‘She might have what I have got’: The potential utility of vignettes as an indirect measure of awareness in early-stage dementia

References

• Aalten , P , van Valen , E , Clare , L , Kenny , G and Verhey , F . 2005 . Awareness in dementia: A review of clinical correlates . Aging & Mental Health , 9 : 414 – 422 .
   PubMed Web of Science ®Google Scholar
• Abreu , BC , Seale , G , Scheibel , RS , Huddleston , N , Zhang , L and Ottenbacher , KJ . 2001 . Levels of self-awareness after acute brain injury: How patients’ and rehabilitation specialists’ perceptions compare . Archives of Physical Medicine and Rehabilitation , 82 : 49 – 56 .
   PubMed Web of Science ®Google Scholar
• Barter , C . & Renold, E. (1999). The use of vignettes in qualitative research. Social Research Update, 25. Guildford: Department of Sociology, University of Surrey. Retrieved from http://www.soc.surrey.ac.uk/sru/SRU25.html
   Google Scholar
• Clare , L . 2003 . Managing threats to self: Awareness in early-stage Alzheimer's disease . Social Science and Medicine , 57 : 1017 – 1029 .
   PubMed Web of Science ®Google Scholar
• Clare , L , Goater , T and Woods , B . 2006 . Illness representations in early-stage dementia: A preliminary investigation . International Journal of Geriatric Psychiatry , 21 : 761 – 767 .
   PubMed Web of Science ®Google Scholar
• Clare , L , Marková , I , Roth , I and Morris , RG . 2011 . Awareness in Alzheimer's disease and associated dementias: Theoretical framework and clinical implications . Aging & Mental Health , 15 : 936 – 944 .
   PubMed Web of Science ®Google Scholar
• Clare , L , Marková , I , Verhey , F and Kenny , G . 2005 . Awareness in dementia: A review of assessment methods and measures . Aging & Mental Health , 9 : 394 – 413 .
   PubMed Web of Science ®Google Scholar
• Clare , L , Rowlands , J , Bruce , E , Surr , C and Downs , M . 2008 . ‘I don’t do like I used to do’: A grounded theory approach to conceptualising awareness in people with moderate to severe dementia living in long-term care . Social Science and Medicine , 66 : 2366 – 2377 .
   PubMed Web of Science ®Google Scholar
• Clare , L , Whitaker , CJ , Nelis , SM , Martyr , A , Marková , I , Roth , I and Morris , RG . 2011 . Multi-dimensional assessment of awareness in early-stage dementia: A cluster analytic approach . Dementia and Geriatric Cognitive Disorders , 31 : 317 – 327 .
   PubMed Web of Science ®Google Scholar
• Cohen , J . 1960 . A coefficient of agreement for nominal scales . Educational and Psychological Measurement , 20 : 37 – 46 .
   Web of Science ®Google Scholar
• DeBettignies , BH , Mahurin , RK and Pirozzolo , FJ . 1990 . Insight for impairment in independent living skills in Alzheimer's disease and multi-infarct dementia . Journal of Clinical and Experimental Neuropsychology , 12 : 355 – 363 .
   PubMed Web of Science ®Google Scholar
• Derouesne , C , Thibault , S , Lagha-Pierucci , S , Baudouin-Madec , V , Ancri , D and Lacomblez , L . 1999 . Decreased awareness of cognitive deficits in patients with mild dementia of the Alzheimer type . International Journal of Geriatric Psychiatry , 14 : 1019 – 1030 .
   PubMed Web of Science ®Google Scholar
• Folstein , MF , Folstein , SE and McHugh , PR . 1975 . ‘Mini-mental state’: A practical method for grading the cognitive state of patients for the clinician . Journal of Psychiatric Research , 12 : 189 – 198 .
   PubMed Web of Science ®Google Scholar
• Howorth , P and Saper , J . 2003 . The dimensions of insight in people with dementia . Aging & Mental Health , 7 : 113 – 122 .
   PubMed Web of Science ®Google Scholar
• Klein , S and Gangi , C . 2010 . The multiplicity of self: Neuropsychological evidence and its implications for the self as a construct in psychological research . Annals of the New York Academy of Sciences , 1191 ( 1 ) : 1 – 15 .
