Patients’ experiences with goal setting during initial rehabilitation after newly acquired spinal cord injury: A pilot qualitative interview study

References

• Stucki G, Cieza A, Melvin J. The International Classification of Functioning, Disability and Health (ICF): a unifying model for the conceptual description of the rehabilitation strategy. J Rehabil Med 2007;39(4):279–85. doi:10.2340/16501977-0041.
   PubMed Web of Science ®Google Scholar
• Cieza A, Kirchberger I, Biering-Sørensen F, Baumberger M, Charlifue S, Post MW, et al. ICF core sets for individuals with spinal cord injury in the long-term context. Spinal Cord 2010;48(4):305–12. doi:10.1038/sc.2009.183.
   PubMed Web of Science ®Google Scholar
• Siegert RJ, Levack WM. Rehabilitation goal setting: theory, practice and evidence. Boca Raton: CRC Press; 2014.
   Google Scholar
• Yun D, Choi J. Person-centered rehabilitation care and outcomes: A systematic literature review. Int J Nurs Stud 2019;93:74–83. doi:10.1016/j.ijnurstu.2019.02.012.
   PubMed Web of Science ®Google Scholar
• Byrnes M, Beilby J, Ray P, Mclennan R, Ker J, Schug S. Patient-focused goal planning process and outcome after spinal cord injury rehabilitation: quantitative and qualitative audit. Clin Rehabil 2012;26(12):1141–9. doi:10.1177/0269215512442669.
   PubMed Web of Science ®Google Scholar
• Locatelli SM, Etingen B, Heinemann A, Neumann HD, Miskovic A, Chen D, et al. Perceptions of shared decision making among patients with spinal cord injuries/disorders. Top Spinal Cord Inj Rehabil 2016;22(3):192–202. doi:10.1310/sci2016-00027.
   PubMedGoogle Scholar
• Scheel-Sailer A, Selb M, Gmünder HP, Baumberger M, Curt A, Hund-Georgiadis M, et al. Towards the implementation of clinical quality management at the national level. Describing current types of rehabilitation services for spinal cord injury/Disorder in Switzerland using an interdisciplinary consensus process. Eur J Phys Rehabil Med 2021. doi:10.23736/s1973-9087.21.06923-9.
   PubMed Web of Science ®Google Scholar
• Redley B, Mctier L, Botti M, Hutchinson A, Newnham H, Campbell D, et al. Patient participation in inpatient ward rounds on acute inpatient medical wards: a descriptive study. BMJ Qual Saf 2019;28(1):15–23. doi:10.1136/bmjqs-2017-007292.
   PubMed Web of Science ®Google Scholar
• Rauch A, Cieza A, Stucki G. How to apply the International Classification of Functioning, Disability and Health (ICF) for rehabilitation management in clinical practice. Eur J Phys Rehabil Med 2008;44(3):329–42.
   PubMed Web of Science ®Google Scholar
• Steiner WA, Ryser L, Huber E, Uebelhart D, Aeschlimann A, Stucki G. Use of the ICF model as a clinical problem-solving tool in physical therapy and rehabilitation medicine. Phys Ther 2002;82(11):1098–107. doi:10.1093/ptj/82.11.1098.
   PubMed Web of Science ®Google Scholar
• Wade DT. Goal setting in rehabilitation: an overview of what, why and how. Clin Rehabil 2009;23(4):291–5. doi:10.1177/0269215509103551.
   PubMed Web of Science ®Google Scholar
• Levack WM, Weatherall M, Hay-Smith EJ, Dean SG, Mcpherson K, Siegert RJ. Goal setting and strategies to enhance goal pursuit for adults with acquired disability participating in rehabilitation. Cochrane Database Syst Rev 2015;7:Cd009727. doi:10.1002/14651858.CD009727.pub2.
   PubMed Web of Science ®Google Scholar
• Pulvirenti M, Mcmillan J, Lawn S. Empowerment, patient centred care and self-management. Health Expect 2014;17(3):303–10. doi:10.1111/j.1369-7625.2011.00757.x.
   PubMed Web of Science ®Google Scholar
• Scheel-Sailer A, Post MW, Michel F, Weidmann-Hügle T, Baumann Hölzle R. Patients’ views on their decision making during inpatient rehabilitation after newly acquired spinal cord injury – a qualitative interview-based study. Health Expect 2017;20(5):1133–42. doi:10.1111/hex.12559.
   PubMed Web of Science ®Google Scholar
• Doran GT. There’s a SMART way to write management’s goals and objectives. Manage Rev 1981;70(11):35–6.
   Google Scholar
• Bovend'eerdt TJ, Botell RE, Wade DT. Writing SMART rehabilitation goals and achieving goal attainment scaling: a practical guide. Clin Rehabil 2009;23(4):352–61. doi:10.1177/0269215508101741.
   PubMed Web of Science ®Google Scholar
• Maribo T, Jensen CM, Madsen LS, Handberg C. Experiences with and perspectives on goal setting in spinal cord injury rehabilitation: a systematic review of qualitative studies. Spinal Cord 2020;58(9):949–58. doi:10.1038/s41393-020-0485-8.
   PubMed Web of Science ®Google Scholar
• Draaistra H, Singh MD, Ireland S, Harper T. Patients’ perceptions of their roles in goal setting in a spinal cord injury regional rehabilitation program. Can J Neurosci Nurs 2012;34(3):22–30.
