Living with Parkinson’s disease: A Jordanian perspective

References

• Ceravolo R, Pagni C, Tognoni G, et al. The epidemiology and clinical manifestations of dysexecutive syndrome in Parkinson’s disease. Front Neurol. 2012;3:159.
   PubMedGoogle Scholar
• Sethi KD. Clinical aspects of Parkinson disease. Curr Opin Neurol. 2002;15:457–460.
   PubMed Web of Science ®Google Scholar
• Connolly BS, Lang AE. Pharmacological treatment of Parkinson disease: a review. JAMA. 2014;311:1670–1683.
   PubMed Web of Science ®Google Scholar
• Sunvisson H. Stopped within a track: embodied experiences of late-stage Parkinson’s disease. Int J Qual Stud Health Well-Being. 2006;1:91–99.
   Google Scholar
• Kwakkel G, de Goede C, Van Wegen E. Impact of physical therapy for Parkinson’s disease: a critical review of the literature. Parkinson Rel Disord. 2007;13:S478–S487.
   PubMed Web of Science ®Google Scholar
• Gaudet P. Measuring the impact of Parkinson’s disease: an occupational therapy perspective. Can J Occup Ther. 2002;69:104–113.
   PubMedGoogle Scholar
• Bramley N, Eatough V. The experience of living with Parkinson’s disease: an interpretative phenomenological analysis case study. Psychol Health. 2005;20:223–235.
   Web of Science ®Google Scholar
• Marr J-a. The experience of living with Parkinson’s disease. J Neurosci Nurs. 1991;23:325–329.
   PubMedGoogle Scholar
• Mshana G, Dotchin CL, Walker RW. ‘We call it the shaking illness’: perceptions and experiences of Parkinson’s disease in rural northern Tanzania. BMC Public Health. 2011;11:219.
   PubMed Web of Science ®Google Scholar
• Hermanns M. The invisible and visible stigmatization of Parkinson’s disease. J Am Assoc Nurse Practitioners. 2013;25:563–566.
   PubMed Web of Science ®Google Scholar
• Uc E, Rizzo M, Johnson A, et al. Real-life driving outcomes in Parkinson disease. Neurology. 2011;76:1894–1902.
   PubMed Web of Science ®Google Scholar
• Margis R, Donis KC, Sch nwald SV, et al. WHOQOL-OLD assessment of quality of life in elderly patients with Parkinson’s disease: influence of sleep and depressive symptoms. Rev Brasil Psiquiatr. 2010;32:125–131.
   PubMed Web of Science ®Google Scholar
• Postuma R, Gagnon JF, Vendette M, et al. REM sleep behaviour disorder in Parkinson’s disease is associated with specific motor features. J Neurol Neurosurg Psychiatr. 2008;79:1117–1121.
   PubMed Web of Science ®Google Scholar
• Scaglione C, Vignatelli L, Plazzi G, et al. REM sleep behaviour disorder in Parkinson’s disease: a questionnaire-based study. Neurol Sci. 2005;25:316–321.
   PubMed Web of Science ®Google Scholar
• Caap Ahlgren M. Older Swedish women’s experiences of living with symptoms related to Parkinson’s disease. J Adv Nurs. 2002;39:87–95.
   PubMed Web of Science ®Google Scholar
• Schrag A, Jahanshahi M, Quinn N. What contributes to quality of life in patients with Parkinson’s disease? J Neurol Neurosurg Psychiatr. 2000;69:308–312.
   PubMed Web of Science ®Google Scholar
• Higginson IJ, Gao W, Saleem TZ, et al. Symptoms and quality of life in late stage Parkinson syndromes: a longitudinal community study of predictive factors. PLoS One. 2012;7:e46327
   PubMed Web of Science ®Google Scholar
• Skogar r, Fall P-A, Hallgren G, et al. Parkinson’s disease patients’ subjective descriptions of characteristics of chronic pain, sleeping patterns and health-related quality of life. Neuropsychiatr Dis Treat. 2012;8:435.
   PubMed Web of Science ®Google Scholar
• Boland DF, Stacy M. The economic and quality of life burden associated with Parkinson’s disease: a focus on symptoms. Am J Manag Care. 2012;18:S168–S175.
   PubMed Web of Science ®Google Scholar
• Scalzo PL, Flores CR, Marques JRB, et al. Impact of changes in balance and walking capacity on the quality of life in patients with Parkinson’s disease. Arqu Neuro-Psiquiatr. 2012;70:119–124.
