5,273
Views
149
CrossRef citations to date
0
Altmetric
Original Articles

Living with dementia: A systematic review of the influence of relationship factors

, &
Pages 497-511 | Received 14 Aug 2008, Accepted 04 Jan 2009, Published online: 22 Jul 2009

References

  • Alzheimer's Association. 2008 . 2008 Alzheimer's disease facts and figures , Chicago : AA .
  • Alzheimer's Society. 2007 . Dementia UK , London : AS .
  • Blieszner , R and Shifflett , PA . 1990 . The effects of Alzheimer's disease on close relationships between patients and caregivers . Family Relations , 39 ( 1 ) : 57 – 62 .
  • Burgener , S and Twigg , P . 2002 . Relationships among caregiver factors and quality of life in care recipients with irreversible dementia . Alzheimer's Disease and Associated Disorders , 16 ( 2 ) : 88 – 102 .
  • Carruth , AK . 1996 . Motivating factors, exchange patterns, and reciprocity among caregivers of parents with and without dementia . Research in Nursing and Health , 19 ( 5 ) : 409 – 419 .
  • Chesla , C , Martinson , I and Muwaswes , M . 1994 . Continuities and discontinuities in family members' relationships with Alzheimer's patients . Family Relations , 43 ( 1 ) : 3 – 9 .
  • Clare , L and Woods , RT . 2005 . Cognitive training and cognitive rehabilitation for people with early-stage Alzheimer's disease: A review . Neuropsychological Rehabilitation , 14 ( 4 ) : 385 – 401 .
  • Clarke , CL and Keady , J . 2002 . “ Getting down to brass tacks: A discussion of data collection with people with dementia ” . In The perspectives of people with dementia , Edited by: Wilkinson , H . London : Jessica Kingsley .
  • Cooper , C , Katona , C , Orrell , M and Livingston , G . 2008 . Coping strategies, anxiety and depression in caregivers of people with Alzheimer's disease . International Journal of Geriatric Psychiatry , 23 ( 9 ) : 929 – 936 .
  • Cuijpers , P . 2005 . Depressive disorders in caregivers of dementia patients: A systematic review . Aging and Mental Health , 9 ( 4 ) : 325 – 330 .
  • Daire , AP . 2002 . The influence of parental bonding on emotional distress in care giving sons for a parent with dementia . Gerontologist , 42 ( 6 ) : 766 – 771 .
  • de Boer , ME , Hertogh , CMPM , Droes , RM , Riphagen , II , Jonker , C and Eefsting , JA . 2007 . Suffering from dementia–the patient's perspective: A review of the literature . International Psychogeriatrics , 19 ( 6 ) : 1021 – 1039 .
  • de Vugt , ME , Stevens , F , Aalten , PEA , Lousberg , R , Jaspers , N Winkens , I . 2003 . Behavioural disturbances in dementia patients and quality of the marital relationship . International Journal of Geriatric Psychiatry , 18 ( 2 ) : 149 – 154 .
  • Department for Constitutional Affairs. 2005 . Mental capacity act , London : TSO .
  • Department of Health. 2005 . Research governance framework for health and social care , 2nd , London : DH .
  • Donaldson , C , Tarrier , N and Burns , A . 1997 . The impact of the symptoms of dementia on caregivers . British Journal of Psychiatry , 170 : 62 – 68 .
  • Dunkin , JJ and Anderson-Hanley , C . 1998 . Dementia caregiver burden–A review of the literature and guidelines for assessment and intervention . Neurology , 51 ( 1 ) : S53 – S60 .
  • Eloniemi-Sulkava , U , Notkola , I , Hamalainen , K , Rahkonen , T , Viramo , P and Hentinen , M . 2002 . Spouse caregivers’ perceptions of influence of dementia on marriage . International Psychogeriatrics , 14 ( 1 ) : 47 – 58 .
  • Ettema , TP , Droes , RM , de Lange , J , Mellenbergh , GJ and Ribbe , MW . 2005 . A review of quality of life instruments used in dementia . Quality of Life Research , 14 ( 3 ) : 675 – 686 .
  • Ferri , CP , Prince , M , Brayne , C , Brodaty , H , Fratiglioni , L Ganguli , M . 2005 . Global prevalence of dementia: A Delphi consensus study . Lancet , 366 : 2112 – 2117 .
  • Gallagher-Thompson , D , Dal Canto , PG , Jacob , T and Thompson , LW . 2001 . A comparison of marital interaction patterns between couples in which the husband does or does not have Alzheimer's disease . Journals of Gerontology Series B–Psychological Sciences and Social Sciences , 56 ( 3 ) : S140 – S150 .
