Perceived sensitivity to medicines and the experience of side-effects: understanding intentional medication nonadherence among people living with HIV

References

• Altice, F., Evuarherhe, O., Shina, S., Carter, G., & Beaubrun, A. C. (2019). Adherence to HIV treatment regimens: Systematic literature review and meta-analysis. Patient Prefer Adherence, 13, 475–490. https://doi.org/10.2147/PPA.S192735
   PubMed Web of Science ®Google Scholar
• Arts, D. L., Voncken, A. G., Medlock, S., Abu-Hanna, A., & van Weert, H. C. (2016). Reasons for intentional guideline non-adherence: A systematic review. International Journal of Medical Informatics, 89, 55–62. https://doi.org/10.1016/j.ijmedinf.2016.02.009
   PubMed Web of Science ®Google Scholar
• Bangsberg, D. R., Hecht, F. M., Charlebois, E. D., Chesney, M., & Moss, A. (2001). Comparing objective measures of adherence to HIV antiretroviral therapy: Electronic medication monitors and unannounced pill counts. AIDS and Behavior, 5(3), 275–281. https://doi.org/10.1023/A:1011396711486
   Google Scholar
• Byrd, K. K., Hou, J. G., Hazen, R., Kirkham, H., Suzuki, S., Clay, P. G., Bush, T., Camp, N. M., Weidle, P. J., & Delpino, A. (2019). Antiretroviral adherence level necessary for HIV viral suppression using real-world data. J Acquir Immune Defic Syndr, 82(3), 245–251. https://doi.org/10.1097/QAI.0000000000002142
   PubMed Web of Science ®Google Scholar
• Carrieri, M. P., Villes, V., Raffi, F., Protopopescu, C., Preau, M., Salmon, D., Taieb, A., Lang, J.-M., Verdon, R., Chene, G., & Spire, B. (2007). Self-reported side-effects of anti-retroviral treatment among IDUs: A 7-year longitudinal study (APROCO-COPILOTE COHORT ANRS CO-8). International Journal of Drug Policy, 18(4), 288–295. https://doi.org/10.1016/j.drugpo.2007.01.014
   PubMed Web of Science ®Google Scholar
• CDC. (2016). Lifetime risk of HIV diagnosis http://www.cdc.gov/nchhstp/newsroom/2016/croi-press-release-risk.html
   Google Scholar
• Dibonaventura, M., Gabriel, S., Dupclay, L., Gupta, S., & Kim, E. (2012). A patient perspective of the impact of medication side effects on adherence: Results of a cross-sectional nationwide survey of patients with schizophrenia. BMC Psychiatry, 12(1), 20. https://doi.org/10.1186/1471-244X-12-20
   PubMed Web of Science ®Google Scholar
• Doerfler, R. E., & Goodfellow, L. (2016). Brief exposure to cognitive behavioral therapy reduces side-effect symptoms in patients on antiretroviral therapy. Journal of the Association of Nurses in AIDS Care, 27(4), 455–467. https://doi.org/10.1016/j.jana.2016.02.010
   PubMed Web of Science ®Google Scholar
• Ekstrand, M. L., Heylen, E., Pereira, M., D’Souza, J., Nair, S., Mazur, A., Shamsundar, R., Kumar, B. N. R., & Chandy, S. (2020). A behavioral adherence intervention improves rates of viral suppression among adherence-challenged people living with HIV in South India. AIDS and Behavior, 24(7), 2195–2205. https://doi.org/10.1007/s10461-020-02785-6
   PubMed Web of Science ®Google Scholar
• El-Krab, R., & Kalichman, S. C. (2021). Alcohol-antiretroviral therapy interactive toxicity beliefs and intentional medication nonadherence: Review of research with implications for interventions. AIDS and Behavior. https://doi.org/10.1007/s10461-021-03285-x
   Google Scholar
• Faasse, K., Grey, A., Horne, R., & Petrie, K. J. (2015). High perceived sensitivity to medicines is associated with higher medical care utilisation, increased symptom reporting and greater information-seeking about medication. Pharmacoepidemiology and Drug Safety, 24(6), 592–599. https://doi.org/10.1002/pds.3751
   PubMed Web of Science ®Google Scholar
• Faasse, K., & Petrie, K. J. (2013). The nocebo effect: Patient expectations and medication side effects. Postgraduate Medical Journal, 89(1055), 540–546. https://doi.org/10.1136/postgradmedj-2012-131730
   PubMed Web of Science ®Google Scholar
• Finitsis, D. J., Pellowski, J. A., Huedo-Medina, T. B., Fox, M. C., & Kalichman, S. C. (2016). Visual analogue scale (VAS) measurement of antiretroviral adherence in people living with HIV (PLWH): A meta-analysis. Journal of Behavioral Medicine, 39(6), 1043–1055. https://doi.org/10.1007/s10865-016-9770-6
   PubMed Web of Science ®Google Scholar
• Giordano, T. P., Guzman, D., Clark, R., Charlebois, E. D., & Bangsberg, D. (2004). Measuring adherence to antiretroviral therapy in a diverse population using a visual analogue scale. HIV Clinical Trials, 5(2), 74–79. https://doi.org/10.1310/JFXH-G3X2-EYM6-D6UG
   PubMed Web of Science ®Google Scholar
• Glendinning, E., Spiers, J., Smith, J. A., Anderson, J., Campbell, L. J., Cooper, V., Horne, R., & Group, S. (2019). A qualitative study to identify perceptual barriers to Antiretroviral Therapy (ART) uptake and adherence in HIV positive people from UK Black African and Caribbean communities. AIDS and Behavior, 23(9), 2514–2521. https://doi.org/10.1007/s10461-019-02670-x
   PubMed Web of Science ®Google Scholar
• Hayes, A. F. (2013). Model Templates for PROCESS for SPSS and SAS. Guilford Press.
