Barriers to tests and exams for autistic pupils: improving access and longer-term outcomes

References

• Abineau, M., and T. Blicharska. 2019. “Francophone Students with Autistic Spectrum Conditions Speak About Their Experience of Inclusion in Mainstream Secondary Schools.” hal-02060877 Version 1, CCSD.
   Google Scholar
• Ambitious About Autism. 2013. Schools Report 2013. London: Ambitious About Autism.
   Google Scholar
• Ambitious About Autism. 2016. When Will We Learn? London: Ambitious About Autism.
   Google Scholar
• Ashburner, J., J. Ziviani, and S. Rodger. 2008. “Sensory Processing and Classroom Emotional, Behavioral, and Educational Outcomes in Children with Autism Spectrum Disorder.” The American Journal of Occupational Therapy 62 (5): 564–573.
   PubMed Web of Science ®Google Scholar
• Ashburner, J., J. Ziviani, and S. Rodger. 2010. “Surviving in the Mainstream: Capacity of Children with Autism Spectrum Disorders to Perform Academically and Regulate Their Emotions and Behavior at School.” Research in Autism Spectrum Disorders 4 (1): 18–27.
   Web of Science ®Google Scholar
• Browder, D., C. Flowers, L. Ahlgrim-Delzell, M. Karvonen, F. Spooner, and R. Algozzine. 2004. “The Alignment of Alternate Assessment Content with Academic and Functional Curricula.” The Journal of Special Education 37 (4): 211–223. doi:10.1177/00224669040370040101.
   Web of Science ®Google Scholar
• Campbell, T. 2015. “Stereotyped at Seven? Biases in Teacher Judgement of Pupils’ Ability and Attainment.” Journal of Social Policy 44 (3): 517–547.
   Web of Science ®Google Scholar
• Cassidy, S., P. Bradley, J. Robinson, C. Allison, M. McHugh, and S. Baron-Cohen. 2014. “Suicidal Ideation and Suicide Plans or Attempts in Adults with Asperger’s Syndrome Attending a Specialist Diagnostic Clinic: A Clinical Cohort Study.” The Lancet Psychiatry 1: 142–147.
   PubMed Web of Science ®Google Scholar
• Children and Families Act. 2014. Children and Families Act 2014 (legislation.gov.uk).
   Google Scholar
• Courchesne, V., A. S. Meilleur, M. Poulin-Lord, M. Dawson, and I. Soulières. 2015. “Autistic Children at Risk of Being Underestimated: School-Based Pilot Study of a Strength-Informed Assessment.” Molecular Autism 6 (12): 1–10. doi:10.1186/s13229-015-0006-3.
   PubMedGoogle Scholar
• Cox, M., J. G. Herner, M. Demczyk, and J. Nieberding. 2006. “Provision of Testing Accommodations for Students with Disabilities on Statewide Assessments: Statistical Links with Participation and Discipline Rates.” Remedial and Special Education 27 (6): 346–354. doi:10.1177/07419325060270060401.
   Web of Science ®Google Scholar
• Cumming, J., and E. Dickson. 2013. “Educational Accountability Tests, Social and Legal Inclusion Approaches to Discrimination for Students with Disability: A National Case Study from Australia.” Assessment in Education: Principles, Policy & Practice 20 (2): 221–239.
   Google Scholar
• Dawson, M., I. Soulières, M. A. Gernsbacher, and L. Mottron. 2007. “The Level and Nature of Autistic Intelligence.” Psychological Science 18 (8): 657–662. doi:10.1111/j.1467-9280.2007.01954.x.
   PubMed Web of Science ®Google Scholar
• Department for Education and Skills. 2001. Special Educational Needs Code of Practice. London: Department for Education and Skills.
   Google Scholar
• Department for Education (DfE). 2015. “Special Educational Needs and Disability Code of Practice: 0–25 Years.” https://www.gov.uk/government/publications/send-code-of-practice-0-to-25.