   PubMed Web of Science ®Google Scholar
• Palacios N, Gao X, Schwarzschild M, et al. Declining quality of life in Parkinson disease before and after diagnosis. J Parkinson’s Dis. 2012;2:153–160.
   PubMedGoogle Scholar
• Miwa H, Miwa T. Fatigue in patients with Parkinson’s disease: impact on quality of life. Intern Med. 2010;50:1553–1558.
   Web of Science ®Google Scholar
• Frazier LD. Coping with disease-related stressors in Parkinson’s disease. Gerontologist. 2000;40:53–63.
   PubMed Web of Science ®Google Scholar
• Gibson G. Men’s experiences of living with Parkinson’s disease. A Journal of the BSA MedSoc Group 2013;7:73.
   Google Scholar
• Tolson D, Fleming V, Schartau E. Coping with menstruation: understanding the needs of women with Parkinson’s disease. J Adv Nurs. 2002;40:513–521.
   PubMed Web of Science ®Google Scholar
• Fleming V, Tolson D, Schartau E. Changing perceptions of womanhood: living with Parkinson’s disease. Int J Nurs Stud. 2004;41:515–524.
   PubMed Web of Science ®Google Scholar
• Leroi I, Ahearn DJ, Andrews M, et al. Behavioral disorders, disability and quality of life in Parkinson’s disease. Age Ageing. 2011;40:614–621.
   PubMed Web of Science ®Google Scholar
• Ozdilek B, Gultekin BK. Suicidal behavior among Turkish patients with Parkinson’s disease. Neuropsychiatr Dis Treat. 2014;10:541.
   PubMed Web of Science ®Google Scholar
• Alrefai A, Habahbih M, Alkhawajah M, et al. Prevalence of Parkinson’s disease in Northern Jordan. Clin Neurol Neurosurg. 2009;111:812–815.
   PubMed Web of Science ®Google Scholar
• Creswell JW. Qualitative, quantitative, and mixed methods approaches. 3rd ed. Thousand Oaks (CA): Sage; 2003.
   Google Scholar
• Sotgiu I, Rusconi ML. Investigating emotions in Parkinson’s disease: what we know and what we still don’t know. Front Psychol. 2013;4:336.
   PubMed Web of Science ®Google Scholar
• Rod NH, Bordelon Y, Thompson A, et al. Major life events and development of major depression in Parkinson’s disease patients. Eur J Neurol. 2013;20:663–670.
   PubMed Web of Science ®Google Scholar
• Schrag A, Hovris A, Morley D, et al. Young- versus older-onset Parkinson’s disease: impact of disease and psychosocial consequences. Mov Disord. 2003;18:1250–1256.
   PubMed Web of Science ®Google Scholar
• Phillips LJ. Dropping the bomb: the experience of being diagnosed with Parkinson’s disease. Geriatr Nurs. 2006;27:362–369.
   PubMed Web of Science ®Google Scholar
• Buljevac M, Majdak M, Leutar Z. The stigma of disability: Croatian experiences. Disabil Rehabil. 2012;34:725–732.
   PubMed Web of Science ®Google Scholar
• Simpson J, McMillan H, Reeve D. Reformulating psychological difficulties in people with Parkinson’s disease: the potential of a social relational approach to disablism. Parkinson’s Dis. 2013;2013:608562.
   PubMed Web of Science ®Google Scholar
• Domingos J, Coelho M, Ferreira JJ. Referral to rehabilitation in Parkinson’s disease: who, when and to what end? Arqu Neuro-Psiquiatr. 2013;71:967–972.
   PubMed Web of Science ®Google Scholar
• Kohler M, Saxer S, Fringer A, et al. [Trapped in the body-lived experience and coping of individuals having Parkinson and their relatives with changed movement pattern caused by the disease]. Pflege. 2014;27:153–161.
   PubMed Web of Science ®Google Scholar
• Benharoch J, Wiseman T. Participation in occupations: some experiences of people with Parkinson’s disease. Br J Occup Ther. 2004;67:380–387.
   Google Scholar
• Rozario LD. Spirituality in the lives of people with disability and chronic illness: a creative paradigm of wholeness and reconstitution. Disabil Rehabil. 1997;19:427–434.
   PubMed Web of Science ®Google Scholar
• Schulz EK. The meaning of spirituality for individuals with disabilities. Disabil Rehabil. 2005;27:1283–1295.
   PubMed Web of Science ®Google Scholar
• El-Islam MF. Arab culture and mental health care. Transcult Psychiatry. 2008;45:671–682.
   PubMed Web of Science ®Google Scholar