Ethnicity, familism and willingness to care: Important influences on caregiver mood?

References

• Abell , N . 2001 . Assessing willingness to care for persons with AIDS: Validation of a new measure . Research on Social Work Practice , 11 : 118 – 130 . doi: 10.1177/104973150101100108
   Web of Science ®Google Scholar
• Angel , R and Thoits , P . 1987 . The impact of culture on the cognitive structure of illness . Culture, Medicine and Psychiatry , 11 : 465 – 494 . doi: 10.1007/BF00048494
   PubMed Web of Science ®Google Scholar
• Aranda , MP and Knight , BG . 1997 . The influence of ethnicity and culture on the caregiver stress and coping process: A socio-cultural review and analysis . The Gerontologist , 37 : 342 – 354 . doi: 10.1093/geront/37.3.342
   PubMed Web of Science ®Google Scholar
• Atkin , K and Rollings , J . 1992 . Informal care in Asian and Afro/Caribbean communities: A literature review . British Journal of Social Work , 22 : 405 – 418 .
   Web of Science ®Google Scholar
• Bakas , T and Burgener , SC . 2002 . Predictors of emotional distress, general health and caregiving outcomes in family caregivers of stroke survivors . Topics in Stroke and Rehabilitation , 9 : 34 – 45 . doi: 10.1310/GN0J-EXVX-KX0B-8X43
   PubMedGoogle Scholar
• Bridges , BJ . 1995 . Therapeutic caregiving: A practical guide for caregivers of person's with Alzheimer's disease and other dementia causing diseases , Washington , DC : BJB .
   Google Scholar
• Burridge , L , Winch , S and Clavarino , A . 2007 . Reluctance to care: A systematic review and development of a conceptual framework . Cancer Nursing , 30 : 9 – 19 . doi: 10.1097/01.NCC.0000265298.17394.e0
   PubMedGoogle Scholar
• Carers , UK . (2007). Support for Black, Asian and minority ethnic carers: A good practice briefing. [Brochure]. London: Author
   Google Scholar
• Carers , UK . (2009). Facts about carers [Brochure]. London: Author
   Google Scholar
• Carver , CS . 1997 . You want to measure coping but your protocol's too long: Consider the brief COPE . International Journal of Behavioural Medicine , 4 : 92 – 100 . doi: 10.1207/s15327558ijbm0401_6
   PubMed Web of Science ®Google Scholar
• Census (2001). Office for National statistics; General Register Office for Scotland. Retrieved from www.statistics.gov.uk
   Google Scholar
• Chada , RK , Singh , TB and Ganguly , KK . 2007 . Caregiver burden and coping . Social Psychiatry , 42 : 923 – 930 .
   Google Scholar
• Chun , M , Knight , BG and Youn , G . 2007 . Differences in stress and coping models of emotional distress among Korean, Korean American and White-American caregivers . Aging & Mental Health , 11 : 20 – 29 . doi: 10.1080/13607860600736232
   PubMed Web of Science ®Google Scholar
• Crist , J , McEwen , MM , Herrera , AP , Kim , SS , Pasvogel , A and Hepworth , JT . 2009 . Caregiving burden, acculturation, familism and Mexican elders’ use of home care services . Research and Theory for Nursing Practice , 23 : 165 – 180 . doi: 10.1891/1541-6577.23.3.165
   PubMedGoogle Scholar
• Davis , JG , Hermanson , K , Koopman , CL , Weibel , D and Spiegel , D . 2000 . Quality of couples’ relationship and adjustment to metastatic breast cancer . Journal of Family Psychology , 14 : 251 – 266 . doi: 10.1037/0893-3200.14.2.251
   PubMed Web of Science ®Google Scholar
• Dein , S . 2004 . Explanatory models of and attitudes towards cancer in different cultures . The Lancet Oncology , 5 : 119 – 124 . doi: 10.1016/S1470-2045(04)01386-5
   PubMed Web of Science ®Google Scholar
• Dilworth-Anderson , P , Williams , IC and Gibson , BE . 2000 . Issues of race, ethnicity and culture in caregiving research: A 20 year review 1980–2000 . The Gerontologist , 42 : 237 – 272 . doi: 10.1093/geront/42.2.237
   Web of Science ®Google Scholar
• Eshiett , MU-A and Parry , EHO . 2003 . Migrants and health: A cultural dilemma . Clinical Medicine , 3 : 229 – 231 .
