200
Views
1
CrossRef citations to date
0
Altmetric
Research Article

Resilience as a Moderator in the Relationship between Disability Related Stress and Community Participation in Individuals with Multiple Sclerosis

ORCID Icon, &
Pages 2745-2755 | Received 16 Sep 2021, Accepted 27 Apr 2022, Published online: 23 May 2022

References

  • Aiken, L. S., & West, S. G. (1991). Multiple regression: Testing and interpreting interactions. Sage.
  • Alriksson-Schmidt, A. I., Wallander, J., & Biasini, F. (2007). Quality of life and resilience in adolescents with a mobility disability. Journal of Pediatric Psychology, 32(3), 370–379. https://doi.org/10.1093/jpepsy/jsl002
  • Alschuler, K. N., Arewasikporn, A., Nelson, I. K., Molton, I. R., & Ehde, D. M. (2018). Promoting resilience in individuals aging with multiple sclerosis: Results from a pilot randomized controlled trial. Rehabilitation Psychology, 63(3), 338–348. https://doi.org/10.1037/rep0000223
  • Black, R., & Dorstyn, D. (2015). A biopsychosocial model of resilience for multiple sclerosis. Journal of Health Psychology, 20(11), 1434–1444. https://doi.org/10.1177/1359105313512879
  • Bonanno, G. A. (2004). Loss, trauma, and human resilience: Have we underestimated the human capacity to thrive after extremely aversive events? American Psychologist, 59(1), 20–28. https://doi.org/10.1037/0003-066X.59.1.20
  • Brantley, P. J., Dutton, G. R., Grothe, K. B., Bodenlos, J. S., Howe, J., & Jones, G. N. (2005). Minor life events as predictors of medical utilization in low income African American family practice patients. Journal of Behavioral Medicine, 28(4), 395–401. https://doi.org/10.1007/s10865-005-9001-z
  • Burton, N. W., Pakenham, K. I., & Brown, W. J. (2009). Evaluating the effectiveness of psychosocial resilience training for heart health, and the added value of promoting physical activity: A cluster randomized trial of the READY program. BMC Public Health, 9(1), 1–9. https://doi.org/10.1186/1471-2458-9-427
  • Cella, D., Lai, J. S., Nowinski, C. J., Victorson, D., Peterman, A., Miller, D., Bethoux, F., Heinemann, A., Rubin, S., Cavazos, J. E., Reder, A. T., Sufit, R., Simuni, T., Holmes, G. L., Siderowf, A., Wojna, V., Bode, R., McKinney, N., Podrabsky, T., … Moy, C. (2012). Neuro-QOL: Brief measures of health-related quality of life for clinical research in neurology. Neurology, 78(23), 1860–1867. https://doi.org/10.1212/WNL.0b013e318258f744
  • Chang, F. H., Coster, W. J., & Helfrich, C. A. (2013). Community participation measures for people with disabilities: A systematic review of content from an international classification of functioning, disability and health perspective. Archives of Physical Medicine and Rehabilitation, 94(4), 771–781. https://doi.org/10.1016/j.apmr.2012.10.031
  • Dorstyn, D., Black, R., Mpofu, E., & Kneebone, I. (2017). Utilizing the ICF to understand depressive symptomology in multiple sclerosis: An exploratory systematic review. Rehabilitation Psychology, 62(2), 143–164. https://doi.org/10.1037/rep0000125
  • Farber, R. S., Kern, M. L., & Brusilovsky, E. (2015). Integrating the ICF with positive psychology: Factors predicting role participation for mothers with multiple sclerosis. Rehabilitation Psychology, 60(2), 169–178. https://doi.org/10.1037/rep0000023
  • Fox-Wasylyshyn, S. M., & El-Masri, M. M. (2005). Handling missing data in self-report measures. Research in Nursing & Health, 28(6), 488–495. https://doi.org/10.1002/nur.20100
  • Giovannetti, A. M., Solari, A., & Pakenham, K. I. (2021). Effectiveness of a group resilience intervention for people with multiple sclerosis delivered via frontline services. Disability and Rehabilitation, 1–11. https://doi.org/10.1080/09638288.2021.1960441
  • Goverover, Y., Chen, M. H., Botticello, A., Voelbel, G. T., Kim, G., DeLuca, J., & Genova, H. M. (2022). Relationships between changes in daily occupations and health-related quality of life in persons with multiple sclerosis during the COVID-19 pandemic. Multiple Sclerosis and Related Disorders, 57, 103339. https://doi.org/10.1016/j.msard.2021.103339
