroke best practice recommendations: stroke rehabilitation practice guidelines, update 2015. Int J Stroke. 2016;11(4):459–484.doi:10.1177/2F1747493016643553.
   PubMed Web of Science ®Google Scholar
• Lorig KR, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1–7. doi:10.1207/S15324796ABM2601_01.
   PubMed Web of Science ®Google Scholar
• de Guzmán Quispe E N, Martínez García L, Orrego Villagrán C, et al. The perspectives of patients with chronic diseases and their caregivers on self-management interventions: a scoping review of reviews. Patient-Patient-Centered Outcomes Res 2021;14(6):719–740. 10.1007/s40271-021-00514-2
   Web of Science ®Google Scholar
• Schulman-Green D, Feder SL, Dionne-Odom JN, et al. Family caregiver support of patient self-management during chronic, life-limiting illness: a qualitative metasynthesis. J Fam Nurs. 2021;27(1):55–72.doi:10.1177/2F1074840720977180.
   PubMed Web of Science ®Google Scholar
• Fletcher S, Kulnik ST, Demain S, Jones F, Collins SM. The problem with self-management: problematising self-management and power using a Foucauldian lens in the context of stroke care and rehabilitation. PLoS One. 2019;14(6):e0218517. doi:10.1371/journal.pone.0218517.
   PubMed Web of Science ®Google Scholar
• Kidd L, Lawrence M, Booth J, Rowat A, Russell S. Development and evaluation of a nurse-led, tailored stroke self-management intervention. BMC Health Serv Res. 2015;15(1):1–12. doi:10.1186/s12913-015-1021-y.
   PubMedGoogle Scholar
• Jones F, Riazi A. Self-efficacy and self-management after stroke: a systematic review. Disabil Rehabil. 2011;33(10):797–810. doi:10.3109/09638288.2010.511415.
   PubMed Web of Science ®Google Scholar
• Jones F, Pöstges H, Brimicombe L, Danzl M, Etter N. Building Bridges between healthcare professionals, patients and families: a coproduced and integrated approach to self-management support in stroke. NeuroRehabilitation. 2016;39(4):471–480. doi:10.3233/NRE-161379.
   PubMed Web of Science ®Google Scholar
• Lennon S, McKenna S, Jones F. Self-management programmes for people post stroke: a systematic review. Clin Rehabil. 2013;27(10):867–878. doi:10.1177/0269215513481045.
   PubMed Web of Science ®Google Scholar
• Frost Y, Weingarden H, Zeilig G, Nota A, Rand D. Self-care self-efficacy correlates with Independence in basic activities of daily living in individuals with chronic stroke. J Stroke Cerebrovasc Dis. 2015;24(7):1649–1655. doi:10.1016/j.jstrokecerebrovasdis.2015.03.054.
   PubMed Web of Science ®Google Scholar
• Caetano LCG, Ada L, Romeu Vale S, Teixeira-Salmela LF, Scianni AA. 2021. Self-management to promote physical activity after discharge from in-patient stroke rehabilitation: a feasibility study. Top Stroke Rehabil. Published online. doi:10.1080/10749357.2021.1978630
   Web of Science ®Google Scholar
• Intercollegiate Stroke Working Party. National clinical guideline for stroke (fifth edition). In: Royal College of Physicians UK; 2016. Accessed March 7, 2022. https://www.rcplondon.ac.uk/guidelines-policy/stroke-guidelines
   Google Scholar
• InformMe - stroke foundation. clinical guidelines for stroke management; 2017. Accessed March 7, 2022. https://informme.org.au/guidelines/clinical-guidelines-for-stroke-management
   Google Scholar
• National Institute for Health and Care Excellence. Stroke rehabilitation in adults- Clinical Guidance; 2013. Accessed March 7, 2022. https://www.nice.org.uk/guidance/cg162
   Google Scholar
• Gittler M, Davis AM. Guidelines for adult stroke rehabilitation and recovery. Jama. 2018;319(8):820–821. doi:10.1001/jama.2017.22036.
   PubMed Web of Science ®Google Scholar
• Kleindorfer DO, Towfighi A, Chaturvedi S, et al. 2021 guideline for the prevention of stroke in patients with stroke and transient ischemic attack: a guideline from the American Heart Association/American Stroke Association. Stroke. 2021;52(7):e364–e467.doi:10.1161/STR.0000000000000375.