   PubMed Web of Science ®Google Scholar
• Goode , KT , Hayley , WE , Roth , DL and Ford , GR . 1998 . Predicting longitudinal changes in caregiver physical and mental health: A stress process model . Health Psychology , 17 : 190 – 198 . doi: 10.1037/0278-6133.17.2.190
   PubMed Web of Science ®Google Scholar
• Gupta , R . 2002 . Impact of mental health on perceived caregiver burden in South Asian families . Journal of Mental Health and Aging , 8 : 45 – 57 .
   Google Scholar
• Gupta , R , Rowe , N and Pillai , VK . 2009 . Perceived caregiver burden in India: Implications for social services . Affilia: Journal of Women & Social Work , 24 : 69 – 79 . doi: 10.1177/0886109908326998
   Web of Science ®Google Scholar
• Haley , WE , Levine , EG , Brown , SL and Bartolucci , AA . 1987 . Stress, appraisal, coping and social support as predictors of adaptational outcome among dementia caregivers . Psychology and Aging , 2 : 323 – 330 . doi: 10.1037/0882-7974.2.4.323
   PubMed Web of Science ®Google Scholar
• Heller , PL . 1976 . Familism scale: Revalidation and revision . Journal of Marriage and the Family , 38 : 423 – 429 . doi: 10.2307/350410
   Web of Science ®Google Scholar
• Henry , A and Schott , J . 1999 . Culture, religion and patient care in a multi-ethnic society: A handbook for professionals , England : Age Concern .
   Google Scholar
• Hepworth , D. 2005 . Asian carers' perceptions of care assessment and support in the community . British Journal of Social Work , 35 : 337 – 353 . doi: 10.1093/bjsw/bch185
   Web of Science ®Google Scholar
• Hussain , AF and Cochrane , R . 2003 . Living with depression: Coping strategies used by South Asian women living in the UK, suffering from depression . Mental Health, Religion and Culture , 6 : 21 – 44 . doi: 10.1080/1367467021000014864
   Google Scholar
• Katbamna , S , Ahmad , W , Bhakta , P , Baker , R and Parker , G . 2004 . Do they look after their own? Informal support for South Asian carer . Health and Social Care in the Community , 12 : 398 – 406 . doi: 10.1111/j.1365-2524.2004.00509.x
   PubMed Web of Science ®Google Scholar
• Katbamna , S . & Bhakta, P. (1998). Experiences and needs of carers from the South-Asian communities (Working Paper No. 62). Leicester: Nuffield Community Care Studies (NCCSU), University of Leicester
   Google Scholar
• Kim , Y and Schulz , R . 2008 . Family caregiver's strain: Comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving . Journal of Aging and Health , 20 : 483 – 503 . doi: 10.1177/0898264308317533
   PubMed Web of Science ®Google Scholar
• Knight , BG and Sayegh , P . 2010 . Cultural values and caregiving: The updated socio-cultural stress and coping model . Journal of Gerontology: Psychological Sciences , 65B : 5 – 13 . doi: 10.1093/geronb/gbp096
   Google Scholar
• Lai , DWL . 2007 . Cultural predictors of caregiving burden of Chinese Canadian family caregivers . Canadian Journal on Aging – Revue Canadienne Du Vieillissement , 26 : 133 – 147 . doi: 10.3138/cja.26.suppl_1.133
   PubMed Web of Science ®Google Scholar
• Lazarus , RS . 1999 . Stress and emotions: A new synthesis , London : Free Association Books .
   Google Scholar
• Lazarus , RS . 2000 . Towards better research on stress and coping . American Psychologist , 55 : 665 – 673 . doi: 10.1037/0003-066X.55.6.665
   PubMed Web of Science ®Google Scholar
• Lazarus , RS and Folkman , S . 1984 . Stress, appraisal, and coping , New York , NY : Springer .
   Google Scholar
• Lee , EE and Farran , CJ . 2004 . Depression among Korean, Korean American, and Caucasian American family caregivers . Journal of Transcultural Nursing , 15 : 18 – 25 . doi: 10.1177/1043659603260010
   PubMedGoogle Scholar
• Losada , A , Robinson , GS , Knight , BG , Marquez , M , Montorio , I , Izal , M and Ruiz , MA . 2006 . Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers . Aging & Mental Health , 10 : 69 – 76 . doi: 10.1080/13607860500307647
   PubMed Web of Science ®Google Scholar
• Mackenzie , A , Perry , L , Lockhart , E , Cottee , M , Cloud , G and Mann , H . 2007 . Family carers of stroke survivors: Needs, knowledge, satisfaction and competence in caring . Disability and Rehabilitation , 29 : 111 – 121 . doi: 10.1080/09638280600731599
   PubMed Web of Science ®Google Scholar
• Mann , R . (2009). Evolving family structures, roles and relationships in light of ethnic and social change. Retrieved from http://www.beyondcurrenthorizons.org.uk
   Google Scholar
• McMillan , SC , Small , BJ , Schonwetter , R , Tittle , M , Moody , L and Haley , WE . 2005 . Impact of coping skills intervention with family caregivers of hospice patients with cancer: A randomized clinical trial . Cancer , 106 : 214 – 222 . doi: 10.1002/cncr.21567
   Web of Science ®Google Scholar
• Miller , B , Townsend , A , Carpenter , E , Montgomey , RVJ , Stull , D and Young , RF . 2001 . Social support and caregiver distress: A replication analysis . Journal of Gerontology , 56B : 249 – 256 .