  • Green, R., Cutter, G., Friendly, M., & Kister, I. (2017). Which symptoms contribute the most to patients’ perception of health in multiple sclerosis? Multiple Sclerosis Journal - Experimental, Translational and Clinical, 3(3), 205521731772830. https://doi.org/10.1177/2055217317728301
  • Halstead, E. J., Leavitt, V. M., Fiore, D., & Mueser, K. T. (2020). A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners. Multiple Sclerosis Journal–Experimental, Translational and Clinical, 6(3), 1–11. https://doi.org/10.1177/2055217320941250
  • Hanna, M., & Strober, L. B. (2020). Anxiety and depression in multiple sclerosis (MS): Antecedents, consequences, and differential impact on well-being and quality of life. Multiple Sclerosis and Related Disorders, 44, 102261. https://doi.org/10.1016/j.msard.2020.102261
  • Hemmingsson, H., & Jonsson, H. (2005). An occupational perspective on the concept of participation in the international classification of functioning, disability and health —some critical remarks. The American Journal of Occupational Therapy, 59(5), 569–576. https://doi.org/10.5014/ajot.59.5.569
  • Hersch, C. M., & Fox, R. J. (2014). Disease management: Multiple sclerosis. Cleveland Clinic Center for Continuing Education. http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/neurology/multiple_sclerosis/
  • Joyce, S., Shand, F., Tighe, J., Laurent, S. J., Bryant, R. A., & Harvey, S. B. (2018). Road to resilience: A systematic review and meta-analysis of resilience training programmes and interventions. BMJ Open, 8(6), e017858. https://doi.org/10.1136/bmjopen-2017-017858
  • Kasser, S. L., & Zia, A. (2020). Mediating role of resilience on quality of life in individuals with multiple sclerosis: A structural equation modeling approach. Archives of Physical Medicine and Rehabilitation, 101(7), 1152–1161. https://doi.org/10.1016/j.apmr.2020.02.010
  • Katz, P., Morris, A., Gregorich, S., Yazdany, J., Eisner, M., Yelin, E., & Blanc, P. (2009). Valued life activity disability played a significant role in self-rated health among adults with chronic health conditions. Journal of Clinical Epidemiology, 62(2), 158–166. https://doi.org/10.1016/j.jclinepi.2008.06.002
  • Lee, B., & Chan, F. (2022). The Development and Psychometric Validation of the Brief Disability-Related Stress Scale in Individuals With Multiple Sclerosis. Rehabilitation Counseling Bulletin. https://doi.org/10.1177/00343552221087173
  • Lee, B. (2022). A serial mediation model of gratitude on life satisfaction in people with multiple sclerosis: The intermediary role of perceived stress and mental health symptoms. Multiple Sclerosis and Related Disorders, 58, 103421. https://doi.org/10.1016/j.msard.2021.103421
  • National Institute of Neurological Disorders and Stroke [NINDS]. (2015). User manual for the quality of life in neurological disorders (Neuro-QoL) measures version 2.0. www.neuroqol.org
  • Nelson, L. M., Wallin, M. T., Marrie, R. A., Culpepper, W. J., Langer-Gould, A., Campbell, J., Buka, S., Tremlett, H., Cutter, G., Kaye, W., Wagner, L., & Larocca, N. G., & for the United States Multiple Sclerosis Prevalence Workgroup. (2019). A new way to estimate neurologic disease prevalence in the United States: Illustrated with MS. Neurology, 92(10), 469–480. https://doi.org/10.1212/WNL.0000000000007044
  • Ohlmeier, C., Gothe, H., Haas, J., Osowski, U., Weinhold, C., Blauwitz, S., … Stangel, M. (2020). Epidemiology, characteristics and treatment of patients with relapsing remitting multiple sclerosis and incidence of high disease activity: Real world evidence based on German claims data. PLoS One, 15(5), e0231846. https://doi.org/10.1371/journal.pone.0231846
  • Pfaller, J., Chan, F., Iwanaga, K., Wu, J. R., Rumrill, S., Chen, X., andBerven, N. L. (2020). The international classification of functioning, disability, and health (ICF) as a community participation model for people with multiple sclerosis: A hierarchical regression analysis. The Australian Journal of Rehabilitation Counselling, 26(2), 55–72. https://doi.org/10.1017/jrc.2020.15