   PubMedGoogle Scholar
• Langewitz W. [Physician-patient communication in medical education: can it be learned? Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 2012;55(9):1176–82. doi:10.1007/s00103-012-1533-0.
   PubMed Web of Science ®Google Scholar
• Schweizerische Akademie der Medizinischen Wissenschaften. Kommunikation im medizinischen Alltag. Ein Leitfaden für die Praxis. Bern: Schweizerische Akademie der Medizinischen Wissenschaften; 2019. doi:10.5281/zenodo.3576261.
   Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care 2007;19(6):349–57. doi:10.1093/intqhc/mzm042.
   PubMed Web of Science ®Google Scholar
• Mayring P. Qualitative Inhaltsanalyse. Grundlagen und Techniken. 11. Auflage. Weinheim: Beltz; 2010.
   Google Scholar
• Mayring P. Qualitative content analysis: theoretical background and procedures. Approaches to qualitative research in mathematics education. Dordrecht: Springer; 2015. p. 365–80. doi:10.1007/978-94-017-9181-6_13.
   Google Scholar
• Gutenbrunner C, Nugraha B, Gimigliano F, Meyer T, Kiekens C. International classification of service organization in rehabilitation: an updated set of categories (ICSO-R 2.0). J Rehabil Med 2020;52(1):jrm00004. doi:10.2340/16501977-2627.
   PubMed Web of Science ®Google Scholar
• Zampolini M, Stucki G, Giustini A, Negrini S. The individual rehabilitation project: a model to strengthen clinical rehabilitation in health systems worldwide. Eur J Phys Rehabil Med 2020;56(1):1–4. doi:10.23736/s1973-9087.19.06110-0.
   PubMed Web of Science ®Google Scholar
• Sinclair LB, Lingard LA, Mohabeer RN. What's so great about rehabilitation teams? An ethnographic study of interprofessional collaboration in a rehabilitation unit. Arch Phys Med Rehabil 2009;90(7):1196–201. doi:10.1016/j.apmr.2009.01.021.
   PubMed Web of Science ®Google Scholar
• Strasser DC, Burridge AB, Falconer JA, Herrin J, Uomoto J. Measuring team process for quality improvement. Top Stroke Rehabil 2010;17(4):282–93. doi:10.1310/tsr1704-282.
   PubMed Web of Science ®Google Scholar
• Geyh S, Peter C, Müller R, Bickenbach JE, Kostanjsek N, Ustün BT, et al. The personal factors of the International Classification of Functioning, Disability and Health in the literature - a systematic review and content analysis. Disabil Rehabil 2011;33(13-14):1089–102. doi:10.3109/09638288.2010.523104.
   PubMed Web of Science ®Google Scholar
• Maatouk-Bürmann B, Ringel N, Spang J, Weiss C, Möltner A, Riemann U, et al. Improving patient-centered communication: results of a randomized controlled trial. Patient Educ Couns 2016;99(1):117–24. doi:10.1016/j.pec.2015.08.012.
   PubMed Web of Science ®Google Scholar
• Lindberg J, Kreuter M, Taft C, Person LO. Patient participation in care and rehabilitation from the perspective of patients with spinal cord injury. Spinal Cord 2013;51(11):834–7. doi:10.1038/sc.2013.97.
   PubMed Web of Science ®Google Scholar
• Baker SC, Watson BM, Jamieson B, Jamieson R. How do patients define satisfaction? The role of patient perceptions of their participation and health provider emotional expression. Health Commun 2021;36(14):1970–9. doi:10.1080/10410236.2020.1808409.
   PubMed Web of Science ®Google Scholar
• Barry MJ, Edgman-Levitan S. Shared decision making–pinnacle of patient-centered care. N Engl J Med 2012;366(9):780–1. doi:10.1056/NEJMp1109283.
   PubMed Web of Science ®Google Scholar
• Pellatt GC. Patient-professional partnership in spinal cord injury rehabilitation. Br J Nurs 2004;13(16):948–53. doi:10.12968/bjon.2004.13.16.15966.
   PubMedGoogle Scholar
• Zanini CA, Rubinelli S. Using argumentation theory to identify the challenges of shared decision-making when the doctor and the patient have a difference of opinion. J Public Health Res 2012;1(2):165–9. doi:10.4081/jphr.2012.e26.
   PubMedGoogle Scholar
• Rose A, Rosewilliam S, Soundy A. Shared decision making within goal setting in rehabilitation settings: a systematic review. Patient Educ Couns 2017;100(1):65–75. doi:10.1016/j.pec.2016.07.030.
   PubMed Web of Science ®Google Scholar
• Wolderslund M, Kofoed PE, Ammentorp J. The effectiveness of a person-centred communication skills training programme for the health care professionals of a large hospital in Denmark. Patient Educ Couns 2021;104(6):1423–30. doi:10.1016/j.pec.2020.11.018.
   PubMed Web of Science ®Google Scholar
• Pedersen K, Brennan TMH, Nance AD, Rosenbaum ME. Individualized coaching in health system-wide provider communication training. Patient Educ Couns 2021;104(10):2400–5. doi:10.1016/j.pec.2021.06.023.
   PubMed Web of Science ®Google Scholar