Participation of children with long-term health conditions compared to that of healthy peers: A cross-sectional comparative study

References

• Van Cleave J, Gortmaker SL, Perrin JM. Dynamics of obesity and chronic health conditions among children and youth. JAMA. 2010;303:623–630.
   PubMed Web of Science ®Google Scholar
• Peng AX, Yan CM. Psychological problems and family management of children with chronic diseases: a review. Chinese J Practical Nurs. 2007;23:45–47.
   Google Scholar
• van der Lee JH, Mokkink LB, Grootenhuis MA, et al. Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA. 2007;297:2741–2751.
   PubMed Web of Science ®Google Scholar
• De Bock F, Bosle C, Graef C, et al. Measuring social participation in children with chronic health conditions: validation and reference values of the child and adolescent scale of participation (CASP) in the german context. BMC Pediatr. 2019;19:125.
   PubMed Web of Science ®Google Scholar
• Wallander JL, Varni JW. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry. 1998;39:29–46.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International classification of functioning, disability and health (ICF). Geneva: World Health Organization; 2001.
   Google Scholar
• World Health Organization. International classification of functioning, disability and health: Children and youth version (ICF-CY). Geneva: World Health Organization; 2007.
   Google Scholar
• Imms C, Granlund M, Wilson PH, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59:16–25.
   PubMed Web of Science ®Google Scholar
• Schlebusch L, Huus K, Samuels A, et al. Participation of young people with disabilities and/or chronic conditions in low- and Middle-income countries: a scoping review. Dev Med Child Neurol. 2020;62:1259–1265.
   PubMed Web of Science ®Google Scholar
• United Nations. Convention on the right of the child. Geneva (Switzerland): United Nations; 1989.
   Google Scholar
• Liao YT, Hwang AW, Liao HF, et al. Understanding the participation in home, school, and community activities reported by children with disabilities and their parents: a pilot study. Int J Environ Res Public Health. 2019;16:2217.
   PubMed Web of Science ®Google Scholar
• Cooper A, Fecher N, Johnson EK. Toddlers’ comprehension of adult and child talkers: adult targets versus vocal tract similarity. Cognition. 2018;173:16–20.
   PubMed Web of Science ®Google Scholar
• Law M, Anaby D, Teplicky R, et al. Participation in the home environment among children and youth with and without disabilities. Brit J Occup Ther. 2013;76:58–66.
   Google Scholar
• Voss C, Duncombe SL, Dean PH, et al. Physical activity and sedentary behavior in children with congenital heart disease. J Am Heart Assoc. 2017;6:e004665.
   PubMed Web of Science ®Google Scholar
• Hayward S, Boyes NG, Stickland MK, et al. Exploring the relationships of body composition, aerobic fitness and physical activity levels with arterial stiffness in healthy children with children with congenital heart disease. Med Sci Sports Exercise. 2017;49:732.
   Web of Science ®Google Scholar
• Van Brussel M, van der Net J, Hulzebos E, et al. The Utrecht approach to exercise in chronic childhood conditions: the decade in review. Pediatr Phys Ther. 2011;23:2–14.
   PubMed Web of Science ®Google Scholar
• McMullen JA, McCrindle BW, Dell SD, et al. Understanding parent perceptions of healthy physical activity for their child with a chronic medical condition: a cross-sectional study. Paediatr Child Health. 2019;24:e135–e141.
   PubMed Web of Science ®Google Scholar
• Moola F, McCrindle BW, Longmuir PE. Physical activity participation in youth with surgically corrected congenital heart disease: devising guidelines so johnny can participate. Paediatr Child Health. 2009;14:167–170.
   PubMed Web of Science ®Google Scholar
• Mei C, Reilly S, Reddihough D, et al. Activities and participation of children with cerebral palsy: parent perspectives. Disabil Rehabil. 2015;37:2164–2173.
   PubMed Web of Science ®Google Scholar
• Riner WF, Sellhorst SH. Physical activity and exercise in children with chronic health conditions. J Sport Health Sci. 2013;2:12–20.
   Web of Science ®Google Scholar
• Lygnegård F, Almqvist L, Granlund M, et al. Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions. Dev Neurorehabil. 2019;22:27–38.
   PubMed Web of Science ®Google Scholar
• Donohue DK, Bornman J, Granlund M. Examining the rights of children with intellectual disability in South Africa: children’s perspectives. J Intellect Dev Dis. 2014;39:55–64.
   Web of Science ®Google Scholar
• Gottlieb CA, Maenner MJ, Cappa C, et al. Child disability screening, nutrition, and early learning in 18 countries with low and Middle incomes: data from the third round of UNICEF's multiple indicator cluster survey (2005–06). Lancet. 2009;374:1831–1839.
   PubMed Web of Science ®Google Scholar
• Mung'ala-Odera V, Meehan R, Njuguna P, et al. Prevalence and risk factors of neurological disability and impairment in children living in rural Kenya. Int J Epidemiol. 2006;35:683–688.