   PubMedGoogle Scholar
• Lorig , KR , Sobel , DS , Stewart , AL , Brown , BW , Bandura , A , Ritter , P and Holman , HR . 1999 . Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: A randomized trial . Medical Care , 37 : 5 – 14 .
   PubMed Web of Science ®Google Scholar
• Low , LF and Anstey , KJ . 2009 . Dementia literacy: Recognition and beliefs on dementia of the Australian public . Alzheimer's and Dementia , 5 : 43 – 49 .
   PubMed Web of Science ®Google Scholar
• Marková , IS , Clare , L , Wang , M , Romero , B and Kenny , G . 2005 . Awareness in dementia: Conceptual issues . Aging & Mental Health , 9 : 386 – 393 .
   PubMed Web of Science ®Google Scholar
• Schmand , B , Gouwenberg , B , Smit , J and Jonker , C . 1999 . Assessment of mental competency in community-dwelling elderly . Alzheimer Disease and Associated Disorders , 13 : 80 – 87 .
   PubMed Web of Science ®Google Scholar
• Seiffer , A , Clare , L and Harvey , R . 2005 . The role of personality and coping style in relation to awareness of current functioning in early-stage dementia . Aging & Mental Health , 9 : 535 – 541 .
   PubMed Web of Science ®Google Scholar
• Startup , M . 1997 . Awareness of own and others’ schizophrenic illness . Schizophrenia Research , 26 : 203 – 211 .
   PubMed Web of Science ®Google Scholar
• Torres , S . 2009 . Vignette methodology and culture-relevance: Lessons learned through a project on successful aging with Iranian immigrants to Sweden . Journal of Cross-Cultural Gerontology , 24 : 93 – 114 .
   PubMedGoogle Scholar
• Veal , WR . 2002 . Content-specific vignettes as tools for research and teaching . Electronic Journal of Science Education , 6 ( 4 ) : 1 – 37 .
   Google Scholar
• Vellinga , A , Smit , JH , van Leeuwen , E , van Tilburg , W and Jonker , C . 2004 . Competence to consent to treatment of geriatric patients: Judgements of physicians, family members and the vignette method . International Journal of Geriatric Psychiatry , 19 : 645 – 654 .
   PubMed Web of Science ®Google Scholar
• Vellinga , A , Smit , JH , van Leeuwen , E , van Tilburg , W and Jonker , C . 2005 . Decision-making capacity of elderly patients assessed through the vignette method: Imagination or reality? . Aging & Mental Health , 9 : 40 – 48 .
   PubMed Web of Science ®Google Scholar
• Verhey , FRJ , Rozendaal , N , Ponds , RWHM and Jolles , J . 1993 . Dementia, awareness and depression . International Journal of Geriatric Psychiatry , 8 : 851 – 856 .
   Web of Science ®Google Scholar
• VonDras , D . 2009 . Lay appraisal of cognitive impairment symptoms and related prevention beliefs in a community-dwelling sample of midlife and older adults . Journal of Applied Gerontology , 28 : 342 – 368 .
   Web of Science ®Google Scholar
• Weinstein , EA , Friedland , RP and Wagner , EE . 1994 . Denial/unawareness of impairment and symbolic behavior in Alzheimer's disease . Neuropsychiatry, Neuropsychology and Behavioral Neurology , 7 : 176 – 184 .
   Google Scholar
• Werner , P . 2006 . Lay perceptions regarding the competence of persons with Alzheimer's disease . International Journal of Geriatric Psychiatry , 21 : 674 – 680 .
   PubMed Web of Science ®Google Scholar
• Werner , P and Davidson , M . 2004 . Emotional reactions of lay persons to someone with Alzheimer's disease . International Journal of Geriatric Psychiatry , 19 : 391 – 397 .
   PubMed Web of Science ®Google Scholar
• Wilson , TD and Dunn , EW . 2004 . Self-knowledge: Its limits, value and potential for improvement . Annual Review of Psychology , 55 : 493 – 518 .
   PubMed Web of Science ®Google Scholar
• World Health Organisation . 1992 . The ICD-10 classification of mental and behavioural disorders: Clinical descriptions and diagnostic guidelines , Geneva : World Health Organisation, Division of Mental Health .
   Google Scholar