   PubMed Web of Science ®Google Scholar
• Riegel B, Moser DK, Buck HG, et al. Self‐care for the prevention and management of cardiovascular disease and stroke: a scientific statement for healthcare professionals from the American heart association. J Am Heart Assoc. 2017;6(9):e006997.doi:10.1161/JAHA.117.006997.
   PubMed Web of Science ®Google Scholar
• Wan X, Chau JPC, Mou H, Liu X. Effects of peer support interventions on physical and psychosocial outcomes among stroke survivors: a systematic review and meta-analysis. Int J Nurs Stud. 2021;121:104001. doi:10.1136/bmjopen-2022-062531.
   PubMed Web of Science ®Google Scholar
• Warner G, Packer T, Villeneuve M, Audulv A, Versnel J. A systematic review of the effectiveness of stroke self-management programs for improving function and participation outcomes: self-management programs for stroke survivors. Disabil Rehabil. 2015;37(23):2141–2163. doi:10.3109/09638288.2014.996674.
   PubMed Web of Science ®Google Scholar
• Ruksakulpiwat S, Zhou W. Self-management interventions for adults with stroke: a scoping review. Chronic Dis Transl Med. 2021;7(3):139–148. doi:10.1016/j.cdtm.2021.03.001.
   PubMedGoogle Scholar
• Fryer CE, Luker JA, Mcdonnell MN, Hillier SL. Self-management programs for quality of life in people with stroke. Cochrane Database Syst Rev. 2013;2013(3):e266–e267. doi:10.1002/14651858.CD010442.
   Google Scholar
• Kruithof WJ, van Mierlo Ml, Visser-Meily JMA, et al. Associations between social support and stroke survivors’ health-related quality of life-A systematic review. Patient Educ Couns. 2013;93(2):169–176. doi:10.1016/j.pec.2013.06.003.
   PubMed Web of Science ®Google Scholar
• Tricco AC, Lillie E, Zarin W, et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467–473.doi:10.7326/M18-0850.
   PubMed Web of Science ®Google Scholar
• Mahmood A, Blaizy V, Verma A, et al. Acceptability and attitude towards a mobile-based home exercise program among stroke survivors and caregivers: a cross-sectional study. Int J Telemed Appl. 2019;2019. doi:10.1155/2019/5903106.
   PubMed Web of Science ®Google Scholar
• Wang X, Smith C, Ashley L, Hyland ME. Tailoring self-help mindfulness and relaxation techniques for stroke survivors: examining preferences, feasibility and acceptability. Front Psychol. 2019;10(FEB):391. doi:10.3389/fpsyg.2019.00391.
   PubMedGoogle Scholar
• Azar NS, Radfar M, Baghaei R. 2020. Spiritual self-care in stroke survivors: a qualitative study. J Relig Health. Published online. doi:10.1007/s10943-020-01030-7
   Web of Science ®Google Scholar
• Sibbritt D, Steel A, Peng W, Adams J. Utilisation of self-care products and practices and its associated factors among stroke survivors. Int J Clin Pract. 2021;75(3):e13821. doi:10.1111/ijcp.13821.
   PubMed Web of Science ®Google Scholar
• Brady MC, Clark AM, Dickson S, Paton G, Barbour RS. Dysarthria following stroke-the patient’s perspective on management and rehabilitation. Clin Rehabil. 2011;25(10):935–952. doi:10.1177/0269215511405079.
   PubMed Web of Science ®Google Scholar
• Satink T, Josephsson S, Zajec J, et al. Self-management develops through doing of everyday activities-a longitudinal qualitative study of stroke survivors during two years post-stroke. BMC Neurol. 2016;16(1):1–13. doi:10.1186/s12883-016-0739-4.
   PubMedGoogle Scholar
• Nott M, Wiseman L, Seymour T, Pike S, Cuming T, Wall G. Stroke self-management and the role of self-efficacy. Disabil Rehabil. 2021;43(10):1410–1419. doi:10.1080/09638288.2019.1666431.
   PubMed Web of Science ®Google Scholar
• Kulnik ST, Mohapatra S, Gawned S, Jones F. Managing the severely impaired arm after stroke: a mixed-methods study with qualitative emphasis. Disabil Rehabil. 2020;42(13):1826–1834. doi:10.1080/09638288.2018.1539777.
