References
- Barak-Levy, Y., & Atzaba-Poria, A. (2015). The effects of familial risk and parental resolution on parenting a child with mild intellectual disability. Research in Developmental Disabilities, 47, 106–116. doi: https://doi.org/10.1016/j.ridd.2015.09.008
- Barnett, D., Clements, M., Kaplan-Estrin, M., & Fialka, J. (2003). Building new dreams: Supporting parents’ adaptation to their child with special needs. Infants and Young Children, 16, 184–200. doi: https://doi.org/10.1097/00001163-200307000-00002
- Barnett, D., Clements, M., Kaplan-Estrin, M., McCaskill, J. W., Hunt, K. H., Butler, C. M., … Janisse, H. C. (2006). Maternal resolution of child diagnosis: Stability and relations with child attachment across the toddler to preschooler transition. Journal of Family Psychology, 20(1), 100–107. doi: https://doi.org/10.1037/0893-3200.20.1.100
- Bingham, A., Correa, V. I., & Huber, J. J. (2012). Mothers’ voices: Coping with their children’s initial disability diagnosis. Infant Mental Health Journal, 33(4), 372–385. doi: https://doi.org/10.1002/imhj.21341
- Böstrom, P. K., Broberg, M., & Hwang, P. (2010). Parents’ descriptions and experiences of young children recently diagnosed with intellectual disability. Child: Care, Health and Development, 36(1), 93–100.
- Bowlby, J. (1980). Attachment and loss: Loss, sadness and depression (Vol. 3). New York: Basic Books.
- Cantwell, J., Muldoon, O. T., & Gallagher, S. (2014). Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities. Research in Developmental Disabilities, 35(9), 2215–2223. doi: https://doi.org/10.1016/j.ridd.2014.05.012
- Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. doi: https://doi.org/10.1111/j.1365-2788.2010.01258.x
- Daniels, A. M., & Mandell, D. S. (2014). Explaining differences in age at autism spectrum disorder diagnosis: A critical review. Autism, 18(5), 583–597. doi: https://doi.org/10.1177/1362361313480277
- Dunst, C. J., & Kassow, D. Z. (2008). Caregiver sensitivity, contingent social responsiveness, and secure infant attachment. Journal of Early and Intensive Behavior Intervention, 5(1), 40–56. doi: https://doi.org/10.1037/h0100409
- Feniger-Schaal, R., & Oppenheim, D. (2013). Resolution of the diagnosis and maternal sensitivity among mothers of children with intellectual disability. Research in Developmental Disabilities, 34(1), 306–313. doi: https://doi.org/10.1016/j.ridd.2012.08.007
- Fletcher, H. K. (2016). Attachment relationships between parents and their children: The impact of ‘the loss of the healthy child’. In H. K. Fletcher, A. Flood, & D. J. Hare (Eds.), Attachment in intellectual and developmental disability: A clinician’s guide to practice and research (pp. 33–58). Chichester: John Wiley & Sons.
- Green, S. E. (2007). “We’re tired, not sad”: Benefits and burdens of mothering a child with a disability. Social Science and Medicine, 64, 150–163. doi: https://doi.org/10.1016/j.socscimed.2006.08.025
- Harwood, K., McLean, N., & Durkin, K. (2007). First-time mothers’ expectations of parenthood: What happens when optimistic expectations are not matched by later experiences? Developmental Psychology, 43(1), 1–12. doi: https://doi.org/10.1037/0012-1649.43.1.1
- Howe, D. (2006). Disabled children, maltreatment and attachment. British Journal of Social Work, 36(5), 743–760. doi: https://doi.org/10.1093/bjsw/bch419
- Kearney, J. A., Britner, P. A., Farell, A. F., & Robinson, J. L. (2011). Mothers’ resolution of their young children’s psychiatric diagnoses: Associations with child, parent, and relationship characteristics. Child Psychiatry and Human Development, 42(3), 334–348. doi: https://doi.org/10.1007/s10578-011-0217-6
- Kearney, P. M., & Griffin, T. (2001). Between joy and sorrow: Being a parent of a child with developmental disability. Journal of Advanced Nursing, 34(5), 582–592. doi: https://doi.org/10.1046/j.1365-2648.2001.01787.x
- Krstić, T. (2013). Majke hronično ometene dece: Prihvatanje dijagnoze i prevladavanje stresa [Mothers of children with chronic developmental disabilities: Resolution and coping] (Unpublished doctoral dissertation). University of Novi Sad, Serbia.
