From healthcare system to individuals through stroke rehabilitation pathways.Outcomes, information, and satisfaction along 12 months prospective cohort in Portugal

References

• Neurology TL. Adding stroke to the political agenda in Europe. Lancet Neurol. 2019;18(6):513. doi:10.1016/S1474-4422(19)30157-7.
   PubMed Web of Science ®Google Scholar
• Wafa HA, Wolfe CDA, Emmett E, et al. Burden of stroke in Europe. Stroke. 2020;51(8):2418–2427. doi:10.1161/STROKEAHA.120.029606.
   PubMed Web of Science ®Google Scholar
• Rajsic S, Gothe H, Borba HH, et al. Economic burden of stroke: a systematic review on post-stroke care. Eur J Health Econ. 2019;20(1):107–134. doi:10.1007/s10198-018-0984-0.
   PubMed Web of Science ®Google Scholar
• Matchar DB, Bilger M, Do YK, Eom K. International comparison of poststroke resource use: a Longitudinal analysis in Europe. J Stroke Cerebrovasc Dis. 2015;24(10):2256–2262. doi:10.1016/j.jstrokecerebrovasdis.2015.06.020.
   PubMed Web of Science ®Google Scholar
• Stucki G, Gutenbrunner BJ, Melvin C, Melvin J. Rehabilitation: the health strategy of the 21st century. J Rehabil Med. 2018;50(4):309–316. doi:10.2340/16501977-2200.
   PubMed Web of Science ®Google Scholar
• Martin McKee SM, Edwards N, Nolte E. The changing role of the hospital in European health systems. In: Mckee M, Merkur S, Edwards N, Nolte E, eds. European Observatory on Health Systems and Policies. Cambridge:Cambridge University Press;2020.
   Google Scholar
• Wiedmann S, Norrving B, Nowe T, et al. Variations in quality indicators of acute stroke care in 6 European countries: the European implementation score (EIS) collaboration. Stroke. 2012;43(2):458–463. doi:10.1161/STROKEAHA.111.628396.
   PubMed Web of Science ®Google Scholar
• Wolfe CDA, Tilling K, Rudd A, et al. Variations in care and outcome in the first year after stroke: a Western and Central European perspective. J Neurol Neurosurg Psychiatry. 2004;75:1702–1706. doi:10.1136/jnnp.2004.039438.
   PubMed Web of Science ®Google Scholar
• Wellwood I, Langhorne P, McKevitt C, Bernhardt J, Rudd AG, Wolfe CD. An observational study of acute stroke care in four countries: the European registers of stroke study. Cerebrovascular Dis. 2009;28(2):171–176. doi:10.1159/000226116.
   PubMed Web of Science ®Google Scholar
• Norrving B, Barrick J, Davalos A, et al. Action plan for stroke in Europe 2018–2030. Eur Stroke J. 2018;3(4):309–336. doi:10.1177/2396987318808719.
   PubMed Web of Science ®Google Scholar
• Stevens E, McKevitt C, Emmett E, et al. The burden of stroke in Europe report. 2017, Stroke Alliance for Europe.
   Google Scholar
• Di Carlo A, Pezzella FR, Fraser A, et al. Methods of implementation of evidence-based stroke care in Europe: European Implementation Score Collaboration. Stroke. 2015;46(8):2252–2259. doi:10.1161/STROKEAHA.115.009299.
   PubMed Web of Science ®Google Scholar
• McKevitt C, Fudge N, Redfern J, et al. Self-reported long-term needs after stroke. Stroke. 2011;42(5):1398–1403. doi:10.1161/STROKEAHA.110.598839.
   PubMed Web of Science ®Google Scholar
• Lozano R, Fullman N, Mumford JE, et al. Measuring universal health coverage based on an index of effective coverage of health services in 204 countries and territories, 1990–2019: a systematic analysis for the global burden of disease study 2019. Lancet. 2020;396(10258):1250–1284. doi:10.1016/S0140-6736(20)30750-9.
   PubMed Web of Science ®Google Scholar
• Rotter T, James E, James EL, et al. Clinical pathways: effects on professional practice, patient outcomes, length of stay and hospital costs. Cochrane Database Syst Rev. 2010:3(CD006632. doi:10.1002/14651858.CD006632.pub2.