   Google Scholar
• Department for Education (DfE). 2018. “Phonics Screening Check and Key Stage 1 Assessments: England 2018.” https://www.gov.uk/government/statistics/phonics-screening-check-and-key-stage-1-assessments-england-2018.
   Google Scholar
• Department for Education (DfE). 2019a. “Key Stage 2 and Multi-academy Trust Performance, 2018 (Revised).” https://www.gov.uk/government/statistics/key-stage-2-and-multi-academy-trust-performance-2018-revised.
   Google Scholar
• Department for Education (DfE). 2019b. “National Curriculum Assessments: Key Stage 2, 2019 (Provisional).” https://www.gov.uk/government/statistics/national-curriculum-assessments-key-stage-2-2019-provisional.
   Google Scholar
• Dockrell, J., N. Peacey, and I. Lunt. 2002. Literature Review: Meeting the Needs of Children with Special Educational Needs. London: Institute of Education, University of London.
   Google Scholar
• Dockrell, J., J. Ricketts, O. Palikara, T. Charman, and G. Lindsay. 2012. Profiles of Need and Provision for Children with Language Impairments and Autism Spectrum Disorders in Mainstream Schools: A Prospective Study. Research Report DfE-RR247-BCRP9. London: Department for Education.
   Google Scholar
• Douglas, G., M. McLinden, C. Robertson, J. Travers, and E. Smith. 2016. “Including Pupils with Special Educational Needs and Disability in National Assessment: Comparison of Three Country Case Studies Through an Inclusive Assessment Framework.” International Journal of Disability, Development and Education 63 (1): 98–121.
   Web of Science ®Google Scholar
• Douglas, G., J. Travers, M. McLinden, C. Robertson, E. Smith, N. Macnab, S. Powers, et al. 2012. Measuring Educational Engagement, Progress and Outcomes for Children with Special Educational Needs: A Review. Report No. 11. Trim: National Council for Special Education.
   Google Scholar
• Feldman, E., J.-S. Kim, and S. Elliott. 2011. “The Effects of Accommodations on Adolescents’ Self-Efficacy and Test Performance.” The Journal of Special Education 45 (2): 77–88.
   Web of Science ®Google Scholar
• Fleury, V. P., S. Hedges, K. Hume, D. M. Browder, J. L. Thompson, K. Fallin, F. El Zein, C. Klein Reutebuch, and S. Vaughn. 2014. “Addressing the Academic Needs of Adolescents with Autism Spectrum Disorder in Secondary Education.” Remedial and Special Education 35 (2): 68–79. doi:10.1177/0741932513518823.
   Web of Science ®Google Scholar
• Florian, L., M. Rouse, K. Black-Hawkins, and S. Jull. 2004. “What Can National Data Sets Tell Us About Inclusion and Pupil Achievement?” British Journal of Special Education 31 (3): 115–121.
   Google Scholar
• Flyvbjerg, B. 2006. “Five Misunderstandings About Case Study Research.” Qualitative Enquiry 12 (2): 219–245.
   Web of Science ®Google Scholar
• Hesmondhalgh, M. 2006. Autism, Access and Inclusion on the Front Line: Confessions of an Autism Anorak. London: Jessica Kingsley Publishers.
   Google Scholar
• Hirvikoski, T., E. Mittendorfer-Rutz, M. Boman, and H. Larsson. 2016. “Premature Mortality in Autism Spectrum Disorder.” The British Journal of Psychiatry 208 (3): 232–238.
   PubMed Web of Science ®Google Scholar
• Howlin, P., S. Goode, J. Hutton, and M. Rutter. 2004. “Adult Outcome for Children with Autism.” Journal of Child Psychology and Psychiatry 45: 212–229.
   PubMed Web of Science ®Google Scholar
• Hutchings, M. 2015. Exam Factories? The Impact of Accountability Measures on Children and Young People. London: The National Union of Teachers.
   Google Scholar
• Jones, G. 2002. Educational Provision for Children with Autism and Asperger Syndrome: Meeting their Needs. David Fulton Publishers.
