Quality of Life: Questionnaires and Questions

References

• Abouzahr , C. & Vaughan , J. P. ( 2000 ). Assessing the burden of sexual and reproductive ill health: questions regarding the use of disability adjusted life years . Bulletin of the World Health Organization , 78 ( 5 ), 655 – 666 . [CSA]
   PubMed Web of Science ®Google Scholar
• Anderson , R. T. , Aaronson , N. K. , & Wilkin , D. ( 1993 ). Critical review of the international assessments of health-related quality of life . Quality of Life Research , 2 , 369 – 395 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Antaki , C. & Rapley , M. ( 1996 ). “Quality of life” talk: the liberal paradox of psychological testing . Discourse and Society , 7 ( 3 ), 293 – 316 . [CSA]
   Web of Science ®Google Scholar
• Arnesen , T. M. & O. F. Norheim . ( 2003 ). Quantifying quality of life for economic analysis: Time out for time trade off . Medical Humanities , 29 ( 2 ), 81 – 7 , Retrieved 3 May 2004, from http://mh.bmjjournals.com/ [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Blaxter , M. ( 1983 ). The causes of disease: women talking . Social Science and Medicine , 17 ( 2 ), 56 – 69 . [CSA]
   Web of Science ®Google Scholar
• Bowling , A. ( 1997 ). Measuring health: A review of the quality of life measurement scales () , 2nd ed. . Buckingham : Open University Press .
   Google Scholar
• Brooks , R. , with the EuroQol Group . ( 1996 ). EuroQol: The current state of play . Health Policy , 37 , 53 – 72 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Burgoyne , R. W. & Saunders , D. S. ( 2001 ). Quality of life among urban Canadian HIV/AIDS clinic outpatients . International Journal of STD & AIDS , 12 ( 8 ), 505 – 12 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Coupland , J. , Coupland , N. , & Robinson , J. D. ( 1992 ). “How are you?”: Negotiating phatic communication . Language in Society , 21 , 207 – 230 . [CSA]
   Web of Science ®Google Scholar
• Cox , K. ( 2003 ) Assessing the quality of life of patients in phase I and II anti-cancer drug trials: interviews versus questionnaires . Social Science and Medicine , 56 ( 5 ), 921 – 934 . [PUBMED] [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Diener , E. & Suh , E. ( 1997 ). Measuring quality of life: Economic, Social, and Subjective indicators . Social Indicators Research , 40 , 198 – 216 . [CROSSREF] [CSA]
   Web of Science ®Google Scholar
• Diener , E. & Lucas , R. E. ( 2000 ). Subjective emotional well-being . In M. Lewis & J. M. Haviland (Eds.), Handbook of Emotions ( , 2nd ed. , pp. 325 – 337 ). New York : Guilford .
   Google Scholar
• Donald , A. ( 2003 ). What is quality of life? . What is…? Bulletins , 1 ( 9 ). Retrieved 3 May 2004 from http://www.evidence-based-medicine.co.uk/ebmfiles/WhatisQoL.pdf [CSA]
   Google Scholar
• Edgar , A. ( 1996 ). Measuring the quality of life . In P. Badham & P. Ballard (Eds.), Facing death: an interdisciplinary approach . Cardiff : University of Wales Press .
   Google Scholar
• Edgar , A. , Salek , S. , Shickle , D. , & Cohen , D. ( 1998 ). The ethical QALY: Ethical issues in healthcare resource allocations . Surrey : Euromed Communications .
   Google Scholar
• Erickson , P. ( 1998 ). Evaluation of a population-based measure of quality of life: The Health and Activity Limitation Index (HALex) Quality of Life Research , 7 ( 2 ), 101 – 114 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Fallowfield , L. ( 1990 ). The quality of life . London : Souvenir Press .
   Google Scholar
• Farquhar , M. ( 1995 ). Elderly people's definitions of quality of life . Social Science and Medicine , 41 ( 10 ), 1439 – 1446 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Farsides , B. & Dunlop , R. J. ( 2001 ). Is there such a thing as a life not worth living? BMJ , 322 , 1481 – 1483 . [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Fava , G. A. ( 1990 ). Methodological and conceptual issues in research on quality of life . Psychotherapy and Psychosomatic , 54 , 70 – 76 . [CSA]
   PubMed Web of Science ®Google Scholar
• Feinstein , A. R. ( 1987 ). Clinimetric perspectives . Journal of Chronic Diseases , 40 , 635 – 640 . [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Fitzpatrick , R. ( 1996 ). Alternative approaches to the assessment of health-related quality of life . In A. Offer (Ed.), In pursuit of the quality of life (pp. 140 – 162 ). Oxford : Oxford University Press .
