A dyadic exploration of support in everyday life of persons with RA and their significant others

References

• Parenti G, Tomaino SCM, Cipolletta S. The experience of living with rheumatoid arthritis: a qualitative metasynthesis. J Clin Nurs. 2020;29:3922–3936.
   PubMed Web of Science ®Google Scholar
• Kristiansen TM, Primdahl J, Antoft R, et al. It means everything: continuing normality of everyday life for people with rheumatoid arthritis in early remission. Musculoskelet Care. 2012;10:162–170.
   PubMedGoogle Scholar
• Shadick NA, Gerlanc NM, Frits ML, et al. The longitudinal effect of biologic use on patient outcomes (disease activity, function, and disease severity) within a rheumatoid arthritis registry. Clin Rheumatol. 2019;38:3081–3092.
   PubMedGoogle Scholar
• Ahlstrand I, Thyberg I, Falkmer T, et al. Pain and activity limitations in women and men with contemporary treated early RA compared to 10 years ago: the Swedish TIRA project. Scand J Rheumatol. 2015;44:259–264.
   PubMed Web of Science ®Google Scholar
• Flurey CA, Morris M, Richards P, et al. It's like a juggling act: rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes. Rheumatology (Oxford). 2014;53:696–703.
   PubMed Web of Science ®Google Scholar
• Bergström M, Sverker A, Larsson Ranada Å, et al. Significant others' influence on participation in everyday life – the perspectives of persons with early diagnosed rheumatoid arthritis. Disabil Rehabil. 2020;42:385–393.
   PubMed Web of Science ®Google Scholar
• Bergström M, Ahlstrand I, Thyberg I, et al. 'Like the worst toothache you've had' – How people with rheumatoid arthritis describe and manage pain. Scand J Occup Ther. 2017;24:468–476.
   PubMed Web of Science ®Google Scholar
• Dures E, Fraser I, Almeida C, et al. Patients' perspectives on the psychological impact of inflammatory arthritis and meeting the associated support needs: pen-ended responses in a multi-centre survey. Musculoskelet Care. 2017;15:175–185.
   PubMed Web of Science ®Google Scholar
• Alten R, van de Laar M, De Leonardis F, et al. Physical and emotional burden of rheumatoid arthritis: data from RA matters, a web-based survey of patients and healthcare professionals. Rheumatol Ther. 2019;6:587–597.
   PubMed Web of Science ®Google Scholar
• Townsend EA, Polatajko HJ. Enabling occupation II: advancing an occupational therapy vision for health, well-being, & justice through occupation. 2nd ed. Ottawa (ON): Canadian Association of Occupational Therapists; 2013.
   Google Scholar
• Pow J, Stephenson E, Hagedoorn M, et al. Spousal support for patients with rheumatoid arthritis: getting the wrong kind is a pain. Front Psychol. 2018;9:1760.
   PubMed Web of Science ®Google Scholar
• Law M. Participation in the occupations of everyday life. Am J Occup Ther. 2002;56:640–649.
   PubMed Web of Science ®Google Scholar
• Helgeson VS. Social support and quality of life. Qual Life Res. 2003;12(1suppl):25–31.
   PubMedGoogle Scholar
• Fallatah F, Edge DS. Social support needs of families: the context of rheumatoid arthritis. Appl Nurs Res. 2015;28:180–185.
   PubMed Web of Science ®Google Scholar
• Untas A, Vioulac C, Boujut E, et al. What is relatives' role in arthritis management? A qualitative study of the perceptions of patient-relative dyads. Patient Prefer Adherence. 2020;14:45–53.
   PubMed Web of Science ®Google Scholar
• Poh LW, He HG, Lee CS, et al. An integrative review of experiences of patients with rheumatoid arthritis. Int Nurs Rev. 2015;62:231–247.
   PubMed Web of Science ®Google Scholar
• Dures E, Almeida C, Caesley J, et al. Patient preferences for psychological support in inflammatory arthritis: a multicentre survey. Ann Rheum Dis. 2016;75:142–147.
   PubMed Web of Science ®Google Scholar
• Ahlstrand I, Björk M, Thyberg I, et al. Pain and daily activities in rheumatoid arthritis. Disabil Rehabil. 2012;34:1245–1253.
   PubMed Web of Science ®Google Scholar
• Eisikovits Z, Koren C. Approaches to and outcomes of dyadic interview analysis. Qual Health Res. 2010;20:1642–1655.
   PubMed Web of Science ®Google Scholar
• Thyberg I, Dahlström Ö, Björk M, et al. Hand pains in women and men in early rheumatoid arthritis, a one year follow-up after diagnosis. The Swedish TIRA project. Disabil Rehabil. 2017;39:291–300.
