Illness perceptions, coping styles and psychological distress in adults with Huntington’s disease

References

• Bjelland, I., Dahl, A.A., Haug, T.T., & Neckelmann, D. (2002). The validity of the Hospital Anxiety and Depression Scale: An updated literature review. Journal of Psychosomatic Research, 52, 69–77. doi:10.1016/S0022-3999(01)00296-3.
   PubMed Web of Science ®Google Scholar
• Brod, M., Mendelsohn, G.A., & Roberts, B. (1998). Patients’ experiences of Parkinson’s disease. Journal of Gerontology, 53, 213–222. doi:10.1093/geronb/53B.4.P213.
   Google Scholar
• Carver, S., Scheier, M.F., & Weintraub, J.K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267–283. doi: 10.1.1.116.6386.
   PubMed Web of Science ®Google Scholar
• Craufurd, D., Thompson, J.C., & Snowden, J.S. (2001). Behavioral changes in Huntington disease. Cognitive and Behavioral Neurology, 14, 219. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/
   Google Scholar
• De Shazer, S. (1985). Keys to solution in brief therapy. New York, NY: Norton.
   Google Scholar
• Duisterhof, M., Trijsburg, R.W., Niermeijer, M.F., Roos, R.A.C., & Tibben, A. (2001). Psychological studies in Huntington’s disease: Making up the balance. Journal of Medical Genetics, 38, 852–861. doi:10.1136/jmg.38.12.852.
   PubMed Web of Science ®Google Scholar
• Hagger, M.S., & Orbell, S. (2003). A meta-analytic review of the common-sense model of illness representations. Psychology & Health, 18, 141–184doi:10.1080/088704403100081321.
   Web of Science ®Google Scholar
• Harper, P.S. (2002). The epidemiology of Huntington’s disease. In G. Bates, P. Harper, & L. Jones, Huntington’s disease (3rd ed., pp. 365–376). Oxford: Oxford University Press.
   Google Scholar
• Hayes, S.C., Strosahl, K.D., & Wilson, K.G. (1999). Acceptance and commitment therapy: An experiential approach to behaviour change. New York, NY: Guilford Press.
   Google Scholar
• Helder, D.I., Kaptein, A.A., Kempen, G.M.J., Weinman, J., Houwelingen, H.C., & Roos, R.A.C. (2002). Living with Huntington’s disease: Illness perceptions, coping mechanisms, and patients’ well being. British Journal of Health Psychology, 7, 449–462. doi:10.1348/135910702320645417.
   PubMed Web of Science ®Google Scholar
• Kaptein, A.A., Helder, D.I., Scharloo, M., Van Kempen, G.M.J., Weinman, J., Van Houwelingen, H.J.C., & Roos, R.A.C. (2006). Illness perceptions and coping explain well-being in patients with Huntington’s disease. Psychology & Health, 21, 431–446. doi:10.1080/14768320500456947.
   Web of Science ®Google Scholar
• Kingma, E.M., van Duijn, E., Timman, R., van der Mast, R.C., & Roos, R.A.C. (2008). Behavioural problems in Huntington’s disease using the problem behaviours assessment. General Hospital Psychiatry, 30, 155–161.
   PubMed Web of Science ®Google Scholar
• Kremer, B. (2002). Clinical neurology of Huntington’s disease. In G. Bates, P. Harper, & L. Jones, Huntington’s disease (3rd ed.). Oxford: Oxford University Press.
   Google Scholar
• Leventhal, H., Leventhal, E.A., & Cameron, L. (2001). Representations, procedures, and affect in illness self-regulation: A perceptual-cognitive model. In: A. Baum, T. Revenson & J. E. Singer (Eds.), Handbook of health psychology (pp. 19–47). Hillsdale: Lawrence Erlbaum.
   Google Scholar
• Leventhal, H., Meyer, D., & Nerenz, D. (1980). The common sense representation of illness danger. In: S. Rachman (Ed.), Contributions to medical psychology (pp. 17–30). New York, NY: Pergamon Press.
   Google Scholar
• Llewellyn, C.D., McGurk, M., & Weinman, J. (2007). Illness and treatment beliefs in head and neck cancer: Is Leventhal’s common sense model a useful framework for determining changes in outcomes over time? Journal of Psychosomatic Research, 63, 17–26. doi:10.1016/j.jpsychores.2007.01.013.
   PubMed Web of Science ®Google Scholar
• McHorney, C.A., War, J.E., Jr, Lu, J.F.R., & Sherbourne, C.D. (1994). The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Medical Care, 2, 40–66. doi:10.1097/00005650-199303000-00006.
   Web of Science ®Google Scholar
• Meyer, D., Leventhal, H., & Gutmann, M. (1985). Common-sense models of illness: The example of hypertension. Health Psychology, 4, 115–135. doi:10.1037//0278-6133.4.2.115.
   PubMed Web of Science ®Google Scholar
• Moss-Morris, R., Weinman, J., Petrie, K., Horne, R., Cameron, L., & Buick, D. (2002). The revised illness perception questionnaire (IPQ-R). Psychology & Health, 17(1), 1–16. doi:10.1080/08870440290001494.
   Web of Science ®Google Scholar
• Orth, M., Handley, O.J., Schwenke, C., Dunnett, S.B., Craufurd, D., Ho, A., … Landwehrmeyer, G.B. (2011).Investigators of the European HD network. Observing Huntington’s disease: The European Huntington’s disease network’s REGISTRY. PLoS Curr. 2010 Sep 28 [revised 2011 Apr 13];2. pii: RRN1184.
   Google Scholar
• Paulsen, J.S., Ready, R., Hamilton, J., Mega, M., & Cummings, J. (2001). Neuropsychiatric aspects of Huntington’s disease. Journal of Neurology, Neurosurgery & Psychiatry, 71, 310–314. doi:10.1136/jnnp.71.3.310.
   PubMed Web of Science ®Google Scholar
• Snaith, R.P. (2003). The hospital anxiety and depression scale. Health and Quality of Life Outcomes, 1, 1–4. doi:10.1192/pb.16.7.451.
   PubMedGoogle Scholar
• Spinney, L. (2010). Uncovering the true prevalence of Huntington’s disease. Lancet Neurology, 9, 760–761. doi:10.1016/S1474-4422(10)70160-5.
   PubMedGoogle Scholar
• Thompson, J.C., Snowden, J.S., Craufurd, D., & Neary, D. (2002). Behavior in Huntington’s disease: Dissociating cognition-based and mood-based changes. Journal of Neuropsychiatry and Clinical Neurosciences, 14, 37–43. doi:10.1176/appi.neuropsych.14.1.37.
   PubMed Web of Science ®Google Scholar
• Vowles, K.E., McCracken, L.M., & Eccleston, C. (2007). Processes of change in treatment for chronic pain: The contributions of pain, acceptance, and catastrophizing. European Journal of Pain, 11, 779–787. doi:10.1016/j.jpain.2011.02.301.
   PubMed Web of Science ®Google Scholar
• Ware, J.E., & Sherbourne,C.D. (1992). The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Medical Care, 30, 473–483. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/
   Google Scholar
• Weinman, J., Petrie, K.J., Moss-Morris, R., & Horne, R. (1996). The illness perception questionnaire: A new method for assessing the cognitive representation of illness. Psychology & Health, 11, 431–445.. doi:10.1080/08870449608400270.
   Google Scholar