   Google Scholar
• Foucault , M. (1973). The birth of the clinic: An archaeology of medical perception , A. M. Sheridan (Trans.). London : Tavistock Publications.
   Google Scholar
• Freidman , M. L. ( 1997 ). Improving the quality of life: A holistic scientific strategy . London : Praeger .
   Google Scholar
• Garratt , A. M. , Ruta , D. A. , Abdalla , M. I. , Buckingham , J. K. , & Russell , I. T. ( 1993 ). The SF-36 Health Survey Questionnaire: An outcome measure suitable for routine use within the NHS? BMJ , 306 , 1440 – 1444 . [PUBMED] [CSA]
   PubMed Web of Science ®Google Scholar
• Gill T. M. & Feinstein A. R. ( 1994 ). A critical appraisal of the quality of quality-of-life measurements . JAMA , 272 , 619 – 626 . [PUBMED] [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Gold , M. R. , Stevenson , D. , & Fryback , D. G. ( 2002 ). HALYs and QALYs and DALYs oh my: Similarities and differences in summary measures of population health . Annual Review of Public Health , 23 , 115 – 134 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Grice , H. P. ( 1989 ). Studies in the way of words , London : Harvard University Press .
   Google Scholar
• Gwyn , R. ( 2002 ). Communicating health and illness . London : Sage .
   Google Scholar
• Hays , R. D. & Shapiro , M. F. ( 1992 ). An overview of generic health-related quality of life measures for HIV research . Quality of Life Research , 1 ( 2 ), 91 – 97 [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Herzlich , C. ( 1973 ). Health and illness . London : Academic Press .
   Google Scholar
• Kind , P. , Rosser , R. , & Williams , A. ( 1982 ). Valuation of quality of life: Some psychometric evidence . In M. W. Jones-Lee (Ed.), The value of life and safety (pp. 159 – 170 ), Leiden : North Holland Publishing .
   Google Scholar
• McHorney , C. A. ( 1999 ). Health status assessment methods for adults: Past accomplishments and future challenges . Annual Review of Public Health , 20 , 309 – 335 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• McHorney , C. A. , Kosinksi M. , & Ware , Jr. , J. E. ( 1994 ). Comparisons of the costs and quality of norms for the SF-36 Health Survey collected by mail versus telephone interview: Results from a national survey . Medical Care , 32 ( 6 ), 551 – 567 . [CSA]
   PubMed Web of Science ®Google Scholar
• McKenna , S. ( 2004 ). Assessing the quality of life of patients in phase I and II anti-cancer drug trials: Interviews versus questionnaires by Cox K . Social Science and Medicine , 58 , 659 – 660 . [PUBMED] [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Meeberg , G. A. ( 1993 ). Quality of life: A concept analysis . Journal of Advanced Nursing , 18 , 32 – 38 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Michalos , A. C. ( 2004 ). Social indicators research and health related quality of life research , Social Indicators Research , 65 , 27 – 72 . [CROSSREF] [CSA]
   Web of Science ®Google Scholar
• Mozes , B. , Maor , Y. , & Shmueli , A. ( 1999 ). Do we know what global ratings of quality of life measure? Quality of Life Research , 8 ( 3 ), 269 – 273 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Muldoon , M. F. , Barger , S. D. , Flory , J. D. , & Manuck , S. B. ( 1998 ). What are quality of life measurements measuring? BMJ , 316 , 542 – 545 . [CSA]
   PubMed Web of Science ®Google Scholar
• Naughton , M. J. & Shumaker , S. A. ( 2003 ). The case for domains of function in quality of life assessment . Quality of Life Research , 12 ( Suppl. 1 ), 73 – 80 . [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Noerholm , V. & Bech , P. ( 2001 ). The WHO Quality of Life (WHOQOL) Questionnaire: Danish validation study . Nordic Journal of Psychiatry , 55 ( 4 ), 229 – 235 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Patton , C. ( 1985 ). Sex & germs: The politics of AIDS . Boston : South End Press .
   Google Scholar
• Radley , A. ( 1994 ). Making sense of illness . London : Sage .
