Joining a right-to-die society: Motivation, beliefs and experiences

References

• Berghs , M. , Dierckx de Casterlé , B. and Gastmans , C. 2005 . The complexity of nurses' attitudes toward euthanasia: a review of the literature . J Medical Ethics , 31 : 441 – 446 .
   PubMed Web of Science ®Google Scholar
• Bosshard , G. , Ulrich , E. and Bär , W. 2003 . 748 cases of suicide assisted by a Swiss right-to-die organisation . Swiss Medical Weekly , 133 : 310 – 317 .
   PubMed Web of Science ®Google Scholar
• Brown , P. and Zavestoski , S. 2004 . Social movements in health: An introduction . Sociology of Health & Illness , 26 ( 6 ) : 679 – 694 .
   PubMed Web of Science ®Google Scholar
• Carmel , S. 1999 . Life-sustaining treatments: What doctors do, what they want for themselves and what elderly persons want . Social Science & Medicine , 49 : 1401 – 1408 .
   PubMed Web of Science ®Google Scholar
• Cartwright , C. 2000 . End-of-life decision making: Practical and ethical issues for health professionals . Australasian Journal on Ageing , 19 ( 2 ) : 57 – 62 .
   Google Scholar
• Chapple , A. , Ziebland , S. , McPherson , A. and Herxheimer , A. 2006 . What people close to death say about euthanasia and assisted suicide: A qualitative study . Journal of Medical Ethics , 32 : 706 – 710 .
   PubMed Web of Science ®Google Scholar
• Chochinov , H. , Hack , T. , Hassard , T. , Kristjanson , L. , McClement , S. and Harlos , M. 2002 . Dignity in the terminally ill: A cross sectional, cohort study . The Lancet , 360 : 2026 – 2030 .
   PubMed Web of Science ®Google Scholar
• Chochinov , H. , Hassard , T. , McClement , S. , Hack , T. , Kristjanson , L. Harlos , M. 2008 . The patient dignity inventory: A novel way of measuring dignity-related distress in palliative care . Journal of Pain & Symptom Management , 36 ( 6 ) : 559 – 571 .
   PubMed Web of Science ®Google Scholar
• Clery , E. , McLean , S. and Phillips , M. 2007 . “ Quickening death: The euthanasia debate ” . In British social attitudes: Perspectives on a changing society. 23^rd annual report , Edited by: Park , A. , Curtice , J. , Thomson , K. , Phillips , M. and Johnson , M. 35 – 54 . London : Sage .
   Google Scholar
• Cohen , J. , Marcoux , I. , Bilsen , J. , Deboosere , P. , Van Der Wal , G. and Deliens , L. 2006 . European public acceptance of euthanasia: Socio-demographic and cultural factors associated with the acceptance of euthanasia in 33 European countries . Social Science & Medicinee , 63 : 743 – 756 .
   PubMed Web of Science ®Google Scholar
• Cossman , J. , Lewers , G. , Wilson , J. , Fox , E. and Kamakahi , J. 2002 . The Hemlock Society membership: Comparison between 1983 and 1995 surveys and the general population . OMEGA , 45 ( 1 ) : 43 – 55 .
   Google Scholar
• Douglas , M. 1966 . Purity and danger , Abingdon : Routledge .
   Google Scholar
• Elias , N. 1978 . The civilizing process. Vol. I: The history of manners , Oxford : Blackwell .
   Google Scholar
• Epstein , M. 2007 . Legitimizing the shameful: End-of-life ethics and the political economy of death . Bioethics , 21 ( 1 ) : 23 – 31 .
   PubMed Web of Science ®Google Scholar
• Fox , E. , Kamakahi , J. and Čapek , S. 1999 . Come lovely and soothing death. The right-to-die movement in the United States , New York : Twayne .
   Google Scholar
• Frei , A. , Schenker , T.-A. , Finzen , A. , Kräuchi , K. , Dittman , V. and Hoffman-Richter , U. 2001 . Assisted suicide as conducted by a ‘right-to-die’-society in Switzerland: A descriptive analysis of 43 consecutive cases . Swiss Medical Weekly , 131 : 375 – 380 .
   PubMed Web of Science ®Google Scholar
• Furedi , F. 2007 . How human thought and action are being stifled by a regime of uncertainty: The only thing we have to fear is the ‘culture of fear’ itself Retrieved from http://www.frankfuredi.com/pdf/fearessay-20070404.pdf
   Google Scholar
• Ganzini , L. , Goy , E. R. and Dobscha , S. K. 2009 . Oregonians' reasons for requesting physician aid in dying . Archives of Internal Medicine , 169 ( 5 ) : 489 – 492 .
   PubMed Web of Science ®Google Scholar
• Giddens , A. 1991 . Modernity and self-identity , Cambridge : Polity Press .
   Google Scholar
• Gjerdingen , D. , Neff , J. , Wang , M. and Chaloner , K. 1999 . Older persons' opinions about life-sustaining procedures in the face of dementia . Archives of Family Medicine , 8 : 421 – 425 .
