Comparison of goals set by people with multiple sclerosis during two fatigue management interventions

References

• de Groot V, Beckerman H, Lankhorst GJ, et al. The initial course of daily functioning in multiple sclerosis: a three-year follow-up study. Mult Scler. 2005;11(6):713–718.
   PubMedGoogle Scholar
• Minden SL, Frankel D, Hadden L, et al. The sonya slifka longitudinal multiple sclerosis study: methods and sample characteristics. Mult Scler. 2006;12(1):24–38.
   PubMed Web of Science ®Google Scholar
• Guidelines MCfCP. Fatigue and multiple sclerosis: evidence-based management strategies for fatigue in multiple sclerosis. Washington (DC): Paralyzed Veterans of America; 1998.
   Google Scholar
• Krupp L. Living well with MS: managing fatigue. 2001. [cited 2021 Aug 31]. Available from: https://mssociety.ca/en/pdf/livingWell.pdf.
   Google Scholar
• Asano M, Finlayson ML. Meta-analysis of three different types of fatigue management interventions for people with multiple sclerosis: exercise, education, and medication. Mult Scler Int. 2014;2014:798285.
   PubMedGoogle Scholar
• Lorig KR, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1–7.
   PubMed Web of Science ®Google Scholar
• Lorig K. Action planning: a call to action. J Am Board Fam Med. 2006;19(3):324–325.
   PubMed Web of Science ®Google Scholar
• Turner RR, Steed L, Quirk H, et al. Interventions for promoting habitual exercise in people living with and beyond cancer. Cochrane Database Syst Rev. 2018;(9):CD010192.
   PubMedGoogle Scholar
• Eisele A, Schagg D, Kramer LV, et al. Behaviour change techniques applied in interventions to enhance physical activity adherence in patients with chronic musculoskeletal conditions: a systematic review and Meta-analysis. Patient Educ Couns. 2019;102(1):25–36.
   PubMed Web of Science ®Google Scholar
• Asano M, Preissner K, Duffy R, et al. Goals set after completing a teleconference-delivered program for managing multiple sclerosis fatigue. Am J Occup Ther. 2015;69(3):6903290010p1–6903290010p8.
   PubMed Web of Science ®Google Scholar
• Barlow J, Edwards R, Turner A. The experience of attending a lay-led, chronic disease self-management programme from the perspective of participants with multiple sclerosis. Psychol Health. 2009;24(10):1167–1180.
   PubMed Web of Science ®Google Scholar
• Stuifbergen AK, Becker H, Blozis S, et al. A randomized clinical trial of a wellness intervention for women with multiple sclerosis. Arch Phys Med Rehabil. 2003;84(4):467–476.
   PubMed Web of Science ®Google Scholar
• Alcorn K, Broome K. Occupational performance coaching for chronic conditions: a review of literature. New Zealand J Occup Ther. 2014;61(2):49–56.
   PubMedGoogle Scholar
• Graham F, Rodger S, Ziviani J. Enabling occupational performance of children through coaching parents: three case reports. Phys Occup Ther Pediatr. 2010;30(1):4–15.
   PubMed Web of Science ®Google Scholar
• Finlayson M, Akbar N, Turpin K, et al. A multi-site, randomized controlled trial of MS INFoRm, a fatigue self-management website for persons with multiple sclerosis: rationale and study protocol. BMC Neurol. 2019;19(1):142.
   PubMedGoogle Scholar
• Askari S, Kessler D, Smyth P, et al. Evaluating occupational performance coaching to support fatigue management for people with multiple sclerosis: a feasibility study. Clin Rehabil. 2022. Revision requested.
   Google Scholar
• Krupp LB, LaRocca NG, Muir-Nash J, et al. The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol. 1989;46(10):1121–1123.
   PubMed Web of Science ®Google Scholar
• Pétrin J, Akbar N, Turpin K, et al. The experience of persons with multiple sclerosis using MS INFoRm: an interactive fatigue management resource. Qual Health Res. 2018;28(5):778–788.
   PubMed Web of Science ®Google Scholar
• Akbar N, Turpin K, Petrin J, et al. A pilot mixed-methods evaluation of MS INFoRm: a self-directed fatigue management resource for individuals with multiple sclerosis. Int J Rehabil Res. 2018;41(2):114–121.
   PubMed Web of Science ®Google Scholar
• Hohol MJ, Orav EJ, Weiner HL. Disease steps in multiple sclerosis: a simple approach to evaluate disease progression. Neurology. 1995;45(2):251–255.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International classification of functioning, disability and health: ICF. Geneva, Switzerland: World Health Organization; 2001.
   Google Scholar
• Strecher VJ, Seijts GH, Kok GJ, et al. Goal setting as a strategy for health behavior change. Health Educ Q. 1995;22(2):190–200.
   PubMedGoogle Scholar
• Playford ED. Beyond standard rehabilitation programmes: working with people with MS for adequate goal setting and rehabilitation treatment evaluation. Mult Scler. 2019;25(10):1394–1401.
   PubMed Web of Science ®Google Scholar
• Henson LJ. Health literacy and outcomes in multiple sclerosis. Continuum (Minneap, MN). 2016;22(3):947–950.
   PubMedGoogle Scholar
• Occupational therapy practice framework: domain and process. Am J Occup Ther 2017;68:S1–S48.
   Google Scholar
• Arora NK, McHorney CA. Patient preferences for medical decision making: who really wants to participate? Medical Care. 2000;38(3):335–412.
   PubMed Web of Science ®Google Scholar
• Degner LF, Kristjanson LJ, Bowman D, et al. Information needs and decisional preferences in women with breast cancer. JAMA. 1997;277(18):1485–1492.
   PubMed Web of Science ®Google Scholar
• Stanos S, Brodsky M, Argoff C, et al. Rethinking chronic pain in a primary care setting. Postgrad Med. 2016;128(5):502–515.
   PubMed Web of Science ®Google Scholar
• While A, Ullman R, Forbes A. Development and validation of a learning needs assessment scale: a continuing professional education tool for multiple sclerosis specialist nurses. J Clin Nurs. 2007;16(6):1099–1108.
   PubMed Web of Science ®Google Scholar