   Google Scholar
• Jones, G., L. Baker, A. English, and L. Lyn-Cook. 2011. National Autism Standards. London: Autism Education Trust.
   Google Scholar
• Keen, D., A. Webster, and G. Ridley. 2016. “How Well Are Children with Autism Spectrum Disorder Doing Academically at School? An Overview of the Literature.” Autism 20 (3): 276–294.
   PubMed Web of Science ®Google Scholar
• Kurth, J., and A. Mastergeorge. 2010. “Academic and Cognitive Profiles of Students with Autism: Implications for Classroom Practice and Placement.” International Journal of Special Education 25 (2): 8–14.
   Google Scholar
• Kurth, J., and A. Mastergeorge. 2012. “Impact of Setting and Instructional Context for Adolescents with Autism.” Journal of Special Education 46 (1): 36–48.
   Web of Science ®Google Scholar
• Lazarus, S., M. Thurlow, K. Lail, and L. Christensen. 2009. “A Longitudinal Analysis of State Accommodations Policies Twelve Years of Change, 1993–2005.” The Journal of Special Education 43 (2): 67–80.
   Web of Science ®Google Scholar
• Levy, A., and A. Perry. 2011. “Outcomes in Adolescents and Adults with Autism: A Review of the Literature.” Research in Autism Spectrum Disorders 5 (4): 1271–1282.
   Web of Science ®Google Scholar
• Lindsay, G. 2007. “Educational Psychology and the Effectiveness of Inclusive Education/Mainstreaming.” British Journal of Educational Psychology 77 (1): 1–24.
   PubMed Web of Science ®Google Scholar
• McDonald, A. 2001. “The Prevalence and Effects of Test Anxiety in School Children.” Educational Psychology 21: 89–101.
   Google Scholar
• Milton, Damian. 2016. “Educational Discourse and the Autistic Student: A Study Using Q-Sort Methodology.” (PhD diss.). University of Birmingham.
   Google Scholar
• Moores-Abdool, W. 2010. “Included Students with Autism and Access to General Curriculum: What is Being Provided?” Issues in Teacher Education 19: 153–169.
   Google Scholar
• Parsons, S., K. Guldberg, A. Macleod, G. Jones, A. Prunty, and T. Balfe. 2011. “International Review of the Evidence on Best Practice in Educational Provision for Children on the Autism Spectrum.” European Journal of Special Educational Needs 26 (1): 47–63.
   Google Scholar
• Perryman, J., S. Ball, M. Maguire, and A. Braun. 2011. “Life in the Pressure Cooker – School League Tables and English and Mathematics Teachers’ Responses to Accountability in a Results-Driven Era.” British Journal of Educational Studies 59 (2): 179–195.
   Web of Science ®Google Scholar
• Petrina, N., M. Carter, and J. Stephenson. 2017. “Teacher Perception of the Importance of Friendship and Other Outcome Priorities in Children with Autism Spectrum Disorder.” Education and Training in Autism and Developmental Disabilities 52 (2): 107–119.
   Web of Science ®Google Scholar
• Richards, L. 2005. Handling Qualitative Data: A Practical Guide. London: Sage Publications Ltd.
   Google Scholar
• Rimfeld, K., M. Malanchini, L. Hannigan, P. Dale, R. Allen, S. Hart, and R. Plomin. 2019. “Teacher Assessments During Compulsory Education Are as Reliable, Stable and Heritable as Standardized Test Scores.” The Journal of Child Psychology and Psychiatry, doi:10.1111/jcpp.13070.
   Web of Science ®Google Scholar
• Sainsbury, C. 2009. Martian in the Playground: Understanding the Schoolchild with Asperger’s Syndrome. London: Sage Publications.
   Google Scholar
• Saldaña, J. 2016. The Coding Manual for Qualitative Researchers. 3rd ed. London: Sage Publications Ltd.
   Google Scholar
• Segool, N. K., J. S. Carlson, A. N. Goforth, N. von der Embse, and J. A. Barterian. 2013. “Heightened Test Anxiety Among Young Children: Elementary School Students’ Anxious Responses to High-Stakes Testing.” Psychology in the Schools 50 (5): 489–499.
