Diagnostic communication in the memory clinic: a conversation analytic perspective

References

• Aminzadeh, F., Byszewski, A., Molnar F.J., & Eisner, M. (2007). Emotional impact of dementia diagnosis: Exploring persons with dementia and caregivers’ perspectives. Aging & Mental Health, 11(3), 281–290.
   PubMed Web of Science ®Google Scholar
• Antaki, C. (Ed.). (2011). Applied conversation analysis: Intervention and change in institutional talk. Basingstoke: Palgrave Macmillan.
   Google Scholar
• Bamford, C., Lamont, S., Eccles, M., Robinson, L, May, C., & Bond, J. (2004). Disclosing a diagnosis of dementia: A systematic review. International Journal of Geriatric Psychiatry, 19, 151–169.
   PubMed Web of Science ®Google Scholar
• Bensing, J.M., Verhaak, P.F.M., van Dulmen, A.M., & Visser, A.P. (2000). Communication: The royal pathway to patient-centered medicine. Patient Education and Counseling, 39(1), 1–3.
   PubMed Web of Science ®Google Scholar
• Bergmann, J.R. (1992). Veiled morality: Notes on discretion in psychiatry. In P. Drew & J. Heritage (Eds.), Talk at work (pp. 137–162). Cambridge: Cambridge University Press.
   Google Scholar
• Brooker, D., La Fontaine, J., Evans, S., Bray, J., & Saad, K. (2014). Public health guidance to facilitate timely diagnosis of dementia: ALzheimer's COoperative Valuation in Europe recommendations. International Journal of Geriatric Psychiatry, 29, 682–693.
   PubMed Web of Science ®Google Scholar
• Bunn, F., Goodman, C., Sworn, K., Rait, G., Brayne, C., Robinson, L., … Iliffe, S. (2012). Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: A systematic review of qualitative studies. PLoS Medicine, 9(10). doi:10.1371/journal.pmed.1001331
   PubMed Web of Science ®Google Scholar
• Campbell, D. (2014). NHS dementia plan to give GPs cash for diagnoses criticised as ‘ethical travesty’. Retrieved from: http://www.theguardian.com/society/2014/oct/22/nhs-dementia-diagnoses-gps-patients-criticised
   Google Scholar
• del Vento, A. (2007). Physicians’ use of indirect language to deliver medical bad news: An experimental investigation ( master's thesis). University of Victoria. Retrieved from: http://dspace.library.uvic.ca:8080/bitstream/handle/1828/195/Del%20Vento's%20thesis_[complete%20document]pdf?sequence=1
   Google Scholar
• Department of Health [DoH]. (2009). Living well with dementia: A national dementia strategy. London: The Stationary Office.
   Google Scholar
• Department of Health [DoH]. (2012). Prime minister's challenge on dementia. London: The Stationary Office.
   Google Scholar
• Fearnley, K., McLennan, J., & Weaks, D. (1997). The right to know? Sharing the diagnosis of dementia. Edinburgh: Alzheimer-Scotland Action on Dementia.
   Google Scholar
• Ferri, C.P., Prince, M., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., … Alzheimer's Disease International. (2005). Alzheimer's disease international global prevalence of dementia: A delphi consensus study. Lancet, 366, 2112–2117.
   PubMed Web of Science ®Google Scholar
• Hansen, E.C., Hughes, C., Routley, G., & Robinson, A.L. (2008). General practitioners’ experiences and understandings of diagnosing dementia: Factors impacting on early diagnosis. Social Science & Medicine, 67, 1776–1783.
   PubMed Web of Science ®Google Scholar
• Harding, R., & Peel, E. (2013). “He was like a zombie”: Off-label prescription of antipsychotic drugs in dementia. Medical Law Review, 21(2), 243–277.
   PubMedGoogle Scholar
• Heath, C. (1992). The delivery and reception of diagnosis and assessment in the general practice consultation. In P. Drew & J. Heritage (Eds.), Talk at work (pp. 235–267). Cambridge: Cambridge University Press.
   Google Scholar
• Hellström, I., & Torres, S. (2013). A wish to know but not always tell – couples living with dementia talk about disclosure preferences. Aging & Mental Health, 17(2), 157–167.
   PubMed Web of Science ®Google Scholar
• Heritage, J., & Maynard, D.W. (2006). Introduction: Analyzing interaction between doctors and patients in primary care encounters. In J. Heritage & D.W. Maynard (Eds.), Communication in medical care (pp. 1–21) New York, NY: Cambridge University Press.
   Google Scholar
• Heritage, J., & Raymond, G. (2005). The terms of agreement: Indexing epistemic authority and subordination in talk-in-interaction. Social Psychology Quarterly, 68(1), 15–38.
   Web of Science ®Google Scholar
• Iliffe, S., Manthorpe, J., & Eden, A. (2003). Sooner or later? Issues in the early diagnosis of dementia in general practice: A qualitative study. Family Practice, 20(4), 376–81.
   PubMed Web of Science ®Google Scholar
• Kaduszkiewicz, H., Bachmann, C., & van den Bussche, H. (2008). Telling ‘‘the truth’’ in dementia—Do attitude and approach of general practitioners and specialists differ? Patient Education and Counseling, 70, 220–226.