   PubMed Web of Science ®Google Scholar
• Forster A, Brown L, Smith J, et al. Information provision for stroke patients and their caregivers. Cochrane Database Syst Rev. 2012(14):11. doi:10.1002/14651858.CD001919.pub3.
   Google Scholar
• Barbosa PM, Ferreira LN, Cruz VT, et al. Healthcare, clinical factors and rehabilitation predicting quality of life in first-time stroke patients: a 12-month longitudinal study. J Stroke Cerebrovascular Dis. 2022;31(4):106300. doi:10.1016/j.jstrokecerebrovasdis.2021.106300.
   PubMed Web of Science ®Google Scholar
• Wityk RJ, Pessin MS, Kaplan RF, et al. Serial assessment of acute stroke using the NIH stroke scale. Stroke. 1994;25(2):362–365. doi:10.1161/01.STR.25.2.362.
   PubMed Web of Science ®Google Scholar
• Araújo FR, Pais JL, Oliveira A, Pinto C. Validação do Índice de Barthel numa amostra de idosos não institucionalizados = Validation of the Barthel Index in a sample of non-institutionalized elderly. Revista Portuguesa de Saúde Pública. 2007;25:59–66.
   Google Scholar
• Sulter G, Steen C, De Keyser J. Use of the Barthel index and modified Rankin scale in acute stroke trials. Stroke. 1999;30(8):1538–1541. doi:10.1161/01.STR.30.8.1538.
   PubMed Web of Science ®Google Scholar
• Santana I, Rente J, Neves C, et al. [Mini-mentaL state examination: screening and diagnosis of cognitive decline, using new normative data]. Clin Rehabil. 2017;31(2):197–206. doi:10.1177/0269215515627282.
   PubMedGoogle Scholar
• Ferreira LN, Ferreira PL, Pereira LN, Oppe M. The valuation of the EQ-5D in Portugal. Qual Life Res. 2014;23(2):413–423. doi:10.1007/s11136-013-0448-z.
   PubMed Web of Science ®Google Scholar
• Chuang L-L, Lin K-C, Hsu A-L, et al. Reliability and validity of a vertical numerical rating scale supplemented with a faces rating scale in measuring fatigue after stroke. Health Qual Life Outcomes. 2015;13:91. doi:10.1186/s12955-015-0290-9.
   PubMed Web of Science ®Google Scholar
• Janssens T, Geidl W, Carl J, et al. Reliability and validity of dyspnea numeric rating scales as a patient-reported outcome in pulmonary rehabilitation of COPD. Eur Respir J. 2019;54(suppl 63):OA3810.
   Google Scholar
• Leung, Y-Y, Ho K-W, Zhu T-Y, et al. Construct validity of the modified numeric rating scale of patient global assessment in psoriatic arthritis. J Rheumatol. 2012;39(4):844. doi:10.3899/jrheum.110919.
   PubMed Web of Science ®Google Scholar
• Langhorne P, Bernhardt J Fau - Kwakkel G, Kwakkel G. Stroke rehabilitation. Lancet. 2011;377(9778):1693–1702. doi:10.1016/S0140-6736(11)60325-5.
   PubMed Web of Science ®Google Scholar
• Langhorne P, Audebert HJ, Cadilhac DA, Kim J, Lindsay P. Stroke systems of care in high-income countries: what is optimal? Stroke. 2020;396(10260):1433:1442. doi:10.1016/S0140-6736(20)31363-5.
   Google Scholar
• Langhorne P, Cadilhac D, Feigin V, Grieve R, Liu M. How should stroke services be organised? Lancet Neurol. 2002;1(1):62–68. doi:10.1016/S1474-4422(02)00011-X.
   PubMed Web of Science ®Google Scholar
• Kodner DL, Spreeuwenberg C. Integrated care: meaning, logic, applications, and implications - a discussion paper. International journal of integrated care, 2002. e12.
   Google Scholar
• Valentijn PP, Schepman SM, Opheij W, Bruijnzeels MA. Understanding integrated care: a comprehensive conceptual framework based on the integrative functions of primary care. Int J Integr Care. 2013;13:13. doi:10.5334/ijic.886.
