Identity disclosure between donor families and organ transplant recipients: an integrative review of the international literature

References

• Albert, P. (1998). Direct contact between donor families and recipients: Crisis or consolation? Journal of Transplant Coordination, 8(3), 139–144. https://doi.org/10.7182/prtr.1.8.3.076j751573j23868
   PubMedGoogle Scholar
• Annema, C., Den Dries, S. O., Ranchor, A. V., Porte, R. J., & Porte, R. J. (2015). The opinion of Dutch liver transplant recipients about anonymity of organ donation and their wish to get in touch with the donor’s relatives. Transplantation, 99(4), 879–884. http://doi.org/10.1097/TP.0000000000000394
   PubMed Web of Science ®Google Scholar
• Australian Institute of Health and Welfare. (2019). Adoptions Australia 2019-19. Child Welfare series no71, Cat. No CWS 71. https://www.aihw.gov.au/reports/adoptions/adoptions-australia-2018-19/summary
   Google Scholar
• Azuri, P., & Tabak, N. (2011). The transplant team’s role with regard to establishing contact between an organ recipient and the family of a cadaver organ donor. Journal of Clinical Nursing, 21(5), 888–896. https://doi.org/10.1111/j.1365-2702.2011.03822.x
   PubMed Web of Science ®Google Scholar
• Azuri, P., Tabak, N., & Kreitler, S. (2013). Contact between deceased donors’ families and organ recipients. Progress In Transplantation, 23(4), 342–349. http://dx.doi.org/10.7182/pit2013708
   PubMed Web of Science ®Google Scholar
• Bartucci, R., & Seller, M. (1986). Donor family responses to kidney recipient letters of thanks. Transplantation Proceedings, 18(3), 401–405.
   Web of Science ®Google Scholar
• Bartucci, R., Seller, M., Sutton, R., Chapman, J. R., Carter, N. P., Dunnill, M. S., & Morris, P. J. (1988). A study of donor families’ reactions to letters from organ recipients. Transplantation Proceedings, 20(5), 690–786.
   PubMed Web of Science ®Google Scholar
• Bolt, S. H., Witjes, M., & Van Den Ende, B. (2018). Restless feelings: Desiring direct contact after postmortem organ donation. OMEGA-Journal of Death and Dying, 82(1), 42–62. https://doi.org/10.1177/0030222818800207
   PubMed Web of Science ®Google Scholar
• Bouras, A. F., Bouras, A. F., Genty, C., & Dadda, M., Dadda, M., Guilbert, V., Guilbert, V., Genty, C., Dadda, M., Dadda, M., Guilbert, V., & Guilbert, V. (2015). Organ procurement and social networks: The end of confidentiality? Science and Engineering Ethics, 21(4), 837–838. https://doi.org/10.1007/s11948-014-9577-1
   PubMed Web of Science ®Google Scholar
• Boyle, C. (2017). ‘What is the impact of birth family contact on children in adoption and long‐term foster care?’ A systematic review. Child & Family Social Work, 22(S1), 22–33. https://doi.org/10.1111/cfs.12236
   Google Scholar
• Bunzel, B., Wollenek, G., & Grundbock, A. (1992). Living with a donor heart: Feelings and attitudes of patients toward the donor and the donor organ. Journal of Heart and Lung Transplantation, 11(6) , 1151–1155.
   PubMed Web of Science ®Google Scholar
• Chang, A., Anderson, E. E., Turner, H. T., Shoham, D., Hou, S. H., & Grams, M. (2013). Identifying potential kidney donors using social networking web sites. Clinical Transplantation, 27(3), E320–E326. https://doi.org/10.1111/ctr.12122
   PubMed Web of Science ®Google Scholar
• Christopherson, L. K., & Lunde, D. T. (1971). Heart transplant donors and their families. Seminars in Psychiatry, 3(1), 26–35.
   PubMedGoogle Scholar
• Clayville, L. (1999). When donor families and organ recipients meet. Journal Of Transplant Coordination, 9(2), 81–86. https://doi.org/10.7182/prtr.1.9.2.0046q06v05v6652v
   PubMedGoogle Scholar
• Critical Appraisal Skills Programme Qualitative Studies Checklist. (2018). https://casp-uk.net
   Google Scholar
• Dicks, S., Northam, H., Van Haren, F., & Boer, D. P. (2018). An exploration of the relationship between families of deceased organ donors and transplant recipients: A systematic review and qualitative synthesis. Health Psychology Open, 5(1), 1–25. https://doi.org/10.1177/2055102918782172
   Web of Science ®Google Scholar
• Dobbels, F., Van Gelder, F., Remans, K., Verkinderen, A., Peeters, J., Pirenne, J., & Nevens, F. (2009). Should the law on anonymity of organ donation be changed? The perception of liver transplant recipients. Clinical Transplantation, 23(3), 375–381. 2009. https://doi.org/10.1111/j.1399-0012.2009.00955.x
   PubMed Web of Science ®Google Scholar
• Downes, M. J., Brennan, M. L., Williams, H. C., & Dean, R. S. (2016). Development of a critical appraisal tool to assess the quality of cross-sectional studies (AXIS). BMJ Open, 6(12), e011458. https://doi.org/10.1136/bmjopen-2016-011458
   PubMed Web of Science ®Google Scholar
• Evans, D., & Pearson, A. (2001). Systematic reviews: gatekeepers of nursing knowledge. Journal Of Clinical Nursing, 10, 593–599. https://doi.org/10.1046/j.1365-2702.2001.00517.x
   PubMed Web of Science ®Google Scholar
• Gewarges, M., Poole, J., De Luca, E., Shildrick, M., Abbey, S., Mauthner, O., & Ross, H. (2015). Canadian society of transplantation members’ views on anonymity in organ donation and transplantation. Transplantation Proceedings, 47(10), 2799–2804. https://doi.org/10.1016/j.transproceed.2015.09.042
   PubMed Web of Science ®Google Scholar
• Glaser, B. G. (1978). Theoretical sensitivity: Advances in the methodology of grounded theory. Sociology Press.