   PubMed Web of Science ®Google Scholar
• Karnieli-Miller, O., Werner, P., Aharon-Peretz, J., & Eidelman, S. (2007). Dilemmas in the (un)veiling of the diagnosis of Alzheimer's disease: Walking an ethical and professional tight rope. Patient Education and Counseling, 67, 307–314.
   PubMed Web of Science ®Google Scholar
• Karnieli-Miller, O., Werner, P., Aharon-Peretz, J., Sinoff, G., & Eidelman, S. (2012a). Expectations, experiences, and tensions in the memory clinic: The process of diagnosis disclosure of dementia within a triad. International Psychogeriatrics, 24, 1756–1770.
   PubMed Web of Science ®Google Scholar
• Karnieli-Miller O., Werner P., Neufeld-Kroszynski G., & Eidelman, S. (2012b). Are you talking to me?! An exploration of the triadic physician–patient–companion communication within memory clinics encounters. Patient Education and Counseling, 88, 381–390.
   PubMed Web of Science ®Google Scholar
• Kissel, E.C., & Carpenter, B.D. (2007). It's all in the details: Physician variability in disclosing a dementia diagnosis. Aging & Mental Health, 11(3), 273–280.
   PubMed Web of Science ®Google Scholar
• Koch, T., Iliffe, S., & EVIDEM-ED Project. (2010). Rapid appraisal of barriers to the diagnosis and management of patients with dementia in primary care: A systematic review. BMC Family Practice, 11, 52. doi:10.1186/1471-2296-11-52
   PubMed Web of Science ®Google Scholar
• Lecouturier, J., Bamford, C., Hughes, J.C., Francis, J.J., Foy, R., Johnson, M., & Eccles, M.P. (2008). Appropriate disclosure of a diagnosis of dementia identifying the key behaviours of ‘best practice’. BMC Health Services Research, 8(95), 1–10.
   PubMed Web of Science ®Google Scholar
• Leung K.K, Finlay J, Silvius J.L, Koehn, S., McCleary, L., Cohen, C.A., … Drummond, N. (2011). Pathways to diagnosis: Exploring the experiences of problem recognition and obtaining a dementia diagnosis among Anglo-Canadians. Health & Social Care in the Community, 19(4), 372–381.
   PubMed Web of Science ®Google Scholar
• Maynard, D.W. (1992). On clinicians co-implicating recipients’ perspectives in the delivery of diagnostic news. In P. Drew & J. Heritage (Eds.), Talk at work (pp. 331–358). Cambridge: Cambridge University Press.
   Google Scholar
• Maynard, D.W., & Frankel, R.M. (2006). On diagnostic rationality: Bad news, good news, and the symptom residue. In J. Heritage & D.W. Maynard (Eds.), Communication in medical care (pp. 248–278). New York, NY: Cambridge University Press.
   Google Scholar
• Maynard, D.W., & Heritage, J. (2005). Conversation analysis, doctor-patient interaction and medical communication. Medical Education, 39(4), 428–435.
   PubMed Web of Science ®Google Scholar
• Moore, V., & Cahill, S. (2013). Diagnosis and disclosure of dementia – a comparative qualitative study of Irish and Swedish General Practitioners. Aging & Mental Health, 17(1), 77–84.
   PubMed Web of Science ®Google Scholar
• Peel, E. (2014). ‘The living death of Alzheimer's’ versus ‘take a walk to keep dementia at bay’: Representations of dementia in print media and carer discourse. Sociology of Health and Illness, 36(6), 885–901.
   PubMed Web of Science ®Google Scholar
• Peel, E., & Harding, R. (2014). “It's a huge maze, the system, it's a terrible maze”: Dementia carers’ constructions of navigating health and social care services. Dementia: The International Journal of Social Research and Practice, 13(5), 642–666.
   Web of Science ®Google Scholar
• Peräkylä, A. (1998). Authority and accountability: The delivery of diagnosis in primary health care. Social Psychology Quarterly, 61, 301–320.
   Web of Science ®Google Scholar
• Peräkylä, A. (2002). Agency and authority: Extended responses to diagnostic statements in primary care encounters. Research on Language & Social Interaction, 35(2), 219–247.
   Web of Science ®Google Scholar
• Peräkylä, A. (2006). Communicating and responding to diagnosis. In J. Heritage & D.W. Maynard (Eds.), Communication in medical care (pp. 214–247). New York, NY: Cambridge University Press.
   Google Scholar
• Prince, M., Knapp, M., Guerchet, M., McCrone, P., Prina, M., Comas-Herrera, A., … Salimkumar, D. (2014). Dementia UK (2nd ed.). London: Alzheimer's Society.
   Google Scholar
• Sakai, E.Y., & Carpenter, B. D. (2011). Linguistic features of power dynamics in triadic dementia diagnostic conversations. Patient Education and Counseling, 85, 295–298.
   PubMed Web of Science ®Google Scholar
• Schegloff, E.A., & Lerner, G.H. (2009). Beginning to respond: Well-prefaced responses to wh-questions. Research on Language & Social Interaction, 42(2), 91–115.
   Web of Science ®Google Scholar
• St Clair Tullo, E., Lee, R.P., Robinson, L., & Allan, L. (2014). Why is dementia different? Medical students’ views about deceiving people with dementia. Aging & Mental Health. doi:10.1080/13607863.2014.967173
   Web of Science ®Google Scholar