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Articles

Understanding and improving communication and decision-making in palliative care for Turkish and Moroccan immigrants: a multiperspective study

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Pages 363-384 | Received 03 Jan 2011, Accepted 25 Nov 2011, Published online: 09 Jan 2012

References

  • Abbott , A. 2004 . Methods of discovery. Heuristics for the social sciences , New York , London : W.W. Norton .
  • Balboni , T.A. 2007 . Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life . Journal of Clinical Oncology , 26 : 555 – 560 .
  • Bossart , R. 2003 . ‘In the city, everybody only cares for himself’: social relations and illness in Abidjan, Côte d'Ivoire . Anthropology and Medicine , 10 ( 3 ) : 343 – 359 .
  • Bot , H. 2005 . Dialogue interpreting in mental health , Amsterdam/New York : Rodopi Publishers .
  • Braun , U.K. 2007 . Voices of African American, Caucasian and Hispanic surrogates on the burdens of end-of-life decision making . Journal of General Internal Medicine , 23 : 267 – 274 .
  • Brunnhuber , K. 2008 . Putting evidence into practice: Palliative Care , London : BMJ Group .
  • Buiting , H.M. 2008 . A comparison of physicians’ end-of-life decision making for non-western migrants and Dutch natives in the Netherlands . European Journal of Public Health , 18 : 681 – 687 .
  • Bullock , K. 2006 . Promoting advance directives among African Americans: a faith-based model . Journal of Palliative Medicine , 9 : 183 – 195 .
  • Cartwright , C. 2007 . Physician discussions with terminally ill patients: a cross-national comparison . Palliative Medicine , 21 : 295 – 303 .
  • De Boer , A. , Broese van Groenou , M. and Timmermans , J. 2009 . Mantelzorg. Een overzicht van de steun van en aan mantelzorg in 2007 [Informal care. An overview of support for and by informal care] , The Hague : Sociaal en Cultureel Planbureau .
  • De Graaff , F.M. and Francke , A.L. 2003 . Home care for terminally ill Turks and Moroccans and their families in the Netherlands: caregivers’ experiences and factors influencing ease of access and use of services . International Journal of Nursing Studies , 40 : 797 – 905 .
  • De Graaff , F.M. and Francke , A.L. 2009 . Barriers to home care for terminally ill Turkish and Moroccan migrants, perceived by GPs and nurses: a survey . BMC Palliative Care , 8 ( 3 ) : 1 – 9 .
  • De Graaff , F.M. 2010a . ‘Palliative care’: a contradiction in terms? A qualitative study of cancer patients with a Turkish or Moroccan background, their relatives and care providers . BMC Palliative Care , 9 ( 19 ) : 1 – 14 .
  • De Graaff , F.M. 2010b . Communicatie en besluitvorming in de palliatieve zorg voor Turkse en Marokkaanse patiënten met kanker [Communication and decision making in palliative care for Turkish and Moroccan cancer patients] , Amsterdam : University of Amsterdam .
  • Denktas , S. 2009 . Ethnic background and differences in health care use: a national cross-sectional study of native Dutch and immigrant elderly in the Netherlands . International Journal for Equity in Health , 8 : 35 – 43 .
  • Devillé , W.L.J.M. 2006 . “ Perceived health and consultation of GPs among ethnic minorities compared to the general population in the Netherlands ” . In Morbidity, performance and quality in primary care: the Dutch general practice on stage , Edited by: Westert , G.P. , Jabaaij , L. and Schelvis , F.G. 85 – 97 . Oxon : Radcliffe .
  • Elias , N. 1985 . The loneliness of the dying , Oxford : Basil Blackwell .
  • Fox , R. 1980 . The evolution of medical uncertainty . Milbank Memorial Fund Quarterly , 16 ( 4 ) : 1 – 49 .
  • Francke , A.L. and Willems , D.L. 2005 . Terminal patients' awareness of impending death: the impact upon requesting adequate care . Cancer Nursing , 28 : 241 – 247 .
  • Garssen , J. and Van der Meulen , A. , 2008 . Sterftecijfer allochtonen daalt sterk (Mortality rates immigrants decline) Webmagazine CBS 7 januari 2008 . Voorburg/Heerlen: CBS < http://www.nationaalkompas.nl> Gezondheid en ziekte\Sterfte, levensverwachting en DALY's\Sterfte, 23 September 2008 .
  • Gerrits , T. , 2008 . Clinical encounters: dynamics of patient-centred practices in a Dutch fertility clinic . Thesis (PhD) . University of Amsterdam .
  • Glaser , B.G. and Strauss , A.L. 1966 . Awareness of dying , London : Weidenfield and Nicolson .
  • Gutnaram , Y. 2007 . Intercultural palliative care: do we need cultural competence? . International Journal of Palliative Nursing , 13 ( 10 ) : 470 – 477 .
  • Hagerty , R.G. 2005 . Communicating prognosis in cancer care: a systematic review of the literature . Annals of Oncology , 16 : 1005 – 1053 .
  • Hancock , K. 2007 . Truth telling in discussing prognosis in advanced life-limiting illnesses: a systematic review . Palliative Medicine , 21 : 507 – 517 .
  • Hanssen , I. 2004 . An intercultural nursing perspective on autonomy . Nursing Ethics , 11 : 28 – 41 .
