The Drivers of Conversations About Dementia Risk Reduction: A Qualitative Study

References

• Amirkhanian, Y. A., Kelly, J. A., Kabakchieva, E., Kirsanova, A. V., Vassileva, S., Takacs, J. … Mocsonaki, L. (2005). A randomized social network HIV prevention trial with young men who have sex with men in Russia and Bulgaria. AIDS, 19(16), 1897–1905. doi:10.1097/01.aids.0000189867.74806.fb
   PubMed Web of Science ®Google Scholar
• Archibald, M. M., Ambagtsheer, R. C., Casey, M. G., & Lawless, M. (2019). Using zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants. International Journal of Qualitative Methods, 18, 160940691987459. doi:10.1177/1609406919874596
   Web of Science ®Google Scholar
• Armitage, C. J., & Conner, M. (2000). Social cognition models and health behaviour: A structured review. Psychology & Health, 15(2), 173–189. doi:10.1080/08870440008400299
   Web of Science ®Google Scholar
• Bacsu, J. -D., Johnson, S., O’connell, M. E., Viger, M., Muhajarine, N., Hackett, P. … McIntosh, T. (2021). Stigma reduction interventions of dementia: A scoping review. Canadian Journal on Aging/La Revue canadienne du vieillissement, 41(2), 1–11. doi:10.1017/S0714980821000192
   Web of Science ®Google Scholar
• Bartlett, L., Brady, J. J. R., Farrow, M., Kim, S., Bindoff, A., Fair, H. … Sinclair, D. (2021). Change in modifiable dementia risk factors during COVID‐19 lockdown: The experience of over 50s in Tasmania, Australia. Alzheimer’s & Dementia: Translational Research & Clinical Interventions, 7(1). doi:10.1002/trc2.12169
   PubMedGoogle Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi:10.1191/1478088706qp063oa
   Google Scholar
• Braun, V., Clarke, V., Hayfield, N., & Terry, G. (2019). Thematic analysis (pp. 843–860). Springer Singapore.
   Google Scholar
• Brunet, J., Abi-Nader, P., Barrett-Bernstein, M., & Karvinen, K. (2021). Investigating physical activity knowledge and beliefs as correlates of behaviour in the general population: A cross-sectional study. Psychology, Health & Medicine, 26(4), 433–443. doi:10.1080/13548506.2020.1745250
   PubMed Web of Science ®Google Scholar
• Claflin, S. B., Klekociuk, S., Fair, H., Bostock, E., Farrow, M., Doherty, K., & Taylor, B. V. (2021). Assessing the impact of online health education interventions from 2010-2020: A systematic review of the evidence. American Journal of Health Promotion, 36(1), 089011712110393. doi:10.1177/08901171211039308
   Web of Science ®Google Scholar
• Complex Data Collective. (2016). Network canvas interviewer (version beta trial) [Computer software].
   Google Scholar
• Curran, E., Chong, T. W. H., Godbee, K., Abraham, C., Lautenschlager, N. T., Palmer, V. J., & Jepson, R. (2021). General population perspectives of dementia risk reduction and the implications for intervention: A systematic review and thematic synthesis of qualitative evidence. PLoS One, 16(9), e0257540. doi:10.1371/journal.pone.0257540
   PubMed Web of Science ®Google Scholar
• Fair, H. L., Doherty, K. V., Klekociuk, S. Z., Eccleston, C. E., & Farrow, M. A. (2021). Broadening the reach of dementia risk reduction initiatives: Strategies from dissemination models. Scandinavian Journal of Public Health, 14034948211055602. doi:10.1177/14034948211055602
   Web of Science ®Google Scholar
• Fair, H., Klekociuk, S., Eccleston, C., Doherty, K., & Farrow, M. (2022). Interpersonal communication may improve equity in dementia risk education. Health Promotion Journal of Australia. doi:10.1002/hpja.602
   PubMed Web of Science ®Google Scholar
• Farrow, M., Fair, H., Klekociuk, S. Z., & Vickers, J. C. (2022). Educating the masses to address a global public health priority: The preventing dementia massive open online course (MOOC). PLoS One, 17(5), e0267205. doi:10.1371/journal.pone.0267205
   PubMed Web of Science ®Google Scholar
• Finnegan, E., Oakhill, J., & Garnham, A. (2015). Counter-stereotypical pictures as a strategy for overcoming spontaneous gender stereotypes. Frontiers in Psychology, 6. doi:10.3389/fpsyg.2015.01291
   PubMed Web of Science ®Google Scholar
• Finnegan, J. R., & Viswanath, K. (2002). Communication thoery and health behaviour change. In K. Glanz, B. K. Rimer, & F. M. Lewis (Eds.), Health behaviour and health education (3ed, pp. 240–264). New Jersey: Jossey-Bass.
