Long-term conditions, self-management and systems of support: an exploration of health beliefs and practices within the Sikh community, Birmingham, UK

References

• Afridi, A. 2011. Social Networks: Their Role in Addressing Poverty. York: Joseph Rowntree Foundation.
   Google Scholar
• Anderson, A. S., H. Bush, M. Lean, H. Bradby, R. Williams, and E. Lea. 2005. “Evolution of Atherogenic Diets in South Asian and Italian Women after Migration to a Higher Risk Region.” Journal of Human Nutrition and Dietetics 18: 33–43. doi: 10.1111/j.1365-277X.2004.00584.x
   PubMed Web of Science ®Google Scholar
• Bhopal, R. 2002. Concepts of Epidemiology. Oxford: Oxford University Press.
   Google Scholar
• Bush, H., R. Williams, H. Bradby, A. Anderson, and M. Lean. 1998. “Family Hospitality and Ethnic Tradition among South Asian, Italian and General Population Women in the West of Scotland.” Sociology of Health & Illness 20 (3): 351–380. doi: 10.1111/1467-9566.00106
   Web of Science ®Google Scholar
• Charmaz, K. 1983. “Loss of Self: A Fundamental Form of Suffering in the Chronically Ill.” Sociology of Health and Illness 5: 168–195. doi: 10.1111/1467-9566.ep10491512
   PubMedGoogle Scholar
• Cinnirella, M., and C. Loewenthal. 1999. “Religious and Ethnic Group Influences on Beliefs about Mental Illness: A Qualitative Interview Study.” British Journal of Medical Psychology 72: 505–524. doi: 10.1348/000711299160202
   PubMed Web of Science ®Google Scholar
• Denzin, N. K., and Y. S. Lincoln. 1994. Handbook of Qualitative Research. London: Sage.
   Google Scholar
• Gill, P. S., J. Kai, R. S. Bhopal, and S. Wild. 2007. “Health Care Needs Assessment: Black and Minority-ethnic Groups.” In Health Care Needs Assessment. The Epidemiologically Based Needs Assessment Reviews, Third Series, edited by J. Raftery, A. Stevens, and J. Mant, 227–239. Abingdon: Radcliffe.
   Google Scholar
• Greenhalgh, T. 2001. “Storytelling Should Be Targeted Where It Is Known to Have Greatest Added Value.” Medical Education 35: 818–819. doi: 10.1046/j.1365-2923.2001.01027.x
   PubMed Web of Science ®Google Scholar
• Hipwell, A., A. Turner, and J. Barlow. 2008. “‘We're not Fully Aware of their Cultural Needs’: Tutors’ Experience of Delivering the Expert Patients Programme to South Asian Attendees.” Diversity in Health and Social Care 5: 281–290.
   Google Scholar
• Johnson, M., P. Menzies-Banton, H. Dhillon, V. Subhra, and J. Hough. 2006. “Alcohol Issues and South Asian/African Caribbean Communities: Improving Education, Research and Service development (Final report #28).” London: AERC (Alcohol Education & Research Council). Accessed March 6, 2014. http://www.aerc.org.uk/documents/pdfs/finalReports/AERC_FinalReport_0028(full).pdf
   Google Scholar
• Krause, K., D. Parkin, and G. Alex. 2014. “Turning Therapies: Placing Medical Diversity, Medical Anthropology: Cross-cultural Studies in Health and Illness.” Medical Anthropology 33 (1): 1–5. doi: 10.1080/01459740.2013.829056
   PubMed Web of Science ®Google Scholar
• Lawton, J. 2003. “Lay Experiences of Health and Illness: Past Research and Future Agendas.” Sociology of Health and Illness 25: 23–40. doi: 10.1111/1467-9566.00338
   PubMed Web of Science ®Google Scholar
• Lawton, J., N. Ahmad, L. Hanna, M. Douglas, H. Bains, and N. Hallowell. 2008. “‘We Should Change Ourselves, but we Can't': Accounts of Food and Eating Practices Amongst British Pakistanis and Indians with Type 2 Diabetes.” Ethnicity & Health 13 (4): 305–319. doi: 10.1080/13557850701882910
   PubMed Web of Science ®Google Scholar
• Lawton, J., N. Ahmad, E. Peel, and N. Hallowell. 2007. “Contextualising Accounts of Illness: Notions of Responsibility and Blame in White and South Asian Respondents’ Accounts of Diabetes Causation.” Sociology of Health and Illness 29 (6): 891–906. doi: 10.1111/j.1467-9566.2007.01036.x
   PubMed Web of Science ®Google Scholar
• Marin, A., and B. Wellman. 2011. “Social Network Analysis: An Introduction.” In The Sage Handbook of Social Network Analysis, edited by P. J. Carrington and J. Scott, 11–25. London: Sage.