   PubMed Web of Science ®Google Scholar
• Hochman Y, Segev E, Levinger M. Five phases of dyadic analysis: stretching the boundaries of understanding of family relationships. Fam Process. 2020;59:681–694.
   PubMed Web of Science ®Google Scholar
• Van Parys H, Provoost V, De Sutter P, et al. Multi family member interview studies: a focus on data analysis. J Fam Ther. 2017;39:386–401.
   Web of Science ®Google Scholar
• Hudson N, Law C, Culley L, et al. Conducting dyadic, relational research about endometriosis: a reflexive account of methods, ethics and data analysis. Health (London). 2020;24:79–93.
   PubMed Web of Science ®Google Scholar
• Patton MQ. Qualitative research & evaluation methods: integrating theory and practice. 4th ed. London (UK): SAGE Publications, Inc; 2015.
   Google Scholar
• Polit DF, Beck CT. Nursing research – generating and assessing evidence for nursing practice. 10th ed. Philadelphia (PA): Wolters Kluwer; 2017.
   Google Scholar
• Benka J, Nagyova I, Rosenberger J, et al. Social support as a moderator of functional disability's effect on depressive feelings in early rheumatoid arthritis: a four-year prospective study. Rehabil Psychol. 2014;59:19–26.
   PubMed Web of Science ®Google Scholar
• Georgopoulou S, Efraimidou S, MacLennan SJ, et al. The relationship between social support and health-related quality of life in patients with antiphospholipid (Hughes) syndrome. Mod Rheumatol. 2018;28:147–155.
   PubMed Web of Science ®Google Scholar
• Swift CM, Reed K, Hocking C. A new perspective on family involvement in chronic pain management programmes. Musculoskelet Care. 2014;12:47–55.
   PubMedGoogle Scholar
• Hallert E, Björk M, Dahlström Ö, et al. Disease activity and disability in women and men with early rheumatoid arthritis (RA): an 8-year followup of a Swedish early RA project. Arthritis Care Res (Hoboken). 2012;64:1101–1107.
   PubMed Web of Science ®Google Scholar
• Rantalaiho VM, Kautiainen H, Järvenpää S, et al. Decline in work disability caused by early rheumatoid arthritis: results from a nationwide Finnish register, 2000–8. Ann Rheum Dis. 2013;72:672–677.
   PubMed Web of Science ®Google Scholar
• Östlund G, Thyberg I, Valtersson E, et al. The use of avoidance, adjustment, interaction and acceptance strategies to handle participation restrictions among Swedish men with early rheumatoid arthritis. Musculoskelet Care. 2016;14:206–218.
   PubMed Web of Science ®Google Scholar
• Townsend A, Wyke S, Hunt K. Self-managing and managing self: practical and moral dilemmas in accounts of living with chronic illness. Chronic Illn. 2006;2:185–194.
   PubMedGoogle Scholar
• Brignon M, Vioulac C, Boujut E, et al. Patients and relatives coping with inflammatory arthritis: care teamwork. Health Expect. 2020;23:137–147.
   PubMed Web of Science ®Google Scholar
• Walder K, Molineux M. Occupational adaptation and identity reconstruction: a grounded theory synthesis of qualitative studies exploring adults’ experiences of adjustment to chronic disease, major illness or injury. J Occup Sci. 2017;24:225–243.
   Web of Science ®Google Scholar
• Hammel J, Magasi S, Heinemann A, et al. Environmental barriers and supports to everyday participation: a qualitative insider perspective from people with disabilities. Arch Phys Med Rehabil. 2015;96:578–588.
   PubMed Web of Science ®Google Scholar
• Hammell KRW. Belonging, occupation, and human well-being: an exploration. Can J Occup Ther. 2014;81:39–50.
   PubMed Web of Science ®Google Scholar
• Voshaar MJ, Nota I, van de Laar MA, et al. Patient-centred care in established rheumatoid arthritis. Best Pract Res Clin Rheumatol. 2015;29:643–663.
   PubMed Web of Science ®Google Scholar
• Cipolletta S, Tomaino SCM, Lo Magno E, et al. Illness experiences and attitudes towards medication online communities for people with fibromyalgia. IJERPH. 2020;17:8683.
   Web of Science ®Google Scholar
• Swift C, Hocking C, Dickinson A, et al. Facilitating open family communication when a parent has chronic pain: a scoping review. Scand J Occup Ther. 2019;26:103–120.
   PubMed Web of Science ®Google Scholar
• National Board of Health and Welfare [Internet]. Stockholm (Sweden): National Board of Health and Welfare; [cited 2020 Nov 14]. Available from: https://www.socialstyrelsen.se/.
   Google Scholar
• Merriam-Webster [Internet]. Springfield (MA): Merriam-Webster Inc; [cited 2020 Nov 14]. Available from: https://www.merriam-webster.com/
   Google Scholar