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Short Reports

Young people with cystic fibrosis' concerns for their future: When and how should concerns be addressed, and by whom?

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Pages 436-438 | Published online: 06 Jul 2009

References

  • Dodge J. A., Lewis P. A., Stanton M., Wilsher J. Cystic fibrosis mortality and survival in the UK: 1947 – 2003. European Respiratory Journal 2007; 29: 522–526
  • Gee L., Abbott J., Conway S., Etherington C., Webb A. Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis. Thorax 2000; 55: 946–954
  • Lowton K. Relatives' experiences of care given to young people who have died from cystic fibrosis. Final report to The Cicely Saunders Foundation. King's College London. 2005
  • Lowton K., Mathes L., Wyatt H., Luce P., While A., Carmel C. Evaluation of transition services for young people with cystic fibrosis in Southeast London. Journal of Interprofessional Care 2005; 19: 408–409
  • Oxley H., Webb A. How a clinical psychologist manages the problems of adults with cystic fibrosis. Journal of the Royal Society of Medicine 2005; 98(s45)37–46
  • UK Cystic Fibrosis Database & CF Trust. UK Cystic Fibrosis Database, Annual Data Report 2004. University of Dundee and CF Trust, Dundee 2006

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