   PubMed Web of Science ®Google Scholar
• Arvidsson P, Dada S, Granlund M, et al. Content validity and usefulness of picture My participation for measuring participation in children with and without intellectual disability in South Africa and Sweden. Scand J Occup Ther. 2020;27:336–348.
   PubMed Web of Science ®Google Scholar
• Samuels A, Dada S, Van Niekerk K, et al. Children in South Africa with and without intellectual disabilities’ rating of their frequency of participation in everyday activities. Int J Environ Res Public Health. 2020;17:6702.
   PubMed Web of Science ®Google Scholar
• Shi L, Granlund M, Zhao Y, et al. Transcultural adaptation, content validity and reliability of the instrument ‘picture My participation’ for children and youth with and without intellectual disabilities in mainland China. Scand J Occup Ther. 2021;28:147–157.
   PubMed Web of Science ®Google Scholar
• Cameron L, Murphy J. Enabling young people with a learning disability to make choices at a time of transition. Br J Learning Disab. 2002;30:105–112.
   Google Scholar
• Zwinkels M, Verschuren O, Lankhorst K, et al. Sport-2-stay-fit study: health effects of after-school sport participation in children and adolescents with a chronic disease or physical disability. BMC Sports Sci Med Rehabil. 2015;7:22.
   PubMed Web of Science ®Google Scholar
• van Gent R, van Essen-Zandvliet EEM, Klijn P, et al. Participation in daily life of children with asthma. J Asthma. 2008;45:807–813.
   PubMed Web of Science ®Google Scholar
• Moola F, Faulkner G, Kirsh J, et al. Physical activity and sport participation in youth with congenital heart disease: perceptions of children and parents. Adapt Phys Activ Q. 2008;25:49–70.
   PubMed Web of Science ®Google Scholar
• Cox V, Schepers V, Ketelaar M, et al. Participation restrictions and satisfaction with participation in partners of patients with stroke. Arch Phys Med Rehabil. 2020;101:464–471.
   PubMed Web of Science ®Google Scholar
• Pinquart M. Do the parent-child relationship and parenting behaviors differ between families with a child with and without chronic illness? A Meta-analysis. J Pediatr Psychol. 2013;38:708–721.
   PubMed Web of Science ®Google Scholar
• Albrecht EC, Khetani MA. Environmental impact on young children’s participation in home-based activities. Dev Med Child Neurol. 2017;59:388–394.
   PubMed Web of Science ®Google Scholar
• John-Akinola YO, Nic-Gabhainn S. Children’s participation in school: a cross-sectional study of the relationship between school environments, participation and health and well-being outcomes. BMC Public Health. 2014;14:964.
   PubMed Web of Science ®Google Scholar
• Whitney DG, Peterson MD, Warschausky SA. Mental health disorders, participation, and bullying in children with cerebral palsy. Dev Med Child Neurol. 2019;61:937–942.
   PubMed Web of Science ®Google Scholar
• Richardson PK. The school as social context: social interaction patterns of children with physical disabilities. Am J Occup Ther. 2002;56:296–304.
   PubMed Web of Science ®Google Scholar
• Kesting SV, Götte M, Seidel CC, et al. One in four questioned children faces problems regarding reintegration into physical education at school after treatment for pediatric cancer. Pediatr Blood Cancer. 2016;63:737–739.
   PubMed Web of Science ®Google Scholar
• Alias H, Mohd Nazi NA, Lau Sie Chong D. Participation in physical activity and physical education in school among children with acute lymphoblastic leukemia after intensive chemotherapy. Front Pediatr. 2019;7:73.
   PubMed Web of Science ®Google Scholar
• Cheng B-L, Huang Y, Shu C, et al. A cross-sectional survey of participation of asthmatic children in physical activity. World J Pediatr. 2010;6:238–243.
   PubMed Web of Science ®Google Scholar
• Lambert V, Keogh D. Striving to live a normal life: a review of children and young people's experience of feeling different when living with a long term condition. J Pediatr Nurs. 2015;30:63–77.
   PubMed Web of Science ®Google Scholar
• Ray TD, Green A, Henry K. Physical activity and obesity in children with congenital cardiac disease. Cardiol Young. 2011;21:603–607.
   PubMed Web of Science ®Google Scholar
• Chadwick S. The impact of asthma in an inner city general practice. Child Care Health Dev. 1996;22:175–186.
   PubMed Web of Science ®Google Scholar
• Engel-Yeger B, Jarus T, Anaby D, et al. Differences in patterns of participation between youths with cerebral palsy and typically developing peers. Am J Occup Ther. 2009;63:96–104.
   PubMed Web of Science ®Google Scholar
• West SL, Banks L, Schneiderman JE, et al. Physical activity for children with chronic disease; a narrative review and practical applications. BMC Pediatr. 2019;19:12.
   PubMed Web of Science ®Google Scholar
• Yelton L, Forbis S. Influences and barriers on physical activity in paediatric oncology patients. Front Pediatr. 2016;4:131.
   PubMed Web of Science ®Google Scholar