   PubMedGoogle Scholar
• Hirst , M. 2006 . Carer distress: A prospective, population-based study . Social Science & Medicine , 61 : 697 – 708 .
   Google Scholar
• Hockey , J. and James , A. 1993 . Growing up and growing old. Ageing and dependency in the life course , London : Sage .
   Google Scholar
• Holden , J. 1992 . Demographics, attitudes, and afterlife beliefs of right-to-life and right-to-die organization members . Journal of Social Psychology , 133 ( 4 ) : 521 – 527 .
   Google Scholar
• Howarth , G. 2007 . Death & dying , Cambridge : Polity Press .
   Google Scholar
• Hudson , P. , Kristjanson , L. , Ashby , M. , Kelly , B. , Schofield , P. Hudson , R. 2006 . Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: A systematic review . Palliative Medicine , 20 : 693 – 701 .
   PubMed Web of Science ®Google Scholar
• Kamakahi , J. , Cossman , J. and Fox , E. 2001 . The right-to-die movement: Extrapolating for the national Hemlock Society USA membership survey . OMEGA , 43 ( 1 ) : 7 – 23 .
   PubMedGoogle Scholar
• Kemp , N. D.A. 2002 . ‘Merciful release’, the history of the British euthanasia movement , Manchester : Manchester University Press .
   Google Scholar
• Kitchener , B. 1998 . Nurse characteristics and attitudes to active voluntary euthanasia: A survey in the Australian Capital Territory . Journal of Advanced Nursing , 28 ( 1 ) : 70 – 76 .
   PubMed Web of Science ®Google Scholar
• Kuuppelomäki , M. 2000 . Attitudes of cancer patients, their family members and health professionals toward active euthanasia . European Journal of Cancer Care , 9 : 16 – 21 .
   PubMedGoogle Scholar
• Lam , R. 1982 . The queue for the EXIT . The Health Services Journal , 15th October
   Google Scholar
• Lawton , J. 1998 . Contemporary hospice care: The sequestration of the unbounded body and ‘dirty dying’ . Sociology of Health & Illness , 20 ( 2 ) : 121 – 143 .
   Web of Science ®Google Scholar
• Logue , B. 1993 . Last rights: Death control and the elderly in America , New York : Macmillan .
   Google Scholar
• McInerny , F. 2000 . ‘Requested death’: A new social movement . Social Science & Medicine , 50 : 137 – 154 .
   PubMedGoogle Scholar
• McInerny , F. 2006 . Heroic frames: Discursive constructions around the requested death movement in Australia in the late-1990s . Social Science & Medicine , 62 ( 3 ) : 654 – 667 .
   PubMedGoogle Scholar
• McPherson , C. , Wilson , K. and Murray , M. 2007 . Feeling like a burden: Exploring the perspectives of patients at the end of life . Social Science & Medicine , 64 : 417 – 427 .
   PubMed Web of Science ®Google Scholar
• Miccinesi , G. , Fischer , S. , Paci , E. , Onwuteaka-Philipsen , B. , Cartwright , C. van der Heide , A. 2005 . Physicians' attitudes towards end-of-life decisions: A comparison between seven countries . Social Science & Medicine , 60 : 1961 – 1974 .
   PubMed Web of Science ®Google Scholar
• Miller , L. , Harvath , T. , Ganzini , L. , Goy , E. , Delorit , M. and Jackson , A. 2004 . Attitudes and experiences of Oregon hospice nurses and social workers regarding assisted suicide . Palliative Medicine , 18 : 685 – 691 .
   PubMed Web of Science ®Google Scholar
• O'Neill , C. , Feenan , D. , Hughes , C. and McAlister , D. 2003 . Attitudes to physician and family-assisted suicide: Results from a study of public attitudes in Britain . J Medical Ethics , 28 ( 1 ) : 52
   Google Scholar
• Onwuteaka-Philipsen , B. , van der Heide , A. , Koper , D. , Keij-Deerenberg , I. , Rietjens , J. Rurup , M. 2003 . Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001 . The Lancet , 362 : 395 – 399 .
   PubMed Web of Science ®Google Scholar
• Oregon DDA Annual Reports. (1998–2007). Available from http://public.health.oregon.gov/ProviderPartnerResources/EvaluationResearch/DeathwithDignityAct/Documents/year10.pdf
   Google Scholar
• Pasman , H. R.W. , Rurup , M. L. , Willems , D. L. and Onwuteaka-Philipsen , B. 2009 . Concept of unbearable suffering in the context of ungranted requests for euthanasia: Qualitative interviews with patients and physicians . BMJ , 339 : b4362
   PubMedGoogle Scholar
• Perretti-Wattel , P. , Bendiane , M. and Moatti , J. 2005 . Attitudes toward palliative care, conceptions of euthanasia and opinions about its legalisation among French physicians . Social Science & Medicine , 60 : 1781 – 1793 .