   PubMed Web of Science ®Google Scholar
• Hirsche RC, Williams B, Jones A, Manns P. Chronic disease self-management for individuals with stroke, multiple sclerosis and spinal cord injury. Disabil Rehabil. 2011;33(13–14):1136–1146. doi:10.3109/09638288.2010.523103.
   PubMed Web of Science ®Google Scholar
• Guan FG, Wang M, Lian XQ. The status quo and influence of self-management behaviors in convalescent stroke patients. Front Nurs. 2018;5(2):119–125. doi:10.2478/fon-2018-0016.
   Google Scholar
• Kuo N-Y, Lin Y-H, Chen H-M. Continuity of care and self-management among patients with stroke: a cross-sectional study. Healthcare. 2021;9(8):989. doi:10.3390/healthcare9080989.
   Web of Science ®Google Scholar
• Modesti PA, Reboldi G, Cappuccio FP, et al. Panethnic differences in blood pressure in Europe: a systematic review and meta-analysis. PLoS One. 2016;11(1):e0147601.doi:10.1371/journal.pone.0147601.
   PubMed Web of Science ®Google Scholar
• Farsad-Naeimi A, Asjodi F, Omidian M, et al. Sugar consumption, sugar sweetened beverages and attention deficit hyperactivity disorder: a systematic review and meta-analysis. Complement Ther Med. 2020;53:102512. doi:10.1016/j.ctim.2020.102512.
   PubMed Web of Science ®Google Scholar
• Critical appraisal Skills Programme (CASP). Qualitative checklist. 2018. Accessed March 7, 2022. https://casp-uk.net/casp-tools-checklists.
   Google Scholar
• Noyes J, Booth A, Flemming K, et al. Cochrane qualitative and implementation methods group guidance series—paper 3: methods for assessing methodological limitations, data extraction and synthesis, and confidence in synthesized qualitative findings. J Clin Epidemiol. 2018;97:49–58. doi:10.1016/j.jclinepi.2017.06.020.
   PubMed Web of Science ®Google Scholar
• Long HA, French DP, Brooks JM. Optimising the value of the critical appraisal skills programme (CASP) tool for quality appraisal in qualitative evidence synthesis. Res Methods Med Heal Sci. 2020;1(1):31–42. doi:10.1177/2632084320947559.
   Google Scholar
• Butler A, Hall H, Copnell B. A guide to writing a qualitative systematic review protocol to enhance evidence-based practice in nursing and health care. Worldviews evidence-based Nurs. 2016;13(3):241–249. doi:10.1111/wvn.12134.
   PubMed Web of Science ®Google Scholar
• Kim S, Xu Y, Dore K, Gewurtz R, Larivière N, Letts L. 2022. Fatigue self-management led by occupational therapists and/or physiotherapists for chronic conditions: a systematic review and meta-analysis. Chronic Illn. 2022;18(3): 441–457. doi:10.1177/2F17423953211039783
   PubMed Web of Science ®Google Scholar
• Wu S, Kutlubaev MA, Chun HY, et al. Interventions for post‐stroke fatigue. Cochrane Database Syst Rev. 2015;7:1–61. doi:10.1002/14651858.CD007030.pub3.
   Google Scholar
• Kang E, Kim MY, Lipsey KL, Foster ER. Person-Centered goal setting: a systematic review of intervention components and level of active engagement in rehabilitation goal-setting interventions. Arch Phys Med Rehabil. 2022;103(1):121–130.e3. doi:10.1016/j.apmr.2021.06.025.
   PubMed Web of Science ®Google Scholar
• Scobbie L, Brady MC, Duncan EAS, Wyke S. Goal attainment, adjustment and disengagement in the first year after stroke: a qualitative study. Neuropsychol Rehabil. 2021;31(5):691–709. doi:10.1080/09602011.2020.1724803.
   PubMed Web of Science ®Google Scholar
• Mallick AA, O’Callaghan FJK. The epidemiology of childhood stroke. Eur J Paediatr Neurol. 2010;14(3):197–205. doi:10.1016/j.ejpn.2009.09.006.
   PubMed Web of Science ®Google Scholar