Tellable and untellable stories in suffering and palliative care

References

• Adams, T., Holman Jones, S., & Ellis, C. (2015). Autoethnography. New York: Oxford University Press.
   Google Scholar
• Arbore, P., Katz, R. S., & Johnson, T. A. (2006). Suffering and the caring professional. In R. S. Katz & T. A. Johnson (Eds.), When professionals weep: Emotional and counter- transference responses in end-of-life care (pp. 13–26). New York: Taylor & Francis.
   Google Scholar
• Arman, M. (2007). Bearing witness: An existential position in caring. Contemporary Nurse: A Journal for the Australian Nursing Profession, 27(1), 84–93.
   PubMed Web of Science ®Google Scholar
• Baines, B. K., & Norlander, L. (2000). The relationship of pain and suffering in a hospice population. American Journal of Hospice and Palliative Medicine, 17(5), 319–326.
   PubMedGoogle Scholar
• Barnard, D. (1995). The promise of intimacy and the fear of our own undoing. Journal of Palliative Care, 11(4), 22–26.
   PubMed Web of Science ®Google Scholar
• Beng, T. S., Chin, L. E., Guan, N. C., Yee, A., Wu, C., Jane, L. E., & Chiong Meng, C. B. (2015). Mindfulness-based supportive therapy (MBST): Proposing a palliative psychotherapy from a conceptual perspective to address suffering in palliative care. American Journal of Hospice & Palliative Medicine, 32(2), 144–160.
   PubMed Web of Science ®Google Scholar
• Boston, P., Bruce, A., & Schreiber, R. (2011). Existential suffering in the palliative care setting: An integrated literature review. Journal of Pain and Symptom Management, 41(3), 604–618.
   PubMed Web of Science ®Google Scholar
• Breaden, K., Hegarty, M., Swetenham, K., & Grbich, C. (2012). Negotiating uncertain terrain: A qualitative analysis of clinicians’ experience of refractory suffering. Journal of Palliative Medicine, 15(8), 896–900.
   PubMed Web of Science ®Google Scholar
• Browning, D. (2004). Fragments of love: Explorations in the ethnography of suffering and professional caregiving. In J. Berzoff & P. Silverman (Eds.), Living with dying: A hand book for end-of-life healthcare practitioners (pp. 21–42). New York: Columbia University Press.
   Google Scholar
• Byock, I. (1994). When suffering persists…. Journal of Palliative Care, 10(2), 8–13.
   PubMedGoogle Scholar
• Byock, I. (1997). Dying well: Peace and possibilities at the end of life. New York: Riverhead Books.
   Google Scholar
• Cait, C. (2012). Adolescent bereavement and systemic denial of death: Political implications of psychotherapy. Journal of Social Work Practice, 26(1), 75–91.
   Web of Science ®Google Scholar
• Cassell, E. (1982). The nature of suffering and the goals of medicine. The New England Journal of Medicine, 306(11), 639–645.
   PubMed Web of Science ®Google Scholar
• Cassell, E. (2004). The nature of suffering and the goals of medicine (Second ed.). New York: Oxford University Press.
   Google Scholar
• Chambon, A. S. (1999). Foucault’s approach: Making the familiar visible. In A. S. Chambon, A. Irving, & L. Epstein (Eds.), Reading Foucault for social work (pp. 51–81). New York: Columbia University Press.
   Google Scholar
• Chambon, A. S., & Irving, A. (1999). Issues to look forward to. In A. S. Chambon, A. Irving, & L. Epstein (Eds.), Reading Foucault for social work (pp. 259–267). New York: Columbia University Press.
   Google Scholar
• Cherny, N. (2015). The problem of suffering and the principles of assessment in palliative medicine. In N. Cherny, N. M. Fallon, S. Kaasa, R. Portenoy, & D. Currow (Eds.), Oxford textbook of palliative medicine (Fifth ed., pp. 35–48). New York: Oxford University Press.
   Google Scholar
• Chiseri-Strater, E. (1996). Turning in upon ourselves: Positionality, subjectivity, and reflexivity in case study and ethnographic research. In P. Mortensen & G. E. Kirsch (Eds.), Ethics and responsibility in qualitative studies of literacy (pp. 115–133). Urbana, IL: NCTE.
   Google Scholar
• Eifried, S. (2003). Bearing witness to suffering: the lived experience of nursing students. The Journal Of Nursing Education, 42(2), 59-67.
   PubMed Web of Science ®Google Scholar
• Foucault, M. (1982). The subject and power. Critical Inquiry, 8(4), 777–795.
   Web of Science ®Google Scholar
• Fook, J. (2016). Social work: A critical approach to practice. Thousand Oaks, CA: SAGE.
   Google Scholar
• Foote, C., & Frank, A. (1999). Foucault & therapy: The disciplining of grief. In A. Chambon, A. Irving, & L. Epstein (Eds.), Reading Foucault for social work. New York: Columbia University Press, pp. 157–187.