   Google Scholar
• Nazroo, J. Y. 1997. The Health of Britain's Ethnic Minorities: Findings from a National Survey. London: Policy Studies Institute.
   Google Scholar
• Nazroo, J. Y. 1998. “Genetic, Cultural or Socio-Economic Vulnerability? Explaining Ethnic Inequalities in Health.” Sociology of Health & Illness 20 (5): 710–730. doi: 10.1111/1467-9566.00126
   Web of Science ®Google Scholar
• Nye, M. 2007. “The Challenges of Multiculturalism.” Culture and Religion: An Interdisciplinary Journal 8 (2): 109–123. doi: 10.1080/14755610701458915
   Google Scholar
• Orford, J., M. Johnson, and B. Purser. 2004. “Drinking in Second Generation Black and Asian Communities in the English Midlands.” Addiction Research and Theory 12 (1): 11–30. doi: 10.1080/1606635021000059493
   Web of Science ®Google Scholar
• ONS (Office for National Statistics). 2011. “ Census: Standard Area Statistics (England and Wales).” ESRC/JISC Census Programme, 1 Census Dissemination Unit, Mimas. Accessed September 10, 2012. http://www.statistics.gov.uk/hub/index.html.
   Google Scholar
• Patel, N., H. Eborall, K. Khunti, M. Davies, and M. A. Stone. 2011. “Disclosure of Type 1 Diabetes Status: A Qualitative Study in a Mixed South Asian Population in Central England.” Diversity in Health & Care 8 (3): 217–223.
   Google Scholar
• Phillimore, J. 2011. “Approaches to Health Provision in the Age of Superdiversity: Accessing the NHS in Britain's Most Diverse City.” Critical Social Policy 31 (5): 5–29. doi: 10.1177/0261018310385437
   Web of Science ®Google Scholar
• Putnam, R. D. 2000. Bowling Alone: The Collapse and Revival of American Community. New York: Simon & Schuster.
   Google Scholar
• Redwood, S., N. Gale, and S Greenfield. 2012. “‘You Give Us Rangoli, We Give You Talk’: Using an art-Based Activity to Elicit Data from a Seldom Heard Group.” BMC Medical Research Methodology 12 (7): 7. doi: 10.1186/1471-2288-12-7
   PubMed Web of Science ®Google Scholar
• Rhodes, S. D., K. L. Foley, C. S. Zometa, and F. R. Bloom. 2007. “Lay Health Advisor Interventions Among Hispanics/Latinos: A Qualitative Systematic Review.” American Journal of Preventive Medicine 33: 418–427. doi: 10.1016/j.amepre.2007.07.023
   PubMed Web of Science ®Google Scholar
• Rogers, A., I. Vassilev, C. Sanders, S. Kirk, C. Chew-Graham, A. Kennedy, J. Protheroe, et al. 2011. “Social Networks, Work and Network-based Resources for the Management of Long-term Conditions: A Framework and Study Protocol for Developing Self-care Support.” Implementation Science 6 (1): 56. doi: 10.1186/1748-5908-6-56
   Web of Science ®Google Scholar
• Rosland, A., M. Heisler, H. Choi, M. J. Silveira, and J. D. Piette. 2010. “Family Influences on Self-Management among Functionally Independent Adults with Diabetes or Heart Failure: Do Family Members Hinder as Much as They Help?” Chronic Illness 6 (1): 22–33. doi: 10.1177/1742395309354608
   PubMedGoogle Scholar
• Saldana, J. 2009. The Coding Manual for Qualitative Researcher. London: Sage.