  • Hoopman , R. 2009 . Methodological challenges in quality of life research among Turkish and Moroccan ethnic minority cancer patients: translation, recruitment and ethical issues . Ethnicity and Health , 14 ( 3 ) : 237 – 253 .
  • Janzen , J.M. 1978 . The quest for therapy in Lower Zaire , Berkeley : University of California Press .
  • Janzen , J.M. 1987 . Therapy management: concept, reality, process . Medical Anthropology Quarterly , 1 ( 1 ) : 68 – 84 .
  • Kaufman , S.R. , 2005 . And a time to die: How American hospitals shape the end of life . Chicago & London : University of Chicago Press .
  • Lapine , A. 2001 . When cultures clash: physician, patient and family wishes in truth disclosure for dying patients . Journal of Palliative Medicine , 4 : 475 – 480 .
  • Leininger , M. 2002 . Culture care theory: a major contribution to advance transcultural nursing knowledge and practices . Journal of Transcultural Nursing , 13 : 189 – 192 .
  • Nichter , M. 2002 . “ The social relations of therapy management ” . In New horizons in medical anthropology: essays in honour of Charles Leslie , Edited by: Nichter , M. and Lock , M. 81 – 110 . London : Routledge .
  • Parker , S. 2007 . A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information . Journal of Pain and Symptom Management , 34 : 81 – 93 .
  • Phelps , A.C. 2009 . Religious coping and use of intensive life-prolonging care near death in patients with advanced cancer . Journal of American Medical Association , 301 : 1140 – 1147 .
  • Pickett , K. 2010 . Understanding the human condition: a continuing need for research on ethnic identity within social epidemiology . Ethnicity and Health , 15 : 213 – 221 .
  • Reis , R. , 2010 . “ Verschil maken”. Uitdagingen voor een antropologe in public health [“Making a difference”. Challenges for an anthropologist in public health] . Leiden University of Leiden
  • Reis , R. , Van der Geest , S. and Gerrits , T. 2007 . “ Over kwalitatieve analyse bij onderzoek onder ‘anderen’ [On qualitative analysis in the study of ‘others’] ” . In Gezondheids(zorg)onderzoek onder allochtone bevolkingsgroepen. Een praktische introductie [Health (care) research among immigrants. A practical introduction] , Edited by: Foets , M. , Schuster , J. and Stronks , K. 108 – 121 . Amsterdam : Aksant .
  • Seeleman , C. , Essink-Bot M.L. , and Stronks , K. , 2008 . Toegankelijkheid and kwaliteit van de somatische zorg, Literatuurstudie, Programma ‘Etniciteit en gezondheid’ [Accessibility and quality of care, literature study and programme ‘Ethnicity and Health’] . The Hague: ZonMw .
  • Seeleman , C. , Suurmond , J. and Stronks , K. 2009 . Cultural competence: a conceptual framework for teaching and learning . Medical Education , 43 : 229 – 237 .
  • Stronks , K. , Kulu-Glasgow , I. and Agyemang , C. 2009 . The utility of ‘country of birth’ for the classification of ethnic groups in health research The Dutch experience . Ethnicity and Health , 14 ( 3 ) : 255 – 269 .
  • Stronks , K. , Ravelli , A.C.J. and Reijneveld , S.A. 2001 . Immigrants in The Netherlands: equal access for equal needs? . Journal of Epidemiology and Community Health , 55 : 701 – 707 .
  • The , A.M. 2002 . Palliative treatment and communication: experiences in the clinic , Buckingham : Open University Press .
  • Tonkens , E. , Van den Broeke , J. , and Hoijtink , M. , 2009 . Op zoek naar weerkaatst plezier [In search of resonating joy] . Amsterdam : Amsterdam University Press .
  • Uiters , E. 2006 . Use of health care services by ethnic minorities in the Netherlands: do patterns differ? . European Journal of Public Health , 16 : 388 – 393 .
  • Van den Brink , Y. 2003 . Diversity in care values and expressions among Turkish family caregivers and Dutch community nurses in the Netherlands . Journal of Transcultural Nursing , 14 : 146 – 154 .
  • Van Dijk , R. 1998 . “ Culture as excuse. The failures of health care to migrants in The Netherlands ” . In The art of medical anthropology: readings , Edited by: van der Geest , S. and Rienks , A. 243 – 250 . Amsterdam : Het Spinhuis .
  • Vermeulen , E. , 2001 . Een proeve van leven. Praten en beslissen over extreem te vroeg geboren kinderen [A test of life. Talking and deciding over extremely premature babies] . Thesis (PhD) . University of Amsterdam .
  • Vermeulen , E. 2004 . Dealing with doubt: making decisions in a neonatal ward in The Netherlands . Social Science and Medicine , 59 ( 10 ) : 2071 – 2085 .
  • Williams , R. 1999 . Cultural safety – what does it mean for our work practice? . Australian and New Zealand Journal of Public Health , 23 ( 2 ) : 213 – 214 .
  • Worth , A. , et al. , 2009 . Vulnerability and access to care for South Asian Sikh and Muslim patients with life limiting illness in Scotland: prospective longitudinal qualitative study . BMJ , 338, b183
  • Wouters , C. , 1990 . Van minnen en sterven. Informalisering van omgangsvormen rond seks en dood [Loving and dying: from formal to informal manners around sex and death] . Amsterdam : Bert Bakker .

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