‘In solitary confinement’: Planning end-of-life well-being with people with advanced dementia, their family and professional carers

References

• Addington-Hall , J. 2000 . Positive partnerships – palliative car for adults with severe mental health problems , London : Guy's, King's and St. Thomas's School of Medicine .
   Google Scholar
• Ahronheim , J. C. , Morrison , R. S. , Baskin , S. A. , Morris , J. and Meier , D. E. 1996 . Treatment of the dying in the acute care hospital: Advanced dementia and metastatic care . Archives of Internal Medicine , 156 : 2094 – 2100 .
   PubMedGoogle Scholar
• Allan , K. 2001 . Communication and consultation , Bristol , , UK : The Policy Press .
   Google Scholar
• Barnet Health Authority . 1997 . The fatal moves . Working with older people , 1 ( 3, October ) : 5 – 7 .
   Google Scholar
• Barnett , E. 2000 . Involving people with dementia in designing and delivering care: “I need to be me!.” , London : Jessica Kingsley .
   Google Scholar
• British Medical Association . 2007 . Consent toolkit , London : BMA .
   Google Scholar
• Brock , D. 1988 . Justice and the severely demented elderly . Journal of Medicine and Philosophy , 13 : 73 – 79 .
   PubMed Web of Science ®Google Scholar
• Cox , S. and Watchman , K. 2004 . “ Death and dying ” . In Dementia and social inclusion , Edited by: Innes , A. , Archibald , W. and Murphy , C. 84 – 95 . London : Jessica Kingsley .
   Google Scholar
• Davie , J. 1997 . “ Information disclosure ” . In Dying and dementia. Report of a Conference jointly organised by the Centre for Gerontology and Health Studies, Paisley University and Dementia Services Development Centre, Department of Applied Social Science, University of Stirling , Edited by: Cox , S. , Gilhooly , M. and McLennan , J. 28 – 31 . Stirling , , UK : University of Stirling .
   Google Scholar
• De Vries , K. 2003 . “ Palliative care for people with dementia ” . In Dementia care: An Evidence based textbook , Edited by: Adams , T. and Manthorpe , J. 114 – 135 . London : Arnold .
   Google Scholar
• Feil , N. 1992 . Validation: The Feil method , Cleveland , OH : Edward Feil Productions .
   Google Scholar
• Field , D. 2000 . Older people's attitudes to death in England . Mortality , 5 ( 3 ) : 277 – 297 .
   Google Scholar
• Froggatt , K. “ A death foretold: End-of-life care for people with dementia ” . In Palliative care for people with dementia , Edited by: Johnson , A. 4 – 9 . Solihull , , UK : Leveson Foundation . based on papers presented at a Levenson Seminar Leveson Paper No. 12
   Google Scholar
• Godwin , B. 2003 . “ Achieving a Good Death in Dementia ” . In A good death , Edited by: Johnson , A. and Johnson , C. 26 – 36 . Solihull , , UK : Leveson Foundation . Leveson Paper No. 4
   Google Scholar
• Goldsmith , M. 1996 . Hearing the voice of people with dementia , London : Jessica Kingsley .
   Google Scholar
• Hallam , E. , Hockey , J. and Howarth , G. 1999 . Beyond the body: Death and social identity , London : Routledge .
   Google Scholar
• Hockey , J. 1990 . Experiences of death , Edinburgh : Edinburgh University Press .
   Google Scholar
• Howarth , G. 1998 . Just live for today: Living, caring, ageing and dying . Ageing and Society , 18 : 673 – 689 .
   Web of Science ®Google Scholar
• Jones , G. and Miesen , B. 1992 . Care giving in dementia: Research and applications , London : Routledge .
   Google Scholar
• Kastenbaum , R. 1988 . “ Safe death in a post-modern world ” . In A safer death , Edited by: Gilmore , A. and Gilmore , S. New York : Plenum .
   Google Scholar
• Katz , J. , Komaromy , C. and Sidell , M. 1999 . Understanding palliative care in residential and nursing homes . International Journal of Palliative Nursing , 5 : 58 – 64 .
   Google Scholar
• Killick , J. and Allan , K. 2001 . Communication and the care of people with dementia , Buckingham , , UK : Open University Press .
   Google Scholar
• Kitwood , T. 1993 . Towards a theory of dementia care: The interpersonal process . Ageing and Society , 13 : 51 – 67 .
   Web of Science ®Google Scholar
• Kitwood , T. 1997 . Dementia reconsidered , Buckingham : Open University Press .
   Google Scholar
• Kitwood , T. 1998 . Towards a theory of dementia care: Ethics and interaction . Journal of Clinical Ethics , 9 : 23 – 34 .
   PubMed Web of Science ®Google Scholar
• Kitwood , T. and Bredin , K. 1992 . A new approach to the evaluation of dementia care . Journal of Advances in Health and Nursing Care , 1 : 41 – 60 .
   Google Scholar
• Lawton , J. 2000 . The dying process , London : Routledge .