   Google Scholar
• Horne, R., Chapman, S., Glendinning, E., Date, H. L., Guitart, J., & Cooper, V. (2019). Mind matters: Treatment concerns predict the emergence of antiretroviral therapy side effects in people with HIV. AIDS and Behavior, 23(2), 489–498. https://doi.org/10.1007/s10461-018-2239-6
   PubMed Web of Science ®Google Scholar
• Horne, R., Faasse, K., Cooper, V., Diefenbach, M. A., Leventhal, H., Leventhal, E., & Petrie, K. J. (2013). The perceived sensitivity to medicines (PSM) scale: An evaluation of validity and reliability. British Journal of Health Psychology, 18(1), 18–30. https://doi.org/10.1111/j.2044-8287.2012.02071.x
   PubMed Web of Science ®Google Scholar
• International Advisory Panel on, H. I. V. C. C. O. (2015). IAPAC guidelines for optimizing the HIV care continuum for adults and adolescents. J Int Assoc Provid AIDS Care, 14(Suppl 1), S3–S34. https://doi.org/10.1177/2325957415613442
   PubMedGoogle Scholar
• Judd, C. M., & Kenny, D. A. (1981). Process analysis: Estimating mediation in treatment evaluations. Evaluation Review, 5(5), 602–619. https://doi.org/10.1177/0193841X8100500502
   Web of Science ®Google Scholar
• Kalichman, S. C., Amaral, C. M., Swetzes, C., Jones, M., Macy, R., Kalichman, M. O., & Cherry, C. (2009). A simple single-item rating scale to measure medication adherence: Further evidence for convergent validity. Journal of the International Association of Physicians in AIDS Care, 8(6), 367–374. https://doi.org/10.1177/1545109709352884
   Google Scholar
• Kalichman, S. C., Amaral, C. M., White, D., Swetsze, C., Kalichman, M. O., Cherry, C., & Eaton, L. (2012). Alcohol and adherence to antiretroviral medications: interactive toxicity beliefs among people living with HIV. Journal of the Association of Nurses in AIDS Care, 23(6), 511–520. https://doi.org/10.1016/j.jana.2011.11.005
   Google Scholar
• Kalichman, S. C., Grebler, T., Amaral, C. M., McNerey, M., White, D., Kalichman, M. O., Cherry, C., & Eaton, L. (2013). Intentional non-adherence to medications among HIV positive alcohol drinkers: Prospective study of interactive toxicity beliefs. Journal of General Internal Medicine, 28(3), 399–405. https://doi.org/10.1007/s11606-012-2231-1
   PubMed Web of Science ®Google Scholar
• Kalichman, S. C., Kalichman, M. O., Cherry, C., Hoyt, G., Washington, C., Grebler, T., Welles, B., & Merely, C. (2015). Intentional medication nonadherence because of interactive toxicity beliefs among HIV-positive active drug users. JAIDS Journal of Acquired Immune Deficiency Syndromes, 70(5), 503–509. https://doi.org/10.1097/QAI.0000000000000776
   PubMed Web of Science ®Google Scholar
• Lehane, E., & McCarthy, G. (2007a). An examination of the intentional and unintentional aspects of medication non-adherence in patients diagnosed with hypertension. Journal of Clinical Nursing, 16(4), 698–706. https://doi.org/10.1111/j.1365-2702.2005.01538.x
   PubMed Web of Science ®Google Scholar
• Lehane, E., & McCarthy, G. (2007b). Intentional and unintentional medication non-adherence: A comprehensive framework for clinical research and practice? A discussion paper. International Journal of Nursing Studies, 44(8), 1468–1477. https://doi.org/10.1016/j.ijnurstu.2006.07.010
   PubMed Web of Science ®Google Scholar
• Neumann, M. S., Plant, A., Margolis, A. D., & Flores, S. A. (2020). Observed reactions among patients attending HIV treatment facilities to a brief video intervention on treatment initiation and adherence. AIDS Care, 32(5), 656–665. https://doi.org/10.1080/09540121.2019.1695729
   PubMed Web of Science ®Google Scholar
• Pau, A. K., & George, J. M. (2014). Antiretroviral therapy: Current drugs. Infectious Disease Clinics of North America, 28(3), 371–402. https://doi.org/10.1016/j.idc.2014.06.001
   PubMed Web of Science ®Google Scholar
• Pellowski, J. A., Price, D. M., Harrison, A. D., Tuthill, E. L., Myer, L., Operario, D., & Lurie, M. N. (2019). A Systematic Review and Meta-analysis of Antiretroviral Therapy (ART) Adherence Interventions for Women Living with HIV. AIDS and Behavior, 23(8), 1998–2013. https://doi.org/10.1007/s10461-018-2341-9