- Krstić, T., Mihić, L. j., & Mihić, I. (2015). Stress and resolution in mothers of children with cerebral palsy. Research in Developmental Disabilities, 47, 135–143. doi: https://doi.org/10.1016/j.ridd.2015.09.009
- Krstić, T., Mihić, L. j., & Oros, M. (2017). Coping strategies and resolution in mothers of children with cerebral palsy. Journal of Loss and Trauma, 22(5), 385–395. doi: https://doi.org/10.1080/15325024.2017.1297659
- Krstić, T., Mihić, I., Rajić, M., & Branković, J. (2017). Podrška roditeljima dece sa smetnjama u razvoju i hroničnim bolestima: Praktikum za program Naša priča [Support for parents of children with developmental disabilities and chronic conditions: Manual for the program “Our story”]. Novi Sad: Filozofski fakultet. Retrieved from http://digitalna.ff.uns.ac.rs/sadrzaj/2017/978-86-6065-396-5
- Lecciso, F., Petrocchi, S., Savazzi, F., Marchetti, A., Nobile, M., & Molteni, M. (2013). The association between maternal resolution of the diagnosis of autism, maternal mental representations of the relationship with the child, and children’s attachment. Life Span and Disability, 16(1), 21–38.
- Lord, B., Ungerer, J., & Wastell, C. (2008). Implications of resolving the diagnosis of PKU for parents and children. Journal of Pediatric Psychology, 33(8), 855–866. doi: https://doi.org/10.1093/jpepsy/jsn020
- Lukens, E. (2015). Psychoeducation. Retrieved from http://www.oxfordbibliographies.com/view/document/obo-9780195389678/obo-9780195389678-0224.xml
- Lukens, E. P., & McFarlane, W. R. (2004). Psychoeducation as evidence-based practice: Considerations for practice, research, and policy. Brief Treatment and Crisis Intervention, 4(3), 205–225. doi: https://doi.org/10.1093/brief-treatment/mhh019
- Marvin, R. S., & Pianta, R. C. (1996). Mothers’ reactions to their child’s diagnosis: Relations with security of attachment. Journal of Clinical Child Psychology, 25, 436–445. doi: https://doi.org/10.1207/s15374424jccp2504_8
- McConnell, D., Savage, A., Sobsey, D., & Uditsky, B. (2015). Benefit-finding or finding benefits? The positive impact of having a disabled child. Disability and Society, 30(1), 29–45. doi: https://doi.org/10.1080/09687599.2014.984803
- McKeever, P., & Miller, K.-L. (2004). Mothering children who have disabilities: A Bourdieusian interpretation of maternal practices. Social Science and Medicine, 59, 1177–1191. doi: https://doi.org/10.1016/j.socscimed.2003.12.023
- Mihić, I., Rajić, M., Krstić, T., Divljan, S., & Lukić, N. (2016). “Naša priča” - program podrške roditeljima dece sa smetnjama u razvoju: Primer dobre prakse u predškolskim ustanovama [“Our story” – support program for parents of children with disabilities: An example of good practice in kindergartens]. Specijalna Edukacija i Rehabilitacija, 15(4), 477–498. doi: https://doi.org/10.5937/specedreh15-11745
- Milshtein, S., Yirmiya, N., Oppenheim, D., Koren-Karie, N., & Levi, S. (2010). Resolution of the diagnosis among parents of children with autism spectrum disorder: Association with child and parent characteristics. Journal of Autism and Developmental Disorder, 40, 89–99. doi: https://doi.org/10.1007/s10803-009-0837-x
- Oppenheim, D., Koren-Karie, N., Dolev, S., & Yirmiya, N. (2012). Maternal sensitivity mediates the link between maternal insightfulness/resolution and child-mother attachment: The case of children with autism spectrum disorder. Attachment and Human Development, 14(6), 567–584. doi: https://doi.org/10.1080/14616734.2012.727256
- Orme, D. M. (2005). A qualitative examination of mothers’ resolution or non-resolution of their childrens’ disability of Down syndrome or autism using a cognitive intervention. The Qualitative Report Volume, 10(3), 561–592.
- Pianta, R. C., & Marvin, R. S. (1992). The reaction to diagnosis interview. Unpublished materials. University of Virginia, Charlottesville.
- Pianta, R. C., & Marvin, R. S. (1993). Manual for classification of the reaction to diagnosis interview. Charlottesville: University of Virginia.