   Web of Science ®Google Scholar
• Sharples, J., R. Webster, and P. Blatchford. 2015. Making Best Use of Teaching Assistants: Guidance Report. London: Education Endowment Foundation.
   Google Scholar
• Standards and Testing Agency (STA). 2016. The Rochford Review: Final Report Review of assessment for Pupils Working Below the Standard of National Curriculum Tests. Report STA/16/7703/e.
   Google Scholar
• Standards and Testing Agency (STA). 2018. 2019 National Curriculum Assessments Key Stage 2: 2019 Access Arrangements Guidance. Report STA/19/8316/e.
   Google Scholar
• Strauss, A., and J. Corbin. 1998. Basics of Qualitative Research Techniques and Procedures for Developing Grounded Theory. 2nd ed. London: Sage Publications Ltd.
   Google Scholar
• Telli, S., P. D. Brok, and J. Çakiroglu. 2008. “Teachers’ and Students’ Perceptions of the Ideal Teacher.” Egitim Ve Bilim 33 (149): 118–129.
   Web of Science ®Google Scholar
• Thibault, R. 2014. “Can Autistics Redefine Autism? The Cultural Politics of Autistic Activism.” Trans-Scripts, 4. https://www.academia.edu/7234120/Can_Autistics_Redefine_Autism_The_Cultural_Politics_of_Autistic_Activism.
   Google Scholar
• Thomas, G. 2011. “A Typology for the Case Study in Social Science Following a Review of Definition, Discourse, and Structure.” Qualitative Inquiry 17 (6): 511–521.
   Web of Science ®Google Scholar
• United Nations Department of Economic and Social Affairs (UN DESA). 2006. Convention on the Rights of Persons with Disabilities (CRPD). New York: UN. www.un.org/disabilities/convention/conventionfull.shtml.
   Google Scholar
• Ward, G., and M. Quennerstedt. 2019. “Curiosity Killed by SATs: An Investigation of Mathematics Lessons Within an English Primary School.” Education 3-13 47 (3): 261–276.
   Web of Science ®Google Scholar
• Wilkinson, K., and L. Twist. 2010. Autism and Educational Assessment: UK Policy and Practice. Slough: National Centre for Educational Research.
   Google Scholar
• Wing, Lorna. 2007. “Children with Autistic Spectrum Disorders.” In Included or Excluded? The Challenge of the Mainstream for Some SEN Children, edited by Ruth Cigman, 23–33. Oxon: Routledge.
   Google Scholar
• Wittemeyer, K., T. Charman, J. Cusack, K. Guldberg, R. Hastings, P. Howlin, N. Macnab, S. Parsons, L. Pellicano, and V. Slomins. 2011. Educational Provision and Outcomes for People on the Autism Spectrum. London: Autism Education Trust.
   Google Scholar
• Wood, R. 2019a. “Autism, Intense Interests and Support in School: From Wasted Efforts to Shared Understandings.” Educational Review, doi:10.1080/00131911.2019.1566213.
   Web of Science ®Google Scholar
• Wood, R. 2019b. Inclusive Education for Autistic Children: Helping Children and Young People to Learn and Flourish in the Classroom. London: Jessica Kingsley Publishers.
   Google Scholar
• Wood, R. 2020. “The Wrong Kind of Noise: Understanding and Valuing the Communication of Autistic Children in Schools.” Educational Review 72 (1): 111–130. doi:10.1080/00131911.2018.1483895.
   Web of Science ®Google Scholar
• Woronko, D., and I. Killoran. 2011. “Creating Inclusive Environments for Children with Autism.” In Autism Spectrum Disorders – From Genes to Environment, edited by Tim Williams. InTech. doi:10.5772/21136. http://www.intechopen.com/books/howtoreference/autism-spectrum-disorders-from-genes-to-environment/creating-inclusive-environments-for-children-with-autism.
   Google Scholar