   Google Scholar
• Lloyd , L. 2000 . Dying in old age: Promoting well-being at the end-of-life . Mortality , 5 : 171 – 188 .
   Google Scholar
• McCarthy , M. , Addington-Hall , J. and Altmann , D. 1997 . The experience of dying with dementia: A retrospective study . International Journal of Geriatric Psychiatry , 12 : 404 – 409 .
   PubMed Web of Science ®Google Scholar
• McLennan , J. 1997 . “ Environmental features ” . In Dying and dementia , Edited by: Cox , S. , Gilhooly , M. and McLennan , J. Stirling , , UK : University of Stirling .
   Google Scholar
• Miller , J. 1990 . ‘Goodbye to all this’, independent on Sunday . Sunday Review Section , April 15 : 3 – 5 .
   Google Scholar
• Mitchell , S. , Kiely , D. and Hamel , M. 2004 . Dying with advanced dementia in the nursing home . Archives of Internal Medicine , 164 : 321 – 326 .
   PubMed Web of Science ®Google Scholar
• Morrisson , R.S. and Sui , A.L. 2000 . Survival in end-stage dementia following acute illness . Journal of the American Medical Association , 284 : 47 – 52 .
   Web of Science ®Google Scholar
• Mozley , C. , Huxley , P. , Sutcliffe , C. , Bagley , H. , Burns , A. and Challis , D. 1999 . Not knowing where I am doesn't mean I don't know what I like, cognitive impairment and quality of life responses in elderly people . International Journal of Geriatric Psychiatry , 14 : 776 – 783 .
   PubMed Web of Science ®Google Scholar
• Sabat , S. 2001 . The experience of Alzheimer's disease , Oxford : Blackwell .
   Google Scholar
• Sabat , S. , Fath , H. , Moghaddam , F. and Harre , R. 1999 . The maintenance of self-esteem: Lessons from the culture of Alzheimer's sufferers . Culture & Psychology , 5 : 5 – 31 .
   Web of Science ®Google Scholar
• Salmon , D. 2000 . “ Neuropsychological changes in dementia with Lewy bodies ” . In Dementia , (2nd ed.) , Edited by: O'Brien , J. , Ames , D. and Burns , A. London : Arnold .
   Google Scholar
• Seale , C. 1995 . Dying alone . Sociology of Health and Illness , 17 : 376 – 392 .
   Web of Science ®Google Scholar
• Seymour , J. , Witherspoon , R. , Gott , M. , Ross , H. , Payne , S. and Owen , T. 2005 . End-of-life care: Promoting comfort, choice and well-being for older people , Bristol , , UK : The Policy Press .
   Google Scholar
• Shemmings , Y. 1996 . Death, dying and residential care , Aldershot , , UK : Amesbury .
   Google Scholar
• Sidell , M. 1993 . “ Death, dying and bereavement ” . In Ageing in society: An introduction to social gerontology , Edited by: Bond , J. , Coleman , P. and Pearce , S. 151 – 179 . Buckingham , , UK : Open University Press .
   Google Scholar
• Sidell , M. , Katz , J. S and Komaromy , C. 1997 . “ Death and dying in residential and nursing homes for older people: Examining the case for palliative care ” . In Report for the Department of Health , Milton Keynes , , UK : Open University .
   Google Scholar
• Small , N. , Downs , M. and Froggatt , K. 2006 . “ Improving end-of-life care for people with dementia - the benefits of combining UK approaches to palliative care and dementia care ” . In Care-giving in dementia: Research and applications , Edited by: Miesen , B. and Jones , G. Vol. 4 , Hove , , UK : Routledge .
   Google Scholar
• Stokes , G. 1996 . “ Challenging Behaviour in Dementia: A psychosocial approach ” . In Handbook of the clinical psychology of ageing , Edited by: Woods , R. 601 – 628 . Chichester , , UK : J. Wiley and Sons .
   Google Scholar
• Sweeting , H. 1997 . “ Keynote Address: Dying and dementia ” . In Dying and dementia , Edited by: Cox , S. , Gilhooly , M. and McLennan , J. 2 – 9 . Stirling , , UK : University of Stirling . Report of a conference jointly organised by the Centre for Genontology and Health Studies, Paisley University and the Dementia Services Development Centre, Department of Applied Social Science, University of Stirling
   Google Scholar
• van den Berg , M. 2006 . “ Death comes in the end: A palliative perspective of caring for people with dementia ” . In Care-giving in dementia: Research and applications , Edited by: Miesen , B. and Jones , G. Vol. 4 , 393 – 408 . Hove , , UK : Routledge .
   Google Scholar
• Volicer , L. and Bloom-Charette , L. 1999 . Enhancing the quality of life in advanced dementia , Philadelphia , PA : Brunner/Mazel .
   Google Scholar
• Ward , A. 1993 . Testing severe dementia: The Guys' advanced dementia schedule . International Journal of Geriatric Psychiatry , 4 : 04 – 109 .
   Google Scholar