   Google Scholar
• Mir , G. and Tovey , P. 2003 . Asian carers' experiences of medical and social care: The case of cerebral palsy . British Journal of Social Work , 33 : 465 – 479 . doi: 10.1093/bjsw/33.4.465
   Web of Science ®Google Scholar
• Pakenham , KI . 2001 . Application of a stress and coping model to caregiving in multiple sclerosis . Psychology, Health & Medicine , 6 : 13 – 27 .
   Google Scholar
• Pariante , CM , Carpiniello , B , Orru , G , Sitzia , R , Piras , A , Farci , AM Miller , AH . 1997 . Chronic caregiving stress alters peripheral blood immune parameter: The role of age and severity of stress . Psychotherapy and Psychosomatics , 66 : 199 – 207 . doi: 10.1159/000289135
   PubMed Web of Science ®Google Scholar
• Parveen , S and Morrison , V . 2009 . Predictors of familism: A pilot study . Journal of Health Psychology , 14 : 1135 – 1143 . doi: 10.1177/1359105309343020
   PubMed Web of Science ®Google Scholar
• Parveen , S and Morrison , V . 2012 . Predicting caregiver gains: A longitudinal study . British Journal of Health Psychology , (in press)
   PubMed Web of Science ®Google Scholar
• Parveen , S , Morrison , V and Robinson , CA . 2011 . Ethnic variations in the caregiver role: A qualitative study . Journal of Health Psychology , 16 : 862 – 872 . doi: 10.1177/1359105310392416
   PubMed Web of Science ®Google Scholar
• Pinquart , M and Sorensen , S . 2006 . Gender differences in caregiver stressors, social resources, and health: An updated meta analysis . Journal of Gerontology: Psychological Sciences , 61B : 33 – 45 . doi: 10.1093/geronb/61.1.P33
   Google Scholar
• Rajaram , SS and Rashidi , A . 1998 . Minority women and breast cancer screening: The role of cultural explanatory models . Preventive Medicine , 27 : 757 – 764 . doi: 10.1006/pmed.1998.0355
   PubMed Web of Science ®Google Scholar
• Sabogal , F , Marin , G , Otero-Sabogal , R , Marin , BV and Perez-Stable , EJ . 1987 . Hispanic familism and acculturation: What changes and what doesn’t? . Hispanic Journal of Behavioural Sciences , 9 : 397 – 412 . doi: 10.1177/07399863870094003
   Web of Science ®Google Scholar
• Saranson , IG , Levine , HM , Basham , RB and Saranson , BR . 1983 . Assessing social support: The Social Support Questionnaire . Journal of Personality and Social Psychology , 44 : 127 – 139 . doi: 10.1037/0022-3514.44.1.127
   Web of Science ®Google Scholar
• The Stroke Association (2008). Stroke and South-Asian people. Fact sheet 32
   Google Scholar
• Youn , G , Knight , BG , Jeong , H and Benton , D . 1999 . Differences in familism values and caregiving outcomes among Korean, Korean American, and White American dementia caregivers . Psychology and Aging , 14 : 355 – 364 . doi: 10.1037/0882-7974.14.3.355
   PubMed Web of Science ®Google Scholar
• Zhan , HJ . 2006 . Joy and sorrow: Explaining Chinese caregivers’ reward and stress . Journal of Aging Studies , 20 : 27 – 38 . doi: 10.1016/j.jaging.2005.01.002
   Web of Science ®Google Scholar
• Zigmond , AS and Snaith , RP . 1983 . The hospital anxiety and depression scale . Acta Psychiatrica Scandinavica , 63 : 361 – 370 . doi: 10.1111/j.1600-0447.1983.tb09716.x
   Web of Science ®Google Scholar