The experience of meditation for people with amyotrophic lateral sclerosis and their caregivers – a qualitative analysis

References

• Brooks, B. R., Miller, R. G., Swash, M., & Munsat, T. L. (2000). El Escorial revisited: Revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis, 1, 293–299.10.1080/146608200300079536
   PubMed Web of Science ®Google Scholar
• Burke, T., Elamin, M., Galvin, M., Hardiman, O., & Pender, N. (2015). Caregiver burden in amyotrophic lateral sclerosis: A cross-sectional investigation of predictors. Journal of Neurology, 262(6), 1526–1532.
   PubMed Web of Science ®Google Scholar
• Chiò, A., Logroscino, G., Hardiman, O., Swingler, R., Mitchell, D., Beghi, E., … Eurals Consortium (2009). Prognostic factors in ALS: A critical review. Amyotrophic Lateral Sclerosis, 10, 310–323.10.3109/17482960802566824
   PubMed Web of Science ®Google Scholar
• Grossman, P., Kappos, L., Gensicke, H., D’Souza, M., Mohr, D., Penner, I., & Steiner, C. (2010). MS quality of life, depression, and fatigue improve after mindfulness training A randomized trial. Neurology, 75, 1141–1149.10.1212/WNL.0b013e3181f4d80d
   PubMed Web of Science ®Google Scholar
• Kabat-Zinn, J. (1990). Full catastrophe living: Using the wisdom of your body and mind to face stress, pain, and illness. New York, NY: Delacorte.
   Google Scholar
• Kleinbub, J. R., Palmieri, A., Broggio, A., Pagnini, F., Enrico, B., Sambin, M., et al. (2015). Hypnosis-based psychodynamic treatment in ALS: A longitudinal study on patients and their caregivers. Frontiers in Psychology, 6, 624.
   Web of Science ®Google Scholar
• Pagnini, F. (2013). Psychological wellbeing and quality of life in amyotrophic lateral sclerosis: A review. International Journal of Psychology, 48, 194–205.10.1080/00207594.2012.691977
   PubMed Web of Science ®Google Scholar
• Pagnini, F., Di Credico, C., Gatto, R., Fabiani, V., Rossi, G., Lunetta, C., … Amadei, G. (2014). Meditation training for people with amyotrophic lateral sclerosis and their caregivers. The Journal of Alternative and Complementary Medicine, 20, 272–275.10.1089/acm.2013.0268
   PubMed Web of Science ®Google Scholar
• Pagnini, F., Manzoni, G. M., Tagliaferri, A., & Gibbons, C. J. (2015). Depression and disease progression in amyotrophic lateral sclerosis: A comprehensive meta-regression analysis. Journal of health psychology, 20(8), 1107–1128. doi:10.1177/1359105314530453
   PubMed Web of Science ®Google Scholar
• Pagnini, F., & Philips, D. (2015). Being mindful about mindfulness. The Lancet Psychiatry, 2, 288–289.10.1016/S2215-0366(15)00041-3
   PubMed Web of Science ®Google Scholar
• Pagnini, F., Phillips, D., Bosma, C., Reece, A., & Langer, E. (2015). Mindfulness, physical impairment and psychological well-being in people with amyotrophic lateral sclerosis. Psychology & Health, 30, 503–517. doi:10.1080/08870446.2014.982652
   PubMed Web of Science ®Google Scholar
• Pagnini, F., Phillips, D., Bosma, C., Reece, A., & Langer, E. (in press). Mindfulness as a protective factor for the burden of caregivers of amyotrophic lateral sclerosis patients. Journal of Clinical Psychology. doi:10.1002/jclp.22235
   PubMed Web of Science ®Google Scholar
• Pagnini, F., Simmons, Z., Corbo, M., & Molinari, E. (2012). Amyotrophic lateral sclerosis: Time for research on psychological intervention? Amyotrophic Lateral Sclerosis, 13, 416–417. doi:10.3109/17482968.2011.653572
   PubMed Web of Science ®Google Scholar
• Palmieri, A., Sorarù, G., Albertini, E., Semenza, C., Vottero-Ris, F., D’Ascenzo, C., … Angelini, C. (2010). Psychopathological features and suicidal ideation in amyotrophic lateral sclerosis patients. Neurological Sciences, 31, 735–740.10.1007/s10072-010-0332-3
   PubMed Web of Science ®Google Scholar
• Qutub, K., Lacomis, D., Albert, S. M., & Feingold, E. (2014). Life factors affecting depression and burden in amyotrophic lateral sclerosis caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 15, 292–297.10.3109/21678421.2014.886699
   PubMed Web of Science ®Google Scholar
• Simmons, Z. (2005). Management strategies for patients with amyotrophic lateral sclerosis from diagnosis through death. The Neurologist, 11, 257–270. doi:00127893-200509000-00001 [pii]
   PubMed Web of Science ®Google Scholar
• Simpson, R., Mair, F., & Mercer, S. (2015). Mindfulness-based interventions for people with multiple sclerosis. Multiple Sclerosis Journal, 21(9), 1093–1094. doi:10.1177/1352458515579702
   PubMed Web of Science ®Google Scholar
• Strauss, A., & Corbin, J. M. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Thousand Oaks: Sage.
   Google Scholar
• Tramonti, F., Bongioanni, P., Di Bernardo, C., Davitti, S., & Rossi, B. (2012). Quality of life of patients with amyotrophic lateral sclerosis. Psychology, health & medicine, 17, 621–628.
   PubMed Web of Science ®Google Scholar
• Tramonti, F., Bongioanni, P., Leotta, R., Puppi, I., & Rossi, B. (2015). Age, gender, kinship and caregiver burden in amyotrophic lateral sclerosis. Psychology, health & medicine, 20, 41–46.
   PubMed Web of Science ®Google Scholar