- Pianta, R. C., Marvin, R. S., Britner, P. A., & Borowitz, K. C. (1996). Mothers’ resolution of their children’s diagnosis: Organized patterns of caregiving representations. Infant Mental Health Journal, 17, 239–256. doi: https://doi.org/10.1002/(SICI)1097-0355(199623)17:3<239::AID-IMHJ4>3.0.CO;2-J
- Poslawsky, I. E., Naber, F. B. A., Van Daalen, E., & Van Engeland, H. (2014). Parental reaction to early diagnosis of their children’s autism spectrum disorder: An exploratory study. Child Psychiatry and Human Development, 45, 294–305. doi: https://doi.org/10.1007/s10578-013-0400-z
- Reed, P., & Osborne, L. A. (2018). Reaction to diagnosis and subsequent health in mothers of children with autism spectrum disorder. Autism. doi: https://doi.org/10.1177/1362361318815641
- Rentinck, I. C. M., Ketelaar, M., Schuengel, C., Stolk, J., Lindeman, E., Jongmans, M. J., & Gorter, J. W. (2010). Short-term changes in parents’ resolution regarding their young child’s diagnosis of cerebral palsy. Child: Care, Health and Development, 36, 703–708.
- Shah, P. E., Clements, M., & Poehlmann, J. (2011). Maternal resolution of grief after preterm birth: Implications for infant attachment security. Pediatrics, 127(2), 284–292. doi: https://doi.org/10.1542/peds.2010-1080
- Sher-Censor, E., Dolev, S., Said, M., & Baransi, N. (2017). Coherence of representations regarding the child, resolution of the child’s diagnosis and emotional availability: A study of Arab-Israeli mothers of children with ASD. Journal of Autism and Developmental Disorders, 47, 3139–3149. doi: https://doi.org/10.1007/s10803-017-3228-8
- Sin, J., & Norman, I. (2013). Psychoeducational interventions for family members of people with schizophrenia: A mixed-method systematic review. The Journal of Clinical Psychiatry, 74(12), e1145–e1162. doi: https://doi.org/10.4088/JCP.12r08308
- Talley, R. C., & Crews, J. E. (2007). Framing the public health of caregiving. American Journal of Public Health, 97, 224–228. doi: https://doi.org/10.2105/AJPH.2004.059337
- Trute, B., Hiebert-Murphy, D., & Levine, K. (2007). Parental appraisal of the family impact of childhood developmental disability: Times of sadness and times of joy. Journal of Intellectual and Developmental Disability, 32(1), 1–9. doi: https://doi.org/10.1080/13668250601146753
- Wachtel, K., & Carter, A. S. (2008). Reaction to diagnosis and parenting styles among mothers of young children with ASDs. Autism, 12(5), 575–594. doi: https://doi.org/10.1177/1362361308094505
- Wang, M., & Singer, G. H. S. (2016). Supporting families of children with developmental disabilities: Evidence-based and emerging practicies. Oxford: University Press.
- Whittingham, K. (2014). Parents of children with disabilities, mindfulness and acceptance: A review and a call for research. Mindfulness, 5, 704–709. doi: https://doi.org/10.1007/s12671-013-0224-8
- Yirmiya, N., Seidman, I., Koren-Karie, N., & Oppenheim, D. (2014). Resolution with diagosis among parents of children with ASD. In V. B. Patel, V. R. Preedy, & C. R. Martin (Eds.), Comprehensive guide to autism (pp. 355–367). New York: Springer Science+Business Media.
- Yirmiya, N., Seidman, I., Koren-Karie, N., Oppenheim, D., & Dolev, S. (2015). Stability and change in resolution of diagnosis among parents of children with autism spectrum disorder: Child and parental contributions. Development and Psychopathology, 27, 1045–1057. doi: https://doi.org/10.1017/S095457941500067X
- Yuan, S. (2003). Seeing with new eyes: Metaphors of family experience. Mental Retardation, 41(3), 207–211. doi: https://doi.org/10.1352/0047-6765(2003)41<207:SWNEMO>2.0.CO;2
- Zurynski, Y., Deverell, M., Dalkeith, T., Johnson, S., Christodoulou, J., Leonard, H., & Elliott, E. J. (2017). Australian children living with rare diseases: Experiences of diagnosis and perceived consequences of diagnostic delays. Orphanet Journal of Rare Diseases, 12(1), 68. doi: https://doi.org/10.1186/s13023-017-0622-4