  • Pham, T., Jetté, N., Bulloch, A. G., Burton, J. M., Wiebe, S., & Patten, S. B. (2018). The prevalence of anxiety and associated factors in persons with multiple sclerosis. Multiple Sclerosis and Related Disorders, 19, 35–39. https://doi.org/10.1016/j.msard.2017.11.003
  • Ploughman, M., Austin, M. W., Murdoch, M., Kearney, A., Fisk, J. D., Godwin, M., & Stefanelli, M. (2012). Factors influencing healthy aging with multiple sclerosis: A qualitative study. Disability and Rehabilitation, 34(1), 26–33. https://doi.org/10.3109/09638288.2011.585212
  • Ploughman, M., Downer, M. B., Pretty, R. W., Wallack, E. M., Amirkhanian, S., & Kirkland, M. C. (2020). The impact of resilience on healthy aging with multiple sclerosis. Quality of Life Research, 29(10), 2769–2779. https://doi.org/10.1007/s11136-020-02521-6
  • Rasch, E. K., Hochberg, M. C., Magder, L., Magaziner, J., & Altman, B. M. (2008). Health of community-dwelling adults with mobility limitations in the United States: Prevalent health conditions. Part I. Archives of Physical Medicine and Rehabilitation, 89(2), 210–218. https://doi.org/10.1016/j.apmr.2007.08.146
  • RStudio Team. (2020). RStudio: Integrated development environment for R. RStudio, PBC. http://www.rstudio.com/
  • Schwartz, C. E., Foley, F. W., Rao, S. M., Bernardin, L. J., Lee, H., & Genderson, M. W. (1999). Stress and course of disease in multiple sclerosis. Behavioral Medicine, 25(3), 110–116. https://doi.org/10.1080/08964289909596740
  • Silverman, A. M., Molton, I. R., Alschuler, K. N., Ehde, D. M., & Jensen, M. P. (2015). Resilience predicts functional outcomes in people aging with disability: A longitudinal investigation. Archives of Physical Medicine and Rehabilitation, 96(7), 1262–1268. https://doi.org/10.1016/j.apmr.2015.02.023
  • Silverman, A. M., Verrall, A. M., Alschuler, K. N., Smith, A. E., & Ehde, D. M. (2017). Bouncing back again, and again: A qualitative study of resilience in people with multiple sclerosis. Disability and Rehabilitation, 39(1), 14–22. https://doi.org/10.3109/09638288.2016.1138556
  • Smith, B. W., Dalen, J., Wiggins, K., Tooley, E., Christopher, P., & Bernard, J. (2008). The brief resilience scale: Assessing the ability to bounce back. International Journal of Behavioral Medicine, 15(3), 194–200. https://doi.org/10.1080/10705500802222972
  • Tan-Kristanto, S., & Kiropoulos, L. A. (2015). Resilience, self-efficacy, coping styles and depressive and anxiety symptoms in those newly diagnosed with multiple sclerosis. Psychology, Health & Medicine, 20(6), 635–645. https://doi.org/10.1080/13548506.2014.999810
  • Wallin, M. T., Culpepper, W. J., Campbell, J. D., Nelson, L. M., Langer-Gould, A., Marrie, R. A., Cutter, G. R., Kaye, W. E., Wagner, L., Tremlett, H., Buka, S. L., Dilokthornsakul, P., Topol, B., Chen, L. H., & LaRocca, N. G. (2019). The prevalence of MS in the United States: A population-based estimate using health claims data. Neurology, 92(10), e1029–e1040. https://doi.org/10.1212/WNL.0000000000007035
  • Wardlaw, C., Hicks, A. J., Sherer, M., & Ponsford, J. L. (2018). Psychological resilience is associated with participation outcomes following mild to severe traumatic brain injury. Frontiers in Neurology, 9, 1–10. https://doi.org/10.3389/fneur.2018.00563
  • Wilkie, R., Peat, G., Thomas, E., & Croft, P. (2007). Factors associated with participation restriction in community-dwelling adults aged 50 years and over. Quality of Life Research, 16(7), 1147–1156. https://doi.org/10.1007/s11136-007-9221-5
  • World Health Organization [WHO]. (2001). International classification of functioning, disability and health. Geneva: World Health Organization.
  • Wright, B. A. (1983). Physical disability—A psychosocial approach (2nd ed.). Harper and Row.
  • Zajicek, J., Freeman, J., & Porter, B. (2007). Multiple sclerosis care: A practical manual. Oxford University Press.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.