   Google Scholar
• Schulz, A. J., and L. Mullings, eds. 2006. Gender, Race, Class, and Health: Intersectional Approaches. Chichester: John Wiley distributor.
   Google Scholar
• Sidhu, M. S., N. K. Gale, P. Gill, M. Marshall, and K. Jolly. 2015. “A Critique of the Design, Implementation, and Delivery of a Culturally-tailored Self-Management Education Intervention: A Qualitative Evaluation.” BMC Health Services Research 15 (54): 11.
   PubMed Web of Science ®Google Scholar
• Singh, H., M. Cinnirella, and C Bradley. 2012. “Support Systems for and Barriers to Diabetes Management in South Asians and Whites in the UK: Qualitative Study of Patients’ Perspectives.” BMJ Open 2 (6): e001459. doi: 10.1136/bmjopen-2012-001459
   Google Scholar
• Solomos, J. 1998. “Social Policy and Social Movements: ‘Race’, Racism and Social Policies.” In Developments in British Social Policy, edited by N. Ellison and C. Pierson, 205–217. Basingstoke: Palgrave.
   Google Scholar
• South East Public Health Observatory. 2012. “ Cardiovascular Disease Network Health Profile.” Birmingham, Sandwell & Solihull, Public Health England. Accessed March 4, 2013. http://www.sepho.org.uk/NationalCVD/Archive/2012/docs/N04_CVD%20Profile.pdf.
   Google Scholar
• Stewart, M. 2001. “Towards a Global Definition of Patient Centred Care.” BMJ 322: 444–445. doi: 10.1136/bmj.322.7284.444
   PubMed Web of Science ®Google Scholar
• Stone, M., N. Patel, S. Amin, H. Daly, M. Carey, K. Khunti, M. Davies, and N. Dogra. 2013. “Developing and Initially Evaluating Two Training Modules for Healthcare Providers, Designed to Enhance Cultural Diversity Awareness and Cultural Competence in Diabetes.” Diversity and Equality in Health and Care 10: 177–184.
   Google Scholar
• Vassilev, I., A. Rogers, C. Sandesr, A. Kennedy, C. Blickem, J. Protheroe, P. Bower, S. Kirk, C. Chew-Graham, and R Morris. 2011. “Social Networks, Social Capital and Chronic Illness Self-Management: A Realist Review.” Chronic Illness 7 (1): 60–86. doi: 10.1177/1742395310383338
   PubMedGoogle Scholar
• Vertovec, S. 1999. “Conceiving and Researching Transnationalism.” Ethnic and Racial Studies 22 (2): 447–462. doi: 10.1080/014198799329558
   Web of Science ®Google Scholar
• Vertovec, S. 2007. “Super-diversity and Its Implications.” Ethnic and Racial Studies 30 (6): 1024–1054. doi: 10.1080/01419870701599465
   Web of Science ®Google Scholar
• Viruell-Fuentes, E. A., P. Y. Miranda, and S. Abdulrahim. 2012. “More than Culture: Structural Racism, Intersectionality Theory, and Immigrant Health.” Social Science & Medicine 75 (12): 2099–2106. doi: 10.1016/j.socscimed.2011.12.037
   PubMed Web of Science ®Google Scholar
• Williams, S. J. 2000. “Chronic Illness as Biographical Disruption or Biographical Disruption as Chronic Illness? Reflections on a Core Concept.” Sociology of Health and Illness 22: 40–67. doi: 10.1111/1467-9566.00191
   Web of Science ®Google Scholar
• Yusuf, S., S. Reddy, S. Ounpuu, and S. Anand. 2001. “Global Burden of Cardiovascular Diseases – Part II: Variations in Cardiovascular Disease by Specific Ethnic Groups and Geographic Regions and Prevention Strategies.” Circulation 104 (23): 2855–2864. doi: 10.1161/hc4701.099488
   PubMed Web of Science ®Google Scholar
• Zeh, P., H. Sandhu, A. M. Cannaby, and J. Sturt. 2014. “Cultural Barriers Impeding Ethnic Minority Groups from Accessing Effective Diabetes Care Services: A Systematic Review of Observation Studies.” Diversity and Equality in Health and Care 11: 9–33.
   Google Scholar