   Google Scholar
• Roberts , T. , Stirling , B. , Heginbotham , C. , & McCallum , A. ( 1999 ). Public involvement in health care priority setting: An economic perspective . Health Expectations , 2 , 235 – 244 . [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Rogers , W. S. ( 1991 ). Explaining health and illness: An exploration of diversity . Hemel Hempstead : Harvester Wheatsheaf .
   Google Scholar
• Ruta , D. A. , Garratt , A. M. , & Russell , I. T. ( 1999 ). Patient centred assessment of quality of life for patients with four common conditions . Quality in Health Care , 8 , 22 – 29 . [PUBMED] [CSA]
   PubMedGoogle Scholar
• Sacks , H. ( 1975 ). Everyone has to lie . In M. Sanches & B. G. Blount (Eds.), Sociocultural dimensions of language use (pp. 57 – 80 ). New York : Academic .
   Google Scholar
• Salmon , P. , Manzi , F. , & Valori , R. M. ( 1996 ). Measuring the meaning of life for patients with incurable cancer: The life evaluation questionnaire (LEQ) European Journal of Cancer , 32A ( 5 ), 755 – 760 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Sanders , C. , Egger , M. , Donovan , J. , Tallon , D. , & Frankel , S. (1998). Reporting on quality of life in randomised controlled trials: Bibliographic study. BMJ , 317(7167), 1191. [PUBMED] [CSA]
   PubMedGoogle Scholar
• Sharpe , L. , Sensky , T. , Brewin , C. R. , & Allard , S. ( 2001 ). Characteristics of handicap for patients with recent onset rheumatoid arthritis: The validity of the Disease Repercussion Profile . Rheumatology , 40 , 1169 – 1174 . [PUBMED] [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Staniszewska , S. ( 1999 ). Patient expectations and health-related quality of life . Health Expectations , 2 , 93 – 104 . [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Staniszewska , S. & Jenkinson , C. ( 1999 ). The conceptual validity and appropriateness of using health-related quality of life measures with minority ethnic groups . Ethnicity and Health , 4 ( 1/2 ), 51 – 63 . [CROSSREF] [CSA]
   PubMedGoogle Scholar
• Sullivan , M. ( 2003 ). The new subjective medicine: Taking the patient's point of view on health care and health . Social Science and Medicine , 56 , 1595 – 1604 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Swindells , S. , Mohr , J. , Justis , J. C. , Berman , S. , Squier , C. , Wagener , M. W. , & Singh , N. ( 1999 ). Quality of life in patients with human immunodeficiency virus infection: Impact of social support, coping style and hopelessness . International Journal of STD & AIDS , 10 ( 6 ), 383 – 391 [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• Szalai , A. ( 1980 ). The meaning of comparative research on the quality of life . In A. Szalai , & F. M. Andrews (Eds.), The quality of life: Comparative studies (pp. 7 – 24 ). London : Sage. Studies in International Sociology .
   Google Scholar
• Taillefer , M.-C. , Dupuis , G. , Roberge , M.-A. and Le May , S. ( 2003 ). Health related quality of life models: Systematic review of the literature . Social Indicators Research , 64 , 293 – 323 . [CROSSREF] [CSA]
   Web of Science ®Google Scholar
• Ware , J. E. Jr. , ( 2003 ) SF-36 Health Survey Update. Retrieved 6 September 2003, from www.sf-36.org/tools/SF-36.shtml .
   Google Scholar
• Ware , J. E. , Jr. & Sherbourne , C. D. ( 1992 ). The MOS 36-Item Short-Form Health Survey (SF-36) Medical Care , 30 ( 6 ), 473 – 483 . [CSA]
   PubMed Web of Science ®Google Scholar
• Weinberger , M. , Oddone , E. Z. , Samsa , G. P. , & Landsman , P. B. ( 1996 ). Are health related quality-of-life measures affected by the mode of administration . Journal of Clinical Epidemiology , 49 ( 2 ), 135 – 140 . [CROSSREF] [CSA]
   PubMed Web of Science ®Google Scholar
• World Health Organization Quality of Life (WHOQOL) Group ( 1994 ). Quality of life assessment , Geneva : WHO .
   Google Scholar
• Williams , B. ( 1972 ). Morality . Cambridge : Cambridge University Press .
   Google Scholar
• Woodward , K. ( 2002 ). The statistical body . In J. Coupland & R. Gwyn (Eds.), Discourse the body and identity (pp. 260 – 291 ). London : Palgrave MacMillan .
   Google Scholar