   PubMedGoogle Scholar
• Riessman , C. K. 2008 . Narrative methods for the human sciences , London : Sage .
   Google Scholar
• Rietjens , J. , van der Heide , A. , Onwuteaka-Philipsen , B. , van der Mas , P. and van der Wal , G. 2005 . A comparison of attitudes towards end-of-life decisions: Survey among the Dutch general public and physicians . Social Science & Medicine , 61 : 1723 – 1732 .
   PubMed Web of Science ®Google Scholar
• Rose , N. 1996 . Inventing ourselves: Psychology, power and personhood , Cambridge : Cambridge University Press .
   Google Scholar
• Rose , N. 2007 . Beyond medicalisation . The Lancet , 369 : 700 – 702 .
   PubMed Web of Science ®Google Scholar
• Rurup , M. , Muller , M. , Onwuteaka-Philipsen , B. , van de Heide , A. , van der Wal , G. and van der Mas , P. 2005 . Requests for euthanasia or physician-assisted suicide from older persons who do not have a severe disease: An interview study . Psychological Medicine , 35 : 665 – 671 .
   PubMed Web of Science ®Google Scholar
• Ryynänen , O.-P. , Myllykangas , M. , Viren , M. and Heino , H. 2002 . Attitudes towards euthanasia among physicians, nurses and the general public in Finland . Public Health , 116 : 322 – 331 .
   PubMed Web of Science ®Google Scholar
• Seale , C. and Addington-Hall , J. 1994 . Euthanasia: Why people want to die earlier . Social Science & Medicine , 39 ( 5 ) : 647 – 654 .
   PubMed Web of Science ®Google Scholar
• Spragins , E. 1999 . Metaphoric analysis of the debate on physician assisted suicide , Lweiston, Queenston, Lampeter : The Edwin Mellen Press . Symposium Series Volume 54
   Google Scholar
• Steinhauser , K. E. , Clipp , E. C. , McNeilly , M. , Christakis , N. A. , McIntyre , L. M. and Tulsky , J. A. 2000 . In search of a good death: Observations of patients, families and providers . Annals of Internal Medicine , 132 ( 10 ) : 825 – 832 .
   PubMed Web of Science ®Google Scholar
• Strathern , M. 1991 . Partial connections , Maryland : Rowman and Little .
   Google Scholar
• Thomas , C. , Reeve , J. , Bingley , A. , Brown , J. , Payne , S. and Lynch , T. 2009 . Narrative research methods in palliative care contexts: Two case studies . J Pain & Symptom Management , 37 ( 5 ) : 788 – 796 .
   PubMed Web of Science ®Google Scholar
• Twigg , J. 2000 . Carework as a form of bodywork . Ageing & Society , 20 : 389 – 411 .
   Web of Science ®Google Scholar
• Twigg , J. 2006 . The body in health and social care , New York : Palgrave Macmillan .
   Google Scholar
• Twigg , J. , Wolkowitz , C. , Cohen , R. L. and Nettleton , S. 2011 . Conceptualising body work in health and social care . Sociology of Health & Illness , 33 ( 2 ) : 171 – 188 .
   PubMed Web of Science ®Google Scholar
• van der Heide , A. , Onwuteaka-Philipsen , B. , Rurup , M. , Buiting , H. , van Delden , J. Hanssen-de Wolf , J. 2007 . End-of-life practices in the Netherlands under the Euthanasia Act . New England Journal of Medicine , 356 : 1957 – 1965 .
   PubMed Web of Science ®Google Scholar
• van der Maas , P. J. , van Delden , J. J.M. , Pijnenborg , L. and Looman , C. W.N. 1991 . Euthanasia and other medical decisions concerning the end of life . The Lancet , 338 : 669 – 674 .
   PubMed Web of Science ®Google Scholar
• Verpoort , C. , Gastmans , C. and Dierckx de Casterlé , B. 2004 . Palliative care nurses' views on euthanasia . J. Advanced Nursing , 47 ( 6 ) : 592 – 600 .
   PubMed Web of Science ®Google Scholar
• Vig , E. K. and Pearlman , R. A. 2004 . Good and bad dying from the perspective of terminally ill men . Archives of Internal Medicine , 164 : 977 – 981 .
   PubMed Web of Science ®Google Scholar
• White , K. , Wise , S. , Young , R. and Hyde , M. 2008 . Exploring the beliefs underlying attitudes to active voluntary euthanasia in a sample of Australian medical practitioners and nurses: A qualitative analysis . OMEGA , 58 ( 1 ) : 19 – 39 .
   PubMedGoogle Scholar
• Williams , N. , Dunford , C. , Knowles , A. and Warner , J. 2007 . Public attitudes to life-sustaining treatments and euthanasia in dementia . International Journal of Geriatric Psychiatry , 22 : 1229 – 1234 .
   PubMed Web of Science ®Google Scholar