  • Gilhooly , MLM . 1984 . The impact of care-giving on care-givers: Factors associated with the psychological well-being of people supporting a dementing relative in the community . British Journal of Medical Psychology , 57 : 35 – 44 .
  • Gilleard , CJ , Belford , H , Gilleard , E , Whittick , JE and Gledhill , K . 1984 . Emotional distress amongst the supporters of the elderly mental infirm . British Journal of Psychiatry , 145 : 172 – 177 .
  • Harris , PB . 2002 . The person with Alzheimer's disease. , Baltimore : Johns Hopkins University Press .
  • Hellstrom , I , Nolan , M and Lundh , U . 2007 . Sustaining ‘couple hood’: Spouses’ strategies for living positively with dementia . Dementia: The International Journal of Social Research and Practice , 6 ( 3 ) : 383 – 409 .
  • Hirschfeld , M . 1983 . Homecare versus institutionalisation: Family care giving and senile brain disease . International Journal of Nursing Studies , 20 ( 1 ) : 22 – 32 .
  • Horowitz , A and Shindelman , LW . 1983 . Reciprocity and affection: Past influences on current care giving . Journal of Gerontological Social Work , 5 ( 3 ) : 5 – 20 .
  • Hubbard , G , Downs , M and Tester , S . 2002 . “ Including the perspectives of older people in institutional care during the consent process ” . In The perspectives of people with dementia , Edited by: Wilkinson , H . London : Jessica Kingsley .
  • Kitwood , T . 1997 . Dementia reconsidered: The person comes first , Buckingham, , UK : Open University Press .
  • Kneebone , II and Martin , PR . 2003 . Coping and caregivers of people with dementia . British Journal of Health Psychology , 8 ( 1 ) : 1 – 17 .
  • Knop , DS , Bergman-Evans , B and McCabe , BW . 1998 . In sickness and in health: An exploration of the perceived quality of the marital relationship, coping and depression in caregivers of spouses with Alzheimer's disease . Journal of Psychosocial Nursing , 36 : 16 – 21 .
  • Kramer , BJ . 1993 . Marital history and the prior relationship as predictors of positive and negative outcomes among wife caregivers . Family Relations , 42 ( 4 ) : 367 – 375 .
  • Lawrence , RH , Tennstedt , SL and Assman , SF . 1998 . Quality of the caregiver–care recipient relationship: Does it offset negative consequences of care giving for family caregivers? . Psychology and Aging , 13 ( 1 ) : 150 – 158 .
  • Lyons , KS , Zarit , SH , Sayer , AG and Whitlatch , CJ . 2002 . Care giving as a dyadic process: Perspectives from caregiver and receiver . Journal of Gerontology , 57 ( 3 ) : 195 – 204 .
  • Medical Research Council. 2007 . MRC ethics guide: Medical research involving adults who cannot consent , London : MRC .
  • Morris , RG , Morris , LW and Britton , PG . 1988a . Factors affecting the emotional wellbeing of the caregivers of dementia sufferers . British Journal of Psychiatry , 153 : 147 – 156 .
  • Morris , LW , Morris , RG and Britton , PG . 1988b . The relationship between marital intimacy, perceived strain and depression in spouse care givers of dementia sufferers . British Journal of Medical Psychology , 61 ( 3 ) : 231 – 236 .
  • Murray , J , Schneider , J , Banerjee , S and Mann , A . 1999 . EUROCARE: A cross-national study of co-resident spouse carers for people with Alzheimer's disease: A qualitative analysis of the experience of care giving . International Journal of Geriatric Psychiatry , 14 : 662 – 667 .
  • National Audit Office. 2007 . Improving services and support for people with dementia , London : TSO .
  • National Institute for Health and Clinical Excellence. 2006 . Dementia: Supporting people with dementia and their carers in health and social care , London : NICE .
  • Neufeld , A and Harrison , MJ . 1995 . Reciprocity and social support in caregivers' relationships: Variations and consequences . Qualitative Health Research , 5 ( 3 ) : 348 – 365 .
  • Neufeld , A and Harrison , MJ . 1998 . Men as caregivers: Reciprocal relationships or obligation? . Journal of Advanced Nursing , 28 ( 5 ) : 959 – 968 .
  • Pratt , R . 2002 . “ ‘Nobody's ever asked me how I felt’ ” . In The perspectives of people with dementia , Edited by: Wilkinson , H . London : Jessica Kingsley .
  • Quayhagen , MP and Quayhagen , M . 1996 . Discovering life quality in coping with dementia . Western Journal of Nursing Research , 18 ( 2 ) : 120 – 135 .