   Google Scholar
• Henderson, M. L., Adler, J. T., Van Pilsum Rasmussen, S. E., Thomas, A. G., Herron, P. D., Waldram, M. M., Ruck, J. M., Purnell, T. S., Dibrito, S. R., Holscher, C. M., Haugen, C. E., Alimi, Y., Konel, J. M., Eno, A. K., Garonzik Wang, J. M., Gordon, E. J., Lentine, K. L., Schaffer, R. L., Cameron, A. M., & Segev, D. L. (2019). How should social media be used in transplantation? A survey of the american society of transplant surgeons. Transplantation, 103(3), 573–580. https://doi.org/10.1097/TP.0000000000002243
   PubMed Web of Science ®Google Scholar
• Henderson, M. L., Clayville, K. A., Fisher, J. S., Kuntz, K. K., Mysel, H., Purnell, T. S., Schaffer, R. L., Sherman, L. A., Willock, E. P., & Gordon, E. J. (2017). Social media and organ donation: Ethically navigating the next frontier. American Journal of Transplantation, 17(11), 2803–2809. https://doi.org/10.1111/ajt.14444
   PubMed Web of Science ®Google Scholar
• Kaba, E. (2001). The life after heart transplantation for American recipients. ICUs and Nursing Web Journal, (8), 1108–7366.
   Google Scholar
• Kelley, K., Clark, B., Brown, V., & Sitzia, J. (2003). Good practice in the conduct and reporting of survey research. International Journal for Quality in Health Care, 15(3), 261–266. https://doi.org/10.1093/intqhc/mzg031
   PubMed Web of Science ®Google Scholar
• Lewino, D., Stocks, L., & Cole, G. (1996). Interaction of organ donor families and recipients. Journal of Transplant Coordination, 6(4), 191–195. https://doi.org/10.7182/prtr.1.6.4.u776852611u0286v
   PubMedGoogle Scholar
• Mackay, T. (2014). Thank you - how hard is it? Transplant Journal of Australasia, 23(1), 21–24.
   Google Scholar
• Martin, D. (2017). Report on the community consultative forum: contact between donor families and transplant recipients. The Australian Organ and Tissue Authority. https://donatelife.gov.au/resources/donor-families/contact-between-donor-families-and-recipients
   Google Scholar
• Mehakovic, E., & Bell, A. (2015). Supporting transplant recipients’ correspondence to donor families. Transplant Journal of Australasia, 24(2), 26–29.
   Google Scholar
• Ono, V. C., Ramalho, F. S., Rocha, J. N., Martins, A. C. P., Ramalho, L. N. Z., Zucoloto, S., Martinelli, A. L. C., & Castro-E-Silva, O. (2008). Communication between organ donor families and recipients: A definitely controversial subject. Transplantation Proceedings, 40(3), 663–664. https://doi.org/10.1016/j.transproceed.2008.02.033
   PubMed Web of Science ®Google Scholar
• Politoski, G., Coolican, M., & Casey, K. (1996). Perspectives on communication issues among transplant and procurement professionals, transplant recipients, and donor families. Journal Of Transplant Coordination, 6(2), 78–83. https://doi.org/10.7182/prtr.1.6.2.g487230152800076
   PubMedGoogle Scholar
• Poole, J. M., Shildrick, M., De Luca, E., Abbey, S. E., Mauthner, O. E., Mckeever, P. D., & Ross, H. J. (2011). The obligation to say ‘Thank you’: Heart transplant recipients’ experience of writing to the donor family. American Journal Of Transplantation, 11(3), 619–622. https://doi.org/10.1111/j.1600-6143.2010.03419.x
   PubMed Web of Science ®Google Scholar
• Savariz, D. T., Rovelli, M. A., & Schweizer, R. T. (1990). Donor family surveys provide useful information for organ procurement. Transplantation Proceedings, 22(2), 316–317.
   PubMed Web of Science ®Google Scholar
• Tricco, A. C., Lillie, E., Zarin, W., O’brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., Hempel, S., Akl, E. A., Chang, C., Mcgowan, J., Stewart, L., Hartling, L., Aldcroft, A., Wilson, M. G., Garritty, C., … Straus, S. E. (2018). PRISMA extension for scoping reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine, 169(7), 467. https://doi.org/10.7326/M18-0850
   PubMed Web of Science ®Google Scholar
• Whittemore, R., & Knafl, K. (2005). The integrative review: Updated methodology. Journal of Advanced Nursing, 52(5), 546–553. https://doi.org/10.1111/j.1365-2648.2005.03621.x
   PubMed Web of Science ®Google Scholar
• World Health Organisation. (2010). Transplantation of human cells, tissues and organs. Retrieved 1 March 2021. from https://www.who.int/transplantation/en
   Google Scholar