References
- Chiò , A. , Vignola , A. , Mastro , E. , Giudici , A. D. , Iazzolino , B. , Calvo , A. and Montuschi , A. 2010 . Neurobehavioral symptoms in ALS are negatively related to caregivers’ burden and quality of life . European Journal of Neurology , 17 : 1298 – 1303 .
- Davis , C. G. , Nolen-Hoeksema , S. and Larson , J. 1998 . Making sense of loss and benefiting from the experience: Two construals of meaning . Journal of Personality and Social Psychology , 75 : 561 – 574 .
- Folkman , S. and Moskowitz , J. T. 2000 . Positive affect and the other side of coping . American Psychologist , 55 : 647 – 654 .
- Ganzini , L. , Johnston , W. S. and Hoffman , W. F. 1999 . Correlates of suffering in amyotrophic lateral sclerosis . Neurology , 52 : 1434 – 1440 .
- Gauthier , A. , Vignola , A. , Calvo , A. , Cavallo , E. , Moglia , C. , Sellitti , L. and Chio , A. 2007 . A longitudinal study on quality of life and depression in ALS patient–caregiver couples . Neurology , 68 : 923 – 926 .
- Jaccard , J. 2001 . Interaction effects in logistic regression , Thousand Oaks , CA : Sage .
- Krivickas , L. S. , Shockley , L. and Mitsumoto , H. 1997 . Home care of patients with amyotrophic lateral sclerosis (ALS) . Journal of the Neurological Science , 152 ( Suppl. 1 ) : S82 – S89 .
- Kurtz , M. E. , Kurtz , J. C. , Given , C. W. and Given , B. 1995 . Relationship of caregiver reactions and depression to cancer patients’ symptoms, functional states and depression: A longitudinal view . Social Science and Medicine , 40 : 837 – 846 .
- Mock , S. E. and Boerner , K. 2010 . Sense making and benefit finding among patients with amyotrophic lateral sclerosis and their primary caregivers . Journal of Health Psychology , 15 ( 1 ) : 115 – 121 .
- Olsson , A. G. , Markhede , I. , Strang , S. and Persson , L. I. 2010 . Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time . Acta Neurologica Scandinavia , 121 : 244 – 250 .
- Pagnini , F. , Rossi , G. , Lunetta , C. , Banfi , P. , Castelnuovo , G. , Corbo , M. and Molinari , E. 2010 . Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis . Psychology, Health, & Medicine , 15 : 685 – 693 .
- Pagnini , F. , Lunetta , C. , Rossi , G. , Banfi , P. , Gorni , K. , Cellotto , N. and Corbo , M. 2011 . Existential well-being and spirituality of individuals with amyotrophic lateral sclerosis is related to psychological well-being of their caregivers . Amyotrophic Lateral Sclerosis , 12 : 105 – 108 .
- Pakenham , K. I. 2007 . The nature of benefit finding in multiple sclerosis (MS) . Psychology, Health, and Medicine , 12 : 190 – 196 .
- Pierce , G. R. , Sarason , I. G. and Sarason , B. R. 1991 . General and relationship-based perceptions of social support: Are two constructs better than one? . Journal of Personality and Social Psychology , 61 : 1028 – 1039 .
- Rabkin , J. G. , Wagner , G. J. and Del Bene , M. 2000 . Resilience and distress among amyotrophic lateral sclerosis patients and caregivers . Psychosomatic Medicine , 62 : 271 – 279 .
- Rabkin , J. G. , Albert , S. M. , Rowland , L. P. and Hiroshi , M. 2009 . How common is depression among ALS caregivers? A longitudinal study . Amyotrophic Lateral Sclerosis , 10 : 448 – 455 .
- Radloff , L. S. 1977 . The CES-D: A self-report depression scale for research in the general population . Applied Psychological Measurement , 1 : 385 – 401 .
- Rowland , L. P. and Schneider , N. A. 2001 . Amyotrophic lateral sclerosis . New England Journal of Medicine , 344 : 1688 – 1700 .
- Schulz , R. , Hebert , R. S. , Dew , M. A. , Brown , S. L. , Scheier , M. F. , Beach , S. R. and Nichols , L. 2007 . Patient suffering and caregiver compassion: New opportunities for research, practice, and policy . Gerontologist , 47 ( 1 ) : 4 – 13 .
- The ALS CNTF Treatment Study (ACTS) Phase I–II Study Group . 1996 . The amyotrophic lateral sclerosis functional rating scale. Assessment of activities of daily living in patients with amyotrophic lateral sclerosis . Archives of Neurology , 53 : 141 – 147 .
- Watson , D. , Clark , L. A. and Tellegen , A. 1988 . Development and validation of brief measures of positive and negative affect: The PANAS scales . Journal of Personality and Social Psychology , 54 : 1063 – 1070 .
- Young , J. M. and McNicoll , P. 1998 . Against all odds: Positive life experiences of people with advanced amyotrophic lateral sclerosis . Health and Social Work , 23 : 35 – 43 .