   PubMed Web of Science ®Google Scholar
• Petrie, K. J., & Rief, W. (2019). Psychobiological Mechanisms of Placebo and Nocebo Effects: Pathways to Improve Treatments and Reduce Side Effects. Annual Review of Psychology, 70(1), 599–625. https://doi.org/10.1146/annurev-psych-010418-102907
   PubMed Web of Science ®Google Scholar
• Scharer, J., Arnold, R., Wald, R., Nichols, J., Medoff, D., Himelhoch, S., & Bennett, M. E. (2020). Personal approach to treatment choices for HIV (PATCH): Randomized controlled trial of a brief motivational enhancement intervention to improve medication adherence in persons with HIV. AIDS and Behavior, 24(6), 1893–1902. https://doi.org/10.1007/s10461-019-02759-3
   PubMed Web of Science ®Google Scholar
• Simoni, J. M., Amico, K. R., Pearson, C. R., & Malow, R. (2008). Strategies for promoting adherence to antiretroviral therapy: A review of the literature. Current Infectious Disease Reports, 10(6), 515–521. https://doi.org/10.1007/s11908-008-0083-y
   PubMedGoogle Scholar
• Simoni, J. M., Pearson, C. R., Pantalone, D. W., Marks, G., & Crepaz, N. (2006). A meta-analytic review of randomized controlled trials [Meta-Analysis. Efficacy of interventions in improving highly active antiretroviral therapy adherence and HIV-1 RNA viral load. J Acquir Immune Defis Syndr, 43(Suppl 1), S23–35.
   Google Scholar
• Soomro, N., Fitzgerald, G., Seeley, J., Schatz, E., Nachega, J. B., & Negin, J. (2019). Comparison of antiretroviral therapy adherence among HIV-Infected older adults with younger adults in Africa: Systematic review and meta-analysis. AIDS and Behavior, 23(2), 445–458. https://doi.org/10.1007/s10461-018-2196-0
   PubMed Web of Science ®Google Scholar
• Svensberg, K., Nordeng, H., Gaffari, S., Faasse, K., Horne, R., & Lupattelli, A. (2019). Perceived sensitivity to medicines: A study among chronic medicine users in Norway. International Journal of Clinical Pharmacy, 41(3), 804–812. https://doi.org/10.1007/s11096-019-00826-2
   PubMed Web of Science ®Google Scholar
• Thorneloe, R. J., Griffiths, C. E. M., Emsley, R., Ashcroft, D. M., & Cordingley, L. (2018). British association of dermatologists biologic interventions, R., & Psoriasis stratification to optimise relevant therapy study, G. (2018). Intentional and unintentional medication non-adherence in psoriasis: The role of patients’ medication beliefs and habit strength. J Invest Dermatol, 138(4), 785–794. https://doi.org/10.1016/j.jid.2017.11.015
   PubMed Web of Science ®Google Scholar
• Velligan, D. I., Sajatovic, M., Hatch, A., Kramata, P., & Docherty, J. P. (2017). Why do psychiatric patients stop antipsychotic medication? A systematic review of reasons for nonadherence to medication in patients with serious mental illness. Patient Prefer Adherence, 11, 449–468. https://doi.org/10.2147/PPA.S124658
   PubMed Web of Science ®Google Scholar
• Webster, R. K., Weinman, J., & Rubin, G. J. (2017). How does the side-effect information in patient information leaflets influence peoples’ side-effect expectations? A cross-sectional national survey of 18- to 65-year-olds in England. Health Expectations, 20(6), 1411–1420. https://doi.org/10.1111/hex.12584
   PubMed Web of Science ®Google Scholar
• Weinman, J., Graham, S., Canfield, M., Kleinstauber, M., Perera, A. I., Dalbeth, N., & Petrie, K. J. (2018). The Intentional Non-Adherence Scale (INAS): Initial development and validation. Journal of Psychosomatic Research, (115), 110–116. https://doi.org/10.1016/j.jpsychores.2018.10.010
   PubMed Web of Science ®Google Scholar
• Zhou, G., Li, X., Qiao, S., Shen, Z., & Zhou, Y. (2018). Influence of side effects on ART Adherence Among PLWH in China: The moderator role of ART-related knowledge. AIDS and Behavior, 22(3), 961–970. https://doi.org/10.1007/s10461-017-1791-9
   PubMed Web of Science ®Google Scholar