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Amyloid
The Journal of Protein Folding Disorders
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Letter to the Editor

Patient-reported satisfaction with telemedicine in light chain (AL) amyloidosis care

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Received 16 Oct 2023, Accepted 12 Apr 2024, Published online: 20 May 2024

References

  • National Organization for Rare Disorders. Ensuring access to telehealth for rare disease; 2020 (cited 2020 Sep 7). https://rarediseases.org/wp-content/uploads/2020/10/NRD-2098-RareInsights-Telehealth-Report.pdf.
  • Nativi-Nicolau J, Sarswat N, Fajardo J, et al. Best practices in specialized amyloidosis centers in the United States: a survey of cardiologists, nurses, patients, and patient advocates. Clin Med Insights Cardiol. 2021;15:11795468211015230. doi: 10.1177/11795468211015230.
  • D'Souza A, Szabo A, Akinola I, et al. A cross-sectional study of patient-reported outcomes and symptom burden using PROMIS and PRO-CTCAE measures in light chain amyloidosis. Qual Life Res. 2023;32(6):1807–1817. doi: 10.1007/s11136-023-03354-9.
  • Pogorzelska K, Chlabicz S. Patient satisfaction with telemedicine during the COVID-19 pandemic-a systematic review. Int J Environ Res Public Health. 2022;19(10):6113.
  • Johnson BA, Lindgren BR, Blaes AH, et al. The new normal? Patient satisfaction and usability of telemedicine in breast cancer care. Ann Surg Oncol. 2021;28(10):5668–5676. doi: 10.1245/s10434-021-10448-6.

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