  • Quayhagen , MP and Quayhagen , M . 2001 . Testing of a cognitive stimulation intervention for dementia caregiving dyads . Neuropsychological Rehabilitation , 11 ( 3&4 ) : 319 – 332 .
  • Rankin , ED , Haut , MW and Keefover , RW . 2001 . Current marital functioning as a mediating factor in depression among spouse caregivers in dementia . Clinical Gerontologist , 23 : 27 – 44 .
  • Robinson , KM . 1990 . Predictors of burden among wife caregivers . Scholarly Inquiry for Nursing Practice , 4 ( 3 ) : 189 – 203 .
  • Savundranayagam , MY , Hummert , ML and Montgomery , RJV . 2005 . Investigating the effects of communication problems on caregiver burden . Journals of Gerontology Series B–Psychological Sciences and Social Sciences , 60 ( 1 ) : S48 – S55 .
  • Seiffer , A , Clare , L and Harvey , R . 2005 . The role of personality and coping style in relation to awareness of current functioning in early-stage dementia . Aging and Mental Health , 9 ( 6 ) : 535 – 541 .
  • Smits , CHM , de Lange , J , Droes , RM , Meiland , F , Vernooij-Dassen , M and Pot , AM . 2007 . Effects of combined intervention programmes for people with dementia living at home and their caregivers: A systematic review . International Journal of Geriatric Psychiatry , 22 ( 12 ) : 1181 – 1193 .
  • Sorensen , S , Duberstein , P , Gill , D and Pinquart , M . 2006 . Dementia care: Mental health effects, intervention strategies, and clinical implications . Lancet Neurology , 5 ( 11 ) : 961 – 973 .
  • Steadman , PL , Tremont , G and Davis , JD . 2007 . Premorbid relationship satisfaction and caregiver burden in dementia caregivers . Journal of Geriatric Psychiatry and Neurology , 20 ( 2 ) : 115 – 119 .
  • Townsend , AL and Franks , MM . 1995 . Binding ties: Closeness and conflict in adult children's caregiving relationships . Psychology and Aging , 10 ( 3 ) : 343 – 351 .
  • Townsend , AL and Franks , MM . 1997 . Quality of the relationship between elderly spouses: Influence on spouse caregivers’ subjective effectiveness . Family Relations , 46 ( 1 ) : 33 – 39 .
  • Uchino , BN , Kiecolt-Glaser , JK and Cacioppo , JT . 1994 . Construals of preillness relationship quality predict cardiovascular response in family caregivers of Alzheimer's disease victims . Psychology and Aging , 9 ( 1 ) : 113 – 120 .
  • Whitlatch , CJ . 2001 . Including the person with dementia in family care-giving research . Aging and Mental Health , 5 ( S1 ) : S20 – S22 .
  • Whitlatch , CJ , Judge , K , Zarit , SH and Femia , E . 2006 . Dyadic intervention for family caregivers and care receivers in early-stage dementia . Gerontologist , 46 ( 5 ) : 688 – 694 .
  • Wilkinson , H . 2002 . The perspectives of people with dementia: Research methods and motivations. , London : Jessica Kingsley .
  • Williamson , GM and Schulz , R . 1990 . Relationship orientation, quality of prior relationship, and distress among caregivers of Alzheimer's patients . Psychology and Aging , 5 ( 4 ) : 502 – 509 .
  • Williamson , GM and Shaffer , DR . 2001 . Relationship quality and potentially harmful behaviors by spousal caregivers: How we were then, how we are now . Psychology and Aging , 16 ( 2 ) : 217 – 226 .
  • Woods , RT . 2001 . Discovering the person with Alzheimer's disease: Cognitive, emotional and behavioural aspects . Aging and Mental Health , 5 ( 2 ) : 7 – 16 .
  • Woods , RT , Wills , W , Higginson , IJ , Hobbins , J and Whitby , M . 2003 . Support in the community for people with dementia and their carers: A comparative outcome study of specialist mental health service interventions . International Journal of Geriatric Psychiatry , 18 ( 4 ) : 298 – 307 .
  • Wright , LK . 1991 . The impact of Alzheimer's disease on the marital relationship . Gerontologist , 31 ( 2 ) : 224 – 237 .
  • Wuest , J , Ericson , PK and Stern , PN . 1994 . Becoming strangers–the changing family care-giving relationship in Alzheimer's disease . Journal of Advanced Nursing , 20 ( 3 ) : 437 – 443 .
  • Yale , R and Snyder , L . 2002 . “ The experience of support groups for persons with early-stage Alzheimer's disease and their families ” . In The person with Alzheimer's disease , Edited by: Harris , PB . Baltimore : Johns Hopkins University Press .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.