   Google Scholar
• Froehlich, D. E., & Brouwer, J. (2021). Social network analysis as mixed analysis. In A. J. Onwuegbuzie & R. B. Johnson (Eds.), The Routledge Reviewer’s guide to mixed methods analysis (1ed, pp. 209–218). New York: Routledge.
   Google Scholar
• Granovetter, M. S. (1973). The strength of weak ties. The American Journal of Sociology, 78(6), 1360–1380. doi:10.1086/225469
   Web of Science ®Google Scholar
• Guan, M. (2021). Sexual and reproductive health knowledge, sexual attitudes, and sexual behaviour of university students: Findings of a Beijing-based survey in 2010-2011. Archives of Public Health, 79(1). doi:10.1186/s13690-021-00739-5
   Web of Science ®Google Scholar
• Hansen, J. D., & Reich, J. (2015). Democratizing education? Examining access and usage patterns in massive open online courses. Science, 350(6265), 1245–1248. doi:10.1126/science.aab3782
   PubMed Web of Science ®Google Scholar
• Horst, B. R., Furlano, J. A., Wong, M. Y. S., Ford, S. D., Han, B. B., & Nagamatsu, L. S. (2021). Identification of demographic variables influencing dementia literacy and risk perception through a global survey. Frontiers in Public Health, 9, 660600–660600. doi:10.3389/fpubh.2021.660600
   PubMed Web of Science ®Google Scholar
• Huisman, M., Joye, D., & Biltereyst, S. (2020). Sharing is caring: The everyday informal exchange of health information among adults aged fifty and over. Information Research, 25(3). doi:10.47989/irpaper870
   Google Scholar
• Katz, E., & Lazarsfeld, P. F. (2017). Personal Influence: The part played by people in the flow of mass communications (1ed.). New York: Routledge.
   Google Scholar
• Kelman, H. C. (1974). Further thoughts on the processes of compliance, identification, and internalization. In H. C. Kelman (Ed.), Social power and political influence (1ed, p. 47). New York: Routledge.
   Google Scholar
• Latkin, C. A., Edwards, C., Davey-Rothwell, M. A., & Tobin, K. E. (2017). The relationship between social desirability bias and self-reports of health, substance use, and social network factors among urban substance users in baltimore, Maryland. Addictive Behaviors, 73, 133–136. doi:10.1016/j.addbeh.2017.05.005
   PubMed Web of Science ®Google Scholar
• Lewis, M. A., DeVellis, B. M., & Sleath, B. (2002). Social influence and interpersonal communication in health behaviour. In K. Glanz, B. K. Rimer, & F. M. Lewis (Eds.), Health Behaviour and Health Education (3 ed, pp. 240–264). New Jersey: Jossey-Bass.
   Google Scholar
• Liu, M., Yang, Y., & Sun, Y. (2019). Exploring health information sharing behavior among Chinese older adults: A social support perspective. Health Communication, 34(14), 1824–1832. doi:10.1080/10410236.2018.1536950
   PubMed Web of Science ®Google Scholar
• Mao, B., Morgan, S. E., Peng, W., McFarlane, S. J., Occa, A., Grinfeder, G., & Byrne, M. M. (2021). What motivates you to share? The effect of interactive tailored information aids on information sharing about clinical trials. Health Communication, 36(11), 1388–1396. doi:10.1080/10410236.2020.1754588
   PubMed Web of Science ®Google Scholar
• Nolan, K., Schall, M. W., Erb, F., & Nolan, T. (2005). Using a framework for spread: The case of patient access in the veterans health administration. The Joint Commission Journal on Quality and Patient Safety, 31(6), 339–347. doi:10.1016/S1553-7250(05)31045-2
   PubMedGoogle Scholar
• Perry, B. L., Pescosolido, B. A., & Borgatti, S. P. (2018). Egocentric network analysis: Foundations, methods, and models. Cambridge: Cambridge University Press.