   Google Scholar
• Foucault, M. (1980). In C. Gordon (Ed.), Power/knowledge: Selected interviews and other writings 1972–1977. New York: Pantheon Books.
   Google Scholar
• Foucault, M. (1990). The history of sexuality, volumes 1: An introduction. New York: Vintage Books (Explore concept of bio-power) Fou cault, Michel (1982). The subject and power. Critical Inquiry, 8(4), 777–795.
   Google Scholar
• Foucault, M. (1994). The birth of the clinic: An archaeology of medical perception. New York: Vintage Books.
   Google Scholar
• Foucault, M. (1995). Discipline and punish: The birth of the Prison (2nd.). New York: Vintage.
   Google Scholar
• Grech, A., & Marks, A. (2017). Existential suffering part 2: Clinical response and management. Journal of Palliative Medicine, 20(1), 95–96.
   PubMed Web of Science ®Google Scholar
• Gregory, D., & English, J. (1994). The myth of control: Suffering in palliative care. Journal of Palliative Care, 10(2), 18–23.
   PubMedGoogle Scholar
• Halifax, J. (2008). Being with dying: Cultivating compassion and fearlessness in the presence of death. Boston: Shambhala Publications Inc., Boston.
   Google Scholar
• Healy, K. (2005). Social work theories in context: Creating frameworks for practice. Basingstoke: Palgrave.
   Google Scholar
• Kearsley, J. (2010). Therapeutic use of self and relief of suffering. Cancer Forum, 34(2), 98–101.
   Google Scholar
• Klagsburn, S. (1994). Patient, family, and staff suffering. Journal of Palliative Care, 10(2), 14–17.
   Google Scholar
• Krikorian, A., Limonero, J., & Mate, J. (2012). Suffering and distress at the end-of-life. Psychooncology, 21, 799–808.
   PubMed Web of Science ®Google Scholar
• Kübler-Ross, E. (1969). On death and dying. New York: MacMillan.
   Google Scholar
• McHoul, A., & Grace, W. (1993). A Foucault primer: Discourse, power and the subject. New York: New York University Press.
   Google Scholar
• Montoya-Juarez, R., Pas Garcia-Caro, M., Campos-Calderon, C., Schmidt-RioValle, J., Gomez-Chica, A., Marti-Garcia, C., & Cruz-Quintana, F. (2013). Psychological responses of terminally ill patients who are experiencing suffering: A qualitative study. International Journal of Nursing Studies, 50, 53–62.
   PubMed Web of Science ®Google Scholar
• Mount, B. M., Boston, P. H., & Cohen, S. R. (2007). Healing connections: On moving from suffering to a sense of well-being. Journal of Pain and Symptom Management, 33(4), 372–388.
   PubMed Web of Science ®Google Scholar
• Parry, D., & Johnson, C. (2015). Theoretical perspectives for social justice inquiry. In C. Johnson & D. Parry (Eds.), Fostering social justice through qualitative inquiry: A methodological guide (pp. 23–41). Walnut Creek: Left Coast Press Inc.
   Google Scholar
• Philip, J., & Kissane, D. (2017). Responding to difficult emotions. In D. Kissane, B. Bultz, P. Bu Tow, C. Bylund, S. Noble, & S. Wilkinson (Eds.), Oxford textbook of communication in oncology and palliative care (Second ed., pp. 91–96)). New York: Oxford University Press.
   Google Scholar
• Pillow, W. (2003). Confessions, catharsis, or cure? Rethinking the use of reflexivity as methodological power in qualitative research. International Journal of Qualitative Stud- Ies in Education, 16(2), 175–196.
   Google Scholar
• Rattner, M. (2018). Navigating the intangible: Working with nonphysical suffering on the front-lines of palliative care. Omega: Journal of Death and Dying. Manuscript published on-line September 5, 2018.
   PubMedGoogle Scholar
• Rattner, M., & Berzoff, J. (2016). Rethinking suffering: Allowing for suffering that is intrinsic at end of life. Journal of Social Work in End-Of-Life & Palliative Care, 12(3), 240–258.
   PubMed Web of Science ®Google Scholar
• White, K., Wilkes, L., Cooper, K., & Barbato, M. (2004). The impact of unrelieved patient suffering on palliative care nurses. International Journal of Palliative Care Nursing, 10(9), 438–444.
   PubMedGoogle Scholar
• World Health Organization (May 24, 2014). Strengthening of palliative care as a component of comprehensive care throughout the life course. Sixty-Seventh World Health Assembly, 1–5. Retrieved from: http://apps.who.int/gb/ebwha/pdf_files/WHA67/A67_R19-en.pdf
   Google Scholar
• World Health Organization. (2018). WHO definition of palliative care. Retrieved from: http://www.who.int/cancer/palliative/definition/en/
   Google Scholar
• Zimmerman, C. (2012). Acceptance of dying: A discourse analysis of palliative care literature. Social Science & Medicine, 75, 217–224.
   PubMed Web of Science ®Google Scholar