   Web of Science ®Google Scholar
• Berwick DM, Nolan Whittington J, Whittington J. The triple aim: care, health, and cost. Health Affairs. 2008;27(3):759–769. doi:10.1377/hlthaff.27.3.759.
   PubMed Web of Science ®Google Scholar
• Ahmed N, Audebert H, Turc G, et al. Consensus statements and recommendations from the ESO-Karolinska Stroke Update Conference, Stockholm 11–13 November 2018. Eur Stroke J. 2019;4(4):307–317. doi:10.1177/2396987319863606.
   PubMed Web of Science ®Google Scholar
• Shelialah P, Ross G J, Shahabaz A, et al. Rehabilitation of individuals with severe stroke: synthesis of best evidence and challenges in implementation. Top Stroke Rehabil. 2012;19(2):122–131. doi:10.1310/tsr1902-122.
   PubMed Web of Science ®Google Scholar
• CJ W, Stein J, Arena R, et al. Guidelines for Adult Stroke Rehabilitation and Recovery. Stroke. 2016;47(6):e98–169. doi:10.1161/STR.0000000000000098.
   PubMed Web of Science ®Google Scholar
• Foundation NS. Stroke Foundation. Clinical Guidelines for Stroke Management. Melbourne, Australia: National Stroke Foundation; 2017:p. 252.
   Google Scholar
• DGS. Acidente Vascular Cerebral: Prescrição de Medicina Física e de Reabilitação. Lisboa: Departamento da Qualidade na Saúde, Direção Geral da Saúde; 2011:p. 19.
   Google Scholar
• Ullberg T, Zia E, Petersson J, et al. Perceived unmet rehabilitation needs 1 year after stroke: an observational study from the Swedish Stroke Register. Stroke. 2016;47(2):539–541. doi:10.1161/STROKEAHA.115.011670.
   PubMed Web of Science ®Google Scholar
• Schmidt A, Heroum C, Caumette D, et al. Acute Ischemic Stroke (AIS) patient management in French stroke units and impact estimation of thrombolysis on care pathways and associated costs. Cerebrovascular Dis. 2015;39(2):94–101. doi:10.1159/000369525.
   PubMed Web of Science ®Google Scholar
• Robert T, Swati M, Shelialah P, et al. Time to rethink long-term rehabilitation management of stroke patients. Top Stroke Rehabil. 2012;19(6):457–462. doi:10.1310/tsr1906-457.
   PubMed Web of Science ®Google Scholar
• Juckett LA, Wengerd LR, Faieta J, Griffin CE. Evidence-based practice implementation in stroke rehabilitation: a scoping review of barriers and facilitators. The Am J Occup Thera: Official Pub of the Am Occup Thera Ass. 2020;74(1). doi:10.5014/ajot.2020.035485.
   Google Scholar
• Langhorne P, Sandercock P, Prasad K. Evidence-based practice for stroke. Lancet Neurol. 2009;8(4):308–309. doi:10.1016/S1474-4422(09)70060-2.
   PubMed Web of Science ®Google Scholar
• English C, Bayley M, Hill K, et al. Bringing stroke clinical guidelines to life. Int J Stroke. 2019;14(4):337–339. doi:10.1177/1747493019833015.
   PubMed Web of Science ®Google Scholar
• Langhorne P, Baylan S. Early supported discharge services for people with acute stroke. Cochrane Database Syst Rev. 2017;7(7). doi:10.1002/14651858.CD000443.pub4.
   Google Scholar
• Eng J, Bird M-L, Godecke E, et al. Moving stroke rehabilitation research evidence into clinical practice: consensus-based core recommendations from the stroke recovery and rehabilitation roundtable. Int J Stroke. 2019;14(8):766–773. doi:10.1177/1747493019873597.
   PubMed Web of Science ®Google Scholar
• Sneeuw KC, Aaronson NK, de Haan RJ, Limburg M. Assessing quality of life after stroke. The Value and Limitations of Proxy Ratings. 1997;28:1541–1549. doi:10.1161/01.STR.28.8.1541.
   Google Scholar