   Google Scholar
• Pilerot, O. (2012). LIS research on information sharing activities – people, places, or information. Journal of Documentation, 68(4), 559–581. doi:10.1108/00220411211239110
   Web of Science ®Google Scholar
• Prochaska, J. J., Gates, E. F., Davis, K. C., Gutierrez, K., Prutzman, Y., & Rodes, R. (2019). The 2016 tips from former smokers® campaign: Associations with quit intentions and quit attempts among smokers with and without mental health conditions. Nicotine & Tobacco Research, 21(5), 576–583. doi:10.1093/ntr/nty241
   PubMed Web of Science ®Google Scholar
• Prochaska, J. O., Redding, C. A., & Evers, K. E. (2002). The transtheoretical model and stages of change. In K. Glanz, B. K. Rimer, & F. M. Lewis (Eds.), Health Behaviour and Health Education (3ed. pp. 240–264). New Jersey: Jossey-Bass.
   Google Scholar
• Reich, J, and Ruipérez-Valiente, J A. (2019). The MOOC pivot. Science, 363(6423), 130–131. doi:10.1126/science.aav7958
   PubMed Web of Science ®Google Scholar
• Rogers, E. M. (2003). Diffusion of Innovations (5 ed). New York: Free Press.
   Google Scholar
• Spronk, I., Kullen, C., Burdon, C., & O’connor, H. (2014). Relationship between nutrition knowledge and dietary intake. The British Journal of Nutrition, 111(10), 1713–1726. doi:10.1017/S0007114514000087
   PubMed Web of Science ®Google Scholar
• Starmann, E., Heise, L., Kyegombe, N., Devries, K., Abramsky, T., Michau, L. … Collumbien, M. (2018). Examining diffusion to understand the how of SASA!, a violence against women and HIV prevention intervention in Uganda. BMC Public Health, 18(1), 616. doi:10.1186/s12889-018-5508-4
   PubMed Web of Science ®Google Scholar
• Talbot, L. A., Thomas, M., Bauman, A., Manera, K. E., & Smith, B. J. (2021). Impacts of the National Your Brain Matters Dementia Risk Reduction Campaign in Australia Over 2 Years. Journal of Alzheimer's Disease, 82(3), 1219–1228. doi:10.3233/JAD-210317
   PubMed Web of Science ®Google Scholar
• Valente, T. W., & Pumpuang, P. (2007). Identifying opinion leaders to promote behavior change. Health Education & Behavior, 34(6), 881–896. doi:10.1177/1090198106297855
   PubMed Web of Science ®Google Scholar
• Van Asbroeck, S., van Boxtel, M. P. J., Steyaert, J., Köhler, S., Heger, I., de Vugt, M. … Deckers, K. (2021). Increasing knowledge on dementia risk reduction in the general population: Results of a public awareness campaign. Preventative Medicine, 147, 106522. doi:10.1016/j.ypmed.2021.106522
   PubMed Web of Science ®Google Scholar
• van Ryn, M., & Heaney, C. A. (1997). Developing effective helping relationships in health education practice. Health Education & Behavior, 24(6), 683–702. doi:10.1177/109019819702400603
   PubMed Web of Science ®Google Scholar
• Vrijsen, J., Matulessij, T. F., Joxhorst, T., De Rooij, S. E., & Smidt, N. (2021). Knowledge, health beliefs and attitudes towards dementia and dementia risk reduction among the Dutch general population: A cross-sectional study. BMC Public Health, 21(1). doi:10.1186/s12889-021-10913-7
   Web of Science ®Google Scholar
• Werner, P. (2014). Stigma and Alzheimer’s disease: A systematic review of evidence, theory, and methods. In P. W. Corrigan (Ed.), The stigma of disease and disability: Understanding causes and overcoming injustices (pp. 223–244). Washington, DC: American Psychological Association.
   Google Scholar
• World Health Organization. (2017). Global action plan on the public health response to dementia 2017–2025. https://www.who.int/publications/i/item/global-action-plan-on-the-public-health-response-to-dementia-2017—2025
   Google Scholar
• World Health Organization. (2021). Global status report on the public health response to dementia. https://www.who.int/publications/i/item/9789240033245
   Google Scholar
• Zheng, X., Chung, J. O., & Woo, B. K. (2016). Exploring the impact of a culturally tailored short film in modifying dementia stigma among Chinese Americans: A pilot study. Academic Psychiatry, 40(2), 372–374. doi:10.1007/s40596-015-0397-7
   PubMed Web of Science ®Google Scholar
• Zimmerman, M. S., & Shaw, G. (2020). Health information seeking behaviour: A concept analysis. Health Information & Libraries Journal, 37(3), 173–191. doi:10.1111/hir.12287
   PubMed Web of Science ®Google Scholar